Improving the care pathway for women who request Caesarean section: an experience-based co-design study
Open accessAbstract
BACKGROUND: Maternal request for Caesarean section is controversial and yet the NICE Caesarean section Guideline recommends that that if this is requested, following discussion of the risks and benefits, women should be supported in their choice. There was a desire to improve the pathway at Birmingham Women's NHS Foundation Trust. METHODS: Experience-based co-design methodology uses service user and clinicians experiences collected using qualitative methods to jointly re-design services. Firstly semi-structured interviews were conducted to elicit the views and experiences of health care professionals and women who requested Caesarean section (with and without medical indication). Analysis identified key themes arising from the health care professionals' interviews and 'touch points' (key moments or events related to the experience of care) arising from the interviews with women.. Separate workshops were then held with each group to ensure these resonated and to identify key areas for service improvement. At the first joint workshop a pathway using 'audio clips' demonstrating women's agreed 'touch points' prompted discussion and joint working began to change the pathway. A final second workshop was held to agree changes to the pathway. RESULTS: Interviews were conducted with health care professionals (n = 22, 10 consultant obstetricians and 12 midwives) and women (n = 15). The women's 'touch points' included repetition of request, delay in the decision for Caesarean section to be made, feeling judged, and that information was poor with similar findings identified from the health care professionals. Joint working resulted in a revised pathway for women who request Caesarean section. Changes to the pathway for women as a result of the work include written information about 'The way your baby may be born' which is given to the woman followed by a discussion about mode of birth around the 16 week appointment. If the woman wishes to have a Caesarean section, referral is made to appropriate health care professionals (e.g., Consultant Midwife, counsellor) only if support and information would be useful. If Caesarean section is requested, woman is referred to a consultant obstetrician for an appointment at 20/40, with a decision by 28/40. Recording this in the notes minimises repeated challenge described by women. Final consent and timing of Caesarean section remain as recommended. CONCLUSION: This has resulted in changes to the pathway agreed by a co-design process and which are acceptable to both health care professionals and women. Use of such methodologies should be considered more frequently when implementing service change.
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A codesign workshop that involved healthcare providers and patients recommended initiating discussion about mode of delivery at the 16-week appointment and finalizing the birth plan by 28 weeks, while still providing opportunities for patients to request changes up to the time of delivery.
“A codesign workshop that involved healthcare providers and patients recommended initiating this discussion at the 16-week appointment and finalizing the birth plan by 28 weeks (while still providing opportunities for patients to request changes up to the time of delivery).55”
From Guidelines for antenatal and preoperative care in cesarean delivery: Enhanced Recovery After Surgery Society recommendations (part 1)—2025 update (2026) · cites this paper as [55]
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Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013) · BMC Medical Research Methodology · doi:10.1186/1471-2288-13-117 · Cited by 10,865 · see citing works
Self-citationBate, P., & Robert, G. (2006) · Quality and Safety in Health Care · doi:10.1136/qshc.2005.016527 · Cited by 1,081 · see citing works
Feeling in Control During Labor: Concepts, Correlates, and Consequences
Green, J. M., & Baston, H. A. (2003) · Birth · doi:10.1046/j.1523-536x.2003.00253.x · Cited by 360 · see citing works
Elective Cesarean Section and Decision Making: A Critical Review of the Literature
McCourt, C., Weaver, J. J., Statham, H., Beake, S., Gamble, J. A., & Creedy, D. K. (2007) · Birth · doi:10.1111/j.1523-536x.2006.00147.x · Cited by 319 · see citing works
Elective Primary Cesarean Delivery
MINKOFF, H. L., & Chervenak, F. A. (2003) · New England Journal of Medicine · doi:10.1056/nejmsb022734 · Cited by 304 · see citing works
Why do women request caesarean section in a normal, healthy first pregnancy?
