The DOI matches its Crossref record; 32 of the 32 references it cites were found in a registry or an index.
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia
Open accessAbstract
Meaningful engagement is a key dimension of quality of life among persons living with dementia, yet little is known about how to best to promote it. Guided by grounded theory methods, we present analysis of data collected over a 1-year period in four diverse assisted living (AL) communities as part of the study, “Meaningful Engagement and Quality of Life among Assisted Living Residents with Dementia.” Our aims are to: (a) learn how meaningful engagement is negotiated among AL residents with dementia and their care partners; and (b) identify how to create these positive encounters. Researchers followed 33 residents and 100 care partners (formal and informal) and used participant observation, resident record review, and semi-structured interviews. Data analysis identified “engagement capacity” as central to the negotiation of meaningful engagement. We conclude that understanding and optimizing the engagement capacities of residents, care partners, care convoys, and settings, are essential to creating and enhancing meaningful engagement among persons living with dementia.
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“With training in active listening, empathic response and other relevant skills, direct care workers can reduce social isolation, provide emotional support and, with additional training, help administer nonpharmacological treatments — such as music and pet therapy and person‐centered bathing — to prevent or reduce distress associated with dementia.”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [766]
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Lincoln, Y. S., Guba, E. G., & Pilotta, J. J. (1985) · International Journal of Intercultural Relations · doi:10.1016/0147-1767(85)90062-8 · Cited by 45,787
Qualitative research & evaluation methods
Patton, M. Q. (2002) · Sage eBooks · Cited by 15,523
Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory
Wuetherick, B. (2010) · Canadian Journal of University Continuing Education · doi:10.21225/d5g01t · Cited by 8,333
The Fundamentals of Person-Centered Care for Individuals With Dementia
Fazio, S., Pace, D. D., Flinner, J., & Kallmyer, B. A. (2017) · The Gerontologist · doi:10.1093/geront/gnx122 · Cited by 652
State of the science on mild cognitive impairment (MCI)
Anderson, N. D. (2019) · CNS Spectrums · doi:10.1017/s1092852918001347 · Cited by 587
Doing as much as I can do: The meaning of activity for people with dementia
Phinney, A., Chaudhury, H., & O’Connor, D. (2007) · Aging & Mental Health · doi:10.1080/13607860601086470 · Cited by 334
Engagement in Persons With Dementia: The Concept and Its Measurement
Cohen‐Mansfield, J., Dakheel‐Ali, M., & Marx, M. S. (2009) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31818f3a52 · Cited by 274
Loneliness and Isolation in Long-term Care and the COVID-19 Pandemic
Simard, J., & Volicer, L. (2020) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2020.05.006 · Cited by 232
Convoys of care: Theorizing intersections of formal and informal care
Kemp, C. L., Ball, M. M., & Perkins, M. M. (2012) · Journal of Aging Studies · doi:10.1016/j.jaging.2012.10.002 · Cited by 180
Self-citationRelational autonomy in assisted living: A focus on diverse care settings for older adults
Perkins, M. M., Ball, M. M., Whittington, F. J., & Hollingsworth, C. (2012) · Journal of Aging Studies · doi:10.1016/j.jaging.2012.01.001 · Cited by 142
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Research works printed but not linked: 3
- Morgan J. C., Ahmad W. (2022). Lifting them up: Building person-centered organizations. CSA Journal, 87(2). www.CSA.us
- Sebastian K. (2019). Distinguishing between the types of grounded theory: Classical, interpretive and constructivist. Journal for Social Thought, 3(1). https://ojs.lib.uwo.ca/index.php/jst/article/view/4116
- Suárez-González A., Livingston G., Low L. F., Cahill S., Hennelly N., Dawson W. D., Weidner W., Bocchetta M., Ferri C. P., Matias-Guiu J. A., Alladi S., Musyimi C. W., Comas-Herrera A. (2020). Impact and mortality of COVID-19 on people living with dementia: Cross-country report. LTCcovid.org, International Long-Term Care Policy Network, CPECLSE, 19.
Cited by
2024 Alzheimer's disease facts and figures
(2024) · Alzheimer's & Dementia · doi:10.1002/alz.13809 · Cited by 2,536
Metadata
- Authors
- Kemp, C. L., Bender, A. A., Morgan, J. C., Burgess, E. O., Epps, F. R., Hill, A. M., & Perkins, M. M.
- Affiliations
- Georgia State University (US)
- Emory University (US)
- Corresponding author
- Kemp, Candace L
- ORCID
- Venue
- Dementia
- Publisher
- SAGE Publications
- Published
- 2023-03-13
- Volume
- 22
- Issue
- 4
- Pages
- 854-874
- ISSN
- 1471-3012 (ISSN-L)
- 1741-2684
- PMC
- PMC10789114
- OpenAlex
- W4324028933
- Cited by
- 18
- References
- 32
- Citations by year
- 2026: 6 · 2025: 5 · 2024: 5 · 2023: 2
- FWCI
- 3.65
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Dementia (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute on Aging (R01AG062310)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Aging, Health, and Disability
- Keywords
- meaningful engagement, assisted living, quality of life, care partners, informal caregivers, person-centred care
- MeSH terms
- Dementia, Humans, Quality of Life, Assisted Living Facilities
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- Kemp, C. L., Bender, A. A., Morgan, J. C., Burgess, E. O., Epps, F. R., Hill, A. M., & Perkins, M. M. (2023). Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia. Dementia. https://doi.org/10.1177/14713012231162713
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
