Communication outcome after stroke: a new measure of the carer’s perspective

Long, Andrew; Hesketh, Anne; Bowen, Audrey

doi:10.1177/0269215509336055

Cited by 80Nursing care and researchStroke Rehabilitation and RecoveryDementia and Cognitive Impairment Research

Communication outcome after stroke: a new measure of the carer’s perspective

Long, Andrew, Hesketh, Anne, Bowen, Audrey·2009·Clinical Rehabilitation

DOI 10.1177/0269215509336055

Open this paper in CoChat — free account

Abstract

OBJECTIVE: To validate a measure of the carer's perspective of a stroke survivor's communication in everyday life. DESIGN: Cross-sectional, interview-based, psychometric study. SETTING: A community sample from the northwest of England, UK. SUBJECTS: Fifty-eight carers and 58 stroke survivors with communication problems (aphasia and/or dysarthria) following a stroke within the previous 4-12 months. INTERVENTIONS: Administration of the 20-item Carer Communication Outcome after Stroke (Carer COAST) scale, on two occasions, within a two-week period; the 15-item Carers of Older People in Europe (COPE) Index, the patient Communication Outcome after Stroke (COAST) Scale, and collection of demographic and other data relating to the stroke survivor's disability (Barthel Index), degree of aphasia (Frenchay Aphasia Screening Test) and hospital diagnosis of aphasia/dysarthria. MAIN MEASURES: Acceptability (missing values), reliability (internal consistency and test-retest reliability) and construct validity. RESULTS: Carer COAST showed good acceptability (no incomplete items, sample spread 24-100%), internal consistency and test-retest reliability for the scale (a = 0.94; intraclass correlation (ICC) = 0.91) and its subscales (a = 0.78-0.90; ICC = 0.75-0.87), and indicative evidence on construct validity (Carer COAST, COPE subscales and COAST). There were statistically significant correlations between the communication items of Carer COAST and the negative impact of caregiving (r(s) = -0.29) and the financial difficulties of caregiving (r(s) = -0.38). CONCLUSIONS: The Carer COAST scale has considerable potential as a reliable and valid measure of the carer's perspective on the communication effectiveness of stroke survivors. Intercorrelations with COPE provide specific evidence of the impact of caring for a person with communication difficulties following a stroke.

Integrity signals

Registry

Crossref · 10.1177/0269215509336055

Cites

38 of 38 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

We couldn’t retrieve this paper’s full text, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Behavioral speech therapy is the standard treatment for poststroke dysarthria.
“Behavioral speech therapy is the standard treatment for poststroke dysarthria.”
From Efficacy of Digital Speech Therapy for Poststroke Dysarthria: Randomized Noninferiority Trial (2026) · cites this paper as [38]

