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Unmet Needs of Community‐Residing Persons with Dementia and Their Informal Caregivers: Findings from the Maximizing Independence at Home Study
Open accessAbstract
Objectives: To determine the prevalence and correlates of unmet needs in a sample of community‐residing persons with dementia ( PWD ) and their informal caregivers. Design: Analysis of cross‐sectional, baseline participant characteristics before randomization in a care coordination intervention trial. Setting: Baltimore, Maryland. Participants: Community‐residing PWD (n = 254) and their informal caregivers (n = 246). Measurements: In‐home assessments of dementia‐related needs based on the Johns Hopkins Dementia Care Needs Assessment. Bivariate and multivariate regression analyses were conducted to identify demographic, socioeconomic, clinical, functional, and quality‐of‐life correlates of unmet needs. Results: The mean number of unmet needs was 7.7 ± 4.8 in PWD and 4.6 ± 2.3 in caregivers, with almost all PWD (99%) and caregivers (97%) having one or more unmet needs. Unmet needs in PWD were significantly greater in those with higher cognitive function. Ninety percent of PWD had unmet safety needs, more than half had unmet needs for meaningful activities, and almost one‐third had not received a prior evaluation or diagnosis. Higher unmet needs in PWD was significantly associated with nonwhite race, lower income, less impairment in activities of daily living, and more symptoms of depression. For caregivers, more than 85% had unmet needs for resource referrals and caregiver education. Higher unmet caregiver needs was significantly associated with nonwhite race, less education, and more symptoms of depression. Conclusion: Many community‐residing PWD and their caregivers have unmet dementia‐related needs for care, services, and support. Providers should be aware that unmet needs may be higher in minority and low‐income community residents, caregivers with lower education, and individuals with early‐stage dementia. Identifying and treating symptoms of depression in PWD and caregivers may enable them to address their other unmet needs.
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“Furthermore, unmet needs may contribute to a higher likelihood of institutionalization, placing additional strain on both healthcare systems and family caregivers [5, 6].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [5]
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“More severe neuropsychiatric symptoms predicting more unmet needs have been extensively reported [5, 29].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [5]
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“To assess the need for care, we used the translated and adapted Brazilian Portuguese version [15] of the Johns Hopkins Dementia Care Needs Assessment (JHDCNA, 2.0) [5, 6].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [5]
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Items 201–300 of 334
Platen, M., Hoffmann, W. U., Rädke, A., Scharf, A., Mohr, W., Mühlichen, F., & Michalowsky, B. (2022) · Journal of Alzheimer s Disease Reports · doi:10.3233/adr-220045 · Cited by 6
Association of Dementia Severity and Caregiver Support With Early Discharge From Home Health
Knox, S., Haas, A. M., Downer, B. G., & Ottenbacher, K. J. (2022) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/15333175221129384 · Cited by 6
“Prior research has identified that 90% of people with ADRD had unmet caregiving needs related to safety, including fall risk andwander risk.(44) Patient safety concerns may factor into discharge decisions for patients with ADRD who have unmet caregiver needs in a way that they do not for patients who have adequate car…”
BackgroundKnowledge, Practice and Needs of Caregiver in the Care of Older People: A Review
Ghani, N. N. A., Makhtar, A., Elias, S. M. S., Ahmad, N. B., & Ludin, S. M. (2022) · INTERNATIONAL JOURNAL OF CARE SCHOLARS · doi:10.31436/ijcs.v5i3.269 · Cited by 6
Xanthopoulou, P., Dooley, J., MEO, I., Bass, N. J., & McCabe, R. (2018) · Ageing and Society · doi:10.1017/s0144686x18000247 · Cited by 6
Factors Influencing Unmet Healthcare Needs among the Elderly with Cognitive Impairment in Korea
Kim, D. E., & Ahn, S. (2020) · Journal of Korean Academy of Nursing Administration · doi:10.11111/jkana.2020.26.2.100 · Cited by 6
“본 연구에서 소인 요인으 로는 성별, 연령, 교육 연수, 취업 여부, 독거 여부, 사회활동 개 수, 가능 요인으로는 가족의 간병 또는 병원 동행 도움 여부, 가 깝게 지내는 친인척 수, 가깝게 지내는 친구 수, 의료급여 수급 권자 여부, 연간 총 소득 금액, 필요 요인으로는 주관적 건강상 태, 총 만성질환 수, 일상생활 수행능력, 우울 증상 유무를 포함 하였다[4,5,7,16,18,20].”
