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Cited by 150Ethics in Clinical ResearchEthics and bioethics in healthcareHealthcare Decision-Making and Restraints

The DOI matches its Crossref record; 45 of the 45 references it cites were found in a registry or an index.

Consent and Assent to Participate in Research from People with Dementia

Slaughter, Susan, Cole, Dixie, Jennings, Eileen, Reimer, Marlene A·2007·Nursing Ethics
DOI 10.1177/0969733007071355
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Abstract

Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the capacity to provide this informed consent. The rationale for assessing the assent or dissent of vulnerable individuals and obtaining informed consent by authorized representatives is discussed. Practical guidelines for recruitment of and data collection from people in the middle or late stage of dementia are proposed. These guidelines were used by research assistants in a minimal risk study.

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Crossref · 10.1177/0969733007071355

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45 of 45 references verified0 citation errors · 0 not checkable

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Citations

Cites

Show all 45 references

Research works printed but not linked: 15

  1. Canadian Study of Health and Aging Working Group, 1994, CMAJ, 150, 899
  2. Statistics Canada, 2000, Projections of population and families for Canada, the provinces and territories
  3. Gwyther LP, 1997, Alzheimer Dis Assoc Disord, 11, 18
  4. Alzheimer Society of Canada, 2004, Alzheimer care ethical guidelines: participation in research
  5. Lawton MP, 1997, Alzheimer Dis Assoc Disord, 11, 91
  6. Dresser R., 2001, Georgia Law Rev, 35, 661
  7. 2003, Tri-council policy statement: ethical conduct for research involving humans
  8. National Advisory Council on Aging, 2004, The NACA position on Alzheimer disease and related dementias
  9. Malloy DW, 1998, Capacity to decide
  10. Ki SYH, 2002, Am J Psychiatry, 158, 712
  11. 2003, Dependent Adults Act
  12. 2003, Personal Directives Act
  13. Weisstub DN, 1998, Health Law Can, 18, 95
  14. Dresser R., 1994, Rutgers Law Rev, 46, 609
  15. Hunter K, 2003, J Wound Ostomy Continence Nurs, 30, 241

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Metadata

Authors
Slaughter, S., Cole, D., Jennings, E., & Reimer, M. A.
Affiliations
  • University of Calgary (CA)
  • Calgary Health Region (CA)
  • University of Manitoba (CA)
Corresponding author
Slaughter, Susan
ORCID
Slaughter, Susan
Venue
Nursing Ethics
Publisher
SAGE Publications
Published
2007-01
Volume
14
Issue
1
Pages
27-40
ISSN
  • 0969-7330 (ISSN-L)
  • 1477-0989
DOI
10.1177/0969733007071355
OpenAlex
W2064863415
Cited by
150
References
45
Citations by year
2026: 3 · 2025: 4 · 2024: 7 · 2023: 10 · 2022: 9 · 2021: 13 · 2020: 10 · 2019: 6 · 2018: 12 · 2017: 10 · 2016: 11 · 2015: 11 · 2014: 9 · 2013: 10 · 2012: 7
FWCI
2.67
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations
  • Nursing Ethics (publishedVersion)
  • PubMed (publishedVersion)
  • DigitalGeorgetown (Georgetown University Library) (submittedVersion)
Funders
Alzheimer Society
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
  • Social Sciences › Psychology › Clinical Psychology › Healthcare Decision-Making and Restraints
Keywords
informed consent, research participation, dementia, assent, dissent, vulnerable populations, research ethics, research recruitment, data collection, authorized representatives, minimal risk research
MeSH terms
Aged, Canada, Dementia, Family, Female, Humans, Human Experimentation, Informed Consent, Nursing Assessment, Patient Advocacy, Research Personnel, Geriatric Assessment, Mental Competency, Guidelines as Topic, Risk Assessment, Patient Selection, Third-Party Consent, Principle-Based Ethics, Comprehension, Ethics, Research, Vulnerable Populations

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