Service user engagement: a co-created interview schedule exploring mental health recovery in young adults
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AIM: The aim of this study was to co-create of an interview schedule exploring mental health recovery in collaboration with young adult service users. BACKGROUND: Service user involvement in research has been increasingly recognized as providing a vital authentic insight into mental health recovery. Engagement and collaboration with service users have facilitated the exploration of inaccessible or under-investigated aspects of the lived experience of mental health recovery, not only directing the trajectory of research, but making it relevant to their own contextual experience. DESIGN: A qualitative content analysis framework was employed in the co-creation of a semi-structured interview schedule through an engagement process with service users. METHODS: Two separate engagement groups took place at the premises of the service user organizations, between January - February 2014. Miles and Huberman's analysis framework was chosen for this phase as it enabled the visual presentation of factors, concepts or variables and the established relationship between them. RESULTS: The lived experience of mental ill health in young adulthood and how this was understood by others was a particularly relevant theme for participants. Further themes were identified between the impact of painful experiences at this developmental life stage leading to a deeper understanding of others through finding meaning in their own mental health recovery journey. CONCLUSION: Our findings identified that suffering painful experiences is an integral aspect in the process of mental health recovery. This understanding has particular relevance to mental health nursing practice, ensuring the care delivered is cognizant of the suffering or painful experiences that young adults are encountering.
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Cites
Qualitative Inquiry and Research Design: Choosing Among Five Approaches
Lewis, S. (2015) · Health Promotion Practice · doi:10.1177/1524839915580941 · Cited by 22,105 · see citing works
Nursing Research Generating and Assessing Evidence for Nursing Practice
Timmins, F. (2013) · Nurse Education in Practice · doi:10.1016/j.nepr.2013.04.001 · Cited by 5,505 · see citing works
An Expanded Sourcebook Qualitative Data Analysis
Miles, M. B., & Huberman, A. M. (1994) · Cited by 3,222 · see citing works
Mental health of young people: A global public-health challenge
Patel, V., Flisher, A. J., Hetrick, S., & McGorry, P. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60368-7 · Cited by 3,126 · see citing works
Strategies Of Qualitative Inquiry
Denzin, N. K., & Lincoln, Y. S. (2012) · Cited by 2,833 · see citing works
Methodological rigour within a qualitative framework
Tobin, G. A., & Begley, C. M. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03207.x · Cited by 1,601 · see citing works
Recovery: the lived experience of rehabilitation
Deegan, P. E. (1988) · Psychosocial Rehabilitation Journal · doi:10.1037/h0099565 · Cited by 1,541 · see citing works
Nursing research: principles, process and issues
(1997) · Emergency Nurse · doi:10.7748/en.5.5.7.s14 · Cited by 1,247 · see citing works
Mental illness and well-being: the central importance of positive psychology and recovery approaches
Slade, M. (2010) · BMC Health Services Research · doi:10.1186/1472-6963-10-26 · Cited by 754 · see citing works
What about N? A methodological study of sample-size reporting in focus group studies
Carlsen, B., & Glenton, C. (2011) · BMC Medical Research Methodology · doi:10.1186/1471-2288-11-26 · Cited by 670 · see citing works
Davidson, L., & Roe, D. (2007) · Journal of Mental Health · doi:10.1080/09638230701482394 · Cited by 582 · see citing works
An analysis of the definitions and elements of recovery: A review of the literature.
Onken, S. J., Craig, C. M., Ridgway, P., Ralph, R. O., & Cook, J. Α. (2007) · Psychiatric Rehabilitation Journal · doi:10.2975/31.1.2007.9.22 · Cited by 483 · see citing works
Living outside mental illness: qualitative studies of recovery in schizophrenia
Davidson, L. (2004) · Choice Reviews Online · doi:10.5860/choice.41-3110 · Cited by 462 · see citing works
The illness narratives: Suffering, healing and the human condition
Merskey, H. S. (1989) · Pain · doi:10.1016/0304-3959(89)90122-x · Cited by 423 · see citing works
From passive subjects to equal partners
Trivedi, P., & Wykes, T. (2002) · The British Journal of Psychiatry · doi:10.1192/bjp.181.6.468 · Cited by 281 · see citing works
Researching recovery from psychosis: a user-led project
Pitt, L., Kilbride, M., Nothard, S., Welford, M., & Morrison, A. P. (2007) · Psychiatric Bulletin · doi:10.1192/pb.bp.105.008532 · Cited by 228 · see citing works
Comment: Concerns in the Analysis of Focus Group Data
Carey, M. A. (1995) · Qualitative Health Research · doi:10.1177/104973239500500409 · Cited by 226 · see citing works
Mancini, M. A., Hardiman, E. R., & Lawson, H. A. (2005) · Psychiatric Rehabilitation Journal · doi:10.2975/29.2005.48.55 · Cited by 214 · see citing works
Owen, S. (2001) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.2001.02030.x · Cited by 164 · see citing works
Adame, A. L., & Knudson, R. M. (2007) · Narrative Inquiry · doi:10.1075/ni.17.2.02ada · Cited by 96 · see citing works
Recovery: what mental health nurses and service users say about the concept of recovery
Aston, V., & Coffey, M. (2011) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2011.01776.x · Cited by 83 · see citing works
Kogstad, R. E., Ekeland, T., & Hummelvoll, J. K. (2011) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2011.01695.x · Cited by 69 · see citing works
Reshaping an enduring sense of self: the process of recovery from a first episode of schizophrenia
Romano, D. M., McCay, E. A., Goering, P. N., Boydell, K., & Zipursky, R. B. (2010) · Early Intervention in Psychiatry · doi:10.1111/j.1751-7893.2010.00187.x · Cited by 53 · see citing works
Adolescents with anxiety and depression: is social recovery relevant?