InfluentialMaking the Case for Centralized Dementia Care Through Adaptive Reuse in the Time of COVID-19
Roberts, E. R., & Carter, H. C. (2020) · INQUIRY The Journal of Health Care Organization Provision and Financing · doi:10.1177/0046958020969305 · Cited by 6
Kumar, G. S., Thomas, P. T., Arun, M., Mohandas, R. P., Arshad, F., & Alladi, S. (2025) · Indian Journal of Palliative Care · doi:10.25259/ijpc_362_2024 · Cited by 5
“[13] Unmet dementia-related advanced care demands put a person at higher risk for negative outcomes, [14] worse quality of life, [15] placement in a nursing home and even death.”
Kim, J., Li, Y., Park, S., Kim, H., & Kim, Y. (2025) · Aging and Health Research · doi:10.1016/j.ahr.2025.100237 · Cited by 6
Pélichy, E. G. D., Ebbing, K., Queirós, A. M., Hanon, C., von Gunten, A., Sellah, Z., & Verloo, H. (2018) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000493525 · Cited by 4
Screening for Dementia among Adults with Intellectual Disability: Outcomes from a Pilot Study
Holingue, C., Wise, E. A., Caoili, A., Klein, A., Kalb, L. G., & Beasley, J. (2021) · Journal of Mental Health Research in Intellectual Disabilities · doi:10.1080/19315864.2021.1965270 · Cited by 5
“…decline and deterioration in functioning, mitigate neuropsychiatric symptoms, and improve quality of life for the individual and their caregivers (Black et al., 2013; Callahan et al., 2006; Cations et al., 2018; Laver et al., 2016; Lyketsos et al., 2006; Samus et al., 2014; Schwarz et al., 2012;…”
BackgroundNeeds Detection for Carers of Family Members with Dementia
Garriga, O. T., Fernández-Adarve, M. D. M., & Monreal‐Bosch, P. (2021) · Healthcare · doi:10.3390/healthcare10010045 · Cited by 5
“Limitations The literature contemplates different ways of approaching the management of the needs of carers although there is no single measure to do so, and there is no consensual instrument to determine these needs or which areas it should include [23,41].”
BackgroundKing, K., & Azab, M. (2024) · Lecture notes in computer science · doi:10.1007/978-3-031-61546-7_23 · Cited by 5
Leff, B. A., & Stevenson, D. G. (2021) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2021.05.004 · Cited by 5
Moermans, V., Bleijlevens, M. H. C., Verbeek, H., Passos, V. L., Milisen, K., & Hamers, J. P. H. (2022) · Geriatric Nursing · doi:10.1016/j.gerinurse.2022.07.009 · Cited by 5
African-American caregivers’ perspectives on aggressive behaviors in dementia
Hansen, B. R., Hodgson, N. A., & Gitlin, L. N. (2018) · Dementia · doi:10.1177/1471301218765946 · Cited by 5
“The results in our study, which suggest that these caregivers were experiencing unmet needs themselves while providing care for the person with dementia, are supported by research by Black et al. (2013) and Hughes et al.”
InfluentialNovais, T., Mouchoux, C., Kossovsky, M. P., Winterstein, L., Delphin‐Combe, F., Krolak‐Salmon, P., & Dauphinot, V. (2018) · BMC Health Services Research · doi:10.1186/s12913-018-3826-y · Cited by 9
Synthesis of the Literature: Variables Influencing Caregiver Use or Nonuse of Supportive Services
Childers, K. M. (2019) · SAGE Open Nursing · doi:10.1177/2377960819838411 · Cited by 7
Unmet service needs evaluated by case managers among disabled patients on hemodialysis in Japan
Sugisawa, H., Shinoda, T., Shimizu, Y., Kumagai, T., Sugisaki, H., & Ohira, S. (2018) · International Journal of Nephrology and Renovascular Disease · doi:10.2147/ijnrd.s152606 · Cited by 5
Rojas‐Rozo, L., Lee, L. S., Khanassov, V., Sivananthan, S., Ismail, Z., Gauthier, S. G., & Vedel, I. (2023) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s0714980823000521 · Cited by 4
“It is thus essential to present the latest recommendations from the fifth CCCDTD (CCCTDT5) in a format that is relevant and usable to Canadian primary care practitioners (Black et al., 2013; Khanassov, Rojas-Rozo, Sourial, Yang, & Vedel, 2021).”
