Caregiver burden among family caregivers of patients with advanced cancer in a palliative context: A mixed‐method study
Abstract
Aim To examine the multidimensional properties of caregiver burden among family caregivers of patients with advanced cancer in a palliative context. Design A sequential, explanatory, mixed-method study was performed. Methods Family caregivers of patients diagnosed with advanced cancer were recruited from a palliative care department of a third-level hospital in Sichuan Province, China. The Caregiver Burden Inventory, Social Support Rating Scale and Connor-Davidson Resilience Scale were used to collect quantitative data, and a total of 150 caregivers were recruited from January 2022 to September 2022. Qualitative data were collected through semi-structured interviews, and a total of 22 caregivers were interviewed from October 2022 to November 2022. Survey data were analysed using descriptive statistics, and the factors of caregiver burden were identified using the Mann-Whitney U test, Kruskal-Wallis H test and Spearman correlations. Interpretative phenomenological analysis was performed to analyse the interview data to initially explore the multidimensions of caregiver burden. The following-a-thread method and convergence coding matrix were used for triangulation to examine the multidimensional properties of caregiver burden. Results The participants experienced a moderate level of caregiver burden (32.97 ± 13.09). Through triangulation, six meta-themes and nine meta-subthemes were identified as multidimensional properties of caregiver burden, including physical (too many cari…
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Without access to formal caregiving services or institutional support, family caregivers shouldered multiple roles alone, heightening the risk of burnout and occupational strain.
“Without access to formal caregiving services or institutional support, these multiple roles were shouldered alone, heightening the risk of burnout and occupational strain.”
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Symptom Burden in the First Year After Cancer Diagnosis: An Analysis of Patient-Reported Outcomes
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Yan, Q., Zhu, C., Li, L., Li, Y., Chen, Y., & Hu, X. (2024) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2024.104895 · Cited by 30 · see citing works
Self-citationLin, X., Liu, J., Chen, J., Tang, J., Huang, Z., Wang, Y., & Shi, S. (2026) · Asia-Pacific Journal of Oncology Nursing · doi:10.1016/j.apjon.2025.100850 · Cited by 1 · see citing works
“53,54 This reflects not only the individual burden of caregiving but also deeper structural gaps in China's long-term care infrastructure and social support systems.”
- Authors
- Zhang, Y., Zhang, S., Liu, C., Chen, X., Ding, Y., Guan, C., & Hu, X.
- Affiliations
- Sichuan University (CN)
- Corresponding author
- Hu, Xiaolin
- Venue
- Journal of Clinical Nursing
- Publisher
- Wiley
- Published
- 2023-09-14
- Volume
- 32
- Issue
- 21-22
- Pages
- 7751-7764
- ISSN
- 0962-1067 (ISSN-L)
- 1365-2702
- OpenAlex
- W4386725405
- Cited by
- 75
- References
- 3
- Citations by year
- 2026: 33 · 2025: 25 · 2024: 17
- FWCI
- 19.20
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Clinical Nursing (publishedVersion)
- PubMed (publishedVersion)
- Funders
- China Medical Board (Grant#22‐482)
- National Basic Research Program of China (2021YFE0206600)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- caregiver burden, family caregivers, advanced cancer, palliative care, emotional burden, social support, economic burden, physical burden, COVID-19 prevention and control, marital relationships, family communication, death education, resilience, social interaction, spousal caregiving
- MeSH terms
- Caregiver Burden, Adult, Aged, China, Family, Female, Humans, Male, Middle Aged, Neoplasms, Palliative Care, Surveys and Questionnaires, Social Support, Caregivers, Cost of Illness, Qualitative Research
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