Caregivers' experiences with major depression concealed by physical illness in patients recruited from central Ugandan primary health care centers
Abstract
In this article, we present caregivers' grapples with major depression seen among their physically ill patients. A thematic analysis of 29 in-depth caregiver interviews identified four themes: (a) caregivers' perceptions of depression, (b) barriers to caregivers' focus on depression, (c) resources and opportunities for managing depression, and (d) caregivers' perspectives on consequences of depression. Patients' physical illnesses concealed depressive episodes. Caregivers could not apply the label of “depression” but enumerated its indicative features. Stigmatization of depression, common with other mental illnesses and poverty, undermined caregiving. Vital caregiving resources included caregivers' willingness to meet patients' basic needs, facilitating patients' access to health care, informal counseling of patients, and ensuring patients' spiritual nourishment. Caregivers' management of depression in physically ill patients was expensive, but they coped; however, caregiving was burdensome. Ongoing support should be given not only to patients but caregivers, as well. To provide appropriate care, caregivers deserve sensitization about depression in the context of physical illness.
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In some instances, specifiers or qualifiers have specific treatment implications, for example, use of antipsychotics in the presence of psychotic features or the use of light therapy in seasonal depression.
“In some instances, these features have specific treatment implications, for example, use of antipsychotics in the presence of psychotic features or the use of light therapy in seasonal depression. 84”
From Time for united action on depression: a Lancet–World Psychiatric Association Commission (2022) · cites this paper as [84]
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · see citing works
Basics of Qualitative Research: Grounded Theory Procedures and Techniques.
Ellis, C., Strauss, A., & Corbin, J. M. (1992) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2074814 · Cited by 29,279 · see citing works
How Many Interviews Are Enough?: An Experiment with Data Saturation and Variability
Guest, G., Bunce, A., & Johnson, L. (2006) · Field Methods · doi:10.1177/1525822x05279903 · Cited by 20,808 · see citing works
Diagnostic and Statistical Manual of Mental Disorders.
Widiger, T. A. (2000) · Oxford University Press eBooks · doi:10.1037/10518-009 · Cited by 19,767 · see citing works
(1998) · The Journal of Clinical Psychiatry · Cited by 19,139 · see citing works
Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,612 · see citing works
Journal of Clinical Psychiatry
(2018) · Journal of Clinical Psychiatry · doi:10.5505/kpd · Cited by 13,703 · see citing works
(1998) · Cited by 13,501 · see citing works
The Need for a New Medical Model: A Challenge for Biomedicine
Engel, G. L. (1977) · Science · doi:10.1126/science.847460 · Cited by 12,887 · see citing works
Analyzing social settings : a guide to qualitative observation and analysis
Lofland, J. (1971) · Works - Scholarship, Research, & Creative Expression (Swarthmore College) · Cited by 5,656 · see citing works
Ryan, G. W., & Bernard, H. R. (2003) · Field Methods · doi:10.1177/1525822x02239569 · Cited by 5,475 · see citing works
Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study
Schulz, R., & Beach, S. R. (1999) · JAMA · doi:10.1001/jama.282.23.2215 · Cited by 3,340 · cited 1× · see citing works
“A study in the United States found that being a caregiver and experiencing mental or emotional strain is a risk factor for earlier death (Schulz & Beach, 1999).”
