Cited by 398Family and Patient Care in Intensive Care UnitsPalliative Care and End-of-Life IssuesEthics in medical practice

The DOI matches its Crossref record; 35 of the 36 references it cites were found in a registry or an index.

Randomized Trial of Communication Facilitators to Reduce Family Distress and Intensity of End-of-Life Care

Open access

Curtis, J. Randall, Treece, Patsy D., Nielsen, Elizabeth L., Gold, Julia, Ciechanowski, Paul S., Shannon, Sarah E., Khandelwal, Nita, Young, Jessica P., Engelberg, Ruth A.·2016·American Journal of Respiratory and Critical Care Medicine

DOI 10.1164/rccm.201505-0900ocPMC PMC4731711

Open this paper in CoChat — free account

Abstract

Rationale Communication with family of critically ill patients is often poor and associated with family distress. Objectives To determine if an intensive care unit (ICU) communication facilitator reduces family distress and intensity of end-of-life care. Methods We conducted a randomized trial at two hospitals. Eligible patients had a predicted mortality greater than or equal to 30% and a surrogate decision maker. Facilitators supported communication between clinicians and families, adapted communication to family needs, and mediated conflict. Measurements and main results Outcomes included depression, anxiety, and post-traumatic stress disorder (PTSD) among family 3 and 6 months after ICU and resource use. We identified 488 eligible patients and randomized 168. Of 352 eligible family members, 268 participated (76%). Family follow-up at 3 and 6 months ranged from 42 to 47%. The intervention was associated with decreased depressive symptoms at 6 months (P = 0.017), but there were no significant differences in psychological symptoms at 3 months or anxiety or PTSD at 6 months. The intervention was not associated with ICU mortality (25% control vs. 21% intervention; P = 0.615) but decreased ICU costs among all patients (per patient: $75,850 control, $51,060 intervention; P = 0.042) and particularly among decedents ($98,220 control, $22,690 intervention; P = 0.028). Among decedents, the intervention reduced ICU and hospital length of stay (28.5 vs. 7.7 d and 31.8 vs. 8.0 d, respec…

Integrity signals

Registry

Crossref · 10.1164/rccm.201505-0900oc

Cites

35 of 35 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

We couldn’t retrieve this paper’s full text, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

The PHQ-9: Validity of a brief depression severity measure
Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2001.016009606.x · Cited by 44,910
The Patient Health Questionnaire Somatic, Anxiety, and Depressive Symptom Scales: a systematic review
Kroenke, K., Spitzer, R. L., Williams, J. B. W., & Löwe, B. (2010) · General Hospital Psychiatry · doi:10.1016/j.genhosppsych.2010.03.006 · Cited by 4,057
A Controlled Trial to Improve Care for Seriously III Hospitalized Patients
Connors, A. F. (1995) · JAMA · doi:10.1001/jama.274.20.1591 · Cited by 3,448
Generalist plus Specialist Palliative Care — Creating a More Sustainable Model
Quill, T. E., & Abernethy, A. P. (2013) · New England Journal of Medicine · doi:10.1056/nejmp1215620 · Cited by 1,464
Monitoring Depression Treatment Outcomes With the Patient Health Questionnaire-9
L??we, B., Un??tzer, J., Callahan, C. M., Perkins, A. J., & Kroenke, K. (2004) · Medical Care · doi:10.1097/00005650-200412000-00006 · Cited by 1,354
A communication strategy and brochure for relatives of patients dying in the ICU.
Lautrette, A., Darmon, M., Megarbane, B., Joly, L. M., Chevret, S., Adrie, C., Barnoud, D., Bleichner, G., Bruel, C., Choukroun, G., et al. (2007) · New England Journal of Medicine · doi:10.1056/nejmoa063446 · Cited by 1,279
Self-citation
Use of intensive care at the end of life in the United States: An epidemiologic study*
Angus, D. C., Barnato, A. E., Linde‐Zwirble, W. T., Weissfeld, L. A., Watson, R. S., Rickert, T., & Rubenfeld, G. D. (2004) · Critical Care Medicine · doi:10.1097/01.ccm.0000114816.62331.08 · Cited by 1,157
Comparative validity of three screening questionnaires for DSM-IV depressive disorders and physicians? diagnoses
LOWE, B. (2004) · Journal of Affective Disorders · doi:10.1016/s0165-0327(02)00237-9 · Cited by 1,060
The impact of nonnormality on full information maximum-likelihood estimation for structural equation models with missing data.
Enders, C. K. (2001) · Psychological Methods · doi:10.1037/1082-989x.6.4.352 · Cited by 942
Effect of Ethics Consultations on Nonbeneficial Life-Sustaining Treatments in the Intensive Care Setting: A Randomized Controlled Trial
Schneiderman, L. J., Gilmer, T., Teetzel, H. D., Dugan, D. O., Blustein, J., Cranford, R., Briggs, K. B., Komatsu, G. I., Goodman-Crews, P., Cohn, F., et al. (2003) · JAMA · doi:10.1001/jama.290.9.1166 · Cited by 661

