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Advance care planning in dementia: recommendations for healthcare professionals
Open accessAbstract
The process of advance care planning in dementia is far from straightforward; as dementia progresses, the ability to consider future thoughts and actions becomes compromised, thus affecting decision-making abilities. Family carers find themselves increasingly in a position where they need to inform, or directly make, decisions on behalf of the person with dementia. This article discusses the context and importance of a palliative care approach and recommends rationales and strategies for healthcare professionals to support families affected by dementia to better plan for their future care.
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“Our findings are consistent with these studies that individuals with mild dementia can effectively articulate their values [19, 38].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [38]
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“In terms of timing, it is recommended to commence ACP early in the dementia trajectory before the loss of decision-making capacity [38].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [38]
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Λυγνός, Δ., & Ρεθυμιωτάκη, Ε. (2023) · Bioethica · doi:10.12681/bioeth.34071
(2023) · Iryo To Shakai · doi:10.4091/iken.33-97
Majd, S., Bizjak-Mikic, M., & Waters, D. (2023) · International Journal of Research Publication and Reviews · doi:10.55248/gengpi.4.623.46724
Khemai, C. (2023) · Research Publications (Maastricht University) · doi:10.26481/dis.20231115ck
Consequences of Population Aging for Public Health in Different Areas of Life
(2024) · Frontiers research topics · doi:10.3389/978-2-8325-4547-8
Metadata
- Authors
- Harrison Dening, K., Sampson, E. L., & De Vries, K.
- Affiliations
- Research & Publications, Dementia UK, London, UK; School of Nursing and Midwifery, De Montfort University, Leicester, UK
- University College London (GB)
- De Montfort University (GB)
- Venue
- Palliative Care: Research and Treatment
- Publisher
- SAGE Publications
- Published
- 2019-01
- Volume
- 12
- Pages
- 1178224219826579-1178224219826579
- ISSN
- 1178-2242 (ISSN-L)
- PMC
- PMC6393818
- OpenAlex
- W2916588075
- Cited by
- 114
- References
- 54
- Citations by year
- 2026: 3 · 2025: 18 · 2024: 22 · 2023: 19 · 2022: 22 · 2021: 17 · 2020: 11 · 2019: 2
- FWCI
- 2.12
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Palliative Care Research and Treatment (publishedVersion, cc-by-nc)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- UCL Discovery (University College London) (submittedVersion)
- Funders
- Marie Curie (MCCC-FCO-11-U)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- advance care planning, dementia, palliative care, family caregivers, decision-making capacity, health worker support, end-of-life care, care planning
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