Read, S., Hu, B., Dixon, J., Brimblecombe, N., Wittenberg, R., Brayne, C., & Banerjee, S. (2022) · Aging & Mental Health · doi:10.1080/13607863.2021.2017846 · Cited by 4
“One study used both activities of daily living (ADL) and instrumental ADL (IADL) and found that people with dementia who had more unmet needs had fewer ADL limitations (Black et al., 2013).”
InfluentialHenning, E., Rädke, A., Michalowsky, B., Lücker, P., Biedenweg, B., Buchholz, M., Drewelow, E., Wollny, A., Zorn, D., Altiner, A., et al. (2022) · Das Gesundheitswesen · doi:10.1055/a-1690-6569 · Cited by 4
Models and Interventions for Informal Caregiving in Later Life
O’Malley, K. A., Qualls, S. H., & Jacobs, M. L. (2020) · Elsevier eBooks · doi:10.1016/b978-0-12-818697-8.00031-5 · Cited by 4
Sharp, R. A., Phillips, K. J., & Brand, D. (2023) · Autism and child psychopathology series · doi:10.1007/978-3-031-19964-6_67 · Cited by 5
Creating Technologies with People Who have Dementia
Astell, A. J. (2019) · Human-computer interaction series · doi:10.1007/978-3-030-06076-3_2 · Cited by 4
Hovland, C. A. (2019) · Journal of Applied Gerontology · doi:10.1177/0733464819884267 · Cited by 4
“While leading professional organizations (Alzheimer’s Association and the National Academies of Sciences, Engineering, and Medicine) have highlighted the need to provide caregivers appropriate education and information on the disease process and care (Black et al., 2013; Fazio et al., 2018; Schulz & Eden, 2016), those…”
BackgroundPreparedness of representatives for people with dementia in a self-directed program
Mahoney, E. K., Simon‐Rusinowitz, L., Loughlin, D. M., Ruben, K., & Mahoney, K. J. (2018) · Journal of Gerontological Social Work · doi:10.1080/01634372.2018.1500965 · Cited by 4
“They require increasing levels of assistance as the disease progresses and have unmet dementia-related needs for care, services, and support (Black et al., 2013; National Academies of Sciences, Engineering, and Medicine [NAS], 2016).”
BackgroundPiloting the MIND at Home Dementia Care Navigation Program in primary care
Ciemins, E. L., Shields, S. A., Amjad, H., McKinnon, M., Reuland, M., Yang, M., & Samus, Q. M. (2025) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.70170 · Cited by 3
Self-citationZhang, J., Xu, X., Zhang, X., Yin, Y., & Wang, J. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-03846-w · Cited by 3
“Moreover, another study reported that 58% of people with CI had unmet needs in advance care planning [16].”
BackgroundWatson, J. B., Green, M. A., Giebel, C. M., & Akpan, A. (2024) · BMC Geriatrics · doi:10.1186/s12877-024-04744-5 · Cited by 3
“While no two PLWD are the same and their experiences will depend on their specific needs [61], there are collective similarities in experiences of health-care [62, 63].”
BackgroundScharf, A., Kleinke, F., Michalowsky, B., Rädke, A., Pfitzner, S., Mühlichen, F., Buchholz, M., van den Berg, N., & Hoffmann, W. U. (2024) · Journal of Alzheimer s Disease · doi:10.3233/jad-231173 · Cited by 3
“Literature shows that unmet needs of PlwD are affected by a variety of factors [12–14 , 17].”