Show all 36 references

Sorted by citations

Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU
Davidson, J. E., Aslakson, R. A., Long, A. C., Puntillo, K. A., Kross, E. K., Hart, J., Cox, C. E., Wunsch, H., Wickline, M. A., Nunnally, M. E., et al. (2017) · Critical Care Medicine · doi:10.1097/ccm.0000000000002169 · Cited by 1,540
Self-citation
Post‐intensive care syndrome: its pathophysiology, prevention, and future directions
Inoue, S., Hatakeyama, J., Kondo, Y., Hifumi, T., Sakuramoto, H., Kawasaki, T., Taito, S., Nakamura, K., Unoki, T., Kawai, Y., et al. (2019) · Acute Medicine & Surgery · doi:10.1002/ams2.415 · Cited by 615
A randomized trial of a family-support intervention in intensive care units
White, D. B., Angus, D. C., Shields, A.-M., Buddadhumaruk, P., Pidro, C., Paner, C., Chaitin, E., Chang, C.-C. H., Pike, F., Weissfeld, L., et al. (2018) · New England Journal of Medicine · doi:10.1056/nejmoa1802637 · Cited by 524
Outcomes after Critical Illness
Herridge, M. S., & Azoulay, É. (2023) · New England Journal of Medicine · doi:10.1056/nejmra2104669 · Cited by 395
Effect of Palliative Care–Led Meetings for Families of Patients With Chronic Critical Illness: A Randomized Clinical Trial
Carson, S. S., Cox, C. E., Wallenstein, S., Hanson, L. C., Danis, M., Tulsky, J. A., Chai, E., & Nelson, J. E. (2016) · JAMA · doi:10.1001/jama.2016.8474 · Cited by 352
Outcomes of Patient- and Family-Centered Care Interventions in the ICU: A Systematic Review and Meta-Analysis
Goldfarb, M., Bibas, L., Bartlett, V. L., Jones, H., & Khan, N. (2017) · Critical Care Medicine · doi:10.1097/ccm.0000000000002624 · Cited by 306
Changes in End-of-Life Practices in European Intensive Care Units From 1999 to 2016
Sprung, C. L., Ricou, B., Hartog, C. S., Maia, P., Mentzelopoulos, S. D., Weiß, M., Levin, P. D., Galarza, L., de la Guardia, V., Schefold, J. C., et al. (2019) · JAMA · doi:10.1001/jama.2019.14608 · Cited by 259
European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions
Mentzelopoulos, S. D., Couper, K., Voorde, P. V. D., Druwé, P., Blom, M., Perkins, G. D., Lulic, I., Djakow, J., Raffay, V., Lilja, G., et al. (2021) · Resuscitation · doi:10.1016/j.resuscitation.2021.02.017 · Cited by 246
Early psychological intervention following recent trauma: a systematic review and meta-analysis
Roberts, N. P., Kitchiner, N. J., Kenardy, J., Lewis, C. E., & Bisson, J. I. (2019) · European Journal of Psychotraumatology · doi:10.1080/20008198.2019.1695486 · Cited by 200
Psychological Sequelae in Family Caregivers of Critically III Intensive Care Unit Patients. A Systematic Review
Johnson, C. C., Suchyta, M. R., Darowski, E. S., Collar, E. M., Kiehl, A. L., Van, J., Jackson, J. C., & Hopkins, R. O. (2019) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201808-540sr · Cited by 193
Early palliative care consultation in the medical ICU: A cluster randomized crossover trial.
Ma, J., Chi, S., Buettner, B., Pollard, K., Muir, M., Kolekar, C., Al-Hammadi, N., Chen, L., Kollef, M., & Dans, M. (2019) · Critical Care Medicine · doi:10.1097/ccm.0000000000004016 · Cited by 166
Recovery after critical illness: putting the puzzle together—a consensus of 29
Azoulay, É., Vincent, J., Angus, D. C., Arabi, Y. M., Brochard, L. J., Brett, S. J., Citerio, G., Cook, D. J., Curtis, J. R., dos Santos, C. C., et al. (2017) · Critical Care · doi:10.1186/s13054-017-1887-7 · Cited by 165
Self-citation
Effect of an ICU Diary on Posttraumatic Stress Disorder Symptoms Among Patients Receiving Mechanical Ventilation
Garrouste-Orgeas, M., Flahault, C., Vinatier, I., Rigaud, J., Thieulot-Rolin, N., Mercier, E., Rouget, A., Grand, H., Lesieur, O., Tamion, F., et al. (2019) · JAMA · doi:10.1001/jama.2019.9058 · Cited by 165
Effect of a condolence letter on grief symptoms among relatives of patients who died in the ICU: a randomized clinical trial
Famirea Study Group, Kentish-Barnes, N., Chevret, S., Champigneulle, B., Thirion, M., Souppart, V., Gilbert, M., Lesieur, O., Renault, A., Garrouste-Orgeas, M., et al. (2017) · Intensive Care Medicine · doi:10.1007/s00134-016-4669-9 · Cited by 143
Society of Critical Care Medicine Guidelines on Family-Centered Care for Adult ICUs: 2024
Hwang, D. Y., Oczkowski, S. J. W., Lewis, K. A., Birriel, B., Downar, J., Farrier, C. E., Fiest, K. M., Gerritsen, R. T., Hart, J. L., Hartog, C. S., et al. (2025) · Critical Care Medicine · doi:10.1097/ccm.0000000000006549 · Cited by 140
Interventions in Post-Intensive Care Syndrome-Family: A Systematic Literature Review
Zante, B., Camenisch, S. A., & Schefold, J. C. (2020) · Critical Care Medicine · doi:10.1097/ccm.0000000000004450 · Cited by 136
A three-step support strategy for relatives of patients dying in the intensive care unit: a cluster randomised trial
Kentish‐Barnes, N., Chevret, S., Valade, S., Jaber, S., Kerhuel, L., Guisset, O., Martin, M., Mazaud, A., Papazian, L., Argaud, L., et al. (2022) · The Lancet · doi:10.1016/s0140-6736(21)02176-0 · Cited by 134
