Cited by 35Assistive Technology in Communication and MobilityDigital Accessibility for DisabilitiesInnovative Human-Technology Interaction

Cyborg Assemblages: How autistic adults construct sociotechnical networks to support cognitive function

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Williams, Rua Mae, Park, Chorong·2023·Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems

Abstract

Autism has become a popular context for accessible technology researchers, yet a majority of HCI projects for autism and ADHD do not engage in participatory methods or otherwise involve disabled stakeholders in the project and research design. Prior inquiry has identified executive function as a common difficulty for which technologies may provide novel benefits. In this study, we explore how autistic adults currently use technologies, broadly defined, to augment executive function and support themselves in day-to-day tasks. We collect qualitative data from narratives elicited during informal asynchronous interviews to conduct a digital ethnomethodology. Following from principles of Design Justice, crip technoscience, and cyborg assemblage theory, we investigate how autistic adults articulate their own sociotechnical environments into technologically mediated assemblages of executive function and interpersonal webs of care. These patterns of sociotechnical formation inform future work in research and design for tools that can mediate executive function for all users.

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References 61 · Cited by 35

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  1. Muhammad Haziq Lim Abdullah and Margot Brereton. 2015. MyCalendar: Fos- tering Communication for Children with Autism Spectrum Disorder Through Photos and Videos. In Proceedings of the Annual Meeting of the Australian Special Interest Group for Computer Human Interaction on -OzCHI '15, 1-9. https://doi.org/10.1145/2838739.2838785 · DOI
  2. Brandon S. Aylward, Diana E. Gal-Szabo, and Sharief Taraman. 2021. Racial, Ethnic, and Sociodemographic Disparities in Diagnosis of Children with Autism Spectrum Disorder. Journal of Developmental & Behavioral Pediatrics 42, 8: 682- 689. https://doi.org/10.1097/DBP.0000000000000996 · DOI
  3. Shaowen Bardzell and Jefrey Bardzell. 2011. Towards a feminist HCI methodol- ogy: Social science, feminism, and HCI. In Conference on Human Factors in Com- puting Systems -Proceedings, 675-684. https://doi.org/10.1145/1978942.1979041 · DOI
  4. Cynthia L Bennett and Daniela K Rosner. 2019. The Promise of Empathy: Design, Disability, and Knowing the "Other." In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems -CHI '19, 1-13. https://doi.org/10.1145/ 3290605.3300528 · DOI · Paper page
  5. Monique Botha and David M. Frost. 2020. Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population. Society and Mental Health 10, 1: 20-34. https://doi.org/10.1177/2156869318804297 · DOI · Paper page
  6. Louanne E. Boyd, Kathryn E. Ringland, Oliver L. Haimson, Helen Fernan- dez, Maria Bistarkey, and Gillian R. Hayes. 2015. Evaluating a Collaborative iPad Game's Impact on Social Relationships for Children with Autism Spec- trum Disorder. ACM Transactions on Accessible Computing 7, 1: 3:1-3:18. https: //doi.org/10.1145/2751564 · DOI
  7. Virginia Braun and Victoria Clarke. 2020. One size fts all? What counts as quality practice in (refexive) thematic analysis? https://doi.org/10.1080/14780887.2020. 1769238 18, 3: 328-352. https://doi.org/10.1080/14780887.2020.1769238 · DOI · Paper page
  8. Sarah Cassidy, Louise Bradley, Rebecca Shaw, and Simon Baron-Cohen. 2018. Risk markers for suicidality in autistic adults. Molecular Autism 9, 1: 42. https: //doi.org/10.1186/s13229-018-0226-4 · DOI · Paper page
  9. Paul Dourish. 2006. Implications for design. In Proceedings of the SIGCHI Con- ference on Human Factors in Computing Systems (CHI '06), 541-550. https: //doi.org/10.1145/1124772.1124855 · DOI · Paper page
