Post Your Journey: Instagram as a Support Community for People With Fibromyalgia
Abstract
Fibromyalgia is a chronic illness with primary symptoms of widespread pain and fatigue. Social media applications have become a recent resource allowing individuals with fibromyalgia to interact in a virtual community devoted to the illness. This study explores how such a community develops and maintains itself on Instagram and the ways it creates social capital for its users. Data are derived from Instagram posts and open-ended questionnaires completed by users living with fibromyalgia who use the application. Using content analysis and semiotic methodology, the study analyzes the diverse ways in which users shared their experiences with fibromyalgia, the management of its symptoms, and issues encountered in accessing health care systems. Instagram aids in the development of a community by facilitating intimate and supportive interactions about the illness and the creation of personalized day-to-day narratives accessible to all. Norms of trust, acceptance, and reciprocity characterize the diversity of interactions in this community.
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Android phones take 91.2% of the smartphone share in China smartphone market.
“As Android phones take 91.2% of the smartphone share in China smartphone market [57]”
From Enjoyment or Indulgence? Social Media Service Usage, Social Gratification, Self-Control Failure and Emotional Health (2023) · cites this paper as [57]
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- Authors
- Berard, A. A., & Smith, A. P.
- Affiliations
- University of Victoria (CA)
- Corresponding author
- Smith, André P.
- Venue
- Qualitative Health Research
- Publisher
- SAGE Publications
- Published
- 2018-08-01
- Volume
- 29
- Issue
- 2
- Pages
- 237-247
- ISSN
- 1049-7323 (ISSN-L)
- 1552-7557
- OpenAlex
- W2886358429
- Semantic Scholar
- 5b6e30dfa06a576a4c0dc1a62fd927ecdcef7ad2
- Cited by
- 47
- References
- 32
- Citations by year
- 2026: 1 · 2025: 5 · 2024: 9 · 2023: 13 · 2022: 6 · 2021: 8 · 2020: 2 · 2019: 2 · 2018: 1
- FWCI
- 4.96
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Qualitative Health Research (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Health › Social Media in Health Education
- Health Sciences › Medicine › Psychiatry and Mental health › Fibromyalgia and Chronic Fatigue Syndrome Research
- Keywords
- fibromyalgia, Instagram, online support groups, social media, social capital, chronic disease, symptom management, health care access, trust and reciprocity, illness narratives, patient experience
- MeSH terms
- Chronic Disease, Fatigue, Fibromyalgia, Health Services Accessibility, Humans, Interpersonal Relations, Self-Help Groups, Sleep, Social Support, Trust, Social Stigma, Social Media
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