Opening the black box of record linkage

Differential Record Linkage by Hispanic Ethnicity and Age in Linked Mortality Studies

Lariscy, J. T. (2011) · Journal of Aging and Health · doi:10.1177/0898264311421369 · Cited by 88 · see citing works

The Effect of Mismatching on the Measurement of Response Errors

Neter, J., Maynes, E. S., & Ramanathan, R. (1965) · Journal of the American Statistical Association · doi:10.1080/01621459.1965.10480846 · Cited by 75 · see citing works

The Effect of Mismatching on the Measurement of Response Error

Neter, J., Maynes, E. S., & Ramanathan, R. (1965) · Journal of the American Statistical Association · doi:10.2307/2283401 · Cited by 32 · see citing works

Paediatric cardiac surgical mortality after Bristol

Gibbs, J. L., Cunningham, D., de Leval, M. R., Monro, J. L., & Keogh, B. E. (2004) · BMJ · doi:10.1136/bmj.330.7481.43-c · Cited by 10 · see citing works

The Reporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) statement.

Benchimol, E. I., Smeeth, L., Guttmann, A., Harron, K., Moher, D., Petersen, I., Sørensen, H. T., von Elm, E., Langan, S. M., & RECORD Working Committee (2015) · PLOS Medicine · doi:10.1371/journal.pmed.1001885 · Cited by 5,749 · see citing works

The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines

Nicholls, S. G., Quach, P., von Elm, E., Guttmann, A., Moher, D., Petersen, I., Sørensen, H. T., Smeeth, L., Langan, S. M., & Benchimol, E. I. (2015) · PLOS ONE · doi:10.1371/journal.pone.0125620 · Cited by 217 · see citing works

Approach to record linkage of primary care data from Clinical Practice Research Datalink to other health-related patient data: overview and implications

Padmanabhan, S., Carty, L., Cameron, E., Ghosh, R. E., Williams, R., & Strongman, H. (2019) · European Journal of Epidemiology · doi:10.1007/s10654-018-0442-4 · Cited by 208 · see citing works

Probabilistic record linkage

Sayers, A. E., Ben‐Shlomo, Y., Blom, A. W., & Steele, F. (2015) · International Journal of Epidemiology · doi:10.1093/ije/dyv322 · Cited by 187 · see citing works

CONSORT extension for the reporting of randomised controlled trials conducted using cohorts and routinely collected data (CONSORT-ROUTINE): checklist with explanation and elaboration

Kwakkenbos, L., Imran, M., McCall, S. J., McCord, K. A., Fröbert, O., Hemkens, L. G., Zwarenstein, M., Relton, C., Rice, D. B., Langan, S., et al. (2021) · BMJ · doi:10.1136/bmj.n857 · Cited by 136 · see citing works

Linking Data for Mothers and Babies in De-Identified Electronic Health Data

Harron, K. L., Gilbert, R. E., Cromwell, D. A., & van der Meulen, J. (2016) · PLoS ONE · doi:10.1371/journal.pone.0164667 · Cited by 114 · see citing works

Evaluating bias due to data linkage error in electronic healthcare records

Harron, K. L., Wade, A. M., Gilbert, R. E., Müller‐Pebody, B., & Goldstein, H. (2014) · BMC Medical Research Methodology · doi:10.1186/1471-2288-14-36 · Cited by 101 · see citing works

Das RECORD-Statement zum Berichten von Beobachtungsstudien, die routinemäßig gesammelte Gesundheitsdaten verwenden

Benchimol, E. I., Smeeth, L. L., Guttmann, A., Harron, K. L., Hemkens, L. G., Moher, D., Petersen, I., Sørensen, H. T., von Elm, E. B., & Langan, S. (2016) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2016.07.010 · Cited by 97 · see citing works

Accuracy and completeness of patient pathways – the benefits of national data linkage in Australia

Boyd, J., Randall, S. M., Ferrante, A. M., Bauer, J. K., McInneny, K., Brown, A., Spilsbury, K., Gillies, M., & Semmens, J. B. (2015) · BMC Health Services Research · doi:10.1186/s12913-015-0981-2 · Cited by 47 · see citing works