BackgroundResultInfluentialThe Development of Community Eldercare in Shanghai
Chen, L., & Ye, M. (2020) · Springer eBooks · doi:10.1007/978-981-15-4960-1_3 · Cited by 3
Vidyanti, A. N., Putri, G. F. S., Fauzi, A. R., Nafiati, R., Prodjohardjono, A., & Effendy, C. (2022) · Geriatrics · doi:10.3390/geriatrics7050099 · Cited by 3
“The restricted activities are due to the limitations of their physical and cognitive abilities, and these may lead to higher risk of frustration, anger, and agitation in PWD [17,18].”
BackgroundOtt, S. D., Cheema, S. K., Ryder, A., Schatz, P., González, L. A., Duran, J., & Schulz, P. E. (2022) · Applied Neuropsychology Adult · doi:10.1080/23279095.2022.2145892 · Cited by 3
“…as much information as possible from this particular population, the sample size is consistent with those used in similar studies examining the unmet needs of caregivers of persons living with forms of dementia (Black et al., 2013; Clipp & George, 1990; Hughes et al., 2014; Jennings et al., 2015).”
Adaptive Reuse of Closed Malls for Dementia Programs and Services: Community Focus Group Feedback
Roberts, E. R., & Carter, H. C. (2023) · Springer eBooks · doi:10.1007/978-3-031-20970-3_11 · Cited by 3
Mahomed, A., & Pretorius, C. (2024) · Dementia · doi:10.1177/14713012241234155 · Cited by 3
“Over time, these stressors have been well-documented in the literature as a precursor to caregiver burden as the demands of caregiving increase (Black et al., 2013; Winblad et al., 2016), together with adverse effects on caregiver ’ s psychological, emotional, physical health (Ransmayr et al.,…”
BackgroundCaring for dementia caregivers: How well does social risk screening reflect unmet needs?
Winslow, V. A., Lindau, S. T., Huang, E. S., Asay, S., Johnson, A. E., Soo Borson, B., Thompson, K., & Makelarski, J. A. (2024) · Journal of the American Geriatrics Society · doi:10.1111/jgs.19200 · Cited by 4
Understanding the implementation process of the Adult Day Services Plus program
Cotton, Q. D., Bailey, D., Albers, E., Ingvalson, S., Bloomquist, E., Marx, K., Anderson, K. A., Dabelko‐Schoeny, H., Parker, L. J., Gitlin, L. N., et al. (2025) · BMC Geriatrics · doi:10.1186/s12877-025-05757-4 · Cited by 3
Supporting everyday functioning of people living with dementia: The role of care partners
Gitlin, L. N., & Bruneau, M. L. (2020) · Elsevier eBooks · doi:10.1016/b978-0-12-818685-5.00011-8 · Cited by 3
The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population
Zucca, M., Rubino, E., Vacca, A., Martino, P. D., Caglio, M., Marcinnò, A., Bo, M., & Rainero, I. (2021) · Neurological Sciences · doi:10.1007/s10072-021-05285-0 · Cited by 3
Oyeyemi, D. M., Omer, Z. B., Brown, B., Freimund, J., Gummerson, C. E., Rink, A., Gallant, N., & Marottoli, R. A. (2022) · Patient Education and Counseling · doi:10.1016/j.pec.2022.10.346 · Cited by 3
“While the pandemic has led to disturbances in social networks, healthcare delivery, and community support services for everyone, adults with dementia have been disproportionately affected due to their high level of reliance on these systems [4,15].”
Advancing the Research-to-Policy and Practice Pipeline in Aging and Dementia Care
Wolff, J. L., Peereboom, D., Hay, N., Polsky, D. E., Ornstein, K. A., Boyd, C. M., & Samus, Q. M. (2023) · Public Policy & Aging Report · doi:10.1093/ppar/prac037 · Cited by 3
Self-citationBetini, R. (2017) · UWSpace (University of Waterloo) · Cited by 3
Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges
Bertola, L., da Mata, F., Ramos, A. A., Godoy, C., de Faria, F. M., Lucchetta, R., de Oliveira Junior, H. A., & Ferri, C. P. (2025) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70164 · Cited by 2
Social Engagement and Happiness in Older Adults With and Without Cognitive Impairment
森下, 久. (2024) · Journal of Applied Gerontology · doi:10.1177/07334648241288726 · Cited by 2
“Depression in individuals with dementia may also be associated with unmet needs at home (Black et al., 2013), with many recognizing unmet needs in daily activities (Miranda-Castillo et al., 2010) or meaningful activities (Black et al., 2013).”
