How Do People with Intellectual Disabilities and Diabetes Experience and Perceive their Illness?
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Introduction Diabetes is a significant health problem amongst people with intellectual disabilities, yet there is a lack of qualitative literature looking specifically at their experiences and perceptions of living with this chronic illness. Method Using Interpretative Phenomenological Analysis, this study explored the experiences and perceptions of four people with intellectual disabilities and diabetes. Results Results showed that participants demonstrated some knowledge of the language surrounding diabetes, but considerable confusion and uncertainty about their illness. The impact of diabetes was described in terms of physical, emotional and social consequences, and participants spoke of diabetes in the context of co‐existing health problems. Conclusions People with intellectual disabilities and diabetes face many challenges when perceiving and coping with their illness. Gaining insight into these challenges could help health professionals work together more effectively and provide appropriate support to people with intellectual disabilities and diabetes.
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Some studies were limited to urban areas as opposed to rural areas, which may pose different healthcare barriers.
“Some studies were limited to urban areas as opposed to rural areas, which may pose different healthcare barriers.81,82”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [81]
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- Authors
- Dysch, C., Chung, M. C., & Fox, J.
- Affiliations
- Zayed University (AE)
- Somerset Partnership NHS Foundation Trust (GB)
- ORCID
- Chung, Man Cheung
- Venue
- Journal of Applied Research in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2011-08-23
- Volume
- 25
- Issue
- 1
- Pages
- 39-49
- ISSN
- 0952-9608 (ISSN-L)
- 1360-2322
- 1468-3148
- OpenAlex
- W2014283288
- Cited by
- 36
- References
- 26
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 2 · 2022: 1 · 2021: 1 · 2020: 4 · 2019: 6 · 2018: 8 · 2017: 1 · 2016: 1 · 2015: 6 · 2014: 1 · 2013: 1
- FWCI
- 0.63
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Applied Research in Intellectual Disabilities (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Social Sciences › Sociology and Political Science › Inclusion and Disability in Education and Sport
- Keywords
- intellectual disability, diabetes mellitus, illness experience, illness perception, chronic disease, illness uncertainty, emotional impact of illness, social impact of illness, comorbidities, coping with illness, health worker support
- MeSH terms
- Adult, Diabetes Mellitus, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Intellectual Disability, Middle Aged, Comorbidity, Qualitative Research
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