Evaluation of Time-Limited Trials Among Critically Ill Patients With Advanced Medical Illnesses and Reduction of Nonbeneficial ICU Treatments
Chang, D., Neville, T. H., Parrish, J., Ewing, L., Rico, C. C., Jara, L., Sim, D., Tseng, C., van Zyl, C., Storms, A. D., et al. (2021) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2021.1000 · Cited by 125
Palliative care interventions in intensive care unit patients
Metaxa, V., Anagnostou, D., Vlachos, S., Arulkumaran, N., Bensemmane, S., van Dusseldorp, I., Aslakson, R. A., Davidson, J. E., Gerritsen, R. T., Hartog, C. S., et al. (2021) · Intensive Care Medicine · doi:10.1007/s00134-021-06544-6 · Cited by 123
Self-citation
How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative study
Dionne-Odom, J. N., Ejem, D., Wells, R., Barnato, A. E., Taylor, R. A., Rocque, G. B., Turkman, Y. E., Kenny, M., Ivankova, N. V., Bakitas, M. A., et al. (2019) · PLOS ONE · doi:10.1371/journal.pone.0212967 · Cited by 111
How Often Is End-of-Life Care in the United States Inconsistent with Patients' Goals of Care?
Khandelwal, N., Curtis, J. R., Freedman, V. A., Kasper, J. D., Gozalo, P. L., Engelberg, R. A., & Teno, J. M. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0065 · Cited by 104
Self-citation
Effects of End-of-Life Discussions on the Mental Health of Bereaved Family Members and Quality of Patient Death and Care
Yamaguchi, T., Maeda, I., Hatano, Y., Mori, M., Shima, Y., Tsuneto, S., Kizawa, Y., Morita, T., Yamaguchi, T., Aoyama, M., et al. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2017.03.008 · Cited by 102
Überversorgung in der Intensivmedizin: erkennen, benennen, vermeiden
Michalsen, A., Neitzke, G., Dutzmann, J., Rogge, A., Seidlein, A., Jöbges, S., Burchardi, H., Hartog, C. S., Nauck, F., Salomon, F., et al. (2021) · Medizinische Klinik - Intensivmedizin und Notfallmedizin · doi:10.1007/s00063-021-00794-4 · Cited by 99
Patient-Centered and Family-Centered Care in the Intensive Care Unit
Secunda, K. E., & Kruser, J. M. (2022) · Clinics in Chest Medicine · doi:10.1016/j.ccm.2022.05.008 · Cited by 111
Postintensive care syndrome family: A comprehensive review
Shirasaki, K., Hifumi, T., Nakanishi, N., Nosaka, N., Miyamoto, K., Komachi, M. H., Haruna, J., Inoue, S., & Otani, N. (2024) · Acute Medicine & Surgery · doi:10.1002/ams2.939 · Cited by 105
Association of Surrogate Decision-making Interventions for Critically Ill Adults With Patient, Family, and Resource Use Outcomes
Bibas, L., Peretz-Larochelle, M., Adhikari, N. K. J., Goldfarb, M., Luk, A. C., Englesakis, M. F., Detsky, M. E., & Lawler, P. R. (2019) · JAMA Network Open · doi:10.1001/jamanetworkopen.2019.7229 · Cited by 91
Effect of ICU strain on timing of limitations in life-sustaining therapy and on death
Hua, M. S., Halpern, S. D., Gabler, N. B., & Wunsch, H. (2016) · Intensive Care Medicine · doi:10.1007/s00134-016-4240-8 · Cited by 87
Preventing the onset of post traumatic stress disorder
Bisson, J. I., Wright, L. A., Jones, K. A., Lewis, C., Phelps, A. J., Sijbrandij, M., Varker, T., & Roberts, N. P. (2021) · Clinical Psychology Review · doi:10.1016/j.cpr.2021.102004 · Cited by 85
Identifying Goals of Care Conversations in the Electronic Health Record Using Natural Language Processing and Machine Learning
Lee, R. Y., Brumback, L. C., Lober, W. B., Sibley, J., Nielsen, E. L., Treece, P. D., Kross, E. K., Loggers, E. T., Fausto, J. A., Lindvall, C. J., et al. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.08.024 · Cited by 81
Self-citation
Intensive care unit length of stay is reduced by protocolized family support intervention: a systematic review and meta-analysis
Lee, H. W., Park, Y., Jang, E. J., & Lee, Y. J. (2019) · Intensive Care Medicine · doi:10.1007/s00134-019-05681-3 · Cited by 74
Healthcare Provider Perceptions of Causes and Consequences of ICU Capacity Strain in a Large Publicly Funded Integrated Health Region: A Qualitative Study
Bagshaw, S. M., Opgenorth, D. L., Potestio, M. L., Hastings, S. E., Hepp, S. L., Gilfoyle, E., McKinlay, D., Boucher, P. E., Meier, M., Leigh, J. P., et al. (2016) · Critical Care Medicine · doi:10.1097/ccm.0000000000002093 · Cited by 70
Relatives' perception of stressors and psychological outcomes – Results from a survey study
Matt, B., Schwarzkopf, D., Reinhart, K., König, C. M., & Hartog, C. S. (2017) · Journal of Critical Care · doi:10.1016/j.jcrc.2017.02.036 · Cited by 71
Family Care Rituals in the ICU to Reduce Symptoms of Post-Traumatic Stress Disorder in Family Members—A Multicenter, Multinational, Before-and-After Intervention Trial*
Amass, T. H., Villa, G., O’Mahony, S., Badger, J. M., McFadden, R., Walsh, T. P., Caine, T., McGuirl, D., Palmisciano, A. J., Yeow, M.-E., et al. (2019) · Critical Care Medicine · doi:10.1097/ccm.0000000000004113 · Cited by 71
Self-citation
Ten areas for ICU clinicians to be aware of to help retain nurses in the ICU