Linkage, Evaluation and Analysis of National Electronic Healthcare Data: Application to Providing Enhanced Blood-Stream Infection Surveillance in Paediatric Intensive Care

Harron, K. L., Goldstein, H., Wade, A. M., Müller‐Pebody, B., Parslow, R. C., & Gilbert, R. E. (2013) · PLoS ONE · doi:10.1371/journal.pone.0085278 · Cited by 45 · see citing works

Black–White Disparities in Adult Mortality: Implications of Differential Record Linkage for Understanding the Mortality Crossover

Lariscy, J. T. (2016) · Population Research and Policy Review · doi:10.1007/s11113-016-9415-z · Cited by 27 · see citing works

Realising health data linkage from a researcher’s perspective: following up the 6-Day Sample of the Scottish Mental Survey 1947

Brett, C. E., & Deary, I. J. (2014) · Longitudinal and Life Course Studies · doi:10.14301/llcs.v5i3.266 · Cited by 25 · see citing works

Utilising identifier error variation in linkage of large administrative data sources

Harron, K. L., Hagger‐Johnson, G., Gilbert, R. E., & Goldstein, H. (2017) · BMC Medical Research Methodology · doi:10.1186/s12874-017-0306-8 · Cited by 25 · see citing works

Using the RECORD guidelines to improve transparent reporting of studies based on routinely collected data

Harron, K. L., Benchimol, E. I., & Langan, S. (2018) · International Journal for Population Data Science · doi:10.23889/ijpds.v3i1.419 · Cited by 24 · see citing works

Linking routinely collected social work, education and health data to enable monitoring of the health and health care of school-aged children in state care (‘looked after children’) in Scotland: a national demonstration project

Clark, D., King, A., Sharpe, K., Connelly, G., Elliott, L., Macpherson, L. M. D., McMahon, A. D., Milligan, I., Wilson, P., Conway, D. I., et al. (2017) · Public Health · doi:10.1016/j.puhe.2017.05.003 · Cited by 18 · see citing works

Population Data Centre Profiles: Centre for Data Linkage

Boyd, J., Randall, S. M., Brown, A., Maller, M., Botes, D., Gillies, M., & Ferrante, A. M. (2020) · International Journal for Population Data Science · doi:10.23889/ijpds.v4i2.1139 · Cited by 17 · see citing works

Can colorectal cancer survivors recall their medications and doctor visits reliably?

Gordon, L. G., Patrao, T. A., & Hawkes, A. L. (2012) · BMC Health Services Research · doi:10.1186/1472-6963-12-440 · Cited by 14 · see citing works

Individual Data Linkage of Survey Data with Claims Data in Germany—An Overview Based on a Cohort Study

March, S. (2017) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph14121543 · Cited by 15 · see citing works

Overcoming limitations of tuberculosis information systems: researcher and clinician perspectives

van der Heijden, Y. F., Hughes, J., Dowdy, D. W., Streicher, E. M., Chihota, V. N., Jacobson, K. R., Warren, R. M., & Theron, G. (2019) · Public Health Action · doi:10.5588/pha.19.0014 · Cited by 8 · see citing works

Optimization is required when using linked hospital and laboratory data to investigate respiratory infections

Lim, F. J., Blyth, C. C., de Klerk, N. H., Valenti, B., Rouhiainen, O., Wu, D. Y.-A., Jansz, C. S., & Moore, H. C. (2015) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2015.08.003 · Cited by 7 · see citing works

A Simple Sampling Method for Estimating the Accuracy of Large Scale Record Linkage Projects

Guiver, T., Randall, S. M., Ferrante, A. M., Semmens, J. B., Anderson, P., Dickinson, T., & Boyd, J. (2016) · Methods of Information in Medicine · doi:10.3414/me15-01-0152 · Cited by 7 · see citing works

Understanding the origins of record linkage errors and how they affect research outcomes

Boyd, J., Ferrante, A. M., Irvine, K., Smith, M. F., Moore, E., Brown, A., & Randall, S. M. (2016) · Australian and New Zealand Journal of Public Health · doi:10.1111/1753-6405.12597 · Cited by 7 · see citing works

