Editorial: The rising prevalence of autism
Abstract
The first autism surveys were simple head counts of children already diagnosed with a severe autism phenotype and residing in small, circumscribed geographical areas. Prevalence was low, ranging from 0.4 to 2/1,000 in the 1960's and 1970's. Today, the methodology of surveys has become more complex; studies include large populations, multiple sites, stratified samples and rely on intricate sets of screening activities followed by some form of diagnostic confirmation procedures. Yet, and as surprising as it may be, there is no standardization of autism survey methodology. Each survey has unique design features that reflect the local educational and health services infrastructure and current social policies for children with disabilities, they include or not parents, teachers and subjects with Autism Spectrum Disorder ( ASD ), and rely on variable screening and diagnostic instruments and methods. As such, prevalence differences between studies are hazardous to evaluate and whether observed discrepancies are due to method factors or true differences in population parameters, cannot be determined.
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Because records-review surveillance does not involve direct assessment or caregiver interview, it could rely on mechanical rules lacking clinical judgment and overestimate ASD prevalence.
“Nevertheless, since this design does not involve a direct assessment of a child and a direct interview with a child’s caregivers, this design could rely on mechanical rules in the interpretation of available records, lacking clinical judgment and, as a result, overestimate prevalence estimates of ASD (54, 55).”
From The global prevalence of autism spectrum disorder: A three-level meta-analysis (2023) · cites this paper as [54]
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Segen oder Fluch? Das Internet als Informationsquelle über Autismus und Asperger-Syndrom
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Zinc ion dyshomeostasis in autism spectrum disorder
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- Authors
- Fombonne, E.
- Corresponding author
- Fombonne, Eric
- ORCID
- Fombonne, Eric
- Venue
- Journal of Child Psychology and Psychiatry
- Publisher
- Wiley
- Published
- 2018-06-19
- Volume
- 59
- Issue
- 7
- Pages
- 717-720
- ISSN
- 0021-9630 (ISSN-L)
- 1469-7610
- OpenAlex
- W2808881490
- Cited by
- 205
- References
- 14
- Citations by year
- 2026: 18 · 2025: 22 · 2024: 19 · 2023: 26 · 2022: 25 · 2021: 31 · 2020: 37 · 2019: 20 · 2018: 5
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Child Psychology and Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute of Mental Health
- Simons Foundation
- National Research Foundation
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- autism prevalence, autism spectrum disorder, methodological bias, children with disabilities
- MeSH terms
- Autism Spectrum Disorder, Health Surveys, Humans, Prevalence
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