Vincent, J., Boulanger, C., van Mol, M. M. C., Hawryluck, L., & Azoulay, É. (2022) · Critical Care · doi:10.1186/s13054-022-04182-y · Cited by 69
Modifiable elements of ICU supportive care and communication are associated with surrogates’ PTSD symptoms
Wendlandt, B., Ceppe, A., Choudhury, S., Cox, C. E., Hanson, L. C., Danis, M., Tulsky, J. A., Nelson, J. E., & Carson, S. S. (2019) · Intensive Care Medicine · doi:10.1007/s00134-019-05550-z · Cited by 68
The Family Navigator: A Pilot Intervention to Support Intensive Care Unit Family Surrogates
Torke, A. M., Wocial, L. D., Johns, S. A., Sachs, G. A., Callahan, C. M., Bosslet, G. T., Slaven, J. E., Perkins, S. M., Hickman, S. E., Montz, K., et al. (2016) · American Journal of Critical Care · doi:10.4037/ajcc2016730 · Cited by 72
Multiple session early psychological interventions for the prevention of post-traumatic stress disorder
Roberts, N. P., Kitchiner, N., Kenardy, J. A., Robertson, L., Lewis, C., & Bisson, J. I. (2019) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006869.pub3 · Cited by 71
Impact of a nurse-led family support intervention on family members' satisfaction with intensive care and psychological wellbeing: A mixed-methods evaluation
Naef, R., von Felten, S., Petry, H., Ernst, J., & Massarotto, P. (2021) · Australian Critical Care · doi:10.1016/j.aucc.2020.10.014 · Cited by 67
The impact of family visitor restrictions on healthcare workers in the ICU during the COVID-19 pandemic
Wendlandt, B., Kime, M., & Carson, S. S. (2021) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2021.103123 · Cited by 61
Stress-related disorders of family members of patients admitted to the intensive care unit with COVID-19
Amass, T., Van Scoy, L. J., Hua, M., Ambler, M., Armstrong, P., Baldwin, M. R., Bernacki, R., Burhani, M. D., Chiurco, J., Cooper, Z., et al. (2022) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2022.1118 · Cited by 61
Self-citation
Developing a Research Agenda for Integrating Palliative Care into Critical Care and Pulmonary Practice To Improve Patient and Family Outcomes
Aslakson, R. A., Reinke, L. F., Cox, C. E., Kross, E. K., Benzo, R. P., & Curtis, J. R. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2016.0567 · Cited by 67
Self-citation
Palliative Care and End-of-Life Considerations for the Frail Patient
Crooms, R. C., & Gelfman, L. P. (2020) · Anesthesia & Analgesia · doi:10.1213/ane.0000000000004763 · Cited by 59
Executive Function and Resilience as Mediators of Adolescents’ Perceived Stressful Life Events and School Adjustment
Zhang, Y., Zhang, X., Zhang, L., & Guo, C. (2019) · Frontiers in Psychology · doi:10.3389/fpsyg.2019.00446 · Cited by 69
Improving the intensive care experience from the perspectives of different stakeholders
Latour, J. M., Kentish‐Barnes, N., Jacques, T. C., Wysocki, M., Azoulay, É., & Metaxa, V. (2022) · Critical Care · doi:10.1186/s13054-022-04094-x · Cited by 58
Comparing Quality of Dying and Death Perceived by Family Members and Nurses for Patients Dying in US and Dutch ICUs
Gerritsen, R. T., Koopmans, M., Hofhuis, J. G. M., Curtis, J. R., Jensen, H. I., Zijlstra, J. G., Engelberg, R. A., & Spronk, P. E. (2016) · CHEST Journal · doi:10.1016/j.chest.2016.09.003 · Cited by 53
Self-citation
Interventions for interpersonal communication about end of life care between health practitioners and affected people
Ryan, R. E., Connolly, M., Bradford, N., Henderson, S., Herbert, A., Schonfeld, L., Young, J., Bothroyd, J. I., & Henderson, A. J. (2022) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd013116.pub2 · Cited by 65
Self-citation
Family-centered interventions and patient outcomes in the adult intensive care unit: A systematic review of randomized controlled trials.
Duong, J., Wang, G., Lean, G., Slobod, D., & Goldfarb, M. (2024) · Journal of critical care · doi:10.1016/j.jcrc.2024.154829 · Cited by 48
Family and health professional experience with a nurse-led family support intervention in ICU: A qualitative evaluation study
Naef, R., Massarotto, P., & Petry, H. (2020) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2020.102916 · Cited by 59
Voices from the Pandemic: A Qualitative Study of Family Experiences and Suggestions regarding the Care of Critically Ill Patients
Hochendoner, S. J., Amass, T. H., Curtis, J. R., Witt, P. D., Weng, X., Toyobo, O., Lipnick, D., Armstrong, P., Cruse, M. H., Rea, O., et al. (2021) · Annals of the American Thoracic Society · doi:10.1513/annalsats.202105-629oc · Cited by 47
Self-citation
Information or education interventions for adult intensive care unit (ICU) patients and their carers
Lewis, S. R., Pritchard, M., Schofield-Robinson, O. J., Evans, D. J., Alderson, P., & Smith, A. F. (2018) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd012471.pub2 · Cited by 45
Primary palliative care recommendations for critical care clinicians
