Dying at home: a way of maintaining control for the person with ALS/M N D
Abstract
Control is a key issue for patients with amyotrophic lateral sclerosis, and caring for them in their own homes is often an essential part of remaining in control. This goal can usually be achieved if all resources are correctly used.
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A high level of burden might predict a breakdown in care, leading to earlier placement of the patient in a care-home or hospice.
“a high level of burden might predict a breakdown in care, leading to earlier placement of the patient in a care-home or hospice [10]”
Cites
Palliative Care for Individuals with Amyotrophic Lateral Sclerosis
Kristjanson, L. J. (1987) · Journal of Palliative Care · doi:10.1177/082585978700200207 · Cited by 6 · see citing works
BAY, E. J. (1988) · Nursing · doi:10.1097/00152193-198808000-00017 · Cited by 1 · see citing works
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D’Alvano, G., Buonanno, D., Passaniti, C., De Stefano, M., Lavorgna, L., Tedeschi, G., Siciliano, M., & Trojsi, F. (2021) · Brain Sciences · doi:10.3390/brainsci12010049 · Cited by 32 · see citing works
de Wit, J., Beelen, A., Drossaert, C. H. C., Kolijn, R., van den Berg, L. H., Visser-Meily, J. M. A., & Schröder, C. D. (2018) · BMC Psychology · doi:10.1186/s40359-018-0232-5 · Cited by 12 · see citing works
“The wellbeing of ALS caregivers is critical because a high level of burden might predict a breakdown in care, leading to earlier placement of the patient in a care-home or hospice [10].”
Background
- Authors
- Moore, M. K.
- Affiliations
- Sunnybrook Health Science Centre (CA)
- Corresponding author
- Moore, Myrna K
- Venue
- Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 1993-10
- Volume
- 7
- Issue
- 4_suppl
- Pages
- 65-68
- ISSN
- 0269-2163 (ISSN-L)
- 1477-030X
- OpenAlex
- W2151857817
- Cited by
- 32
- References
- 2
- Citations by year
- 2021: 1 · 2018: 1 · 2012: 1
- FWCI
- 3.10
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Palliative Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Neurology › Amyotrophic Lateral Sclerosis Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- amyotrophic lateral sclerosis, motor neuron disease, home death, home care, patient control, end-of-life care, palliative care, resource allocation
- MeSH terms
- Amyotrophic Lateral Sclerosis, Home Care Services, Home Nursing, Humans, Ontario, Palliative Care, Patient Participation, Terminal Care, Motor Neuron Disease
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