Caregiver burden: An increasing problem related to an aging cancer population
Open accessAbstract
This prospective cohort study identified risk factors for the development of caregiver burden and included older cancer survivors, middle-aged cancer survivors, older patients without cancer and their caregivers. Overall, more than 16 per cent of caregivers experienced high-to-severe burden at baseline. This proportion remained stable after 1 and 3 years. Caregivers who experienced increased caregiver burden at baseline were at higher risk maintaining their caregiver burden over the following years. Caregiver burden was not related to the cancer diagnosis but rather to the baseline psychosocial well-being of both the caregiver and patient and the physical condition of the patient.
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The Zarit Burden scale has been validated in several countries, including China, Croatia, Italy, Jamaica, Brazil, Spain, and Portugal.
“La escala EZ ha sido validada en varios países, como China (19), Croacia (20), Italia (21), Jamaica (22), Brasil (23), España y Portugal (24).”
From Factores relacionados con sobrecarga del cuidador informal de pacientes con cáncer avanzado (2024) · cites this paper as [21]
The ZBI-12 section describes the scale and reports its correlation with the full Zarit Burden Interview, but does not say it was validated in Spain or Portugal. A search of our copy for those countries and cross-country validation found no supporting passage. (LLM, conf=0.76)
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- Authors
- Jansen, L., Dauphin, S., De Burghgraeve, T., Schoenmakers, B., Buntinx, F., & van den Akker, M.
- Affiliations
- KU Leuven (BE)
- KU Leuven, Belgium
- Maastricht University (NL)
- Corresponding author
- Jansen, Leontien
- Venue
- Journal of Health Psychology
- Publisher
- SAGE Publications
- Published
- 2019-12-09
- Volume
- 26
- Issue
- 11
- Pages
- 1833-1849
- ISSN
- 1359-1053 (ISSN-L)
- 1461-7277
- OpenAlex
- W2993408272
- Cited by
- 30
- References
- 63
- Citations by year
- 2026: 4 · 2025: 5 · 2024: 2 · 2023: 4 · 2022: 10 · 2021: 3 · 2020: 2
- FWCI
- 6.92
- Type
- journal article
- Language
- en
- Open access
- Locations
- Journal of Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (submittedVersion, other-oa)
- Lirias (KU Leuven) (submittedVersion, other-oa)
- Research Publications (Maastricht University) (submittedVersion)
- Funders
- Vlaamse Liga Tegen Kanker
- Kom op tegen Kanker
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Keywords
- caregiver burden, cancer caregivers, cancer survivors, population aging, risk factors, psychosocial well-being, older adults
- MeSH terms
- Caregiver Burden, Aging, Humans, Middle Aged, Neoplasms, Prospective Studies, Caregivers, Cost of Illness
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