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Cited by 357Epilepsy research and treatmentMental Health Treatment and AccessHealth Literacy and Information Accessibility

The DOI matches its Crossref record; 40 of the 40 references it cites were found in a registry or an index.

The Stigma of Epilepsy: A European Perspective

Open access
Baker, Gus A., Brooks, Jayne, Buck, Debbie, Jacoby, Ann·2000·Epilepsia
DOI 10.1111/j.1528-1157.2000.tb01512.x
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Abstract

PURPOSE: To study the stigma of epilepsy in a European sample. METHODS: Clinical and demographic details and information about patient-perceived stigma was collected by using self-completed questionnaires mailed to members of epilepsy support groups. RESULTS: Stigma data were collected from >5,000 patients living in 15 countries in Europe. Fifty-one percent reported feeling stigmatised, with 18% reporting feeling highly stigmatised. High scores were correlated with worry, negative feelings about life, long-term health problems, injuries, and reported side effects of antiepileptic drugs (AEDs). Cross-cultural comparisons revealed significant differences between countries. A multivariate analysis identified impact of epilepsy, age of onset, country of origin, feelings about life, and injuries associated with epilepsy as significant contributors on scores on the stigma scale. CONCLUSIONS: This study confirms the findings of previous studies that have identified the importance of both clinical and nonclinical factors in understanding the stigma of epilepsy. The results of cross-cultural differences require further explanation, and much more research should be conducted to reduce the stigma associated with epilepsy.

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Crossref · 10.1111/j.1528-1157.2000.tb01512.x

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Citations

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Research works printed but not linked: 10

  1. Baker GA., 1992, The initial development of a disease‐specific health‐related quality of life model as an outcome measure for patients with intractable epilepsy
  2. Betts TA., 1992, A text‐book of epilepsy
  3. Jacoby A, 1997, Cross cultural differences in quality of life among people with epilepsy, Epilepsia, 38, 282
  4. Herman BP, 1986, Psychopathology in epilepsy: social dimensions
  5. Mittan RJ, 1986, Fear of seizures: epilepsy's forgotten symptom, Urban Health, 11, 30
  6. 10.1192/bjp.156.1.98 · DOI
  7. Goldberg DP., 1978, Manual of the general health questionnaire
  8. SPSS Inc. SPSS, 1993, base system user's guide for SPSS
  9. West P., 1981, Perspectives on epilepsy 80/81, 3
  10. Baker GA, 1994, Initial development, reliability and validity of a patient‐based adverse drug event scale [Abstract], Epilepsia, 35, 20

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Metadata

Authors
Baker, G. A., Brooks, J., Buck, D., & Jacoby, A.
Affiliations
  • Walton Centre (GB)
  • Newcastle University (GB)
Corresponding author
Baker, Gus A.
ORCID
Baker, Gus A.
Venue
Epilepsia
Publisher
Wiley
Published
2000-12
Volume
41
Issue
1
Pages
98-104
ISSN
  • 0013-9580 (ISSN-L)
  • 1528-1167
DOI
10.1111/j.1528-1157.2000.tb01512.x
OpenAlex
W2136689353
Cited by
357
References
40
Citations by year
2026: 5 · 2025: 10 · 2024: 13 · 2023: 12 · 2022: 11 · 2021: 13 · 2020: 19 · 2019: 12 · 2018: 19 · 2017: 17 · 2016: 22 · 2015: 22 · 2014: 25 · 2013: 18 · 2012: 18
FWCI
5.41
Type
journal article
Language
en
Open access
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor, 1705 d)
Locations
  • Epilepsia (publishedVersion)
  • PubMed (publishedVersion)
  • Research Explorer (The University of Manchester) (publishedVersion)
  • Newcastle University ePrints (Newcastle Univesity)
Topics
  • Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
  • Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
  • Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Keywords
epilepsy, stigma, cross-cultural comparison, age of onset, antiepileptic drug adverse effects, quality of life, stigma reduction
MeSH terms
Adolescent, Adult, Aged, Cross-Cultural Comparison, Epilepsy, Europe, Female, Humans, Male, Middle Aged, Surveys and Questionnaires, Regression Analysis, Self-Help Groups, Stereotyping

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