Health Measurement Scales: A Practical Guide to Their Development and Use
Streiner, D. L., Norman, G. R., & Cairney, J. (1989) · Cited by 9,595 · see citing works
Classificação Internacional de Funcionalidade (CIF)
Battistella, L. R., & de Brito, C. M. M. (2002) · Acta Fisiátrica · doi:10.5935/0104-7795.20020003 · Cited by 4,470 · see citing works
Assessing health status and quality-of-life instruments: Attributes and review criteria
Lohr, K. N. (2002) · Quality of Life Research · doi:10.1023/a:1015291021312 · Cited by 2,281 · see citing works
Health Measurement Scales--A Practical Guide to Their Development and Use
Waclawski, E. (2010) · Occupational Medicine · doi:10.1093/occmed/kqp179 · Cited by 1,870 · see citing works
The Barthel ADL Index: A standard measure of physical disability?
Wade, D. T., & Collin, C. (1988) · International Disability Studies · doi:10.3109/09638288809164105 · Cited by 1,587 · see citing works
Validation of a Caregiver Strain Index
Robinson, B. C. (1983) · Journal of Gerontology · doi:10.1093/geronj/38.3.344 · Cited by 1,426 · see citing works
Development of a Stroke-Specific Quality of Life Scale
Williams, L. S., Weinberger, M., Harris, L. E., Clark, D. O., & Biller, J. (1999) · Stroke · doi:10.1161/01.str.30.7.1362 · Cited by 914 · see citing works
Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology
Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R., Foley, B., Smith, P. B., Cook, J., Murray, J., Prince, M. J., Levin, E., et al. (2005) · Health Technology Assessment · doi:10.3310/hta9100 · Cited by 651 · see citing works
National Clinical Guidelines for Stroke.
Robinson, T. G. (2001) · Postgraduate Medical Journal · doi:10.1136/pmj.77.906.286h · Cited by 608 · see citing works
The Communicative Effectiveness Index: Development and Psychometric Evaluation of a Functional Communication Measure for Adult Aphasia
Lomas, J., Pickard, L., Bester, S., Elbard, H., Finlayson, A., & Zoghaib, C. (1989) · Journal of Speech and Hearing Disorders · doi:10.1044/jshd.5401.113 · Cited by 572 · see citing works
Family Caregiving for Patients With Stroke
Han, B., & Haley, W. E. (1999) · Stroke · doi:10.1161/01.str.30.7.1478 · Cited by 480 · see citing works
Aphasia after stroke: natural history and associated deficits.
Wade, D. T., Hewer, R. L., DAVID, R. M., & Enderby, P. (1986) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.49.1.11 · Cited by 417 · see citing works
Information provision for stroke patients and their caregivers
Förster, A., Brown, L., Smith, J., House, A. O., Knapp, P., Wright, J., & Young, J. B. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd001919.pub3 · Cited by 413 · see citing works
Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale
Elmståhl, S., Malmberg, B., & Annerstedt, L. (1996) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/s0003-9993(96)90164-1 · Cited by 364 · see citing works
The impact of stroke on informal carers: a literature review
Low, J., Payne, S. A., & Roderick, P. J. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(99)00194-x · Cited by 275 · see citing works
Intervention studies for caregivers of stroke survivors: a critical review
Visser‐Meily, A., Heugten, C. M. V., Post, M. W. M., Schepers, V. P. M., & Lindeman, E. (2004) · Patient Education and Counseling · doi:10.1016/j.pec.2004.02.013 · Cited by 190 · see citing works
Time and Difficulty of Tasks Provided by Family Caregivers of Stroke Survivors
Bakas, T., AUSTIN, J. K., Jessup, S. L., Williams, L. S., & Oberst, M. T. (2004) · Journal of Neuroscience Nursing · doi:10.1097/01376517-200404000-00007 · Cited by 176 · see citing works
Informal carers’ experience of caring for stroke survivors
Smith, L. N., Lawrence, M., Kerr, S., Langhorne, P., & Lees, K. R. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.02983.x · Cited by 157 · see citing works
Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39
Hilari, K., Owen, S., & Farrelly, S. J. (2007) · Journal of Neurology, Neurosurgery &amp; Psychiatry · doi:10.1136/jnnp.2006.111476 · Cited by 154 · see citing works
The COPE index--a first stage assessment of negative impact, positive value and quality of support of caregiving in informal carers of older people
McKee, K., Philp, I., Lamura, G., Prouskas, C., Öberg, B. E., Krevers, B., Spazzafumo, L., Bień, B., Parker, C., Nolan, M., et al. (2003) · Aging & Mental Health · doi:10.1080/1360786021000006956 · Cited by 151 · see citing works
Outcomes Among Family Caregivers of Aphasic Versus Nonaphasic Stroke Survivors
Bakas, T., Kroenke, K., Plue, L. D., Perkins, S. M., & Williams, L. S. (2006) · Rehabilitation Nursing · doi:10.1002/j.2048-7940.2006.tb00008.x · Cited by 133 · see citing works
Development of a reliable self-report outcome measure for pragmatic trials of communication therapy following stroke: the Communication Outcome after Stroke (COAST) scale
Long, A., Hesketh, A., Paszek, G., Booth, M., & Bowen, A. (2008) · Clinical Rehabilitation · doi:10.1177/0269215508090091 · Cited by 123 · see citing works
Self-citation
Developing a primary care-based stroke service: a review of the qualitative literature.
Murray, J., Ashworth, R. D., Förster, A., & Young, J. B. (2003) · Europe PMC (PubMed Central) · Cited by 118 · see citing works
Stroke caregivers' strain: prevalence and determinants in the first six months after stroke
Baert, I., Feys, H., Wit, L. D., Putman, K. D., & Weerdt, W. D. (2008) · Disability and Rehabilitation · doi:10.1080/09638280701355645 · Cited by 110 · see citing works
Stroke Survivors’ Behavioral and Psychologic Symptoms Are Associated With Informal Caregivers’ Experiences of Depression
Cameron, J. I., Cheung, A. M., Streiner, D. L., Coyte, P. C., & Stewart, D. E. (2006) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2005.10.012 · Cited by 108 · see citing works
Evaluation of a training programme to facilitate conversation between people with aphasia and their partners
Cunningham, R., & Ward, C. D. (2003) · Aphasiology · doi:10.1080/02687030344000184 · Cited by 90 · see citing works
Life satisfaction in spouses of patients with stroke during the first year after stroke
Forsberg‐Wärleby, G., Möller, A. R., & Blomstrand, C. (2004) · Journal of Rehabilitation Medicine · doi:10.1080/16501970310015191 · Cited by 89 · see citing works
Inter-rater reliability of the Frenchay Activities Index in patients with stroke and their carers
Piercy, M., Carter, J., Mant, J., & Wade, D. T. (2000) · Clinical Rehabilitation · doi:10.1191/0269215500cr327oa · Cited by 75 · see citing works
Determining the needs of spouses caring for aphasic partners
Denman, A. (1998) · Disability and Rehabilitation · doi:10.3109/09638289809166103 · Cited by 73 · see citing works
Psychological well-being of spouses of stroke patients during the first year after stroke
Forsberg‐Wärleby, G., Möller, A. R., & Blomstrand, C. (2004) · Clinical Rehabilitation · doi:10.1191/0269215504cr740oa · Cited by 66 · see citing works
The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients’ stroke event: A longitudinal study
Larson, J., Franzén‐Dahlin, Å., Billing, E., von Arbin, M., Murray, V., & Wredling, R. (2006) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2006.08.021 · Cited by 56 · see citing works
Impact of cognitive and physical impairment on carer burden and quality of life
Tooth, L. R., Russell, A., Lucke, J. C., Byrne, G. J., Lee, C., Wilson, A. J., & Dobson, A. J. (2007) · Quality of Life Research · doi:10.1007/s11136-007-9300-7 · Cited by 40 · see citing works
Psychological adjustment of the spouses of aphasic stroke patients
Ross, S., & Morris, R. G. (1988) · International Journal of Rehabilitation Research · doi:10.1097/00004356-198812000-00008 · Cited by 33 · see citing works
Feasibility study of a primary care-based model for stroke aftercare.
Murray, J., Young, J., Förster, A., Herbert, G., & Ashworth, R. D. (2006) · PubMed Central · Cited by 27 · see citing works
Coping strategies of family carers for older relatives in Finland
Kuuppelomäki, M., Sasaki, A., Yamada, K., Asakawa, N., & Shimanouchi, S. (2004) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2004.00928.x · Cited by 26 · see citing works
Using the COPE assessment tool with informal carers of people with dementia in New Zealand.
Roud, H., Keeling, S., & Sainsbury, R. (2006) · PubMed · Cited by 24 · see citing works
The multi-centre assessment of quality of life: the Interdisciplinary Group for Cancer Care Evaluation (GIVIO) experience in Italy
Mosconi, P., Torri, V., Cifani, S., Ruggiata, R., Meyerowitz, B. E., Apolone, G., Liberati, A., & Interdisciplinary Group for Cancer Care Evaluation (GIVIO) (1998) · Statistics in Medicine · doi:10.1002/(sici)1097-0258(19980315/15)17:5/7 · Cited by 17 · see citing works
Setting up and running a disabled living centre
Chamberlain, M. A. (1988) · International Disability Studies · doi:10.3109/09638288809164115 · Cited by 6 · see citing works

