The DOI matches its Crossref record, with a small difference in title or year; 37 of the 37 references it cites were found in a registry or an index.
Findings and lessons learnt from early termination of a pragmatic comparative effectiveness trial of video consultations in home-based palliative care
Abstract
Background: Health systems need evidence about how best to deliver home-based palliative care (HBPC) to meet the growing needs of seriously ill patients. We hypothesised that a tech-supported model that aimed to promote timely inter-professional team coordination using video consultation with a remote physician while a nurse is in the patient’s home would be non-inferior compared with a standard model that includes routine home visits by nurses and physicians. Methods: We conducted a pragmatic, cluster randomised non-inferiority trial across 14 sites (HomePal Study). Registered nurses (n=111) were randomised to the two models so that approximately half of the patients with any serious illness admitted to HBPC and their caregivers were enrolled in each study arm. Process measures (video and home visits and satisfaction) were tracked. The primary outcomes for patients and caregivers were symptom burden and caregiving preparedness at 1–2 months. Results: The study was stopped early after 12 months of enrolment (patients=3533; caregivers=463) due to a combination of low video visit uptake (31%), limited substitution of video for home visits, and the health system’s decision to expand telehealth use in response to changes in telehealth payment policies, the latter of which was incompatible with the randomised design. Implementation barriers included persistent workforce shortages and inadequate systems that contributed to scheduling and coordination challenges and unreliable technology and connectivity. Conclusions: We encountered multiple challenges to feasibility, relevance and value of conducting large, multiyear pragmatic randomised trials with seriously ill patients in the real-world settings where care delivery, regulatory and payment policies are constantly shifting.
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“Two studies in this review mentioned the shortcomings of the NASSS framework [62,67], including ethical principles, which were addressed in the Planning and Evaluating Remote Consultation Services framework in 2021 [94].”
From The NASSS (Non-Adoption, Abandonment, Scale-Up, Spread and Sustainability) framework use over time: A scoping review (2025) · cites this paper as [62]
In the citing paper
“Two studies in this review mentioned the shortcomings of the NASSS framework [62,67], including ethical principles, which were addressed in the Planning and Evaluating Remote Consultation Services framework in 2021 [94].”
From The NASSS (Non-Adoption, Abandonment, Scale-Up, Spread and Sustainability) framework use over time: A scoping review (2025) · cites this paper as [62]
Citations
Cites
Damschroder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009) · Implementation Science · doi:10.1186/1748-5908-4-50 · Cited by 14,496
Virtually perfect? Telemedicine for COVID-19
Hollander, J. E., & Carr, B. G. (2020) · New England Journal of Medicine · doi:10.1056/nejmp2003539 · Cited by 2,970
Greenhalgh, T., Wherton, J., Papoutsi, C., Lynch, J., Hughes, G., A'Court, C., Hinder, S., Fahy, N., Procter, R., & Shaw, S. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.8775 · Cited by 2,887
Bruera, E. D., Kuehn, N., Miller, M. J., Selmser, P., & Macmillan, K. (1991) · Journal of Palliative Care · doi:10.1177/082585979100700202 · Cited by 2,686
Hays, R. D., Bjorner, J. B., Revicki, D. A., Spritzer, K. L., & Cella, D. (2009) · Quality of Life Research · doi:10.1007/s11136-009-9496-9 · Cited by 1,957
Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O'Donnell, M. (2001) · The Gerontologist · doi:10.1093/geront/41.5.652 · Cited by 1,691
Association Between Palliative Care and Patient and Caregiver Outcomes
Kavalieratos, D., Corbelli, J. A., Zhang, D., Dionne-Odom, J. N., Ernecoff, N. C., Hanmer, J., Hoydich, Z., Ikejiani, D. Z., Klein‐Fedyshin, M., Zimmermann, C., et al. (2016) · JAMA · doi:10.1001/jama.2016.16840 · Cited by 1,183
Mutuality and preparedness as predictors of caregiver role strain
Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. A. (1990) · Research in Nursing & Health · doi:10.1002/nur.4770130605 · Cited by 916
Gomes, B., Calanzani, N., Curiale, V., McCrone, P., Higginson, I. J., & de Brito, M. F. (2013) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007760.pub2 · Cited by 848
Brumley, R., Enguidanos, S., Jamison, P., Seitz, R., Morgenstern, N., Saito, S., McIlwane, J., Hillary, K., & Gonzalez, J. (2007) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2007.01234.x · Cited by 845
Research works printed but not linked: 2
- Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition. Richmond, VA: National Consensus Project for Quality Palliative Care 2018.
- Pawson R , Tilley N . Realistic evaluation. London: Sage Publications, 1997.
Cited by
Sorted by citations
Shin, H. D., Hamovitch, E., Gatov, E., MacKinnon, M., Samawi, L., Boateng, R., Thorpe, K. E., & Barwick, M. (2025) · PLOS Digital Health · doi:10.1371/journal.pdig.0000418 · Cited by 40
“Eighteen studies [12,26,28,33,35,39,41,50,52,55–57, 62, 63, 68, 73,75, 78] recognized the NASSS framework as a”
Metadata
- Authors
- Nguyen, H. Q., McMullen, C., Haupt, E. C., Wang, S. E., Werch, H., Edwards, P. E., Andres, G. M., Reinke, L., Mittman, B. S., Shen, E., & Mularski, R. A.
- Affiliations
- Kaiser Permanente (US)
- VA Puget Sound Health Care System (US)
- Corresponding author
- Nguyen, Huong Q.
- ORCID
- Venue
- BMJ Supportive & Palliative Care
- Publisher
- BMJ
- Published
- 2020-10-13
- Volume
- 12
- Issue
- e3
- Pages
- e432-e440
- ISSN
- 2045-435X (ISSN-L)
- 2045-4368
- OpenAlex
- W3091813837
- Cited by
- 20
- References
- 37
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 5 · 2023: 2 · 2022: 4 · 2021: 4 · 2020: 1
- FWCI
- 2.06
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- BMJ Supportive & Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Patient-Centered Outcomes Research Institute (PLC-1609-36108)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- home-based palliative care, video consultation, telemedicine, early trial termination, nurse-led care, home visits, symptom burden, caregiver preparedness, implementation barriers, workforce shortage
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