  10. Peter Francis, David Mellor, and Lucy Firth. 2009. Techniques and recommenda- tions for the inclusion of users with autism in the design of assistive technologies. Assistive Technology 21, 2: 57-68. https://doi.org/10.1080/10400430902945561 · DOI
  11. Lisa Gilotty, Lauren Kenworthy, Lisa Sirian, David O. Black, and Ann E. Wagner. 2002. Adaptive Skills and Executive Function in Autism Spectrum Disorders. Child Neuropsychology 8, 4: 241-248. https://doi.org/10.1076/chin.8.4.241.13504 · DOI · Paper page
  12. Yasaman Hashemian and Marientina Gotsis. 2013. Adventurous Dreaming High- fying Dragonn -A Full Body Game for Children with Attention Defcit Hyper- activity Disorder (ADHD). In Proceedings of the 4th Conference on Wireless Health -WH '13, 1-2. https://doi.org/10.1145/2534088.2534101 · DOI
  13. Beibin Li, Quan Wang, Marilena Mademtzi, Mary Best, Frederick Shic, Adham Atyabi, Minah Kim, Erin Barney, Amy Yeojin Ahn, Yawen Luo, Madeline Auber- tine, Sarah Corrigan, and Tanya St. John. 2018. Social Infuences on Executive Functioning in Autism. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems -CHI '18, 1-13. https://doi.org/10.1145/3173574.3174017 · DOI
  14. J. C. R. Licklider. 1960. Man-Computer Symbiosis. IRE Transactions on Human Factors in Electronics HFE-1, 1: 4-11. https://doi.org/10.1109/THFE2.1960.4503259 · DOI · Paper page
  15. Kelly Mack and Emma McDonnell. 2021. What do we mean by accessibility research? a literature survey of accessibility papers in chi and assets from 1994 to 2019. Conference on Human Factors in Computing Systems -Proceedings. https: //doi.org/10.1145/3411764.3445412 · DOI · Paper page
  16. Jennifer Mankof, Gillian R. Hayes, and Devva Kasnitz. 2010. Disability studies as a source of critical inquiry for the feld of assistive technology. In Proceedings of the 12th international ACM SIGACCESS conference on Computers and accessibility -ASSETS '10, 3. https://doi.org/10.1145/1878803.1878807 · DOI · Paper page
  17. David Martin and Ian Sommerville. 2004. Patterns of cooperative interaction: Linking ethnomethodology and design. ACM Transactions on Computer-Human Interaction 11, 1: 59-89. https://doi.org/10.1145/972648.972651 · DOI
  18. Rachael Maun, Marc Fabri, and Pip Trevorrow. 2021. Adapting Participatory Design Activities for Autistic Adults: A Review. In Design, User Experience, and Usability: Design for Diversity, Well-being, and Social Development (Lecture Notes in Computer Science), 300-314. https://doi.org/10.1007/978-3-030-78224-5_21 · DOI
  19. Lynn Meltzer (ed.). 2018. Executive Function in Education: From Theory to Practice, Second Edition. Guilford Press, New York, New York, USA.
  20. Leah Lakshmi Piepzna-Samarasinha. 2018. Care Work: Dreaming Disability Justice. Aresenal Pulp Press, Vancouver, CA.
  21. Suvi Pihkala and Helena Karasti. 2016. Refexive Engagement-Enacting Refexivity in Design and for "Participation in Plural. " In Proceedings of the 14th Participatory Design Conference: Full papers -Volume 1. Retrieved June 13, 2021 from http: //dx.doi.org/10.1145/2940299.2940302 · DOI
  22. Jasbir K. Puar. 2011. "I would rather be a cyborg than a goddess": Becoming- intersectional in assemblage theory. philoSOPHIA 2, 1: 49-66. https://doi.org/10. 1353/phi.2012.0006 · DOI
  23. Allison B. Ratto, Lauren Kenworthy, Benjamin E. Yerys, Julia Bascom, Andrea Trubanova Wieckowski, Susan W. White, Gregory L. Wallace, Cara Pugliese, Robert T. Schultz, Thomas H. Ollendick, Angela Scarpa, Sydney Seese, Kelly Register-Brown, Alex Martin, and Laura Gutermuth Anthony. 2018. What About the Girls? Sex-Based Diferences in Autistic Traits and Adaptive Skills. Journal of Autism and Developmental Disorders 48, 5: 1698-1711. https://doi.org/10.1007/ s10803-017-3413-9 · DOI · Paper page
  24. Kathryn E. Ringland, LouAnne Boyd, Heather Faucett, Amanda L.L. Cullen, and Gillian R. Hayes. 2017. Making in Minecraft: A Means of Self-Expression for Youth with Autism. In Proceedings of the 2017 Conference on Interaction Design and Children (IDC '17), 340-345. https://doi.org/10.1145/3078072.3079749 · DOI