BackgroundMental Health: A Report of the Surgeon General
United States. Public Health Service. Office of the Surgeon General (1999) · PsycEXTRA Dataset · doi:10.1037/e636982009-001 · Cited by 3,105 · see citing works
The Journal of Family Practice
Geyman, J. P. (1997) · American Journal of Family Therapy · doi:10.1080/01926189708251066 · Cited by 3,088 · see citing works
(1998) · Medical Entomology and Zoology · Cited by 2,953 · see citing works
(1992) · Cited by 2,855 · see citing works
Caregiver Weil-Being: A Multidimensional Examination of Family Caregivers of Demented Adults
George, L. K., & Gwyther, L. P. (1986) · The Gerontologist · doi:10.1093/geront/26.3.253 · Cited by 1,393 · see citing works
Health and social care in the community
Elliott, M. (1989) · Elderly Care · doi:10.7748/eldc.9.2.22.s18 · Cited by 963 · see citing works
Beyond the Qualitative Interview: Data Preparation and Transcription
McLellan, E., MacQueen, K. M., & Neidig, J. L. (2003) · Field Methods · doi:10.1177/1525822x02239573 · Cited by 920 · see citing works
Mental Health: A Report of the Surgeon General
Smoyak, S. A. (2000) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/0279-3695-20000201-03 · Cited by 603 · see citing works
Lapadat, J. C., & Lindsay, A. C. (1999) · Qualitative Inquiry · doi:10.1177/107780049900500104 · Cited by 583 · see citing works
Ten Tips for Reflexive Bracketing
Ahern, K. J. (1999) · Qualitative Health Research · doi:10.1177/104973239900900309 · Cited by 539 · see citing works
Psychiatric Illness and Family Stigma
Phelan, J. C., Bromet, E. J., & Link, B. G. (1998) · Schizophrenia Bulletin · doi:10.1093/oxfordjournals.schbul.a033304 · Cited by 446 · see citing works
Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004) · American Journal of Psychiatry · doi:10.1176/appi.ajp.161.5.850 · Cited by 385 · see citing works
Groleau, D., Young, A., & Kirmayer, L. J. (2006) · Transcultural Psychiatry · doi:10.1177/1363461506070796 · Cited by 333 · see citing works
Prevalence, nature, and comorbidity of depressive disorders in primary care
Coyne, J. C., Fechner-Bates, S., & Schwenk, T. L. (1994) · General Hospital Psychiatry · doi:10.1016/0163-8343(94)90006-x · Cited by 281 · see citing works
The Cost–Utility of Screening for Depression in Primary Care
Valenstein, M., Vijan, S., Zeber, J. E., Boehm, K., & Buttar, A. (2001) · Annals of Internal Medicine · doi:10.7326/0003-4819-134-5-200103060-00007 · Cited by 268 · see citing works
Testing the biopsychosocial model: The ultimate challenge facing behavioral medicine?
SCHWARTZ, G. E. R. (1982) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.50.6.1040 · Cited by 231 · see citing works
Life Events and Endogenous Depression: A Puzzle Reexamined
Brown, G. W. (1994) · Archives of General Psychiatry · doi:10.1001/archpsyc.1994.03950070017006 · Cited by 230 · see citing works
The medicalisation of misery: A critical realist analysis of the concept of depression
Bentall, R. P. (1999) · Journal of Mental Health · doi:10.1080/09638239917427 · Cited by 223 · see citing works
The impact of HIV/AIDS on the family and other significant relationships: The African clan revisited
Ankrah, E. M. (1993) · AIDS Care · doi:10.1080/09540129308258580 · Cited by 215 · see citing works
Depression in developing countries: lessons from Zimbabwe
Patel, V., Abas, M., Broadhead, J., Todd, C., & Reeler, A. (2001) · BMJ · doi:10.1136/bmj.322.7284.482 · Cited by 215 · see citing works
Fadden, G., Bebbington, P., & Kuipers, L. (1987) · The British Journal of Psychiatry · doi:10.1192/bjp.151.5.660 · Cited by 198 · see citing works
Mental Illness, Caregiving, and Emotion Management
Karp, D. A., & Tanarugsachock, V. (2000) · Qualitative Health Research · doi:10.1177/104973200129118219 · Cited by 183 · see citing works
(1993) · PubMed · Cited by 174 · see citing works
Population-based care of depression: Effective disease management strategies to decrease prevalence
Katon, W. J., Korff, M. V., Lin, E. H. B., Unützer, J., Simon, G., Walker, E., Ludman, E. J., & Bush, T. M. (1997) · General Hospital Psychiatry · doi:10.1016/s0163-8343(97)00016-9 · Cited by 164 · see citing works
Informal caregivers’ experiences of formal support in a changing context
Wiles, J. L. (2003) · Health & Social Care in the Community · doi:10.1046/j.1365-2524.2003.00419.x · Cited by 157 · see citing works
Life events, difficulties and depression among women in an urban setting in Zimbabwe
Broadhead, J., & Abas, M. (1998) · Psychological Medicine · doi:10.1017/s0033291797005618 · Cited by 146 · see citing works
Hooley, J. M. (1986) · Journal of Abnormal Psychology · doi:10.1037//0021-843x.95.3.237 · Cited by 139 · see citing works
Okello, E. S., & Neema, S. (2006) · Qualitative Health Research · doi:10.1177/1049732306296433 · Cited by 130 · see citing works
Self-citationPejlert, A. (2001) · Health & Social Care in the Community · doi:10.1046/j.0966-0410.2001.00301.x · Cited by 127 · see citing works
Rafanelli, C., Roncuzzi, R., Milaneschi, Y., Tomba, E., Colistro, M. C., Pancaldi, L. G., & Pasquale, G. D. (2005) · Psychotherapy and Psychosomatics · doi:10.1159/000084003 · Cited by 124 · see citing works
Choice in the context of informal care-giving
Arksey, H., & Glendinning, C. (2006) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2006.00671.x · Cited by 123 · see citing works
How do we facilitate carers’ involvement in decision making?