Fenwick, J., Staff, L., Gamble, J. A., Creedy, D. K., & Bayes, S. J. (2008) · Midwifery · doi:10.1016/j.midw.2008.10.011 · Cited by 227 · see citing works
Wiklund, I. E., Edman, G., & Andolf, E. G. (2007) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1080/00016340701217913 · Cited by 216 · see citing works
Tsianakas, V., Robert, G., Maben, J., Richardson, A., Dale, C., & Wiseman, T. (2012) · Supportive Care in Cancer · doi:10.1007/s00520-012-1470-3 · Cited by 197 · see citing works
Expectation and experiences of childbirth in primiparae with caesarean section
Wiklund, I., Edman, G., Ryding, E., & Andolf, E. (2008) · BJOG: an International Journal of Obstetrics and Gynaecology · doi:10.1111/j.1471-0528.2007.01564.x · Cited by 176 · see citing works
Donetto, S., Tsianakas, V., & Robert, G. (2014) · Cited by 175 · see citing works
On the Brink of Genuinely Collaborative Care: Experience-Based Co-Design in Mental Health
Larkin, M., Boden, Z. V. R., & Newton, E. (2015) · Qualitative Health Research · doi:10.1177/1049732315576494 · Cited by 158 · see citing works
Locock, L., Robert, G., Boaz, A., Vougioukalou, S., Shuldham, C., Fielden, J., Ziebland, S., Gager, M., Tollyfield, R., & Pearcey, J. (2014) · Health Services and Delivery Research · doi:10.3310/hsdr02040 · Cited by 138 · see citing works
Cotzias, C. S., Paterson‐Brown, S., & Fisk, N. M. (2001) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/s0301-2115(00)00360-2 · Cited by 125 · see citing works
Piper, D. A., Iedema, R. A. M., Gray, J. S., Verma, R., Holmes, L., & Manning, N. (2012) · Health Services Management Research · doi:10.1177/0951484812474247 · Cited by 87 · see citing works
Karlström, A., Nystedt, A., & Hildingsson, I. (2011) · Sexual & Reproductive Healthcare · doi:10.1016/j.srhc.2011.03.002 · Cited by 86 · see citing works
User Involvement in Health Care
(2010) · Wiley eBooks · doi:10.1002/9781444325164 · Cited by 85 · see citing works
What Constitutes a Good Childbirth? A Qualitative Study of Pregnant Finnish Women
Melender, H. (2006) · Journal of Midwifery & Women s Health · doi:10.1016/j.jmwh.2006.02.009 · Cited by 65 · see citing works
Decision-making about caesarean delivery
Kalish, R., McCullough, L., & Chervenak, F. A. (2006) · The Lancet · doi:10.1016/s0140-6736(06)68359-1 · Cited by 34 · see citing works
Caesarean section in the absence of need: a pathologising paradox for public health?
Douché, J., & Carryer, J. (2011) · Nursing Inquiry · doi:10.1111/j.1440-1800.2011.00533.x · Cited by 16 · see citing works
British midwives' views on rising caesarean section rates
Churchill, H., & Francome, C. (2009) · British Journal of Midwifery · doi:10.12968/bjom.2009.17.12.45545 · Cited by 5 · see citing works
Where next for User Involvement?
Greenhalgh, T., Woodard, F., & Humphrey, C. (2010) · doi:10.1002/9781444325164.ch8 · Cited by 3 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- [16]National Institute for Health and Clinical Excellence. Caesarean section. (Clinical guideline 13). 2004. http://guidance.nice.org.uk/CG13 31886991
- [17]National Institute for Health and Clinical Excellence. Caesarean section (update). (Clinical guideline 132). 2011. http://guidance.nice.org.uk/CG132 31886991
Cited by
Sorted by citations
Green, T., Bonner, A., Teleni, L., Bradford, N., Purtell, L., Douglas, C., Yates, P. M., MacAndrew, M., Dao, H. Y., & Chan, R. J. (2019) · BMJ Quality & Safety · doi:10.1136/bmjqs-2019-009570 · Cited by 236 · see citing works
Altman, M. R., McLemore, M. R., Oseguera, T. W., Lyndon, A., & Franck, L. S. (2020) · Journal of Midwifery & Women s Health · doi:10.1111/jmwh.13102 · Cited by 184 · see citing works
Merner, B., Schonfeld, L., Virgona, A., Lowe, D. B., Walsh, L., Wardrope, C., Graham‐Wisener, L., Xafis, V., Colombo, C., Refahi, N., et al. (2023) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd013274.pub2 · Cited by 66 · see citing works
Lloyd, N., Kenny, A. J., & Hyett, N. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06319-1 · Cited by 47 · see citing works
Experience-based co-design of mental health services and interventions: A scoping review
Hawke, L. D., Sheikhan, N. Y., Bastidas-Bilbao, H., & Rodak, T. (2024) · SSM - Mental Health · doi:10.1016/j.ssmmh.2024.100309 · Cited by 45 · see citing works
Weckesser, A., Farmer, N., Dam, R., Wilson, A., Morton, V. H., & Morris, R. K. (2019) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-019-2402-8 · Cited by 38 · see citing works
Making shared decisions in relation to planned caesarean sections: What are we up to?
