Role of Participation of Pediatricians in the “Activated Autism Practice” Program in Practicing Children With Autism Spectrum Disorders at the Primary Care Setting
Open accessAbstract
Primary care of children with autism spectrum disorders (ASD) is an important public health concerns. In this survey study of 73 pediatricians, we determined whether pediatricians’ practice of autism screening and perception of management of ASD is associated with participation in a learning collaborative, “Activated Autism Practice”. Overall, the majority recognized the lack of care coordination, inadequate time, poor reimbursement, and language difference as barriers to the delivery of medical care to children with ASD. Pediatricians with prior training were more likely to report use of autism-specific screening and understanding the different aspects of ASD management including the need to coordinate special services and long-term surveillance at pediatric sites. Therefore, participation in “Activated Autism Practice” may facilitate use of ASD-specific screening and manage ASD cases as a complex of neurodevelopmental/underlying problems with the need for enhancement of clinical attention and coordination of medical care at the pediatric primary care level.
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Language barriers hinder access to and navigation of healthcare services for ASD.
“Language barriers also hinder access to and navigation of healthcare services for ASD.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [37]
The Discussion identifies linguistic differences as a barrier to quality care for children with ASD from Hispanic families, and the Results specify families with limited English proficiency. The paper reports pediatricians’ perceptions of care delivery in primary care; it does not establish that language barriers hinder access to or navigation of healthcare services more broadly. (LLM, conf=0.86)
Experimental — accuracy not yet measuredIn Canada, the USA, and the UK, parents of children with ASD for whom English is not the first language encountered language barriers when accessing health services, communicating with their physicians, and interpreting or responding to administrative forms.
“In Canada, the USA, and the UK, parents of children with ASD, for whom English is not the fi rst language, encountered language barriers when accessing health services, communicating with their physicians, and interpreting/ responding to administrative forms.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [37]
The Results and Discussion (page unavailable) report that surveyed pediatricians identified linguistic and cultural differences as barriers to care for children with ASD from Hispanic families with limited English proficiency. The paper does not establish parents’ experiences across Canada, the USA, and the UK, or specifically address communicating with physicians and interpreting administrative forms. (LLM, conf=0.88)
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Cites
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Cited by
Sorted by citations
Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309 · see citing works
- Authors
- Kairys, S. W., & Petrova, A.
- Affiliations
- Jersey Shore University Medical Center (US)
- Rutgers Robert Wood Johnson Medical School, New Brunswick, NJ, USA
- ORCID
- Kairys, Steven W.
- Venue
- Global Pediatric Health
- Publisher
- SAGE Publications
- Published
- 2016-01-01
- Volume
- 3
- Pages
- 2333794X16663544-2333794X16663544
- ISSN
- 2333-794X (ISSN-L)
- PMC
- PMC4995666
- OpenAlex
- W2513860795
- Cited by
- 15
- References
- 3
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 1 · 2022: 1 · 2021: 3 · 2020: 1 · 2019: 3 · 2018: 3 · 2017: 1
- FWCI
- 1.48
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Global Pediatric Health (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, pediatricians, learning collaborative, autism screening, primary care, care coordination, barriers to care, reimbursement, language barriers, special services, long-term surveillance, neurodevelopmental disorders
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