Ito, K., George, N. R., Wilson, J. G., Bowman, J. K., Aaronson, E. L., & Ouchi, K. (2022) · Journal of Intensive Care · doi:10.1186/s40560-022-00612-9 · Cited by 50
How to communicate with families living in complete isolation
Mistraletti, G., Gristina, G. R., Mascarin, S., Iacobone, E., Giubbilo, I., Bonfanti, S., Fiocca, F., Fullin, G., Fuselli, E., Bocci, M. G., et al. (2020) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2020-002633 · Cited by 49
Efficacy of a Communication-Priming Intervention on Documented Goals-of-Care Discussions in Hospitalized Patients With Serious Illness: A Randomized Clinical Trial
Lee, R. Y., Kross, E. K., Downey, L., Paul, S. R., Heywood, J., Nielsen, E. L., Okimoto, K., Brumback, L. C., Merel, S. E., Engelberg, R. A., et al. (2022) · JAMA Network Open · doi:10.1001/jamanetworkopen.2022.5088 · Cited by 44
Self-citation
Questions to improve family–staff communication in the ICU: a randomized controlled trial
Azoulay, É., Forel, J.-M., Vinatier, I., Truillet, R., Renault, A., Valade, S., Jaber, S., Durand-Gasselin, J., Schwebel, C., Georges, H., et al. (2018) · Intensive Care Medicine · doi:10.1007/s00134-018-5423-2 · Cited by 44
Self-citation
Interventions to promote family member involvement in adult critical care settings: a systematic review
Xyrichis, A., Fletcher, S., Philippou, J., Brearley, S. A., Terblanche, M., & Rafferty, A. M. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-042556 · Cited by 43
A randomised controlled trial of a nurse facilitator to promote communication for family members of critically ill patients
Kentish‐Barnes, N., Azoulay, É., Reignier, J., Cariou, A., Lafarge, A., Huet, O., Gargadennec, T., Renault, A., Souppart, V., Clavier, P., et al. (2024) · Intensive Care Medicine · doi:10.1007/s00134-024-07390-y · Cited by 41
Self-citation
The Impact of Randomized Family-Centered Interventions on Family-Centered Outcomes in the Adult Intensive Care Unit: A Systematic Review
Wang, G., Antel, R., & Goldfarb, M. (2023) · Journal of Intensive Care Medicine · doi:10.1177/08850666231173868 · Cited by 38
Risk Factors for Post-Traumatic Stress Disorder Symptoms in Surrogate Decision-Makers of Patients with Chronic Critical Illness
Wendlandt, B., Ceppe, A., Choudhury, S., Nelson, J. E., Cox, C. E., Hanson, L. C., Danis, M., Tulsky, J. A., & Carson, S. S. (2018) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201806-420oc · Cited by 38
Selecting and evaluating decision-making strategies in the intensive care unit: A systematic review
Kerckhoffs, M. C., Kant, M., van Delden, J. J. M., Hooft, L., Kesecioğlu, J., & van Dijk, D. (2019) · Journal of Critical Care · doi:10.1016/j.jcrc.2019.01.029 · Cited by 39
A multicomponent family support intervention in intensive care units: study protocol for a multicenter cluster-randomized trial (FICUS Trial)
Naef, R., Filipovic, M., Jeitziner, M., von Felten, S., Safford, J., Riguzzi, M., & Rufer, M. (2022) · Trials · doi:10.1186/s13063-022-06454-y · Cited by 48
Using Technology to Create a More Humanistic Approach to Integrating Palliative Care into the Intensive Care Unit
Cox, C. E., & Curtis, J. R. (2015) · American Journal of Respiratory and Critical Care Medicine · doi:10.1164/rccm.201508-1628cp · Cited by 36
Self-citation
Communication Quality Predicts Psychological Well-Being and Satisfaction in Family Surrogates of Hospitalized Older Adults: An Observational Study
Torke, A. M., Callahan, C. M., Sachs, G. A., Wocial, L. D., Helft, P. R., Monahan, P. O., Slaven, J. E., Montz, K., Burke, E. S., & Inger, L. (2017) · Journal of General Internal Medicine · doi:10.1007/s11606-017-4222-8 · Cited by 37
Dying Patient and Family Contributions to Nurse Distress in the ICU
Lief, L., Berlin, D., Maciejewski, R. C., Westman, L., Su, A., Cooper, Z. R., Ouyang, D. J., Epping, G., Derry, H. M., Russell, D., et al. (2018) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201804-284oc · Cited by 37
Nurse-Led Family Support Intervention for Families of Critically Ill Patients
Naef, R., Jeitziner, M., Riguzzi, M., von Felten, S., Verweij, L., Rufer, M., Safford, J., Sutter, S., Bergmann-Kipfer, B., Betschart, U., et al. (2025) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2025.3406 · Cited by 38
Assessment of Clinical Palliative Care Trigger Status vs Actual Needs Among Critically Ill Patients and Their Family Members
Cox, C. E., Ashana, D. C., Haines, K., Casarett, D., Olsen, M. K., Parish, A., O’Keefe, Y. A., Al-Hegelan, M. S., Harrison, R. W., Naglee, C., et al. (2022) · JAMA Network Open · doi:10.1001/jamanetworkopen.2021.44093 · Cited by 36
Risk factors for complicated grief among family members bereaved in intensive care unit settings: A systematic review
Sanderson, E. A. M., Humphreys, S. K., Walker, F., Harris, D., Carduff, E., McPeake, J. M., Boyd, K. J., Pattison, N. A., & Lone, N. (2022) · PLoS ONE · doi:10.1371/journal.pone.0264971 · Cited by 36
Ethik der Reanimation und Entscheidungen am Lebensende
