The DOI matches its Crossref record; 47 of the 48 references it cites were found in a registry or an index.
Chronic Pain in Childhood and the Medical Encounter: Professional Ventriloquism and Hidden Voices
Abstract
This article is a report on the experiences of three children with chronic pain and their families. The children and families experienced numerous encounters with health professionals during their "quest for a diagnosis"for chronic pain. In a high proportion of these encounters, the children/families felt they were judged, disbelieved, and labeled as difficult or dysfunctional, and this compounded the stresses they were already dealing with. The families described situations in which their accounts of pain were reinterpreted through a variety of professional lenses, and the children felt that their voices were muted or ignored. Professional ventriloquism is presented as a means of exploring the way in which the child's words are reinterpreted and mistranslated through professionals' own paradigms of understanding. Professionals need to stand back from what they believe to determine what the children themselves know about their pain.
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“It has been previously highlighted how children with chronic pain often experience negative, judgmental and stressful encounters with clinicians, related to clinicians’ struggles to secure a diagnosis and confidently explain chronic pain; exposing a need to recruit clinicians, including physicians, to remedy this issue [7].”
Citations
Cites
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Research works printed but not linked: 15
- Broome, M. E., 1998, Journal of Child and Family Nursing, 1, 3
- Carter, B., ISPP 2000 5th International Symposium on Paediatric Pain
- 1993, Children Act
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- Flatø, B., 1997, Clinical and Experimental Rheumatology, 15, 569
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Cited by
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Items 101–105 of 105
Longitudinal qualitative perspectives of adolescents in an intensive interdisciplinary pain program
Stegenga, K. A., Black, W. R., Christofferson, J. L., Wallace, D. P., & Hoffart, C. M. (2024) · Discover Psychology · doi:10.1007/s44202-024-00222-6
“Intensive interdisciplinary pain treatment (IIPT) programs are effective for helping young people who are impaired by chronic pain regain functioning [10, 11].”
Ibrahim, H., Harhara, T., & Dutta, D. (2025) · Health Communication · doi:10.1080/10410236.2025.2484508
“Ventriloquism has been explored further in physician-patient communication (Carter, 2002; Guo et al., 2014).”
Norton, J. G., France, E. F., Newton-John, T. R. O., Alcock, M., Fechner, R., Lawrence, M. E., Lawrence, M. K., & Pate, J. W. (2026) · Journal of Pain · doi:10.1016/j.jpain.2026.106424
Evans, E., Roberts, L. C., & Joslin, R. (2026) · Paediatric and Neonatal Pain · doi:10.1002/pne2.70045
“This process left families feeling abandoned and exhausted, reinforcing Carter's [47] finding of “referral fatigue”.”
Pain in Lebanese Children with Cancer
Madi, D. (2013) · Research Explorer (The University of Manchester)
Metadata
- Authors
- Carter, B.
- Affiliations
- University of Lancashire (GB)
- Corresponding author
- Carter, Bernie
- ORCID
- Carter, Bernie
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2002-01
- Volume
- 12
- Issue
- 1
- Pages
- 28-41
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- OpenAlex
- W2131865090
- Cited by
- 105
- References
- 48
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 4 · 2023: 6 · 2022: 5 · 2021: 7 · 2020: 3 · 2019: 5 · 2018: 2 · 2017: 5 · 2016: 2 · 2015: 5 · 2014: 3 · 2013: 4 · 2012: 3
- FWCI
- 2.40
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Qualitative Health Research (publishedVersion)
- PubMed (publishedVersion)
- CLOK (University of Central Lancashire) (submittedVersion)
- Edge Hill University Research Information Repository (Edge Hill University) (submittedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Social Sciences › Sociology and Political Science › Children's Rights and Participation
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- pediatric chronic pain, healthcare encounters, patient voice, misdiagnosis, family experiences, patient-professional relationship
- MeSH terms
- Adolescent, Psychology, Adolescent, Attitude of Health Personnel, Child, Psychology, Child, Chronic Disease, Communication, Evaluation Studies as Topic, Female, Health Services Research, Humans, Judgment, Male, Medical History Taking, Pain, Physician-Patient Relations, Professional-Family Relations, United States
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