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Cited by 65Nursing care and researchIntergenerational Family Dynamics and CaregivingAging, Elder Care, and Social Issues

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Time to care? Health of informal older carers and time spent on health related activities: an Australian survey

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Jowsey, Tanisha, McRae, Ian, Gillespie, James, Banfield, Michelle, Yen, Laurann·2013·BMC Public Health
DOI 10.1186/1471-2458-13-374PMC PMC3641944
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Abstract

BACKGROUND: Little is known about the time spent on specific health related activities by older adult informal carers who assist people with chronic illness. Research has not yet addressed the association between carer health status and their care demands. Such information could inform policy and health system efforts to manage chronic illness. METHODS: We conducted an Australia wide survey using recall questionnaires to record time use. The study asked how much time is spent on "most days" for the most common activities like taking medication, self-treatment and testing, and how much time in the last month on less common activities like attending a physician or shopping associated with health needs. The survey was mailed to 5,000 members of National Seniors Australia; 2,500 registrants on the National Diabetes Services Scheme; and 3,100 members of the Australian Lung Foundation. A total of 2519 people responded, including 313 people who identified as informal carers. Statistical analysis was undertaken using Stata 11. Standard errors and confidence intervals were derived using bootstrapping techniques within Stata 11. RESULTS: Most carers (96.2%) had chronic illness themselves, and those with greater numbers of chronic illnesses were those who faced the greatest overall time demands. The top decile of carers devoted between 8.5 and 10 hours a day to personal and caring health related activities. Informal carers with chronic illness spent more time managing their own health than people with chronic illness who were not informal carers. These carers spent more time on caring for others than on caring for their own health. High levels of caring responsibility were associated with poorer reported carer health. CONCLUSIONS: Policy and health care services will need to adapt to recognise and reduce the time burden on carers who themselves have chronic illness. More carefully targeted investment in the social infrastructure of formal care would free up carers for other activities (including their own care) and holds the potential to improve the quality of life as well as the health outcomes of this population.

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  • Caregiving responsibilities are associated with negative effects on caregivers' physical and mental health, with depression, stress, and reduced well-being among the most prevalent negative outcomes.

    “Caregiving responsibilities have been associated with negative effects on caregivers' physical and mental health, with depression, stress, and reduced well-being being among the most prevalent negative outcomes (Jowsey, McRae, Gillespie, Banfield, & Yen, 2013).”

    From Supported Web-Based Acceptance and Commitment Therapy for Older Family Caregivers (CareACT) Compared to Usual Care. (2022) · cites this paper as Jowsey, McRae, Gillespie, Banfield, & Yen, 2013

    The Background says informal caring can be stressful and can adversely affect physical and psychological health; the Results report poorer self-assessed health among carers than non-carers. The Discussion also reports higher depression/anxiety prevalence among carers in the diabetes sub-sample. The paper does not establish that depression, stress, and reduced well-being are collectively among the most prevalent negative outcomes. (LLM, conf=0.86)

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Research works printed but not linked: 44

