Cited by 35Indigenous Health, Education, and RightsEthics in Clinical ResearchQualitative Research Methods and Ethics

Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States

Kuhn, Nicole S., Parker, Myra, Lefthand-Begay, Clarita·2020·Journal of Empirical Research on Human Research Ethics

Abstract

Tribal Institutional Review Boards (TIRBs) in the United States assert their rights within sovereign nations by developing ethical research processes that align with tribal values to protect indigenous knowledge systems and their community from cultural appropriation, exploitation, misuse, and harm. We reviewed six TIRB applications and processes to gain a better understanding about their requirements and research ethics. We located 48 activated and deactivated TIRBs in a database, mapped them in relation to tribal reservation lands, and then conducted in-depth content analysis. Our analysis demonstrates the importance of building relationships, becoming fully acquainted with the TIRB’s operating environment before seeking research approval, and issues related to tribal data management practices.

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Crossref · 10.1177/1556264620912103

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  • Indigenous Peoples in the US have established various review mechanisms to approve research in their communities and with their citizens.

    “Indigenous Peoples in the US have established various review mechanisms to approve research in their communities and with their citizens (Around Him et al., 2019; Kuhn et al., 2020).”

    From Indigenous Peoples and research: self-determination in research governance (2023) · cites this paper as Kuhn et al., 2020

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Authors
Kuhn, N. S., Parker, M., & Lefthand-Begay, C.
Affiliations
University of Washington (US)
Corresponding author
Lefthand-Begay, Clarita
Venue
Journal of Empirical Research on Human Research Ethics
Published
2020-04-01
Volume
15
Issue
4
Pages
279-291
ISSN
  • 1556-2646 (ISSN-L)
  • 1556-2654
OpenAlex
W3014261508
Cited by
35
References
0
Citations by year
2026: 4 · 2025: 6 · 2024: 8 · 2023: 9 · 2022: 3 · 2021: 4 · 2020: 1
FWCI
2.35
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Empirical Research on Human Research Ethics (publishedVersion)
  • PubMed (publishedVersion)
Funders
Ronald E. McNair Fellowship provided by the Graduate Opportunities and Minority Achievement Program of the University of Washington (N/A)
Topics
  • Social Sciences › Health › Indigenous Health, Education, and Rights
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
  • Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
Keywords
Indigenous research ethics, tribal sovereignty, indigenous knowledge, cultural appropriation, research approval process
MeSH terms
Humans, Indians, North American, United States, Ethics Committees, Research, Ethics, Research

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