Walker, E., & Dewar, B. J. (2001) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.2001.01762.x · Cited by 117 · see citing works
How do carers of disabled children cope? The Ugandan perspective
Hartley, S. D., Ojwang, P., Baguwemu, A. A., Ddamulira, M., & Chavuta, A. (2005) · Child Care Health and Development · doi:10.1111/j.1365-2214.2004.00464.x · Cited by 113 · see citing works
Caregiver burden in an elderly population with depression in São Paulo, Brazil
Scazufca, M., Menezes, P. R., & Almeida, O. P. (2002) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-002-0571-6 · Cited by 112 · see citing works
Essential information and support needs of family caregivers
Wackerbarth, S. B., & Johnson, M. M. S. (2002) · Patient Education and Counseling · doi:10.1016/s0738-3991(01)00194-x · Cited by 111 · see citing works
The carer's place in the cancer situation: where does the carer stand in the medical setting?
Morris, S., & Thomas, C. (2001) · European Journal of Cancer Care · doi:10.1046/j.1365-2354.2001.00249.x · Cited by 110 · see citing works
‘Time and space’: carers’ views about respite care
Ashworth, M. J., & Baker, A. H. (2000) · Health & Social Care in the Community · doi:10.1046/j.1365-2524.2000.00221.x · Cited by 106 · see citing works
AIDS and the urban family: Its impact in Kampala, Uganda
McGrath, J. W., Ankrah, E. M., Schumann, D. A., et al. (1993) · AIDS Care · doi:10.1080/09540129308258584 · Cited by 106 · see citing works
Hooley, J. M. (1986) · Journal of Abnormal Psychology · doi:10.1037/0021-843x.95.3.237 · Cited by 105 · see citing works
Life events and early onset depression: cause or consequence?
Patton, G. C., Coffey, C., Posterino, M., Carlin, J. B., & Bowes, G. (2003) · Psychological Medicine · doi:10.1017/s0033291703008626 · Cited by 104 · see citing works
A Grounded Theory of Families Responding to Mental Illness
Rose, L. E., Mallinson, R. K., & Walton‐Moss, B. (2002) · Western Journal of Nursing Research · doi:10.1177/019394590202400505 · Cited by 99 · see citing works
Experiencing depression, experiencing the depressed: The separate worlds of patients and doctors
Rogers, C. (2001) · Journal of Mental Health · doi:10.1080/09638230125545 · Cited by 98 · see citing works
Lay Concepts of Depression among the Baganda of Uganda: A Pilot Study
Okello, E. S., & Ekblad, S. (2006) · Transcultural Psychiatry · doi:10.1177/1363461506064871 · Cited by 97 · see citing works
Self-citationMastery, Burden, and Areas of Concern Among Family Caregivers of Mentally Ill Persons
Rose, L. E., Mallinson, R. K., & Gerson, L. D. (2006) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2005.08.009 · Cited by 94 · see citing works
Qualitative study of patients' perceptions of the quality of care for depression in general practice
Gask, L. L., Rogers, A. E., Oliver, D., May, C. R., & Roland, M. O. (2003) · Europe PMC (PubMed Central) · doi:10.25405/ncl.34606935 · Cited by 90 · see citing works
Caring for the Seriously Mentally Ill in Thailand: Buddhist Family Caregiving
Sethabouppha, H., & Kane, C. F. (2005) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2005.02.004 · Cited by 90 · see citing works
Experiencing depression, experiencing the depressed: The separate worlds of patients and doctors
Rogers, A., May, C., & Oliver (2001) · Journal of Mental Health · doi:10.1080/09638230020023840 · Cited by 90 · see citing works
Burnout of Caregivers: A Comparison Between Partners of Psychiatric Patients and Nurses
Angermeyer, M. C., Bull, N., Bernert, S., Dietrich, S., & Kopf, A. (2006) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2005.12.004 · Cited by 80 · see citing works