Impact of adult day service on long-term care placement: A scoping review
Udeh, K., & Menne, H. L. (2025) · Dementia · doi:10.1177/14713012251334676 · Cited by 2
“As the dementia progresses, these care needs of keeping older adults living with dementia in their community, as well as improving their overall physical and behavioral functionalities, may require them to be placed into a long-term care home (Alzheimer ’ s Association, 2019; Black et al., 2013).”
Jindal, S., Hamiduzzaman, M., Gaffney, H. J., Siddiquee, N. A., & McLaren, H. (2025) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph22071096 · Cited by 2
“Structured discussions and Incorporating family carers into healthcare practices was instrumental in improving quality of care and facilitating patient connections to community resources [36].”
InfluentialNovais, T., Chomel, M., Dauphinot, V., & Mouchoux, C. (2019) · Annales Pharmaceutiques Françaises · doi:10.1016/j.pharma.2019.12.002 · Cited by 3
Yous, M., Ploeg, J., Kaasalainen, S., & McAiney, C. A. (2022) · Research Involvement and Engagement · doi:10.1186/s40900-022-00401-6 · Cited by 2
“This finding reveals the extent to which caregivers continue to seek education and support in caring for older persons with dementia at home and how this area remains an important research priority [5, 57].”
BackgroundJung, D., Jarrin, O. F., Choi, J. H., Knox, S., Emerson, K. G., & Chen, Z. (2024) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2024.105170 · Cited by 2
Examining equity in service use across socioeconomic status in people with dementia
Godard‐Sebillotte, C., Arsenault‐Lapierre, G., Sourial, N., Navani, S., Quesnel‐Vallée, A., Rochette, L., Massamba, V. K., & Vedel, I. (2025) · Alzheimer s & Dementia Behavior & Socioeconomics of Aging · doi:10.1002/bsa3.70006 · Cited by 3
Jones, A. L., & Pastor, D. K. (2017) · Home Healthcare Now · doi:10.1097/nhh.0000000000000514 · Cited by 2
“Black et al. (2013) indicated that 99% of patients and 97% of caregivers had unmet needs, highest among them related to home and personal safety (including fall and wandering management), medical care, and evaluation and care of people with dementias.”
BackgroundBuilding Resilience in Persons with Early-Stage Dementia and Their Care Partners
Matchar, B. G., Gwyther, L. P., Galik, E. M., & Resnick, B. M. (2018) · Springer eBooks · doi:10.1007/978-3-030-04555-5_14 · Cited by 2
Assfaw, A. D., Reinschmidt, K. M., Teasdale, T. A., Stephens, L. D., Kleszynski, K. L., & Dwyer, K. A. (2023) · Home Health Care Services Quarterly · doi:10.1080/01621424.2023.2299486 · Cited by 3
“In terms of resources, caregivers need social and specialized services, respite care, adult day care for PLWD, and culturally competent community-based programs (Abramsohn et al., 2019; Black et al., 2013).”
BackgroundBohlken, J., Rädke, A., Kohlmann, T., Riedel-Heller, S. G., & Rapp, M. A. (2019) · Psychiatrische Praxis · doi:10.1055/a-1060-1880 · Cited by 2
Bertola, L., Mata, F., Ramos, A. A., Oliveira, H., Reuland, M., Deirdre Johnston, M. C., Amjad, H., Samus, Q. M., & Ferri, C. P. (2025) · Aging & Mental Health · doi:10.1080/13607863.2024.2393747 · Cited by 1
“Caregiver’s total unmet needs did not correlate with age but with higher education, as reported with the original instrument (Black et al., 2013) such that higher education was correlated with fewer needs.”
