Socio-family support for parents of technology-dependent extremely preterm infants after hospital discharge.
Abstract
Parents of extremely preterm infants (<28 weeks of gestation) report high levels of stress and anxiety related to daily needs after hospital discharge. Social support has a significant role in reducing the negative psychological impact of preterm birth and parents' adaptation to caregiving. We conducted a hermeneutic phenomenological study using Gadamer's approach to explore and describe the experiences of parents of technology-dependent extremely preterm infants of socio-family support after hospital discharge. The study was conducted in four several Spanish organizations for families with preterm infants. It includes 17 semi-structured interviews (12 mothers and 5 fathers). Three main themes emerged from the analysis: post-discharge formal support for extremely preterm infants and families, home neonatal care: family support, and a thread of hope: parent-to-parent support. The parents' main support resources to deal with everyday difficulties are healthcare professionals, their partners, grandmothers, and peer parents of extremely preterm infants. The findings may be used to guide healthcare professionals in the creation of a support program according to preferences and needs of parents.
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During the pre-transition period, parents relied on the hospital environment and medical technology.
“During the pre‐transition period, parents relied on the hospital environment and medical technology, aligning with the findings of Fernández‐Medina (Fernández‐Medina et al. 2022).”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Fernández‐Medina et al. 2022
Partner support is valuable for strengthening marital relationships and expediting the transition process.
“Although partner support is valuable for strengthening marital relationships and expediting the transition process (Fernández‐Medina et al. 2022), previous studies have often examined fathers' or mothers' preparedness separately, lacking comparative perspectives.”
From Experiences and Perceptions of Hospital to Home Transitional Care for Parents of Premature Infants in Neonatal Intensive Care Unit: A Qualitative Meta‐Synthesis (2025) · cites this paper as Fernández‐Medina et al. 2022
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- Authors
- Fernández-Medina, I. M., Granero-Molina, J., Hernández-Padilla, J. M., Jiménez-Lasserrotte, M. D. M., Ruiz-Fernández, M. D., & Fernández-Sola, C.
- Affiliations
- Department of Nursing, Physiotherapy and Medicine, University of Almería, Spain
- Venue
- Journal of Child Health Care
- Publisher
- SAGE Publications
- Published
- 2021-02-18
- Volume
- 26
- Issue
- 1
- Pages
- 42-55
- ISSN
- 1367-4935 (ISSN-L)
- 1741-2889
- OpenAlex
- W4229061999
- Cited by
- 13
- References
- 44
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 3 · 2023: 2
- FWCI
- 1.24
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Child Health Care (publishedVersion)
- Funders
- Research Group Health Sciences
- Centro de Investigación en Salud
- University of Almería
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Neonatal Respiratory Health Research
- Keywords
- extremely preterm infants, parental support, family support, post-discharge care, parent-to-parent support, peer support, parent stress
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