Flagged first, then by citations

1 of the 39 references couldn’t be matched to a known paper.

Sorted by citations

Speech and language therapy for aphasia following stroke
Brady, M. C., Kelly, H., Godwin, J., Enderby, P., & Campbell, P. (2016) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd000425.pub4 · Cited by 1,159 · see citing works
Speech and language therapy for aphasia following stroke
Brady, M., Kelly, H., Godwin, J., & Enderby, P. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd000425.pub3 · Cited by 269 · see citing works
Effectiveness of enhanced communication therapy in the first four months after stroke for aphasia and dysarthria: a randomised controlled trial
Bowen, A., Hesketh, A., Patchick, E. L., Young, A. M., Davies, L. M., Vail, A., Long, A., Watkins, C. L., Wilkinson, M., Pearl, G., et al. (2012) · BMJ · doi:10.1136/bmj.e4407 · Cited by 228 · see citing works
Self-citation
Self-managed, computerised speech and language therapy for patients with chronic aphasia post-stroke compared with usual care or attention control (Big CACTUS): a multicentre, single-blinded, randomised controlled trial
Palmer, R., Dimairo, M., Cooper, C., Enderby, P., Brady, M., Bowen, A., Latimer, N., Julious, S., Cross, E., Alshreef, A., et al. (2019) · The Lancet Neurology · doi:10.1016/s1474-4422(19)30192-9 · Cited by 200 · see citing works
Self-citation
The impact of stroke-related dysarthria on social participation and implications for rehabilitation
Brady, M., Clark, A. M., Dickson, S., Paton, G., & Barbour, R. S. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.517897 · Cited by 127 · see citing works
Interventions for dysarthria due to stroke and other adult-acquired, non-progressive brain injury
Mitchell, C., Bowen, A., Tyson, S., Butterfint, Z., & Conroy, P. (2017) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd002088.pub3 · Cited by 111 · see citing works
Self-citation
Is it time to stop “fishing”? A review of generalisation following aphasia intervention
Webster, J., Whitworth, A., & Morris, J. (2015) · Aphasiology · doi:10.1080/02687038.2015.1027169 · Cited by 92 · see citing works
Measures of functional, real-world communication for aphasia: a critical review
Doedens, W., & Meteyard, L. (2019) · Aphasiology · doi:10.1080/02687038.2019.1702848 · Cited by 87 · see citing works
Measuring outcomes in aphasia research: A review of current practice and an agenda for standardisation
Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2014) · Aphasiology · doi:10.1080/02687038.2014.930262 · Cited by 57 · see citing works
Computerised speech and language therapy or attention control added to usual care for people with long-term post-stroke aphasia: the Big CACTUS three-arm RCT
Palmer, R., Dimairo, M., Latimer, N., Cross, E., Brady, M., Enderby, P., Bowen, A., Julious, S., Harrison, M., Alshreef, A., et al. (2020) · Health Technology Assessment · doi:10.3310/hta24190 · Cited by 53 · see citing works
Self-citation
Communication partner training of enrolled nurses working in nursing homes with people with communication disorders caused by stroke or Parkinson’s disease
Eriksson, K. L., Forsgren, E., Hartelius, L., & Saldert, C. (2016) · Disability and Rehabilitation · doi:10.3109/09638288.2015.1089952 · Cited by 49 · see citing works
Impact of caregiving on Finnish family caregivers
Toljamo, M., Perälä, M., & Laukkala, H. (2011) · Scandinavian Journal of Caring Sciences · doi:10.1111/j.1471-6712.2011.00919.x · Cited by 47 · see citing works
Clinical and cost effectiveness of computer treatment for aphasia post stroke (Big CACTUS): study protocol for a randomised controlled trial
Palmer, R., Cooper, C. L., Enderby, P., Brady, M., Julious, S. A., Bowen, A., & Latimer, N. R. (2015) · Trials · doi:10.1186/s13063-014-0527-7 · Cited by 46 · see citing works
Self-citation
Complexity in measuring outcomes after communication partner training: alignment between goals of intervention and methods of evaluation
Saldert, C., Jensen, L. R., Johansson, M. B., & Simmons‐Mackie, N. N. (2018) · Aphasiology · doi:10.1080/02687038.2018.1470317 · Cited by 43 · see citing works
Dysarthria and stroke. The effectiveness of speech rehabilitation. A systematic review and meta-analysis of the studies
Chiaramonte, R., & Vecchio, M. M. (2021) · European Journal of Physical and Rehabilitation Medicine · doi:10.23736/s1973-9087.20.06242-5 · Cited by 44 · see citing works
Training conversation partners of persons with communication disorders related to Parkinson's disease—a protocol and a pilot study
Forsgren, E., Antonsson, M., & Saldert, C. (2012) · Logopedics Phoniatrics Vocology · doi:10.3109/14015439.2012.731081 · Cited by 39 · see citing works
Family-Centered Care in Aphasia
Grawburg, M., Howe, T., Worrall, L. E., & Scarinci, N. (2019) · Topics in Language Disorders · doi:10.1097/tld.0000000000000176 · Cited by 36 · see citing works
Many ways of measuring: a scoping review of measurement instruments for use with people with aphasia
Wallace, S. J., Worrall, L. E., Dorze, G. L., Brandenburg, C., Foulkes, J., & Rose, T. (2020) · Aphasiology · doi:10.1080/02687038.2020.1836318 · Cited by 36 · see citing works
Conversation partner training with spouses of persons with aphasia: A pilot study using a protocol to trace relevant characteristics