  1. Commonwealth of Australia: National Carer Strategy. 2011, Canberra: FaHCSIA
  2. National Health and Hospitals Reform Commission: A Healthier Future for All Australians: Final Report June 2009. 2009, Canberra: Commonwealth of Australia
  3. Essue B, Jowsey T, Jeon Y-H, Mirzaei M, Pearce-Brown C, Aspin C, Usherwood T, And the Scipps Team: Informal care and the self-management partnership: implications for Australian health policy and practice. Aust Health Rev. 2010, 34: 414-422. 10.1071/AH09795. · DOI
  4. Yen L, Mcrae I, Jeon Y-H, Essue B, Herath P: The impact of chronic illness on workforce participation and the need for assistance with household tasks and personal care by older Australians. Health Soc Care Community. 2011, 19: 485-494. 10.1111/j.1365-2524.2011.00994.x. · DOI
  5. Dejonge KE, Taler G, Boling PA: Independence at Home: Community-Based Care for Older Adults with Severe Chronic Illness. Clin Geriatr Med. 2009, 25: 155-169. 10.1016/j.cger.2008.11.004. · DOI
  6. Dunbrack J: Respite for Family Caregivers: An Environmental Scan of Publicly-funded Programs in Canada. 2003, Ottawa: Health Canada
  7. Knutson KL, Ryden AM, Mander BA, Van Cauter E: Role of Sleep Duration and Quality in the Risk and Severity of Type 2 Diabetes Mellitus. Arch Intern Med. 2006, 166: 1768-1774. 10.1001/archinte.166.16.1768. · DOI · Paper page
  8. Buyck J-F, Bonnaud S, Boumendil A, Andrieu S, Bonenfant SB, Goldberg M, Zins M, Ankri JL: Informal Caregiving and Self-Reported Mental and Physical Health: Results From the Gazel Cohort Study. Am J Public Health. 2011, 101: 1971-1979. 10.2105/AJPH.2010.300044. · DOI
  9. Aranda M: The influence of ethnicity and culture on the caregiver stress and coping process: a sociocultural review and analysis. Gerontologist. 1997, 37: 342-354. 10.1093/geront/37.3.342. · DOI
  10. Cain CJ, Newsome Wicks M: Caregiver Attributes as Correlates of Burden in Family Caregivers Coping With Chronic Obstructive Pulmonary Disease. J Fam Nurs. 2000, 6: 46-68. 10.1177/107484070000600104. · DOI
  11. Gallagher D, Rose J, Rivera P, Lovett S, Thompson LW: Prevalence of depression in family carers. Gerontologist. 1989, 29: 449-456. 10.1093/geront/29.4.449. · DOI
  12. Kenny PM, Hall JP, Zapart S, Davis PR: Informal Care and Home-Based Palliative Care: The Health-Related Quality of Life of Carers. J Pain Symptom Manage. 2010, 40: 35-48. 10.1016/j.jpainsymman.2009.11.322. · DOI
  13. Navaie-Waliser M, Feldman PH, Gould DA, Levine C, Kuerbis A, Donelan K: When the caregiver needs care: The plight of vulnerable caregivers. Am J Public Health. 2002, 92: 409-413. 10.2105/AJPH.92.3.409. · DOI
  14. Christakisa NA, Iwashynab TJ: The health impact of health care on families: a matched cohort studyof hospice use bydecedents and mortalityoutcomes in surviving, widowed spouses. Soc Sci Med. 2003, 57: 465-475. 10.1016/S0277-9536(02)00370-2. · DOI
  15. Tommis Y, Robinson CA, Seddon D, Woods B: Carers with chronic conditions: changes over time in their physical health. Chronic Illn. 2009, 5: 155-164. 10.1177/1742395309339251. · DOI
  16. Miller EA, Allen SM, Mor V: Commentary: Navigating the Labyrinth of Long-Term Care: Shoring Up Informal Caregiving in a Home- and Community-Based World. J Aging Soc Policy. 2008, 21: 1-16. 10.1080/08959420802473474. · DOI
  17. Candy B, Jones L, Drake R, Leurent B, King M: Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev. 2011, CD007617: 10.1002/14651858.CD007617.pub2. · DOI
  18. Mcnamara B, Rosenwax L: Which carers of family members at the end of life need more support from health services and why?. Soc Sci Med. 2010, 70: 1035-1041. 10.1016/j.socscimed.2009.11.029. · DOI
  19. Dumont S, Jacobs P, Turcotte V, Anderson D, Harel F: Measurement challenges of informal caregiving: A novel measurement method applied to a cohort of palliative care patients. Soc Sci Med. 2010, 71: 1890-1895. 10.1016/j.socscimed.2010.08.003. · DOI
  20. Australian Bureau of Statistics: Caring in the Community, Australia 2009 4436.0. 2009, Canberra: Australian Bureau of Statistics
  21. Bittman M, Thomson C: Invisible Support: The determinants of time spent in informal care. Volunteers & Volunteering. Edited by: Warburton J, Oppenheimer M. 2000, Sydney: Federation Press
  22. Bittman M, Fisher K, Hill P, Thomson C: The Time Cost of Care. Int J Time Use Res. 2005, 2: 54-66. · DOI
  23. Bittman M, Fast J, Fisher K, Thomson C: Making the Invisible Visible. The life and time(s) of informal caregivers. Family Time. Edited by: Folbre N, Bittman M. 2004, London: Routledge: The Social Organization of Care · DOI
  24. Russell LB, Ibuka Y, Abraham KG: Health-Related Activities in the American Time Use Survey. Medical Care. 2007, 45: 680-685. 10.1097/MLR.0b013e3180455782. · DOI
  25. Russell LB, Ibuka Y, Carr D: How Much Time Do Patients Spend on Outpatient Visits?: The American Time Use Survey. The Patient. 2008, 1: 211-222. 10.2165/1312067-200801030-00008. · DOI
  26. Corbin J, Strauss A: Managing Chronic Illness: Three Lines of Work. Qual Sociol. 1985, 8: 224-247. 10.1007/BF00989485. · DOI · Paper page
  27. Jeon Y-H, Jowsey T, Yen L, Glasgow NJ, Essue B, Kljakovic M, Pearce-Brown C, Mirzaei M, Usherwood T, Jan S, Kraus SG, Aspin C: Achieving a balanced life in the face of chronic illness. Aust J Prim Health. 2010, 16: 66-74. · DOI
  28. Mcrae I, Yen L, Jeon Y-H, Herath PM, Essue B: Multimorbidity is associated with higher out-of-pocket spending: a study of older Australians with multiple chronic conditions. Aust J Prim Health. 2012, http://dx.doi.org/10.1071/PY12035. Published online: 24 May 2012 · DOI
  29. Australian Bureau of Statistics: Information Paper. Introduction to Socio-Economic Indexes for Areas (SEIFA). 2006, Canberra: Australian Bureau of Statistics
  30. Safford MM: Making the most of the time we have. Family Medical Forum. 2005, 54: 455-456.
  31. Stata Corp LP: Stata 11. 2009, College Station, Texas: StataCorp
  32. Yen L, Mcrae IS, Jowsey T, Gillespie J, Dugdale P, Banfield M, Mathews P, Kljakovic M: Health work by older people with chronic illness: how much time does it take?. Chronic Illn. 2013, 1: 1-15.
  33. Brodhead T: Preface. This day is for me: Taking care of the caregiver. Edited by: Cameron SD. 2003, Montreal: PQ: J.W. McConnell Family Foundation
  34. Decima Research Inc: National profile of family caregivers in Canada Final Report. 2002, Ottawa: Health Canada
  35. Brodaty H, Thomson C, Thompson C, Fine M: Why caregivers of people with dementia and memory loss don't use services. Int J Geriatr Psychiatry. 2005, 20: 537-546. 10.1002/gps.1322. · DOI
  36. Keefe JM, Manning M: The Cost Effectiveness of Respite: A Literature Review. 2005, Nova Scotia: Health Care Policy Directorate, Health Canada
  37. Valderas JM, Starfield B, Sibbald B, Salisbury C, Roland M: Defining Comorbidity: Implications for Understanding Health and Health Services. Ann Fam Med. 2009, 7: 357-363. 10.1370/afm.983. · DOI
  38. Glynn LG, Valderas JM, Healy P, Burke E, Newell J, Gillespie P, Murphy AW: The prevalence of multimorbidity in primary care and its effect on health care utilization and cost. Fam Pract. 2011, 28: 516-523. 10.1093/fampra/cmr013. · DOI
  39. Krassie J, Smart C, Roberts DCK: A review of the nutritional needs of meals on wheels consumers and factors associated with the provision of an effective meals on wheels service–an australian perspective. Eur J Clin Nutr. 2000, 54: 275-80. 10.1038/sj.ejcn.1600790. · DOI
  40. Jowsey T: Perceptions of time and identity: informal family carers of people with chronic illness. Making Sense of Chronic Disease Series, Interdisciplinary Net. Oxford University. 2011, 1-10.
  41. Agar JWM: Nocturnal haemodialysis in Australia and New Zealand. Nephrology. 2005, 10: 222-230. 10.1111/j.1440-1797.2005.00409.x. · DOI
  42. Suri RS, Nesrallah GE, Mainra R, Garg AX, Lindsay RM, Greene T, Daugirdas JT: Daily Hemodialysis: A Systematic Review. Clin J Am Soc Nephrol. 2006, 1: 33-42. · DOI
  43. Henderson J, Harrison C, Valenti L, Bayram C, Miller G: Self-monitoring of blood glucose by patients with Type 2 diabetes. Primary Health Care Research Conference. 2012, PHCRIS: Canberra
  44. Wilkinson R, Pickett K: Spirit Level: Why Equality is Better for Everyone. 2010, London: Penguin Books