The Psychological and Physical Health of Hospice Caregivers
Chentsova-Dutton, Y. E., Shuchter, S. R., Hutchin, S., Strause, L. G., Burns, K., & Zisook, S. (2000) · Annals of Clinical Psychiatry · doi:10.1023/a:1009070826012 · Cited by 79 · see citing works
Family Surrogate Decision Making at the End of Life: Seeing them Through with Care and Respect
Meeker, M. A. (2004) · Qualitative Health Research · doi:10.1177/1049732303260501 · Cited by 76 · see citing works
Burnout in Psychiatrists: An Etiological Model
Kumar, S., Hatcher, S., & Huggard, P. (2005) · The International Journal of Psychiatry in Medicine · doi:10.2190/8xwb-ajf4-kprr-lwmf · Cited by 66 · see citing works
The Psychological and Physical Health of Hospice Caregivers
Chentsova-Dutton, Y. E., Shuchter, S. R., Hutchin, S., et al. (2000) · Annals of Clinical Psychiatry · doi:10.3109/10401230009147083 · Cited by 62 · see citing works
Predictors of Depression Among Wife Caregivers
Robinson, K. M. (1989) · Nursing Research · doi:10.1097/00006199-198911000-00013 · Cited by 59 · see citing works
Depressed men: an exploratory study of close relationships
Alexander, J. (2001) · Journal of Psychiatric and Mental Health Nursing · doi:10.1046/j.1365-2850.2001.00354.x · Cited by 55 · see citing works
The stigma of seeking care and depression
Halter, M. J. (2004) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2004.07.005 · Cited by 55 · see citing works
Life Events, Social Support, and Onset of Major Depressive Episode in Finnish Patients
Leskelä, U. S., Melartin, T. K., Lestelä-Mielonen, P. S., Rytsälä, H. J., Sokero, T. P., Heikkinen, M. E., & Isometsä, E. T. (2004) · The Journal of Nervous and Mental Disease · doi:10.1097/01.nmd.0000126705.15497.c9 · Cited by 46 · see citing works
A critical policy analysis of an emerging agenda for home care in one Canadian province
Duncan, S., & Reutter, L. (2006) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2006.00616.x · Cited by 46 · see citing works
AIDS and the family: Implications for counselling
Lippmann, S., James, W. A., & Frierson, R. L. (1993) · AIDS Care · doi:10.1080/09540129308258585 · Cited by 45 · see citing works
THE COSTS OF INFORMAL CARE: Looking inside the household
McMurtrie, A. (1992) · Europe PMC (PubMed Central) · Cited by 43 · see citing works
The impact of AIDS mortality on children's education in Kampala (Uganda)
Müller, O., & Abbas, N. (1990) · AIDS Care · doi:10.1080/09540129008257716 · Cited by 42 · see citing works
Depression: The ‘invisible grey fog’ influencing the midlife health of African Canadian women
Etowa, J. B., Keddy, B. A., Egbeyemi, J., & Eghan, F. (2007) · International Journal of Mental Health Nursing · doi:10.1111/j.1447-0349.2007.00469.x · Cited by 41 · see citing works
Depression screening as an intervention against suicide.
Jacobs, D. G. (1999) · PubMed · Cited by 39 · see citing works
Okello, E. S., & Musisi, S. (2006) · Cited by 34 · see citing works
Self-citationChild And Adolescent Development
Seifert, & Kelvin, L. (1985) · Cited by 31 · see citing works
Identification of items which predict later development of depression in primary health care
Barkow, K., Heun, R., Üstün, T. B., & Maier, W. (2001) · European Archives of Psychiatry and Clinical Neuroscience · doi:10.1007/bf03035122 · Cited by 31 · see citing works
Broadhead, J., Abas, M., Sakutukwa, G. K., et al. (2001) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s001270050299 · Cited by 31 · see citing works
The role of algorithms in the detection and treatment of depression in primary care.
