The DOI matches its Crossref record; 2 of the 2 references it cites were found in a registry or an index.
Transition from school to adult services for young people with severe or profound intellectual disability: A systematic review utilizing framework synthesis
Abstract
Background: The transition to adulthood has been described as a difficult time in the lives of young people with intellectual disability. There has been little emphasis on young people with severe or profound intellectual disability specifically, even though their pathways may differ, due to greater support needs across the life course. Methods: A systematic review was conducted utilising Bronfenbrenner's ecological model to inform framework analysis to synthesise qualitative findings. Results: Taking an ecological perspective proved valuable. The transition process was described as stressful and barriers were identified across the ecological levels. Parents accounted for the majority of participants in studies, and the needs of young people and their parents emerged as highly interdependent. Conclusion: Themes reflect the complex nature of the question what adulthood should look like for individuals with severe or profound intellectual disability. There is a lack of involvement of multiple stakeholders and young people themselves within studies.
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Young adults with intellectual disability (ID) are an underserved population.
“Young adults with intellectual disability (ID) are an underserved population with a high prevalence of obesity, obesity-related health conditions, and reduced ability to complete instrumental and basic activities of daily living (I/ADLs).”
From A cooking skills intervention for long-term weight loss in young adults with intellectual disabilities: Rationale and design for a randomized trial (2026) · cites this paper as [8]
The Background describes little research emphasis on young people with severe or profound intellectual disability, and the Results identify barriers during their transition to adult services. This supports an underserved characterization for that subgroup in the transition context, but not for all young adults with intellectual disability. (LLM, conf=0.79)
Experimental — accuracy not yet measuredYoung adults with ID have a high prevalence of obesity.
“Young adults with ID represent an underserved segment of the population with a high prevalence of obesity and a high risk of excess weight gain7,8.”
From A cooking skills intervention for long-term weight loss in young adults with intellectual disabilities: Rationale and design for a randomized trial (2026) · cites this paper as [8]
The indexed passages describe a review of the transition from school to adult services for young people with severe or profound intellectual disability. Searches for obesity prevalence, overweight, and excess weight gain found no passage addressing the claimed high prevalence of obesity. (LLM, conf=0.70)
Experimental — accuracy not yet measuredYoung adults with ID have a high risk of excess weight gain.
“Young adults with ID represent an underserved segment of the population with a high prevalence of obesity and a high risk of excess weight gain7,8.”
From A cooking skills intervention for long-term weight loss in young adults with intellectual disabilities: Rationale and design for a randomized trial (2026) · cites this paper as [8]
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Citations
Cites
The Ecology of Human Development: Experiments by Nature and Design
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Carroll, C., Booth, A., & Cooper, K. (2011) · BMC Medical Research Methodology · doi:10.1186/1471-2288-11-29 · Cited by 461
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Cited by
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Ptomey, L. T., Danon, J. C., Catley, D., Washburn, R. A., Bodde, A., Diaz, F. J., Helsel, B. C., Rice, A. M., Sherman, J. R., Koester, M., et al. (2026) · Contemporary Clinical Trials · doi:10.1016/j.cct.2026.108380
Metadata
- Authors
- Jacobs, P., MacMahon, K., & Quayle, E.
- Affiliations
- Clinical Psychology School of Health in Social Science University of Edinburgh, Medical School Edinburgh EH8 9AG UK
- Venue
- Journal of Applied Research in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2018-06-22
- Volume
- 31
- Issue
- 6
- Pages
- 962-982
- ISSN
- 1360-2322
- 1468-3148
- Cited by
- 36
- References
- 2
- Language
- en
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