Development and Evaluation of Record Linkage Rules in a Safety-Net Health System Serving Disadvantaged Communities

Trick, W. E., Doshi, K., Ray, M. J., & Angulo, F. R. (2019) · ACI Open · doi:10.1055/s-0039-1693129 · Cited by 5 · see citing works

Infant formula composition and educational performance: a protocol to extend follow-up for a set of randomised controlled trials using linked administrative education records

Verfürden, M., Harron, K. L., Jerrim, J., Fewtrell, M. S., & Gilbert, R. E. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-035968 · Cited by 3 · see citing works

Identification of stillbirths in NSW linked population health datasetsPreprint

Roberts, C. L., Algert, C. S., Morris, J. M., Taylor, L. K., & Ford, J. B. (2014) · The Sydney eScholarship Repository (The University of Sydney) · Cited by 3 · see citing works

La déclaration RECORD (Reporting of Studies Conducted Using Observational Routinely Collected Health Data) : directives pour la communication des études réalisées à partir de données de santé collectées en routine

Benchimol, E. I., Smeeth, L. L., Guttmann, A., Harron, K. L., Moher, D., Petersen, I., Sørensen, H. T., Januel, J., von Elm, E. B., & Langan, S. (2019) · Canadian Medical Association Journal · doi:10.1503/cmaj.181309 · Cited by 1 · see citing works

The Epidemiology and Spatial Trends of Tuberculosis in South Africa, 2005-2015: Evidence from the Electronic TB Register, the Civil Registration System, and Policy Guidelines

Kibuuka, D. (2025) · Tuwhera (Auckland University of Technology) · doi:10.13140/rg.2.2.16441.68961

References

Harron, K. L., Goldstein, H., & Dibben, C. J. L. (2015) · Wiley series in probability and statistics · doi:10.1002/9781119072454.refs

A Celebration of Harvey Goldstein’s Lifetime Contributions: A Journey in Data Linkage with Harvey Goldstein

Harron, K. L. (2022) · Journal of the Royal Statistical Society Series A (Statistics in Society) · doi:10.1111/rssa.12900

Generating synthetic identifiers to support development and evaluation of data linkage methods

Lam, J., Boyd, A., Linacre, R., Blackburn, R. M., & Harron, K. L. (2024) · International Journal for Population Data Science · doi:10.23889/ijpds.v9i1.2389

Quantifying emergent drug-resistant TB using laboratory data and record-linkage methods

Rhea, C., Maruri, F., Ghebrekristos, Y. T., AMORIM, G., Cox, H., Dheda, K. U. J., Sterling, T. R., Warren, R. M., & van der Heijden, Y. F. (2026) · IJTLD OPEN · doi:10.5588/ijtldopen.26.0043

Linkage of routinely collected data in practice: the Centre for Health Record Linkage

Irvine, K., & Moore, E. (2015) · Public Health Research & Practice · doi:10.17061/phrp2541548 · Cited by 11 · see citing works

A new scope and a vision for record linkage studies

Corrao, G., & Vecchia, C. L. (2022) · Epidemiology Biostatistics and Public Health · doi:10.2427/9036 · Cited by 3 · see citing works

Creating a Population-based Linked Health Database: A New Resource for Health Services Research

Chamberlayne, R., Green, B., Barer, M. L., Hertzman, C., Lawrence, W. J. C., & Sheps, S. B. (1998) · Canadian Journal of Public Health · doi:10.1007/bf03403934 · Cited by 176 · see citing works

The National Centre for Healthy Ageing data platform: establishing an Electronic Health Record derived linked geographic cohort.

Andrew, N. E., Beare, R. J., Ravipati, T., Parker, E., Collyer, T. A., Ung, D., & Srikanth, V. K. (2022) · International Journal for Population Data Science · doi:10.23889/ijpds.v7i3.1949 · Cited by 1 · see citing works

Linking Data for Health Services Research

Dusetzina, S. B., Tyree, S., Meyer, A., Meyer, A., Green, L., & Carpenter, W. R. (2014) · Cited by 2 · see citing works