Saldert, C., Backman, E., & Hartelius, L. (2013) · Aphasiology · doi:10.1080/02687038.2012.710317 · Cited by 37 · see citing works
On the diverse outcome of communication partner training of significant others of people with aphasia: an experimental study of six cases
Eriksson, K., Hartelius, L., & Saldert, C. (2016) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12216 · Cited by 31 · see citing works
The Aphasia Action, Success, and Knowledge Programme: Results from an Australian Phase I Trial of a Speech-Pathology-Led Intervention for People with Aphasia Early Post Stroke
Ryan, B., Hudson, K., Worrall, L. E., Simmons‐Mackie, N. N., Thomas, E., Finch, E., Clark, K., & Lethlean, J. (2017) · Brain Impairment · doi:10.1017/brimp.2017.5 · Cited by 31 · see citing works
Effects on communication from intensive treatment with semantic feature analysis in aphasia
Kristensson, J., Behrns, I., & Saldert, C. (2015) · Aphasiology · doi:10.1080/02687038.2014.973359 · Cited by 29 · see citing works
Occupational Changes in Caregivers for Spouses with Stroke and Aphasia
Kniepmann, K., & Cupler, M. H. (2014) · British Journal of Occupational Therapy · doi:10.4276/030802214x13887685335463 · Cited by 30 · see citing works
A contribuição de estudos transversais na área da linguagem com enfoque em afasia
Sitta, É. I., Arakawa, A. M., Caldana, M. D. L., & Peres, S. H. D. C. S. (2010) · Revista CEFAC · doi:10.1590/s1516-18462010005000086 · Cited by 27 · see citing works
An interaction-focused intervention approach to training everyday communication partners: a single case study
Saldert, C., Johansson, C., & Wilkinson, R. (2014) · Aphasiology · doi:10.1080/02687038.2014.948803 · Cited by 25 · see citing works
Agreement on outcome: Speaker, carer, and therapist perspectives on functional communication after stroke
Hesketh, A., Long, A., Bowen, A., & St, O. B. O. T. A. R. (2010) · Aphasiology · doi:10.1080/02687038.2010.507818 · Cited by 25 · see citing works
Self-citation
Self- and surrogate-reported communication functioning in aphasia
Doyle, P. J., Hula, W. D., Hula, S. N. A., Stone, C. A., Wambaugh, J. L., Ross, K., & Schumacher, J. G. (2012) · Quality of Life Research · doi:10.1007/s11136-012-0224-5 · Cited by 23 · see citing works
Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach
Johansson, M. B., Carlsson, M., Östberg, P., & Sonnander, K. (2020) · Aphasiology · doi:10.1080/02687038.2020.1852166 · Cited by 22 · see citing works
The verbal, non-verbal and structural bases of functional communication abilities in aphasia
Schumacher, R., Bruehl, S., Halai, A. D., & Ralph, M. A. L. (2020) · Brain Communications · doi:10.1093/braincomms/fcaa118 · Cited by 22 · see citing works
Assessing functional communication: validation of the Italian versions of the Communication Outcome after Stroke (COAST) scales for speakers and caregivers
Bambini, V., Arcara, G., Aiachini, B., Cattani, B., Dichiarante, M. L., Moro, A., Cappa, S. F., & Pistarini, C. (2016) · Aphasiology · doi:10.1080/02687038.2016.1225275 · Cited by 18 · see citing works
The Living with Dysarthria group: implementation and feasibility of a group intervention for people with dysarthria following stroke and family members
Mackenzie, C., Paton, G., Kelly, S., Brady, M., & Muir, M. R. (2012) · International Journal of Language & Communication Disorders · doi:10.1111/j.1460-6984.2012.00180.x · Cited by 18 · see citing works
Development of the Aboriginal Communication Assessment After Brain Injury (ACAABI): A screening tool for identifying acquired communication disorders in Aboriginal Australians
Armstrong, E., Ciccone, N., Hersh, D., Katzenellenbogen, J. M., Coffin, J., Thompson, S., Flicker, L. A., Hayward, C., Woods, D., & McAllister, M. (2017) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2017.1290136 · Cited by 17 · see citing works
Instrumentos de avaliação breve da comunicação: ferramentas existentes e sua aplicabilidade clínica
Casarin, F. S., Pagliarin, K. C., Koehler, C., de Oliveira, C. R., & Fonseca, R. P. (2011) · Revista CEFAC · doi:10.1590/s1516-18462011005000031 · Cited by 14 · see citing works
Assessing and treating conversations with partners in Parkinson’s disease: A scoping review of the evidence
Thilakaratne, R., Loftus, A. M., & Cocks, N. (2021) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2021.1978545 · Cited by 13 · see citing works
Naming vs. non-naming treatment in aphasia in a group setting–A randomized controlled trial
Kristensson, J., Saldert, C., Östberg, P., Smith, S. R., Åke, S., & Longoni, F. (2022) · Journal of Communication Disorders · doi:10.1016/j.jcomdis.2022.106215 · Cited by 13 · see citing works
Assessment of communication competence in acquired communication disorders: A systematic scoping review
Aldridge, D., Cahill, L., & Theodoros, D. (2022) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2022.2055142 · Cited by 13 · see citing works
Quality of Assessment Tools for Aphasia: A Systematic Review
Panuccio, F., Rossi, G., Nuzzo, A. D., Ruotolo, I., Cianfriglia, G., Simeon, R., Sellitto, G., Berardi, A., & Galeoto, G. (2025) · Brain Sciences · doi:10.3390/brainsci15030271 · Cited by 12 · see citing works
Communicative Access Measures for Stroke: Development and Evaluation of a Quality Improvement Tool
Kagan, A., Simmons‐Mackie, N. N., Victor, J. C., & Chan, M. T. (2017) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2017.04.017 · Cited by 12 · see citing works