InfluentialSelf-citationMichalowsky, B., Afi, A., Holle, B., Thyrian, J. R., & Hoffmann, W. U. (2022) · Das Gesundheitswesen · doi:10.1055/a-1901-8403 · Cited by 1
McGhan, G. E., McCaughey, D., & Flemons, K. (2023) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s0714980823000119 · Cited by 3
“These findings align with a study by Black et al. (2013), which found that 97 per cent had one or more unmet needs, with 85 per cent of those having unmet needs for resource referrals or caregiver education (such as available home-and community-based resources).”
Wammes, J. D., Laws, H. B., van Hout, H. P. J., Vroomen, J. L. M., & Monin, J. K. (2023) · Aging & Mental Health · doi:10.1080/13607863.2023.2248047 · Cited by 1
“Experiencing unmet needs in persons living with dementia is associated with behavioral problems, depression, and low quality of life (Black et al., 2013; Miranda-Castillo et al., 2010).”
BackgroundTamer, E., Hoover, D. R., McDonald, M. V., Sheldon, K. G., Vasquez, F., Gaibi, M., & Luth, E. A. (2025) · PLoS ONE · doi:10.1371/journal.pone.0332360 · Cited by 2
Layne, D. M., Kelechi, T. J., Milano, N. J., Madisetti, M., & Lindell, K. O. (2026) · Palliative & Supportive Care · doi:10.1017/s1478951525101429 · Cited by 1
“Many PLWD/CG dyads experience unmet needs which vary based on severity of cognitive impairment of the PLWD (Black et al. 2013; Jennings et al. 2017).”
New Models of Healthcare Delivery
Powers, J. S. (2018) · Springer eBooks · doi:10.1007/978-3-319-77057-4_5 · Cited by 1
Roberts, E. R., Kleszynski, K. L., Shehadeh, A., & Carter, H. C. (2020) · Journal of Aging and Environment · doi:10.1080/26892618.2020.1856753 · Cited by 1
“When unable to remain the their home safely, individuals with dementia may need to be institutionalized, leading to many negative outcomes as they become further disconnected from home, family, community and activities with daily meaning (Black et al., 2013).”
BackgroundChapter 8. Dementia and Mild Neurocognitive Disorders
Wise, E. A., & Lyketsos, C. G. (2022) · American Psychiatric Association Publishing eBooks · doi:10.1176/appi.books.9781615375196.ds08 · Cited by 1
Self-citationThe Role of Social Science in Dementia: Biopsychosocial Approaches
Mpofu, E., Zhan, R., Udoh, I. I., Afrin, R., Pomare, Z. S., Chaminuka, A., & Yin, C. (2023) · Springer eBooks · doi:10.1007/978-3-031-25110-8_93 · Cited by 1
Mazzola, P., Zanetti, M., Ferraguzzi, G., Villa, M. L., Sandrini, M. C., Fumagalli, M., Volpi, M., Caggiu, G., Compagnoni, M. M., Mecocci, P., et al. (2023) · Journal of Alzheimer s Disease · doi:10.3233/jad-230229 · Cited by 2
“To this end, approaches such as the person-centered care (PCC) have been developed with the aim of recognizing the uniqueness of each person with dementia, their unmet needs, and factors that trigger BPSD in order to adjust the care and support strategies [8].”
Let home care be the GUIDE : Integrating quality dementia care into existing home care teams
Howe, R. J., Driver, J. A., Ritchie, C. S., McCreedy, E. M., & Sullivan, J. L. (2024) · Journal of the American Geriatrics Society · doi:10.1111/jgs.19237 · Cited by 1
Gitlin, L. N., & Hodgson, N. A. (2018) · Elsevier eBooks · doi:10.1016/b978-0-12-811928-0.00005-3 · Cited by 1
Lindquist, L. A., Wong, N., Forcucci, C., Rogers, B., Ramirez, A., & Ramirez‐Zohfeld, V. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.17957
“Unfortunately, most older adults are unprepared or do not plan for their aging-in-place or long-term care (LTC) needs, which often result in unmet needs, unnecessary caregiver stress, burden, and institutionalization.(10,17) We developed and tested PlanYourLifespan.”