Bossaert, L. L., Perkins, G. D., Askitopoulou, H., Raffay, V. I., Greif, R., Haywood, K. L., Mentzelopoulos, S. D., Nolan, J. P., de Voorde, P. V., & Xanthos, T. T. (2015) · Notfall + Rettungsmedizin · doi:10.1007/s10049-015-0083-z · Cited by 42
“It’s better to have three brains working instead of one”: a qualitative study of building therapeutic alliance with family members of critically ill patients
Kalocsai, C., Amaral, A. C. K.-B., Piquette, D., Walter, G., Dev, S. P., Taylor, P., Downar, J., & Conn, L. G. (2018) · BMC Health Services Research · doi:10.1186/s12913-018-3341-1 · Cited by 44
Family outcomes and perceptions of end-of-life care in the intensive care unit: A mixed-methods review.
Chen, C., Michaels, J., & Meeker, M. A. (2020) · Journal of Palliative Care · doi:10.1177/0825859719874767 · Cited by 34
How to communicate with family members of the critically ill in the intensive care unit: A scoping review
Reifarth, E., Borrega, J. G., & Kochanek, M. (2022) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2022.103328 · Cited by 45
Effect of communication skills training on outcomes in critically ill patients with life-limiting illness referred for intensive care management: a before-and-after study
Orford, N. R., Milnes, S. L., Simpson, N., Keely, G., Elderkin, T., Bone, A., Martin, P., Bellomo, R., Bailey, M., & Corke, C. F. (2017) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2016-001231 · Cited by 34
Ethik der Reanimation und Entscheidungen am Lebensende
Mentzelopoulos, S. D., Couper, K., de Voorde, P. V., Druwé, P., Blom, M. T., Perkins, G. D., Lulić, I., Djakow, J., Raffay, V. I., Lilja, G., et al. (2021) · Notfall + Rettungsmedizin · doi:10.1007/s10049-021-00888-8 · Cited by 32
Developing the family support tool: An interactive, web-based tool to help families navigate the complexities of surrogate decision making in ICUs
Suen, A. O., Butler, R. A., Arnold, R. M., Myers, B. A., Witteman, H. O., Cox, C. E., Argenas, A., Buddadhumaruk, P., Bursic, A. E., Ernecoff, N. C., et al. (2019) · Journal of Critical Care · doi:10.1016/j.jcrc.2019.12.002 · Cited by 33
Family-clinician shared decision making in intensive care units: Cluster randomized trial in China
Liu, X., Humphris, G. M., Luo, A., Yang, M., Jin, Y., Huang, S., Xiao, S., Lv, A., Wu, G., Gui, P., et al. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.10.004 · Cited by 33
Bereavement Support Programs in the Intensive Care Unit: A Systematic Review
Brekelmans, M., Ramnarain, D., & Pouwels, S. (2022) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2022.05.008 · Cited by 36
Improving End-of-Life Care in the Intensive Care Unit: Clinicians' Experiences with the 3 Wishes Project
Neville, T. H., Agarwal, N., Swinton, M. E., Phung, P. G., Xu, X., Kao, Y.-H., Seo, J., Granone, M. C., Hjelmhaug, K., Hainje, J., et al. (2019) · Journal of Palliative Medicine · doi:10.1089/jpm.2019.0135 · Cited by 32
How Surrogate Decision-Makers for Patients With Chronic Critical Illness Perceive and Carry Out Their Role
Li, L., Nelson, J. E., Hanson, L. C., Cox, C. E., Carson, S. S., Chai, E. J., Keller, K. L., Tulsky, J. A., & Danis, M. (2018) · Critical Care Medicine · doi:10.1097/ccm.0000000000003035 · Cited by 31
Aligning use of intensive care with patient values in the USA: past, present, and future
Turnbull, A. E., Bosslet, G. T., & Kross, E. K. (2019) · The Lancet Respiratory Medicine · doi:10.1016/s2213-2600(19)30087-6 · Cited by 31
Prediction of post-traumatic stress disorder in family members of ICU patients: a machine learning approach
Dupont, T., Kentish‐Barnes, N., Pochard, F., Duchesnay, É., & Azoulay, É. (2023) · Intensive Care Medicine · doi:10.1007/s00134-023-07288-1 · Cited by 30
Mobile Application–Based Communication Facilitation Platform for Family Members of Critically Ill Patients
Cox, C. E., Ashana, D. C., Riley, I. L., Olsen, M. K., Casarett, D., Haines, K., O’Keefe, Y. A., Al-Hegelan, M. S., Harrison, R. W., Naglee, C., et al. (2024) · JAMA Network Open · doi:10.1001/jamanetworkopen.2023.49666 · Cited by 30
Complexity Analysis of Decision-Making in the Critically Ill
Daly, B. J., Douglas, S. L., O’Toole, E. E., Rowbottom, J. R., Hoffer, A., Lipson, A. R., & Burant, C. J. (2016) · Journal of Intensive Care Medicine · doi:10.1177/0885066616678394 · Cited by 31
What are the ethical issues in relation to the role of the family in intensive care?
Quenot, J., Ecarnot, F., Meunier‐Beillard, N., Dargent, A., Large, A., Andreu, P., & Rigaud, J. (2017) · Annals of Translational Medicine · doi:10.21037/atm.2017.04.44 · Cited by 30
Framework to Support the Process of Decision-Making on Life-Sustaining Treatments in the ICU: Results of a Delphi Study
Kerckhoffs, M. C., Senekal, J., van Dijk, D., Artigas, A., Butler, J., Michalsen, A., van Mol, M. M. C., Moreno, R. P., da Silva, F. P., Picetti, E., et al. (2020) · Critical Care Medicine · doi:10.1097/ccm.0000000000004221 · Cited by 29