Self-perceptions of functional communication performance during total communication intervention
Rautakoski, P. (2012) · Aphasiology · doi:10.1080/02687038.2011.651710 · Cited by 12 · see citing works
Fractured patella in children: Preservation of the patellar dimensions
Massoud, E. I. E. (2012) · Dicle Medical Journal / Dicle Tip Dergisi · doi:10.5798/diclemedj.0921.2012.04.0184 · Cited by 12 · see citing works
A Co-creation Centre for Accessible Rehabilitation Technology
Kerr, A., Grealy, M., Kuschmann, A., Rutherford, R., & Rowe, P. J. (2022) · Frontiers in Rehabilitation Sciences · doi:10.3389/fresc.2021.820929 · Cited by 11 · see citing works
The importance of situated language use for aphasia rehabilitationPreprint
Doedens, W., & Meteyard, L. (2018) · doi:10.31234/osf.io/svwpf · Cited by 11 · see citing works
Efficacy and feasibility of a digital speech therapy for post-stroke dysarthria: protocol for a randomized controlled trial
Kim, Y., Kim, M., Kim, J., & Song, T.-J. (2024) · Frontiers in Neurology · doi:10.3389/fneur.2024.1305297 · Cited by 10 · see citing works
Validated patient reported outcome measures in speech-language pathology: A scoping review of adult practice
Gardner, D., Mitchell, V., Frakking, T. T., Weir, K. A., Canning, A., & Wenke, R. (2024) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2024.2399236 · Cited by 10 · see citing works
The Italian validation of the Communicative Effectiveness Index Questionnaire: a multicentric study
Moretta, P., Lanzillo, A., Sapio, M. D. L., Spaccavento, S., Cellamare, F., Nisoli, F., Ianni, A., Pain, D., Feroldi, S., Forlani, C. A., et al. (2020) · Neurological Sciences · doi:10.1007/s10072-020-04781-z · Cited by 9 · see citing works
Expert Versus Proxy Rating of Verbal Communicative Ability of People with Aphasia after Stroke
Jong-Hagelstein, M., Kros, L., Lingsma, H. F., Dippel, D. W. J., Koudstaal, P. J., & Visch-Brink, E. G. (2012) · Journal of the International Neuropsychological Society · doi:10.1017/s1355617712000811 · Cited by 9 · see citing works
Manipulating laterality and polarity of transcranial direct current stimulation to optimise outcomes for anomia therapy in an individual with chronic Broca’s aphasia
Sandars, M., Cloutman, L. L., & Woollams, A. M. (2017) · Aphasiology · doi:10.1080/02687038.2017.1350631 · Cited by 8 · see citing works
Naming of Objects and Actions after Treatment with Phonological Components Analysis in Aphasia
Kristensson, J., & Saldert, C. (2018) · Clinical Archives of Communication Disorders · doi:10.21849/cacd.2018.00367 · Cited by 7 · see citing works
Aphasia partnership training: What outcomes do people with aphasia, family members and speech and language therapists expect?
Palmer, R., Hilari, K., Magdalani, C., Coster, J. E., Beeke, S., Gibbs, E., Witts, H., Sudworth, K., Jagoe, C., & Cruice, M. N. (2025) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.70015 · Cited by 7 · see citing works
Assessing Functional Communication in Persons With Aphasia: A Scoping Review of Formal and Informal Measures
Hammond, L. E., Christensen, T., Fridriksson, J., & den Ouden, D. (2025) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.70051 · Cited by 7 · see citing works
The impact of a university-based intensive comprehensive aphasia programme (ICAP) on language, functional communication and quality of life in people with chronic aphasia
Molino, M., Egan, A., & Kuschmann, A. (2024) · Aphasiology · doi:10.1080/02687038.2024.2368623 · Cited by 7 · see citing works
Investigation of caregiver burden, quality of life, and occupational performance of primary caregivers of individuals having experienced a stroke with and without aphasia
Aslan, S., & Altuntaş, O. (2024) · Topics in Stroke Rehabilitation · doi:10.1080/10749357.2024.2444110 · Cited by 6 · see citing works
Psychometric evaluation of condition-specific instruments used to assess health-related quality of life and related constructs in aphasia
Gadson, D. S., Marshall, R. S., & Franic, D. M. (2020) · Aphasiology · doi:10.1080/02687038.2020.1787731 · Cited by 5 · see citing works
Measuring successful conversations in couples with and without aphasia: A scoping review
Rotherham, A., Shrubsole, K., Croteau, C., Hilari, K., Wallace, H. M., & Wallace, S. J. (2024) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.13098 · Cited by 4 · see citing works
Characteristics of Patients Who Receive Home Health Services and Expectations of Caregivers
Çayır, Y., Avşar, Ü. Z., Cansever, Z., Khan, A. S., & Aile, F. (2013) · Cited by 3 · see citing works
Evaluating the co-designed “kalmer” relaxation intervention for people with aphasia: a feasibility case series
El-Helou, R., Ryan, B., Hilari, K., & Kneebone, I. (2024) · Aphasiology · doi:10.1080/02687038.2024.2437784 · Cited by 3 · see citing works
Evaluating the intervention fidelity of self-managed computer therapy for aphasia post-stroke
Harrison, M. (2019) · White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York) · Cited by 3 · see citing works
Development and Validation of the Pre-Hospital Stroke Symptoms Coping Test
Zhao, Q., Yang, L., Zhang, X., Zhu, X., Zuo, Q., Wu, Y., Liu, Y., Gao, W., Li, M., & Cheng, S. (2014) · PLoS ONE · doi:10.1371/journal.pone.0110022 · Cited by 2 · see citing works
Protocol for a feasibility study evaluating a supported self-management intervention for stroke survivors with aphasia (StarStep study)