BackgroundThe Impact of Mobile Phone Reminders on Perceived Self-Care Levels of Informal Caregivers
Peres, B. J., Gouveia, É. R., & Campos, P. (2022) · Informatics · doi:10.3390/informatics9030059 · Cited by 1
McPherson, J. A. (2015) · UA Campus Repository (The University of Arizona) · Cited by 1
Preparation for Future Care: The Role of Family Caregivers
Sörensen, S. (2021) · Encyclopedia of Gerontology and Population Aging · doi:10.1007/978-3-319-69892-2_25-1
Niyonzima, V., Maling, S., & Chemali, Z. N. (2019) · Research Square · doi:10.21203/rs.2.15396/v1 · Cited by 1
Preparation for Future Care: The Role of Family Caregivers
Sörensen, S. (2021) · Springer eBooks · doi:10.1007/978-3-319-69892-2_25-2 · Cited by 1
Chronic Care Management for Medicare Patients—Reply
Bautista, C. A., Covinsky, K. E., & Aronson, L. (2015) · JAMA · doi:10.1001/jama.2015.4984 · Cited by 1
Quality of Life for Patients with Dementia: A Systematic Review
Ryg, K. (2016) · UST Research Online (University of St. Thomas - Minnesota)
Holup, A. A. (2016) · Digital Commons - University of South Florida (University of South Florida)
Hulp bij het vinden van zinvolle bezigheden
van der Roest, H. G., & Mensink, D. (2017) · Bohn Stafleu van Loghum eBooks · doi:10.1007/978-90-368-2048-6_16
Lived Experiences of Individuals With Dementia
Gitlin, L. N., & Hodgson, N. A. (2018) · Elsevier eBooks · doi:10.1016/b978-0-12-811928-0.00002-8
Gitlin, L. N., & Hodgson, N. A. (2018) · Elsevier eBooks · doi:10.1016/b978-0-12-811928-0.00009-0
Gitlin, L. N., & Hodgson, N. A. (2018) · Elsevier eBooks · doi:10.1016/b978-0-12-811928-0.00006-5
Gitlin, L. N., & Hodgson, N. A. (2018) · Elsevier eBooks · doi:10.1016/b978-0-12-811928-0.00008-9
A Health Monitoring Application to Support Informal Caregivers of People with Cognitive Impairment
Lentelink, S., Dekker, M., Evers, M., van Schooten, B. W., Hermens, H. J., & Tabak, M. (2018) · IEEE International Conference on e-Health Networking, Applications and Services (Healthcom) · doi:10.1109/healthcom.2018.8531147
Access to formal dementia care
Kerpershoek (2018) · doi:10.26481/dis.20181207lk
Appalachian Caregivers of Persons with Dementia Non Use of Services
Childers, K. M. (2019) · The Research Repository @ WVU (West Virginia University) · doi:10.33915/etd.3909
“instrument developed by the researchers, the JHDCNA (Black et al., 2013).”
MethodHealthcare Models in Alzheimer’s Disease
Garzón-Maldonado, F. J., & Torres, M. D. M. D. V. (2019) · IntechOpen eBooks · doi:10.5772/intechopen.84630
“The identifying and treating symptoms of depression in patients with dementia and caregivers are necessary for them to know their other unmet needs [27].”
Sinn, C. J. (2019) · UWSpace (University of Waterloo)
Jiménez‐Velázquez, I. Z., Rodríguez, J. J. L., Acosta, D. M., Schenk-Aldahondo, C. E., & Goertz, M. T. (2020) · Springer eBooks · doi:10.1007/978-1-0716-0132-7_17
Self-Reported Needs of People with Dementia Living at Home
Bártová, A., Holmerová, I., Dostálová, V., Blahová, H., & Šteffl, M. (2021) · Cambridge University Press eBooks · doi:10.1017/9781911623373.002
Preparation for Future Care: The Role of Family Caregivers
Sörensen, S. (2021) · Springer eBooks · doi:10.1007/978-3-030-22009-9_25
Read, S., Hu, B., Dixon, J., Brimblecombe, N., Wittenberg, R., & Banerjee, S. (2020) · doi:10.21203/rs.3.rs-60245/v1
“Unmet needs were associated with lower socioeconomic status, but less so with age and gender, which is in line with previous ndings (4,5).”