Simonds, L. M., Pons, R. A., Stone, N. J., Warren, F., & John, M. (2014) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.1841 · Cited by 48 · see citing works
Mental Health, Service User Involvement and Recovery
Dyer, L. (2010) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2010.01569.x · Cited by 42 · see citing works
Concept analysis of recovery in mental illness in young adulthood
McCauley, C. O., McKenna, H., Keeney, S., & McLaughlin, D. F. (2015) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.12245 · Cited by 32 · see citing works
Reconnecting with life: a grounded theory study of mental health recovery in Ireland
Kartalova‐O’Doherty, Y., Stevenson, C., & Higgins, A. (2012) · Journal of Mental Health · doi:10.3109/09638237.2011.621467 · Cited by 28 · see citing works
Working together: Service Users and researchers in Psychosis research
Neil, S. T., Price, J., Pitt, L., Welford, M., Nothard, S., Sellwood, W., Mulligan, J., & Morrison, A. P. (2012) · Psychosis · doi:10.1080/17522439.2012.704931 · Cited by 19 · see citing works
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Bentley, N., Hartley, S., & Bucci, S. (2019) · Clinical Child and Family Psychology Review · doi:10.1007/s10567-018-00273-x · Cited by 71 · see citing works
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Norton, M. J. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182211897 · Cited by 60 · see citing works
Syan, A., Lam, J. Y.-Y., Huang, C., Smith, M. S. M., Darnay, K., Hawke, L. D., & Henderson, J. L. (2021) · Health Expectations · doi:10.1111/hex.13214 · Cited by 16 · see citing works
Lauckner, H. M., Litwiller, F., Gallant, K. A., White, C. M., & Taylor, K. (2018) · Scandinavian Journal of Occupational Therapy · doi:10.1080/11038128.2018.1502347 · Cited by 13 · see citing works
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Bibb, J., Castle, D. J., & McFerran, K. S. (2018) · Mental Health Review Journal · doi:10.1108/mhrj-12-2017-0056 · Cited by 10 · see citing works
Juan, N. V. S., Gronholm, P. C., Heslin, M., Lawrence, V. C., Bain, M., Okuma, A., & Evans-Lacko, S. E. (2021) · medRxiv · doi:10.1101/2021.05.13.21257172 · Cited by 10 · see citing works
McCauley, C. O., McKenna, H., Keeney, S., & McLaughlin, D. F. (2020) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.12728 · Cited by 8 · see citing works
Storm, I. M. S., Mikkelsen, A. K. K., Holen, M., Hybholt, L., Austin, S. F., & Berring, L. L. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20176653 · Cited by 7 · see citing works
Validating a Behavioral Health Instrument for Adults: Exploratory Factor Analysis
Walton, B. A., & Kim, H. (2018) · Journal of Social Service Research · doi:10.1080/01488376.2018.1442897 · Cited by 6 · see citing works
Fox, J. (2020) · Mental Health Review Journal · doi:10.1108/mhrj-11-2019-0040 · Cited by 5 · see citing works
Shimizu, R., Bessaha, M. L., Moore, K. L., Ben‐David, S., Rodwin, A. H., & Munson, M. R. (2024) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2024.09.021 · Cited by 4 · see citing works
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Zhang, Y., Hillman, S., Pereira, M. R., Anderson, K., & Cross, R. M. (2025) · Frontiers in Psychology · doi:10.3389/fpsyg.2025.1478372 · Cited by 2 · see citing works
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- Authors
- McCauley, C., McKenna, H., Keeney, S., & McLaughlin, D.
- Affiliations
- University of Ulster (GB)
- Corresponding author
- McCauley, Claire‐Odile
- Venue
- Journal of Advanced Nursing
- Publisher
- Wiley
- Published
- 2017-05-11
- Volume
- 73
- Issue
- 10
- Pages
- 2361-2372
- ISSN
- 0309-2402 (ISSN-L)
- 1365-2648
- OpenAlex
- W2604250355
- Cited by
- 16
- References
- 28
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 1 · 2021: 5 · 2020: 3 · 2019: 1 · 2018: 4
- FWCI
- 3.55
- Type
- journal article
- Language
- en
- Open access
- green
- pure.ulster.ac.uk
- Licence
- Locations
- Journal of Advanced Nursing (publishedVersion)
- PubMed (publishedVersion)
- Ulster University Research Portal (Ulster University) (publishedVersion, other-oa)
- Funders
- Northern Ireland Assembly's Department of Education and Learning
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Keywords
- mental health recovery, young adults, service user engagement, meaning-making, psychiatric nursing practice
- MeSH terms
- Adult, Mental Disorders, Humans, Interviews as Topic, Northern Ireland, Reproducibility of Results, Young Adult
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