Wray, F., Cruice, M. N., Kellar, I., & Förster, A. (2025) · Pilot and Feasibility Studies · doi:10.1186/s40814-024-01589-y · Cited by 1 · see citing works
Adaptation and investigation of validity and reliability measures of the communication outcome after stroke scale (COAST) for Cantonese speakers with aphasia: a preliminary study
Wong, W. W.-S., & Kwok, H. T. K. (2025) · Aphasiology · doi:10.1080/02687038.2025.2495611 · Cited by 1 · see citing works
Effects of acoustic startle priming on poststroke dysarthria rehabilitation: study protocol for a double-blinded, single-centre randomised controlled trial in China
Wang, M., Xia, N. L., Wu, Q., Jiang, T., Peng, C., Li, J., Li, D., Lou, W., & Lu, M. (2025) · BMJ Open · doi:10.1136/bmjopen-2024-086791 · Cited by 1 · see citing works
Influência da comunicação na vida dos cuidadores de pessoas com afasia
Silva, F. L., & Patricio, B. F. (2010) · Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT) · Cited by 1 · see citing works
Instrumentos de avaliação breve da comunicação: ferramentas existentes e sua aplicabilidade clínica Brief communication assessment instruments: available tools and their clinical applicability
Casarin, F. S., Pagliarin, K. C., Koehler, C., de Oliveira, C. R., & Fonseca, R. P. (2011) · DOAJ (DOAJ: Directory of Open Access Journals) · Cited by 1 · see citing works
Telerehabilitation with Verb Network Strengthening Treatment (VNeST) in two participants with mild-to-moderate and moderate-to-severe aphasia: A single-case experimental design study
Torinsson, M., Saldert, C., Smith, S. R., Kristensson, J., & Longoni, F. (2024) · Aphasiology · doi:10.1080/02687038.2024.2322773 · Cited by 1 · see citing works
The impact of communication partner variables on supported conversation for adults with aphasia
Sechtem, P. R. (2013) · Holmes Museum Of Anthropology (Wichita State University) · Cited by 1 · see citing works
Abstracts 20th International Science of Aphasia Conference, Rome, September 2019
Sstp, R. (2019) · Stem- Spraak- en Taalpathologie · doi:10.21827/5d8b76574cc25 · Cited by 1 · see citing works
Stepped psychological care in post-stroke aphasia: Feasibility protocol to evaluate the co- designed “Kalmer” online relaxation interventionPreprint
El-Helou, R., Ryan, B., Hilari, K., & Kneebone, I. (2024) · Research Square · doi:10.21203/rs.3.rs-3872461/v1 · Cited by 1 · see citing works
Efficacy of Digital Speech Therapy for Poststroke Dysarthria: Randomized Noninferiority Trial
Kim, Y., Kim, M., Kim, S., Kim, J., Shin, J.-H., Chang, Y., Na, J. Y., Kim, J., & Song, T.-J. (2026) · Journal of Medical Internet Research · doi:10.2196/81938
“The total QoL-Dys score was used for analysis [37,38].”
Authors' reply to Enderby, Meteyard, and Thornton
Bowen, A., Hesketh, A., Patchick, E. L., Young, A. M., Davies, L. M., Vail, A., Long, A., Watkins, C. L., Wilkinson, M., Pearl, G., et al. (2012) · BMJ · doi:10.1136/bmj.e6023
Self-citation
Investigating third-party functioning and third-party disability in family members of people with aphasia
Grawburg, M. (2014) · UC Research Repository (University of Canterbury) · doi:10.26021/8694
Yatağa bağimli hastalarin evde yaşadiklari sağlik sorunlarina yönelik evde bakim hizmet gereksinimleri Needs of home care services for the bedridden patient's problems living in their home
Akdemir, N., Yurtsever, S., Kutlutürkan, S., & Kapucu, S. (2011)
Evde bakim hizmetinden yararlanan hastalarin sosyodemografik özellikleri ve tibbi durumlarinin değerlendirilmesi Evaluating sociodemographic and medical conditions of patients under home care service
Önder, T., & Anuk, T. (2015)
A contribuição de estudos transversais na área da linguagem com enfoque em afasia Contribution of cross-section studies in the language area with focus on aphasia
Sitta, É. I., Arakawa, A. M., Caldana, M. D. L., & Peres, S. H. D. C. S. (2010) · DOAJ (DOAJ: Directory of Open Access Journals)
References
(2011) · Wiley eBooks · doi:10.1002/9781119961307.refs
Yutesler_Faroqi-ShahPreprint
Yutesler, A., & Yasmeen Faroqi-shah, A. (2021) · doi:10.31234/osf.io/rp96e
Functional communication assessment for aphasic patients: A review
Pozdniakova, V., Shlyakhova, A., Buivolova, O. V., & Akinina, Y. S. (2022) · The Russian Journal of Cognitive Science · doi:10.47010/22.3-4.2
tES-basierte Interventionen zur Verbesserung der kognitiven Kontrolle bei Sprachverarbeitungsstörungen
Pisoni, A., Arrigoni, E., & Papagno, C. (2025) · Springer eBooks · doi:10.1007/978-3-662-70454-7_14
“I’m going out more often, I’m speaking to people more often”: a qualitative exploration of participants’ experiences with a student-led online intensive comprehensive aphasia programme
Molino, M., & Kuschmann, A. (2026) · Aphasiology · doi:10.1080/02687038.2026.2650660
Readability of Patient-Reported Outcome Measures in Adult Speech-Language Pathology Practice
DiStefano, P., Letts, L. J., Williams, A., & Namasivayam-MacDonald, A. M. (2026) · American Journal of Speech-Language Pathology · doi:10.1044/2026_ajslp-26-00096
Better Conversations With Parkinson's: Feasibility and Acceptability of a Novel Communication Partner Training Telehealth Intervention
Clay, P., Beeke, S., Hogger, L., Brix, I., Masse, E., Hunt, H., Dangerfield, L., & Bloch, S. (2026) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.70308