BackgroundMethodResultInfluentialInformal caregivers’ personal needs – investigating the role of individual differencesPreprint
Bidenko, K., & Bohnet-Joschko, S. (2022) · Research Square · doi:10.21203/rs.3.rs-2003576/v1
Pasquier, N., Pihet, S., & Carrard, I. (2022) · Research Square · doi:10.21203/rs.3.rs-2239070/v1
The Role of Social Science in Dementia: Biopsychosocial Approaches
Mpofu, E., Zhan, R., Udoh, I. I., Afrin, R., Pomare, Z. S., Chaminuka, A., & Yin, C. (2023) · Springer eBooks · doi:10.1007/978-3-030-96778-9_93-1
utilización de recursos sociales en personas con demencias. Estudio descriptivo.
Nieto, E. R., & del Rey, T. R. (2023) · Comunitania Revista Internacional de Trabajo Social y Ciencias Sociales · doi:10.5944/comunitania.25.3
Unmet social needs of community-living older adults with dementia: A scoping review
Tan, S., Markaryan, M., Ribeiro, Ó. M., Branco, R. M., & de Sousa, L. X. M. (2023) · Journal of Alzheimer s Disease · doi:10.1177/13872877261442966
“13,14,17 Two main measures have been used to assess unmet needs among older adults with dementia.”
Metadata
- Authors
- Black, B. S., Johnston, D., Rabins, P. V., Morrison, A., Lyketsos, C., & Samus, Q. M.
- Affiliations
- Johns Hopkins University (US)
- Morrison and Associates, LLC Baltimore Maryland
- Corresponding author
- Black, Betty S.
- Venue
- Journal of the American Geriatrics Society
- Publisher
- Wiley
- Published
- 2013-11-25
- Volume
- 61
- Issue
- 12
- Pages
- 2087-2095
- ISSN
- 0002-8614 (ISSN-L)
- 1532-5415
- PMC
- PMC4001885
- OpenAlex
- W2013551598
- Cited by
- 335
- References
- 54
- Citations by year
- 2026: 13 · 2025: 18 · 2024: 33 · 2023: 30 · 2022: 39 · 2021: 30 · 2020: 41 · 2019: 31 · 2018: 39 · 2017: 26 · 2016: 16 · 2015: 12 · 2014: 7
- FWCI
- 8.12
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of the American Geriatrics Society (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- Hoffberger Family Fund
- LeRoyHoffberger
- Harry and Jeannette Weinberg Foundation
- Rosenberg Foundation
- Hirschhorn Foundation
- Stulman Charitable Foundation
- Meyerhoff Foundation
- Marc and Leonor Blum
- Baltimore County Department of Aging
- Blum Family
- Lowell Glazer
- Greif Family Fund
- Marvin Schapiro Family Foundation
- Lois and Phillip Macht
- Eliasberg Family Foundation
- Richard and Rosalee Davison
- Alison & Arnold Richman
- Moser Family Philanthropic Fund
- Richard Lansburgh
- Anonymous
- Jewish Community Federation of Baltimore
- Jewish Federation of Baltimore
- National Institute on Aging (R01 AG038440)
- Weinberg Foundation
- Forest
- Glaxo-Smith-Kline
- Eisai
- Pfizer
- Astra-Zeneca
- Lilly
- Ortho-McNeil
- Bristol-Myers
- Novartis
- National Football League
- Elan
- Functional Neuromodulation Inc.
- National Institute of Mental Health (K01 MH085142)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
- Keywords
- dementia, unmet needs, informal caregivers, community-dwelling older adults, care coordination, caregiver needs, safety needs, meaningful activities, caregiver depression, racial and ethnic disparities, socioeconomic status, activities of daily living, caregiver education, resource referral, early-stage dementia, quality of life
- MeSH terms
- Aged, Aged, 80 and over, Cross-Sectional Studies, Dementia, Female, Health Services Needs and Demand, Humans, Male, Quality of Life, Baltimore, Geriatric Assessment, Caregivers, Needs Assessment
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