Communication and choice in dying from heart disease
Open accessAbstract
In heart disease palliative care has received less attention than in cancer. In the Regional Study of Care for the Dying, carers of a random sample of deaths in 20 English health districts were interviewed about 10 months after the death. There were 675 respondents for patients dying with heart disease, and we report data on 600 deaths that were not sudden. 54% of patients died in hospital, 30% in their own home, 11% in a nursing or residential home, and 4% in other places. Half the patients were said to have known, or probably known, that they were likely to die; of these, 82% were said to have worked this out for themselves rather than been told by a doctor or nurse. More than one-third of patients (39%) died without an informal carer present. Respondents said that a quarter of the patients had wanted to die earlier: this desire was associated with older age and the number and severity of symptoms. The study suggests the need for health services to give greater attention to palliative care for patients dying with heart disease.
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Pain is an under-recognized yet debilitating symptom of CHF, which can range in characteristic from musculoskeletal ache, deep visceral pain, and neuropathic pain, all of which are reported at a similar prevalence to dyspnoea in end-stage CHF.
“Pain is an under‐recognized yet debilitating symptom of CHF, which can range in characteristic from musculoskeletal ache, deep visceral pain, and neuropathic pain, all of which are reported at a similar prevalence to dyspnoea in end‐stage CHF. 10 , 50 , 83 , 84”
From Prioritizing symptom management in the treatment of chronic heart failure (2020) · cites this paper as [83]
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- Authors
- Mccarthy, M., Addington Hall, J., & Ley, M.
- Affiliations
- University College London (GB)
- Department of Epidemiology and Public Health, University College London, 1–19 Torrington Place, London WC1E 6EA, England
- ORCID
- Venue
- Journal of the Royal Society of Medicine
- Publisher
- SAGE Publications
- Published
- 1997-03
- Volume
- 90
- Issue
- 3
- Pages
- 128-131
- ISSN
- 0141-0768 (ISSN-L)
- 1758-1095
- PMC
- PMC1296175
- OpenAlex
- W1940588123
- Cited by
- 77
- References
- 9
- Citations by year
- 2024: 1 · 2020: 2 · 2018: 2 · 2017: 2 · 2016: 1 · 2015: 3 · 2014: 2 · 2013: 3 · 2012: 5
- FWCI
- 2.77
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of the Royal Society of Medicine (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Keywords
- heart disease, palliative care, dying, patient communication, advance care planning, caregivers, place of death, symptom severity, patient choice
- MeSH terms
- Attitude to Death, Female, United Kingdom, Heart Diseases, Humans, Male, Palliative Care, Patient Participation, Prognosis, Quality of Health Care, Terminal Care, Caregivers, Health Care Surveys
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