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Cited by 84Palliative Care and End-of-Life IssuesDialysis and Renal Disease ManagementEthics and bioethics in healthcare

Nephrologists Should Voluntarily Divulge Survival Data to Potential Dialysis Patients: A Questionnaire Study

Fine, Adrian, Fontaine, Bunny, Kraushar, Maryann M., Rich, Beverly R.·2005·Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis
DOI 10.1177/089686080502500310
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Abstract

Background: For many dialysis patients, survival is no different than with certain cancers. Yet, it appears that most nephrologists do not give detailed information about survival prior to obtaining informed consent for chronic dialysis. There are no published data on whether patients wish to be so informed. Objective: To assess whether patients would want voluntary disclosure by their physician of their survival should they need dialysis, and if so, why? Method: A questionnaire was completed by 100 general nephrology patients during their first visit to a nephrologist. Results: The vast majority of patients (97%) would want to be given life-expectancy information, and for the physician to do so without having to be prompted. Furthermore, the majority of patients would want as much information as possible, both good and bad. Conclusions: Virtually all patients want, and therefore should receive from their physician, prognostic information about dialysis to facilitate informed decision-making. This is in accordance with current practice guidelines.

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Crossref · 10.1177/089686080502500310

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17 of 17 references verified0 citation errors · 0 not checkable

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  • Several studies show that older dialysis patients retain their mental quality of life.

    “In several studies, although physical aspects of quality of life are reduced compared with younger ESRD patients or healthy elderly, mental aspects of quality of life are preserved [22,23].”

    From Should there be an expanded role for palliative care in end-stage renal disease? (2010) · cites this paper as [23]

  • Quality-of-life studies in older chronic dialysis patients suggest that dialysis is not always unsatisfactory for older people.

    “studies of quality of life in elderly patients receiving chronic dialysis offer reason to believe that dialysis therapy is not uniformly unsatisfactory in the elderly.”

    From Should there be an expanded role for palliative care in end-stage renal disease? (2010) · cites this paper as [23]

  • Several studies show that older dialysis patients have lower physical quality of life than younger ESRD patients or healthy older adults.

    “In several studies, although physical aspects of quality of life are reduced compared with younger ESRD patients or healthy elderly, mental aspects of quality of life are preserved [22,23].”

    From Should there be an expanded role for palliative care in end-stage renal disease? (2010) · cites this paper as [23]

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Authors
Fine, A., Fontaine, B., Kraushar, M. M., & Rich, B. R.
Affiliations
University of Manitoba (CA)
Corresponding author
Fine, Adrian
Venue
Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis
Publisher
SAGE Publications
Published
2005-05
Volume
25
Issue
3
Pages
269-273
ISSN
  • 0896-8608 (ISSN-L)
  • 1718-4304
DOI
10.1177/089686080502500310
OpenAlex
W2188945950
Cited by
84
References
17
Citations by year
2026: 3 · 2025: 4 · 2024: 1 · 2023: 1 · 2022: 5 · 2021: 1 · 2020: 1 · 2019: 6 · 2018: 2 · 2017: 7 · 2016: 4 · 2015: 7 · 2014: 4 · 2013: 10 · 2012: 8
FWCI
2.09
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations
  • Peritoneal Dialysis International (publishedVersion)
  • PubMed (publishedVersion)
  • DigitalGeorgetown (Georgetown University Library) (submittedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Nephrology › Dialysis and Renal Disease Management
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
Keywords
dialysis, survival prediction, informed consent, patient preferences, nephrologists, end-stage renal disease, prognostic information, informed decision-making, physician-patient communication
MeSH terms
Aged, Female, Renal Dialysis, Humans, Kidney Diseases, Life Expectancy, Male, Middle Aged, Patient Participation, Physician-Patient Relations, Quality of Life, Surveys and Questionnaires, Truth Disclosure, Cohort Studies

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