Cited by 865Fibromyalgia and Chronic Fatigue Syndrome ResearchMusculoskeletal pain and rehabilitationSurvey Methodology and Nonresponse

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An internet survey of 2,596 people with fibromyalgia

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Bennett, Robert M, Jones, Jessie, Turk, Dennis C, Russell, I Jon, Matallana, Lynne·2007·BMC Musculoskeletal Disorders

DOI 10.1186/1471-2474-8-27PMC PMC1829161

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Abstract

BACKGROUND: This study explored the feasibility of using an Internet survey of people with fibromyalgia (FM), with a view to providing information on demographics, sources of information, symptoms, functionality, perceived aggravating factors, perceived triggering events, health care utilization, management strategies, and medication use. METHODS: A survey questionnaire was developed by the National Fibromyalgia Association (NFA) in conjunction with a task force of "experts in the field". The questionnaire underwent several rounds of testing to improve its face validity, content validity, clarity and readability before it was mounted on the internet. The questionnaire consisted of 121 items and is available online at the website of the National Fibromyalgia Association. RESULTS: The questionnaire was completed by 2,569 people. Most were from the United States, with at least one respondent from each of the 50 states. Respondents were predominantly middle-aged Caucasian females, most of whom had FM symptoms for > or = 4 years. The most common problems were morning stiffness, fatigue, nonrestorative sleep, pain, concentration, and memory. Aggravating factors included: emotional distress, weather changes, insomnia, and strenuous activity. Respondents rated the most effective management modalities as rest, heat, pain medications, antidepressants, and hypnotics. The most commonly used medications were: acetaminophen, ibuprofen, naproxen, cyclobenzaprine, amitriptyline, and aspirin. The medications perceived to be the most effective were: hydrocodone preparations, aprazolam, oxycodone preparations, zolpidem, cyclobenzaprine, and clonazepam. CONCLUSION: This survey provides a snap-shot of FM at the end of 2005, as reported by a self-selected population of people. This descriptive data has a heuristic function, in that it identifies several issues for further research, such as the prescribing habits of FM health care providers, the role of emotional precipitants, the impact of obesity, the significance of low back pain and the nature of FM related stiffness.

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Rheumatologic Conditions: Sjögren’s Syndrome, Fibromyalgia, and Chronic Fatigue Syndrome
Glass, J. M. (2010) · Springer eBooks · doi:10.1007/978-1-4419-1364-7_21
Investigating the transition from chronic low back or neck pain to widespread pain and fibromy[a]lgia
Kindler, L. L. (2009) · doi:10.6083/m4k0727q
Nonpharmacological, Complementary and Alternative Treatments for Fibromyalgia
Bonakdar, R. A. (2009) · CRC Press eBooks · doi:10.3109/9781420086805-4
Fibromyalgia's symptom patterns
Chaitow, L., Baldry, P., Blake, E., Dommerholt, J., Good, R., Issa, T. S., Lowe, J. C., McMakin, C., McPartland, J. M., Watson, P., et al. (2009) · Elsevier eBooks · doi:10.1016/b978-0-443-06936-9.00002-0
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Authors: Bennett, R. M., Jones, J., Turk, D. C., Russell, I. J., & Matallana, L.
Affiliations: Oregon Health & Science University (US)
California State University, Fullerton (US)
University of Washington (US)
The University of Texas at San Antonio Health Science Center (US)
Corresponding author: Bennett, Robert M
ORCID: Bennett, Robert M
Venue: BMC Musculoskeletal Disorders
Publisher: Springer Science and Business Media LLC
Published: 2007-03-09
Volume: 8
Issue: 1
Pages: 27-27
ISSN: 1471-2474 (ISSN-L)
DOI: 10.1186/1471-2474-8-27
PMC: PMC1829161
OpenAlex: W2165844418
Cited by: 865
References: 57
Citations by year: 2026: 18 · 2025: 32 · 2024: 35 · 2023: 40 · 2022: 37 · 2021: 50 · 2020: 32 · 2019: 27 · 2018: 35 · 2017: 50 · 2016: 50 · 2015: 60 · 2014: 65 · 2013: 56 · 2012: 68
FWCI: 27.78
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
www.springer.com/tdm (unspecified)
Locations: BMC Musculoskeletal Disorders (publishedVersion, cc-by)
Europe PMC (PubMed Central) (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
ResearchWorks at the University of Washington (University of Washington) (submittedVersion, cc-by)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: University of Washington
California State University, Fullerton
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Fibromyalgia and Chronic Fatigue Syndrome Research
Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Musculoskeletal pain and rehabilitation
Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Keywords: fibromyalgia, online surveys, questionnaire development, survey feasibility, symptom profiles, aggravating circumstances, health care utilization, pain management, medication use, cyclobenzaprine, antidepressants, hypnotics, fatigue, non-restorative sleep, morning stiffness, emotional distress
MeSH terms: Adult, Female, Fibromyalgia, Health Surveys, Humans, Male, Middle Aged, Pain Measurement, Internet

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An internet survey of 2,596 people with fibromyalgia

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