Families’ perceptions of the contribution of intellectual disability clinical nurse specialists in Ireland
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Aim and objectives: To explore families’ perceptions of the contribution of clinical nurse specialists in intellectual disability nursing in Ireland. Background: Clinical nurse specialists roles have developed over the years and are seen as complex and multifaceted, causing confusion, frustration and controversy. 2001 saw the formal introduction of clinical nurse specialists roles in Ireland across nursing including intellectual disability. Design: A exploratory qualitative approach using semistructured one‐to‐one interviews with 10 family members regarding their perceptions of the clinical nurse specialists in intellectual disability. Methods: Data were audio‐recorded, transcribed and analysed using Burnard's framework. Ethical approval was gained and access granted by service providers. Findings: The study highlights that intellectual disability clinical nurse specialists contribute and support care deliver across a range of areas, including personal caring, supporting and empowering families, liaison, education and leadership. Conclusions: Clinical nurse specialists have an important role and contribution in supporting families and clients, and Ireland is in a unique position to develop knowledge regarding specialist care for people with intellectual disability that can be shared nationally and internationally. Relevance to clinical practice: Ireland is in a unique position to develop knowledge regarding specialist care for people with intellectual disability that can be shared and adapted by other healthcare professionals in other countries that do not have a specialised intellectual disability nurses.
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Tailored services, which are person-centred, flexible, and family-centred, are highly regarded.
“Tailored services, which are person-centred, flexible, and family-centred, are highly regarded.26,72–77”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [74]
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- Authors
- Doody, O., Slevin, E., & Taggart, L.
- Affiliations
- University of Limerick (IE)
- Interim Deputy Director Autism Initiatives Belfast UK
- University of Ulster (GB)
- Corresponding author
- Doody, Owen
- Venue
- Journal of Clinical Nursing
- Publisher
- Wiley
- Published
- 2017-06-27
- Volume
- 27
- Issue
- 1-2
- Pages
- e80-e90
- ISSN
- 0962-1067 (ISSN-L)
- 1365-2702
- OpenAlex
- W2613711580
- Cited by
- 14
- References
- 41
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 1 · 2022: 3 · 2021: 5 · 2020: 2 · 2019: 1
- FWCI
- 1.32
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Licence
- Locations
- Journal of Clinical Nursing (publishedVersion)
- PubMed (publishedVersion)
- University of Limerick Institutional Repository (University of Limerick) (acceptedVersion, cc-by-nc-sa)
- University of Limerick Institutional Repository (University of Limerick) (acceptedVersion)
- Arrow@dit (Dublin Institute of Technology) (submittedVersion, cc-by-nc-sa)
- Figshare (submittedVersion, cc-by-nc-sa)
- University of Limerick Institutional Repository (University of Limerick)
- Topics
- Health Sciences › Health Professions › General Health Professions › Nursing Roles and Practices
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- intellectual disability, clinical nurse specialists, family perceptions, intellectual disability nursing, specialist nursing roles, family support, nursing leadership, Ireland
- MeSH terms
- Adolescent, Adult, Attitude of Health Personnel, Child, Preschool, Delivery of Health Care, Family, Female, Humans, Ireland, Male, Intellectual Disability, Middle Aged, Nurse Clinicians, Professional-Family Relations
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