  25. Kathryn E. Ringland, Christine T. Wolf, LouAnne E. Boyd, Mark S. Baldwin, and Gillian R. Hayes. 2016. Would You Be Mine: Appropriating Minecraft as an Assis- tive Technology for Youth with Autism. In Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '16), 33-41. https://doi.org/10.1145/2982142.2982172 · DOI
  26. Kathryn E. Ringland, Christine T. Wolf, Heather Faucett, Lynn Dombrowski, and Gillian R. Hayes. 2016. "Will I always be not social?": Re-Conceptualizing Sociality in the Context of a Minecraft Community for Autism. In Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems (CHI '16), 1256-1269. https://doi.org/10.1145/2858036.2858038 · DOI
  27. Julia Miele Rodas. 2018. Autistic Disturbances: Theorizing Autism Poetics from the DSM to Robinson Crusoe. University of Michigan Press, Ann Arbor, MI, USA.
  28. Jennifer A. Rode. 2011. Refexivity in digital anthropology. In Proceedings of the 2011 annual conference on Human factors in computing systems -CHI '11, 123-132. https://doi.org/10.1145/1978942.1978961 · DOI
  29. Jennifer A. Rode. 2011. A theoretical agenda for feminist HCI. Interacting with Computers 23, 5: 393-400. https://doi.org/10.1016/j.intcom.2011.04.005 · DOI
  30. Yvonne Rogers. 2012. HCI Theory: Classical, Modern, and Contemporary. Synthe- sis Lectures on Human-Centered Informatics 5, 2: 1-129. https://doi.org/10.2200/ s00418ed1v01y201205hci014 · DOI
  31. Christina Seery, Margo Wrigley, Fiona O'Riordan, Ken Kilbride, and Jessica Bramham. What adults with ADHD want to know: A Delphi consensus study on the psychoeducational needs of experts by experience. Health Expectations n/a, n/a. https://doi.org/10.1111/hex.13592 · DOI
  32. Moushumi Sharmin, Md Monsur Hossain, Abir Saha, Maitraye Das, Margot Maxwell, and Shameem Ahmed. 2018. From Research to Practice: Informing the Design of Autism Support Smart Technology. In Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems -CHI '18, 1-16. https: //doi.org/10.1145/3173574.3173676 · DOI
  33. Jonathan A. Smith and Mike Osborn. 2007. Interpretive Phenomenalogical Anal- ysis. In Qualitative Psychology: A Practical Guide to Research Methods, Jonathan A. Smith (ed.).
  34. Katta Spiel, Emeline Brulé, Christopher Frauenberger, Gilles Bailly, and Geral- dine Fitzpatrick. 2018. Micro-ethics for participatory design with marginalised children. In Proceedings of the 15th Participatory Design Conference on Full Papers -PDC '18, 1-12. https://doi.org/10.1145/3210586.3210603 · DOI
  35. Katta Spiel, Christopher Frauenberger, Os Keyes, and Geraldine Fitzpatrick. 2019. Agency of Autistic Children in Technology Research-A Critical Liter- ature Review. ACM Transactions on Computer-Human Interaction 26, 6: 1-40. https://doi.org/10.1145/3344919 · DOI
  36. Katta Spiel and Kathrin Gerling. 2020. The Purpose of Play: How HCI Games Research Fails Neurodivergent Populations. Transactions in Computer Human Interaction preprint. https://doi.org/10.1145/nnnnnnn.nnnnnnn · DOI
  37. Katta Spiel, Kathrin Gerling, Cynthia L Bennett, Emeline Brulé, Rua M Williams, Jennifer Rode, and Jennifer Mankof. 2020. Nothing About Us Without Us: Investigating the Role of Critical Disability Studies in HCI. In Extended Ab- stracts of the 2020 CHI Conference on Human Factors in Computing Systems, 1-8. https://doi.org/10.1145/3334480.3375150 · DOI
  38. Katta Spiel, Laura Malinverni, Judith Good, and Christopher Frauenberger. 2017. Participatory Evaluation with Autistic Children. In Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems -CHI '17, 5755-5766. https: //doi.org/10.1145/3025453.3025851 · DOI
  39. Lucy Suchman. 2006. Human-Machine Reconfgurations: Plans and Situated Actions. Cambridge University Press, Cambridge. https://doi.org/10.1017/ CBO9780511808418 · DOI · Paper page
  40. Cella M Sum, Rahaf Alharbi, Franchesca Spektor, Cynthia L Bennett, Christina N Harrington, Katta Spiel, and Rua Mae Williams. 2022. Dreaming Disability Justice in HCI. In Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing Systems (CHI EA '22), 1-5. https://doi.org/10.1145/3491101.3503731 · DOI