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Metadata

Authors
Jowsey, T., McRae, I., Gillespie, J., Banfield, M., & Yen, L.
Affiliations
  • Australian National University (AU)
  • The University of Sydney (AU)
Corresponding author
Jowsey, Tanisha
ORCID
Venue
BMC Public Health
Publisher
Springer Science and Business Media LLC
Published
2013-04-22
Volume
13
Issue
1
Pages
374-374
ISSN
1471-2458 (ISSN-L)
DOI
10.1186/1471-2458-13-374
PMC
PMC3641944
OpenAlex
W1972788326
Cited by
65
References
1
Citations by year
2026: 1 · 2025: 5 · 2024: 4 · 2023: 7 · 2022: 6 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 11 · 2017: 6 · 2016: 4 · 2015: 3 · 2014: 5
FWCI
10.04
Type
journal article
Language
en
Open access
Licence
Locations
  • BMC Public Health (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • ANU Open Research (Australian National University) (submittedVersion)
Funders
  • Australian National University
  • University of Sydney
  • National Health and Medical Research Council
Topics
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
  • Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
Keywords
informal caregivers, older adults, chronic disease, time use, caregiver health, time burden, self-care, medication management, self-medication, health care access, caregiving responsibilities, social infrastructure, quality of life
MeSH terms
Adult, Aged, Aged, 80 and over, Australia, Chronic Disease, Female, Health Services for the Aged, Health Services Needs and Demand, Humans, Male, Middle Aged, Quality of Life, Surveys and Questionnaires, Health Behavior, Caregivers, Disease Management

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