When autism researchers disregard harms: A commentary

Dawson, Michelle; Fletcher-Watson, Sue

doi:10.1177/13623613211031403

Cited by 61Autism Spectrum Disorder ResearchDisability Rights and RepresentationQualitative Research Methods and Ethics

When autism researchers disregard harms: A commentary

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Dawson, Michelle, Fletcher-Watson, Sue·2022·Autism

DOI 10.1177/13623613211031403PMC PMC8814944

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Adverse events are seldom considered in research on non-pharmacological autism interventions, making it difficult to assess even immediate harmful impacts of ABA.
“Unfortunately, adverse events are seldom considered in research on non-pharmacological autism interventions (Bottema-Beutel et al., 2021a; Dawson & Fletcher-Watson, 2021), making it difficult to assess even immediate harmful impacts of ABA.”
From Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework (2022) · cites this paper as Dawson & Fletcher-Watson, 2021
Adequately monitoring adverse events in clinical trials and clinical programs is a way to ensure an intervention is doing more good than harm.
“Adequately monitoring these and other adverse events in clinical trials and clinical programs is yet another way to ensure an intervention is doing more good than harm (Bottema-Beutel et al., 2021a; Dawson & Fletcher-Watson, 2021)”
From Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework (2022) · cites this paper as Dawson & Fletcher-Watson, 2021

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“We welcome the attention to harms shown by BottemaBeutel et al. and Rodgers et al., as well as by Benevides et al. (2020), who include, among their top 5 autism research priorities, a question about the harms of behavioral and other interventions.”
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“Bottema-Beutel et al. (2020a) investigated this rarely asked question by examining 150 early autism intervention group designs.”
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“Generally, however, such claims are hard to assess because ABA’s harmful effects are scarcely measured, even regarding immediate impact (Dawson and Fletcher-Watson, 2021; Schuck et al., 2022).”
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Authors: Dawson, M., & Fletcher-Watson, S.
Affiliations: Université de Montréal (CA)
University of Edinburgh, UK
ORCID: Dawson, Michelle
Fletcher-Watson, Sue
Venue: Autism
Publisher: SAGE Publications
Published: 2021-07-22
Volume: 26
Issue: 2
Pages: 564-566
ISSN: 1362-3613 (ISSN-L)
1461-7005
DOI: 10.1177/13623613211031403
PMC: PMC8814944
OpenAlex: W3183799443
Cited by: 61
References: 16
Citations by year: 2026: 10 · 2025: 11 · 2024: 13 · 2023: 13 · 2022: 12 · 2021: 1 · 2013: 1
Type: journal article
Language: en
Open access: hybrid
doi.org
Licence: cc-by-nc
creativecommons.org/licenses/by-nc/4.0/ (unspecified)
Locations: Autism (publishedVersion, cc-by-nc)
PubMed Central (publishedVersion, cc-by-nc)
PubMed (publishedVersion)
Edinburgh Research Explorer (University of Edinburgh) (submittedVersion, cc-by-nc)
Funders: Salvesen Mindroom Research Centre (Core funding donation)
Topics: Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Safety Research › Disability Rights and Representation
Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
Keywords: autism research, research ethics, informed consent
MeSH terms: Autism Spectrum Disorder, Autistic Disorder, Humans, Research Personnel

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