The experiences of people with dementia and intellectual disabilities with surveillance technologies in residential care
Open accessAbstract
Background: Surveillance technology such as tag and tracking systems and video surveillance could increase the freedom of movement and consequently autonomy of clients in long-term residential care settings, but is also perceived as an intrusion on autonomy including privacy. Objective: To explore how clients in residential care experience surveillance technology in order to assess how surveillance technology might influence autonomy. Setting: Two long-term residential care facilities: a nursing home for people with dementia and a care facility for people with intellectual disabilities. Methods: Ethnographic field study. Ethical considerations: The boards representing clients and relatives/proxies of the clients were informed of the study and gave their written consent. The clients’ assent was sought through a special information leaflet. At any time clients and/or proxy were given the option to withdraw from the study. The research protocol was also reviewed by a medical ethics committee. Findings: Our findings show a pattern of two themes: (1) coping with new spaces which entailed clients: wandering around, getting lost, being triggered, and retreating to new spaces and (2) resisting the surveillance technology measure because clients feel stigmatized, missed the company, and do not like being “watched.” Conclusion: Client experiences of surveillance technology appear to entail a certain ambivalence. This is in part due to the variety in surveillance technology devices, with each device bringing its own connotations and experiences. But it also lies in the devices’ presupposition of an ideal user, which is at odds with the actual user who is inherently vulnerable. Surveillance technology can contribute to the autonomy of clients in long-term care, but only if it is set in a truly person-centered approach.
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Surveillance technologies are adopted within nursing homes to remotely monitor older adults and workers with an interest in improving quality of care, health, and safety.
“Surveillance technologies are adopted within nursing homes to remotely monitor older adults and workers with an interest in improving quality of care, health, and safety”
From Algorithmic harms and digital ageism in the use of surveillance technologies in nursing homes (2022) · cites this paper as Niemeijer et al., 2015
The Introduction describes surveillance technologies in residential care that alert staff to danger, and the device description reports cameras monitored from nurses’ offices or other central locations. These passages support remote monitoring of residents for safety, but the paper does not describe adopting the technologies to monitor workers or establish improving quality of care and health as the stated aims. Its settings also include a facility for people with intellectual disabilities, not only a nursing home for older adults. (LLM, conf=0.87)
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- Authors
- Niemeijer, A. R., Depla, M. F., Frederiks, B. J., & Hertogh, C. M.
- Affiliations
- Amsterdam UMC Location Vrije Universiteit Amsterdam (NL)
- Venue
- Nursing Ethics
- Publisher
- SAGE Publications
- Published
- 2014-06-09
- Volume
- 22
- Issue
- 3
- Pages
- 307-320
- ISSN
- 0969-7330 (ISSN-L)
- 1477-0989
- OpenAlex
- W2153658983
- Cited by
- 68
- References
- 23
- Citations by year
- 2026: 9 · 2025: 7 · 2024: 7 · 2023: 7 · 2022: 4 · 2021: 6 · 2020: 3 · 2019: 9 · 2018: 4 · 2017: 7 · 2016: 5
- FWCI
- 7.23
- Type
- journal article
- Language
- en
- Open access
- green
- pure.amsterdamumc.nl
- Locations
- Nursing Ethics (publishedVersion)
- PubMed (publishedVersion)
- University of Humanistic Studies OAI Repository (publishedVersion)
- Amsterdam UMC (VU Amsterdam) - Institutional Repository (publishedVersion)
- Pure Amsterdam UMC (submittedVersion, other-oa)
- Data Archiving and Networked Services (DANS) (submittedVersion)
- Funders
- Innovatiefonds Zorgverzekeraars
- Stichting Dioraphte
- Topics
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Patient Dignity and Privacy
- Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
- Keywords
- surveillance technology, dementia, intellectual disability, residential care, long-term care, autonomy, privacy, video surveillance, electronic monitoring, wandering, stigmatization, person-centred care, customer experience, nursing homes
- MeSH terms
- Dementia, Humans, Long-Term Care, Netherlands, Population Surveillance, Residential Facilities, Technology Assessment, Biomedical, Safety Management, Privacy, Persons with Intellectual Disabilities, Personal Autonomy
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