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Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID
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Abstract Background The identification and treatment of psychiatric disorders in individuals with autism spectrum disorders (ASD) and ID presents many challenges. We describe the development of a professional network, together with a standardized protocol for clinical assessment, designed to promote clinical competence and professional development in eight clinical centers responsible for providing mental health services to autistic individuals with ID across all four health regions of Norway. Specific aims to describe: (1) patterns of psychiatric and behavior problems in patients treated by the network, (2) patterns of change over time, and (3) the relationship between psychiatric disorders and behavior problems. Method A standardized protocol was used to assess individual progress in 132 patients (inpatients and outpatients) with autism and ID over 2 years (at referral (T1), after 1 year (T2), and after 2 years (T3)). Changes in psychiatric symptoms and behavior problems were assessed with the Psychopathology in Autism Checklist (PAC) and Aberrant Behavior Checklist (ABC). Results Patients showed significant (p < .001) improvements from T1 to T2 on the psychosis, depression and anxiety subscales of the PAC, but no significant improvement on the obsessive compulsive disorder (OCD) subscale. Improvements were maintained from T2 to T3. Patients showed significant (p < .01) improvements on the ABC total score and on all ABC subscales except inappropriate speech from T1 to T2; these improvements were maintained from T2 to T3. Discussion The combination of a professional network and a standardized protocol for clinical assessment has promise as a strategy for improving professional competence and facilitating specialized mental health services for autistic individuals with ID and psychiatric disorders across an extensive geographical area.
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Approaches to improving mental healthcare for autistic people: Systematic review
Loizou, S., Pemovska, T., Stefanidou, T., Foye, U., Cooper, R., Kular, A., Greenburgh, A., Baldwin, H., Griffiths, J., Saunders, K. R. K., et al. (2024) · BJPsych Open · doi:10.1192/bjo.2024.707 · Cited by 22
“48 The AUP network aimed to improve access and quality of tailored services for autistic adults with intellectual disability and increase clinicians ’ knowledge of how mental health difficulties present in autistic people.”
Metadata
- Authors
- Helverschou, S. B., Bakken, T. L., Berge, H., Bjørgen, T. G., Botheim, H., Hellerud, J. A., Helseth, I., Hove, O., Johansen, P. A., Kildahl, A. N., Ludvigsen, L. B., Nygaard, S., Rysstad, A., Wigaard, E., & Howlin, P.
- Affiliations
- Oslo University Hospital (NO)
- Helse Møre og Romsdal HF (NO)
- Department of Østmarka, Habilitation Services St. Olavs Hospital Norway
- NevSom ‐ Norwegian Centre of Expertise for Neurodevelopmental Disorders and Hypersomnias Oslo University Hospital Norway
- Fonna Hospital Trust (NO)
- Nordland Hospital Trust (NO)
- Vestre Viken Hospital Trust (NO)
- Helse Nord-Trøndelag HF (NO)
- King's College London (GB)
- Corresponding author
- Helverschou, Sissel Berge
- ORCID
- Venue
- Journal of Policy and Practice in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2020-11-19
- Volume
- 18
- Issue
- 2
- Pages
- 162-173
- ISSN
- 1741-1122 (ISSN-L)
- 1741-1130
- OpenAlex
- W3106837295
- Cited by
- 22
- References
- 70
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 6 · 2023: 5 · 2022: 4 · 2021: 1 · 2020: 1
- FWCI
- 1.48
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Journal of Policy and Practice in Intellectual Disabilities (publishedVersion, cc-by-nc-nd)
- Griffith Research Online (submittedVersion, cc-by)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
- Keywords
- autism spectrum disorder, intellectual disability, mental illness, behavioral problems, mental health services, professional networks, standardized care protocols, Aberrant Behavior Checklist, psychosis, depression, anxiety, obsessive-compulsive disorder, clinical competence, professional development, treatment outcomes
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