Self-management of older adolescents with inflammatory bowel disease: a pilot study of behavior and knowledge as prelude to transition
Abstract
OBJECTIVE: Patients gradually assume responsibility for self-management. This study sought to determine whether adolescents with inflammatory bowel disease (IBD) have developed key skills of self-management prior to the age at which many transfer to adult care. PATIENTS AND METHODS: Adolescents aged 16 to 18 years old in the Children's Hospital Boston IBD database (94 total) received a mailed survey assessing knowledge and confidence of their own health information and behaviors. RESULTS: Respondents (43%) could name medication and dose with confidence but had very poor knowledge of important side effects. Most patients deferred responsibility mostly or completely to parents for scheduling appointments (85%), requesting refills (75%), or contacting provider between visits (74%). CONCLUSIONS: Older adolescents with IBD have good recall of medications but not of side effects. Parents remain responsible for the majority of tasks related to clinic visits and the acquisition of medications.
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Proactive participation in IBD self-management, particularly among adolescents, often aids a successful transition into adult care.
“Proactive participation in IBD self-management, particularly among adolescents often aids a successful transition into adult care 12 .”
From A Systematic review of self-management interventions for children and adolescents with inflammatory bowel disease (2019) · cites this paper as [12]
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Barriers to transition from pediatric to adult care: a systematic review
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- Authors
- Fishman, L. N., Barendse, R. M., Hait, E., Burdick, C., & Arnold, J.
- Affiliations
- Boston Children's Hospital (US)
- Amsterdam UMC Location University of Amsterdam (NL)
- Brigham and Women's Hospital (US)
- Corresponding author
- Fishman, Laurie N.
- ORCID
- Fishman, Laurie N.
- Venue
- Clinical Pediatrics
- Publisher
- SAGE Publications
- Published
- 2010-09-13
- Volume
- 49
- Issue
- 12
- Pages
- 1129-1133
- ISSN
- 0009-9228 (ISSN-L)
- 1938-2707
- OpenAlex
- W2111612200
- Cited by
- 94
- References
- 12
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 3 · 2023: 5 · 2022: 6 · 2021: 8 · 2020: 8 · 2019: 7 · 2018: 10 · 2017: 13 · 2016: 7 · 2015: 8 · 2014: 6 · 2013: 4 · 2012: 2
- FWCI
- 7.96
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Clinical Pediatrics (publishedVersion)
- PubMed (publishedVersion)
- Pure Amsterdam UMC (publishedVersion)
- Data Archiving and Networked Services (DANS) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- inflammatory bowel disease, self-management, older adolescents, transition to adult care, patient knowledge, medication knowledge, adverse drug reactions, patient confidence, parental responsibility, health behavior
- MeSH terms
- Adolescent, Age Factors, Boston, Female, Health Surveys, Humans, Health Knowledge, Attitudes, Practice, Male, Pilot Projects, Self Care, Inflammatory Bowel Diseases, Adolescent Development
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