Klinkman, M. S. (2003) · PubMed · Cited by 31 · see citing works
Family Members' Experiences Living with Members with Depression
Badger, T. A. (1996) · Western Journal of Nursing Research · doi:10.1177/019394599601800204 · Cited by 28 · see citing works
Paying the Price: Carers, Poverty and Social Exclusion
Howard, M. (2001) · OpenGrey (Institut de l'Information Scientifique et Technique) · Cited by 27 · see citing works
Muhwezi, W. W., Ågren, H., & Musisi, S. (2006) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-006-0132-5 · Cited by 26 · see citing works
Self-citationLife events, depression and social support in dementia
Waite, A., Bebbington, P., Skelton‐Robinson, M., et al. (2004) · British Journal of Clinical Psychology · doi:10.1348/0144665031753005 · Cited by 26 · see citing works
Non-supportive interactions in the experience of women family caregivers
Neufeld, A., Harrison, M. J., Hughes, K. D., & Stewart, M. (2007) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2007.00716.x · Cited by 26 · see citing works
HESNARD, M. (1953) · Postgraduate Medical Journal · doi:10.1136/pgmj.29.333.373-a · Cited by 26 · see citing works
Psychological Effects of the War on French Children
MERCIER, M. H., & DESPERT, L. J. (1943) · Psychosomatic Medicine · doi:10.1097/00006842-194307000-00006 · Cited by 23 · see citing works
The attitudes of British fundholding general practitioners to community psychiatric nursing services
Monkley-Poole, S. (1995) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.1995.tb02520.x · Cited by 20 · see citing works
AIDS and Community-based care in Uganda: The AIDS support organization, TASO
Kalibala, S., & Kaleeba, N. (1989) · AIDS Care · doi:10.1080/09540128908260254 · Cited by 20 · see citing works
Family caregivers: Russian-speaking Australian women's access to welfare support
Victoria Team, Marković, M., & Manderson, L. H. (2007) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2007.00709.x · Cited by 19 · see citing works
Depression in female health visitor consulters: social and demographic facets
Sheppard, M. (1997) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.1997.00439.x · Cited by 16 · see citing works
Pressman, J. D. (1997) · Bulletin of the history of medicine · doi:10.1353/bhm.1997.0044 · Cited by 12 · see citing works
Behavioral and Psychological Symptoms of Dementia and Caregiver Burden
Burns, A. S. (2000) · International Psychogeriatrics · doi:10.1017/s1041610200007262 · Cited by 11 · see citing works
A streamlined method for diagnosing common psychiatric disorders in primary care
Staab, J. P., & Evans, D. L. (2001) · Clinical cornerstone · doi:10.1016/s1098-3597(01)90057-2 · Cited by 10 · see citing works
Life events occurring before and after onset of depression in a Kenyan setting ‐ any significance?
Ndetel, D. M., & Vadher, A. (1984) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.1984.tb02502.x · Cited by 8 · see citing works
Life events and depression in the context of the changing African family The case of Uganda
Muhwezi, W. W., Ågren, H., Neema, S., et al. (2007) · Cited by 7 · see citing works
Self-citationHoban, S. (2002) · Cited by 2 · see citing works
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Herrman, H., Patel, V., Kieling, C., Berk, M., Buchweitz, C., Cuijpers, P., Furukawa, T. A., Kessler, R. C., Kohrt, B. A., Maj, M., et al. (2022) · The Lancet · doi:10.1016/s0140-6736(21)02141-3 · Cited by 1,104 · see citing works
“Thinking too much”: a systematic review of a common idiom of distress
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- Authors
- Muhwezi, W. W., Okello, E. S., Neema, S., & Musisi, S.
- Affiliations
- Makerere University (UG)
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2008-08
- Volume
- 18
- Issue
- 8
- Pages
- 1096-1114
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- OpenAlex
- W2121109466
- Cited by
- 29
- References
- 96
- Citations by year
- 2025: 2 · 2023: 1 · 2022: 2 · 2021: 3 · 2020: 1 · 2019: 1 · 2018: 3 · 2017: 1 · 2016: 1 · 2015: 2 · 2014: 2 · 2013: 2 · 2012: 3
- FWCI
- 1.86
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Qualitative Health Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- major depressive disorder, physical illness, caregiver experiences, depression stigma, caregiver burden, spiritual care, primary care, Uganda
- MeSH terms
- Adaptation, Psychological, Adult, Community Health Centers, Major Depressive Disorder, Depressive Disorder, Major, Disease, Female, Humans, Interviews as Topic, Male, Patients, Poverty, Prejudice, Primary Health Care, Uganda, Caregivers
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