Experiences of nurses with an innovative digital diary intervention in the intensive care unit: A qualitative exploration
Haakma, T., Tieben, R., Sleven, B., Buise, M. P., & van Mol, M. M. C. (2022) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2022.103197 · Cited by 30
Daily Written Care Summaries for Families of Critically Ill Patients: A Randomized Controlled Trial*
Greenberg, J., Basapur, S., Quinn, T. V., Bulger, J. L., Schwartz, N., Oh, S.-K., Ritz, E., Glover, C., & Shah, R. (2022) · Critical Care Medicine · doi:10.1097/ccm.0000000000005583 · Cited by 20
Early Versus Usual Palliative Care Consultation in the Intensive Care Unit
Helgeson, S., Burnside, R., Robinson, M., Mack, R., Ball, C., Guru, P., & Moss, J. (2022) · The American journal of hospice & palliative care · doi:10.1177/10499091221115732 · Cited by 29
Nurse–Family Communication During and After Family Meetings in the Intensive Care Unit
Pecanac, K. E., & King, B. (2019) · Journal of Nursing Scholarship · doi:10.1111/jnu.12459 · Cited by 29
Effects of the Values and Options in Cancer Care Communication Intervention on Personal Caregiver Experiences of Cancer Care and Bereavement Outcomes
Duberstein, P. R., Maciejewski, P. K., Epstein, R. M., Fenton, J. J., Chapman, B. P., Norton, S. A., Hoerger, M. P., Wittink, M. N., Tancredi, D. J., Xing, G., et al. (2019) · Journal of Palliative Medicine · doi:10.1089/jpm.2019.0078 · Cited by 29
A Pilot Randomized Trial of an Interactive Web-based Tool to Support Surrogate Decision Makers in the Intensive Care Unit
Suen, A. O., Butler, R. A., Arnold, R. M., Myers, B. A., Witteman, H. O., Cox, C. E., McComb, J. G., Buddadhumaruk, P., Shields, A. M., Morse, N., et al. (2020) · Annals of the American Thoracic Society · doi:10.1513/annalsats.202006-585oc · Cited by 29
Palliative and End-of-Life Care: Prioritizing Compassion Within the ICU and Beyond
Aslakson, R. A., Cox, C. E., Baggs, J. G., & Curtis, J. R. (2021) · Critical Care Medicine · doi:10.1097/ccm.0000000000005208 · Cited by 29
Self-citation
How and when post intensive care syndrome-family is measured: A scoping review
Hayes, K., Harding, S. A., Blackwood, B., & Latour, J. M. (2024) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2024.103768 · Cited by 28
Implementation of a structured communication tool improves family satisfaction and expectations in the intensive care unit
Sviri, S., Geva, D., van Heerden, P. V., Romain, M., Rawhi, H., Abutbul, A., Orenbuch‐Harroch, E., & Bentur, N. (2019) · Journal of Critical Care · doi:10.1016/j.jcrc.2019.01.011 · Cited by 30
Preferences of Current and Potential Patients and Family Members Regarding Implementation of Electronic Communication Portals in Intensive Care Units
Brown, S. M., Bell, S. K., Roche, S. D., Dente, E., Mueller, A., Kim, T.-E., O’Reilly, K. P., Lee, B. S., Sands, K., & Talmor, D. S. (2015) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201509-638oc · Cited by 30
Evaluating the Economic Impact of Palliative and End-of-Life Care Interventions on Intensive Care Unit Utilization and Costs from the Hospital and Healthcare System Perspective
Khandelwal, N., Brumback, L. C., Halpern, S. D., Coe, N. B., Brumback, B., & Curtis, J. R. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2016.0548 · Cited by 28
Self-citation
Post-Intensive Care Syndrome as a Burden for Patients and Their Caregivers: A Narrative Review
Schembari, G., Santonocito, C., Messina, S., Caruso, A., Cardia, L., Rubulotta, F. M., Noto, A., Bignami, E. G., & Sanfilippo, F. (2024) · Journal of Clinical Medicine · doi:10.3390/jcm13195881 · Cited by 38
Palliative Care Needs Assessment in the Neuro-ICU: Effect on Family
Creutzfeldt, C. J., Hanna, M., Cheever, C., Lele, A. V., Spiekerman, C. F., Engelberg, R. A., & Curtis, J. R. (2017) · Neurocritical Care · doi:10.1007/s12028-017-0426-3 · Cited by 27
Self-citation
Global Comparison of Communication of End-of-Life Decisions in the ICU
Feldman, C. H., Sprung, C. L., Mentzelopoulos, S. D., Pohrt, A., Hartog, C. S., Danbury, C. M., Weiß, M., Avidan, A., Estella, Á., Joynt, G. M., et al. (2022) · CHEST Journal · doi:10.1016/j.chest.2022.05.007 · Cited by 27
Concerns of surrogate decision makers for patients with acute brain injury
Hwang, D. Y., Knies, A. K., Mampre, D. M., Kolenikov, S., Schalk, M., Hammer, H., White, D. B., Holloway, R. G., Sheth, K. N., & Fraenkel, L. (2020) · Neurology · doi:10.1212/wnl.0000000000009406 · Cited by 27
Implementing the SCCM Family-Centered Care Guidelines in Critical Care Nursing Practice
Coombs, M. A., Puntillo, K., Franck, L. S., Scruth, E. A., Harvey, M. A., Swoboda, S. M., & Davidson, J. E. (2017) · AACN Advanced Critical Care · doi:10.4037/aacnacc2017766 · Cited by 26
Matters of Life and Death: Why Do Older Patients Choose Conservative Management?
Saeed, F., Adams, H., & Epstein, R. M. (2019) · American Journal of Nephrology · doi:10.1159/000504692 · Cited by 26

