Identifying the Educational Needs of Parents at the Completion of Their Child’s Cancer Therapy
Abstract
For parents of children with cancer, the experience of completing treatment can be a time of celebration and hope as well as anxiety and fear. Previous research has identified the time immediately following completion of therapy as one of the most difficult and anxiety producing periods in parents’ trajectory of cancer treatment. A gap in knowledge exists to guide nursing practice regarding parents’ educational needs. The purpose of this study was to (a) determine the educational needs of parents as their children completed cancer treatment and (b) assess the feasibility of measuring parental educational needs, anxiety, and family management styles as treatment ends. The results support previous findings that parents are anxious at the end of therapy. Fear of relapse was their primary concern. Although parents desire education at the end of therapy, attention to parental readiness to learn and the individual needs of the patient and family must be considered. In the feasibility portion of this study, parents were able to complete the questionnaires with no negative feedback provided.
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Major themes of difficulty in the post-treatment period include fear of cancer recurrence, isolation, and loneliness, with substantial unmet needs for information about relapse surveillance and how to return to normality.
“Major themes of difficulty in the post-treatment period can include fear of cancer recurrence, isolation, and loneliness, with substantial unmet needs for information about relapse surveillance and how to ‘return to normality’ [10-12].”
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- Authors
- Hobbie, W. L., Ogle, S. K., Reilly, M., Ginsberg, J. P., Rourke, M., Ratcliffe, S., & Deatrick, J. A.
- Affiliations
- Children's Hospital of Philadelphia (US)
- University of Pennsylvania (US)
- Venue
- Journal of Pediatric Oncology Nursing
- Publisher
- SAGE Publications
- Published
- 2010-06-18
- Volume
- 27
- Issue
- 4
- Pages
- 190-195
- ISSN
- 0748-1802 (ISSN-L)
- 1043-4542
- 1532-8457
- OpenAlex
- W2132342856
- Cited by
- 33
- References
- 20
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 4 · 2023: 4 · 2022: 3 · 2021: 1 · 2020: 2 · 2019: 1 · 2018: 2 · 2017: 2 · 2016: 2 · 2015: 2 · 2013: 1 · 2012: 1
- FWCI
- 1.74
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Oncology Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- childhood cancer, parental anxiety, fear of recurrence, family management style, pediatric oncology nursing, measurement feasibility
- MeSH terms
- Adolescent, Adult, Child, Child, Preschool, Feasibility Studies, Humans, Infant, Neoplasms, Parents, Pilot Projects, Surveys and Questionnaires, Cohort Studies, Needs Assessment
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