Medical homes for children with autism: a physician survey
Abstract
Background Primary care physicians can enhance the health and quality of life of children with autism by providing high-quality and comprehensive primary care. Objective To explore physicians' perspectives on primary care for children with autism. Methods National mail and e-mail surveys were sent to a random sample of 2325 general pediatricians and 775 family physicians from April 2007 to October 2007. Results The response rate was 19%. Physicians reported significantly lower overall self-perceived competency, a greater need for primary care improvement, and a greater desire for education for children with autism compared with both children with other neurodevelopmental conditions and those with chronic/complex medical conditions. The following barriers to providing primary care were endorsed as greater for children with autism: lack of care coordination, reimbursement and physician education, family skeptical of traditional medicine and vaccines, and patients using complementary alternative medicine. Adjusting for key demographic variables, predictors of both higher perceived autism competency and encouraging an empirically supported therapy, applied behavior analysis, included having a greater number of autism patient visits, having a friend or relative with autism, and previous training about autism. Conclusions Primary care physicians report a lack of self-perceived competency, a desire for education, and a need for improvement in primary care for children with autism. P…
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A range of studies indicate that HCPs working with children with autism are inadequately prepared in terms of their requisite knowledge to sufficiently support children and families.
“A range of studies also indicate that HCPs working with children with autism are inadequately prepared in terms of their requisite knowledge to sufficiently support children and families (Berglund et al., 2017; Broder- Fingert et al., 2014; Golnik et al., 2009).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Golnik et al., 2009
Lack of training and lack of information regarding screening tools are barriers to adequate capacity to support developmental screening implementation.
“The second theme also supports previous research that has reported a lack of training (56, 68, 69), and a lack of information regarding screening tools (70), as barriers to adequate capacity to support developmental screening implementation.”
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- Authors
- Golnik, A., Ireland, M., & Borowsky, I. W.
- Affiliations
- University of Minnesota (US)
- Corresponding author
- Golnik, Allison
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 2009-03-01
- Volume
- 123
- Issue
- 3
- Pages
- 966-971
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W2110289498
- Cited by
- 176
- References
- 36
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 10 · 2023: 6 · 2022: 4 · 2021: 14 · 2020: 23 · 2019: 8 · 2018: 8 · 2017: 12 · 2016: 19 · 2015: 14 · 2014: 12 · 2013: 9 · 2012: 12
- FWCI
- 5.00
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- PEDIATRICS (publishedVersion)
- PubMed (publishedVersion)
- Funders
- U.S. Public Health Service (D55HP04186-03)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Health Professions › General Health Professions › Primary Care and Health Outcomes
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Keywords
- autism spectrum disorder, primary care, patient-centered medical home, barriers to care, care coordination, physician training, complementary and alternative medicine, empirically supported treatments, applied behavior analysis, general pediatricians, general practitioners, neurodevelopmental disorders
- MeSH terms
- Adult, Complementary Therapies, Autistic Disorder, Child, Developmental Disabilities, Clinical Competence, Cooperative Behavior, Cross-Sectional Studies, Female, Health Services Accessibility, Health Services Needs and Demand, Health Surveys, Humans, Male, Middle Aged, Patient Care Team, Pediatrics, Primary Health Care, United States
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