Authors: Curtis, J. R., Treece, P. D., Nielsen, E. L., Gold, J., Ciechanowski, P. S., Shannon, S. E., Khandelwal, N., Young, J. P., & Engelberg, R. A.
Affiliations: Cambia (AU)
School of Law
Department of Psychiatry and Behavioral Sciences, and
Department of Biobehavioral Nursing and Health Systems, School of Nursing
University of Washington (US)
Corresponding author: Curtis, J. Randall
ORCID: Curtis, J. Randall
Nielsen, Elizabeth L.
Ciechanowski, Paul S.
Shannon, Sarah E.
Khandelwal, Nita
Young, Jessica P.
Engelberg, Ruth A.
Venue: American Journal of Respiratory and Critical Care Medicine
Publisher: Oxford University Press (OUP)
Published: 2016-01
Volume: 193
Issue: 2
Pages: 154-162
ISSN: 1073-449X (ISSN-L)
1535-4970
DOI: 10.1164/rccm.201505-0900oc
PMC: PMC4731711
OpenAlex: W2128195581
Cited by: 398
References: 36
Citations by year: 2026: 34 · 2025: 29 · 2024: 39 · 2023: 32 · 2022: 49 · 2021: 40 · 2020: 35 · 2019: 40 · 2018: 38 · 2017: 33 · 2016: 23
FWCI: 66.27
Type: journal article
Language: en
Open access: green
www.ncbi.nlm.nih.gov
Licence: academic.oup.com/pages/standard-publication-reuse-rights (vor)
Locations: American Journal of Respiratory and Critical Care Medicine (publishedVersion)
Europe PMC (PubMed Central) (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
Funders: National Institute of Nursing Research (R01 NR05226)
Topics: Health Sciences › Medicine › Critical Care and Intensive Care Medicine › Family and Patient Care in Intensive Care Units
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Health Sciences › Health Professions › General Health Professions › Ethics in medical practice
Keywords: family communication, communication facilitators, family distress, end-of-life care, intensive care unit, critically ill patients, surrogate decision makers, family depression, post-traumatic stress disorder, anxiety, ICU costs, length of hospital stay, family conflict mediation
MeSH terms: Aged, 80 and over, Communication, Costs and Cost Analysis, Decision Making, Depression, Family, Female, Follow-Up Studies, Humans, Intensive Care Units, Length of Stay, Male, Middle Aged, Palliative Care, Professional-Family Relations, Stress, Psychological, Terminal Care, Negotiating, Withholding Treatment

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Randomized Trial of Communication Facilitators to Reduce Family Distress and Intensity of End-of-Life Care

Abstract

Overview

Integrity signals

Verification

Claims the paper makes

Claims other papers make about this one

Citations

Cites

Cited by

Related

Metadata

Record

About these checks