Development of a reliable self-report outcome measure for pragmatic trials of communication therapy following stroke: the Communication Outcome after Stroke (COAST) scale
Long, A., Hesketh, A., Paszek, G., Booth, M., & Bowen, A. (2008) · Clinical Rehabilitation · doi:10.1177/0269215508090091 · Cited by 123 · see citing works
Self-citation
Assessing functional communication: validation of the Italian versions of the Communication Outcome after Stroke (COAST) scales for speakers and caregivers
Bambini, V., Arcara, G., Aiachini, B., Cattani, B., Dichiarante, M. L., Moro, A., Cappa, S. F., & Pistarini, C. (2016) · Aphasiology · doi:10.1080/02687038.2016.1225275 · Cited by 18 · see citing works
Agreement on outcome: Speaker, carer, and therapist perspectives on functional communication after stroke
Hesketh, A., Long, A., Bowen, A., & St, O. B. O. T. A. R. (2010) · Aphasiology · doi:10.1080/02687038.2010.507818 · Cited by 25 · see citing works
Self-citation
Development and results of a questionnaire to measure carer satisfaction after stroke.
Pound, P., Gompertz, P., & Ebrahim, S. B. J. (1993) · Journal of Epidemiology & Community Health · doi:10.1136/jech.47.6.500 · Cited by 58 · see citing works
Adaptation and investigation of validity and reliability measures of the communication outcome after stroke scale (COAST) for Cantonese speakers with aphasia: a preliminary study
Wong, W. W.-S., & Kwok, H. T. K. (2025) · Aphasiology · doi:10.1080/02687038.2025.2495611 · Cited by 1 · see citing works