  41. Lisa M. Tillmann-Healy. 2003. Friendship as Method. Qualitative Inquiry 9, 5: 729-749. https://doi.org/10.1177/1077800403254894 · DOI
  42. Wesley Vernon. 2009. The Delphi technique: A review. International Journal of Therapy and Rehabilitation 16, 2: 69-76. https://doi.org/10.12968/ijtr.2009.16.2. 38892 · DOI
  43. Orad Weisberg, Ayelet GalOz, Ruth Berkowitz, Noa Weiss, Oran Peretz, Shlomi Azoulai, Daphne KoplemanRubin, and Oren Zuckerman. 2014. TangiPlan: Design- ing an Assistive Technology to Enhance Executive Functioning Among Children with ADHD. In Proceedings of the 2014 conference on Interaction design and children -IDC '14, 293-296. https://doi.org/10.1145/2593968.2610475 · DOI
  44. Emily I. White, Gregory L. Wallace, Julia Bascom, Anna C. Armour, Kelly Register- Brown, Haroon S. Popal, Allison B. Ratto, Alex Martin, and Lauren Kenworthy. 2017. Sex diferences in parent-reported executive functioning and adaptive behavior in children and young adults with autism spectrum disorder. Autism Research 10, 10: 1653-1662. https://doi.org/10.1002/aur.1811 · DOI
  45. Rua M. Williams, Kiana Alikhademi, and Juan E. Gilbert. 2022. Design of a toolkit for real-time executive function assessment in custom-made virtual experiences and interventions. International Journal of Human-Computer Studies 158: 102734. https://doi.org/10.1016/j.ijhcs.2021.102734 · DOI
  46. Rua M. Williams, Kiana Alikhademi, Imani Munyaka, and Juan E. Gilbert. 2022. MetaCogs: Mitigating Executive Dysfunction via Agent-Based Modeling for Metacognitive Strategy Development. Transactions in Accessible Computing.
  47. Rua M. Williams and Juan E. Gilbert. 2019. Cyborg Perspectives on Computing Research Reform. In Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems -CHI EA '19, 1-11. https://doi.org/10.1145/3290607. 3310421 · DOI
  48. Rua M. Williams and Juan E. Gilbert. 2019. "Nothing about us without us": Trans- forming participatory research and ethics in human systems engineering. In Advancing Diversity Inclusion and Social Justice Through Human Systems Engi- neering, Rod Roscoe and Erin Chiou (eds.). Taylor & Francis Group.
  49. Rua M. Williams and Juan E. Gilbert. 2020. Perseverations of the academy: A survey of wearable technologies applied to autism intervention. International Journal of Human-Computer Studies 143: 102485. https://doi.org/10.1016/j.ijhcs. 2020.102485 · DOI · Paper page
  50. David Zimmerman, Tamara Ownsworth, Analise O'Donovan, Jacqueline Roberts, and Matthew J Gullo. 2017. Associations between executive functions and mental health outcomes for adults with autism spectrum disorder. Psychiatry Research 253: 360-363. https://doi.org/10.1016/j.psychres.2017.04.023 · DOI
  51. Oren Zuckerman, Ayelet Gal-Oz, Neta Tamir, and Daphne Kopelman-Rubin. 2015. Initial validation of an assistive technology to enhance executive functioning among children with ADHD. In Proceedings of the 14th International Conference on Interaction Design and Children -IDC '15, 299-302. https://doi.org/10.1145/ 2771839.2771901 · DOI

Authors
Williams, R. M., & Park, C.
Affiliations
  • Computer Graphics and Technology, Purdue University, United States
  • Purdue University West Lafayette (US)
Venue
Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
Publisher
ACM
Published
2023-04-19
Pages
1-15
OpenAlex
W4366771614
Cited by
35
References
61
Citations by year
2026: 10 · 2025: 20 · 2024: 4 · 2023: 1
FWCI
22.15
Type
conference paper
Language
en
Open access
Locations
CHI Conference on Human Factors in Computing Systems (publishedVersion, other-oa)
Funders
Social Science Research Council Just Tech Fellowship
Topics
  • Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
  • Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
  • Physical Sciences › Computer Science › Human-Computer Interaction › Innovative Human-Technology Interaction
Keywords
autism spectrum disorder, autistic adults, executive function, assistive technology, sociotechnical networks, design justice, self-management, interpersonal care, accessible technology, participatory design

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