Authors: Long, A., Hesketh, A., & Bowen, A.
Affiliations: University of Leeds (GB)
University of Manchester (GB)
Corresponding author: Long, Andrew
ORCID: Long, Andrew
Hesketh, Anne
Bowen, Audrey
Venue: Clinical Rehabilitation
Publisher: SAGE Publications
Published: 2009-05-29
Volume: 23
Issue: 9
Pages: 846-856
ISSN: 0269-2155 (ISSN-L)
1477-0873
DOI: 10.1177/0269215509336055
OpenAlex: W2153545062
Cited by: 80
References: 39
Citations by year: 2026: 4 · 2025: 7 · 2024: 8 · 2022: 4 · 2021: 3 · 2020: 6 · 2019: 5 · 2018: 3 · 2017: 5 · 2016: 3 · 2015: 4 · 2014: 6 · 2013: 2 · 2012: 10
FWCI: 16.62
Type: journal article
Language: en
Open access: closed
Licence: journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations: Clinical Rehabilitation (publishedVersion)
PubMed (publishedVersion)
Research Explorer (The University of Manchester) (submittedVersion)
Funders: National Institute for Health and Care Research (02/11/04)
Health Technology Assessment Programme
Topics: Health Sciences › Health Professions › Pharmacy › Nursing care and research
Health Sciences › Medicine › Rehabilitation › Stroke Rehabilitation and Recovery
Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Keywords: stroke, caregiver perspectives, aphasia, dysarthria, scale validation, psychometric properties, caregiver burden, communication difficulties
MeSH terms: Stroke Rehabilitation, Aged, Aged, 80 and over, Aphasia, Dysarthria, Female, Humans, Male, Middle Aged, Quality of Life, Severity of Illness Index, Caregivers, Stroke

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Communication outcome after stroke: a new measure of the carer’s perspective

Abstract

Integrity signals

Claims the paper makes

Claims other papers make about this one

Cites

Cited by

Related

Record

About these checks