Coates, D., Thirukumar, P., & Henry, A. (2019) · Patient Education and Counseling · doi:10.1016/j.pec.2019.12.001 · Cited by 33 · see citing works
Experience based co-design in healthcare services: an analysis of projects barriers and enablers
Ramos, M., Bowen, S. J., Wright, P., Ferreira, M. G. G., & Forcellini, F. A. (2020) · Design for Health · doi:10.1080/24735132.2020.1837508 · Cited by 29 · see citing works
Co-designing preconception and pregnancy care for healthy maternal lifestyles and obesity prevention
Walker, R., Morris, H., Lang, S., Hampton, K., Boyle, J. A., & Skouteris, H. (2019) · Women and Birth · doi:10.1016/j.wombi.2019.11.005 · Cited by 26 · see citing works
Ratislavová, K., Lorenzová, E. H., Martin, C. J. H., & Martin, C. R. (2022) · Journal of Reproductive and Infant Psychology · doi:10.1080/02646838.2022.2067837 · Cited by 24 · see citing works
Wilson, R. D., Monks, D. T., Sharawi, N., Bamber, J., Panelli, D. M., Sauro, K. M., Shah, P. S., Muraca, G. M., Metcalfe, A., Wood, S. L., et al. (2026) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2025.01.014 · Cited by 22 · see citing works
Exploring and Understanding the ‘Experience’ in Experience-Based Codesign: A State-of-The-Art Review
Francis‐Auton, E., Cheek, C., Austin, E. E., Ransolin, N., Richardson, L., Safi, M., Hayba, N., Testa, L., Harrison, R., Braithwaite, J., et al. (2024) · International Journal of Qualitative Methods · doi:10.1177/16094069241235563 · Cited by 21 · see citing works
Yazdizadeh, B., Walker, R., Skouteris, H., Olander, E. K., & Hill, B. (2020) · Health Promotion International · doi:10.1093/heapro/daaa039 · Cited by 16 · see citing works
Vedam, S., Titoria, R., Niles, P. M., Stoll, K. H., Kumar, V., Baswal, D., Mayra, K., Kaur, I., & Hardtman, P. (2022) · Health Policy and Planning · doi:10.1093/heapol/czac032 · Cited by 20 · see citing works
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2023) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-023-05471-2 · Cited by 16 · see citing works
Coates, D., Donnolley, N. R., Thirukumar, P., Lainchbury, A., Spear, V., & Henry, A. (2020) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.13255 · Cited by 16 · see citing works
Coates, D., Donnolley, N. R., Foureur, M. J., Thirukumar, P., & Henry, A. (2021) · Midwifery · doi:10.1016/j.midw.2021.102944 · Cited by 14 · see citing works
Design as a quality improvement strategy: The case for design expertise
Lamé, G., Komashie, A., Sinnott, C., & Bashford, T. (2024) · Future Healthcare Journal · doi:10.1016/j.fhj.2024.100008 · Cited by 9 · see citing works
Twamley, J., Monks, R., & Beaver, K. (2023) · Intensive and Critical Care Nursing · doi:10.1016/j.iccn.2023.103390 · Cited by 9 · see citing works
Suutari, A., Thor, J., Nordin, A. M. M., & Josefsson, K. A. (2023) · BMC Health Services Research · doi:10.1186/s12913-023-09306-w · Cited by 7 · see citing works
Roy, S., & Irvine, L. M. (2018) · BMC Health Services Research · doi:10.1186/s12913-018-3570-3 · Cited by 7 · see citing works
Eide, K. T., Morken, N., & Bærøe, K. (2020) · Midwifery · doi:10.1016/j.midw.2020.102764 · Cited by 6 · see citing works
Aggarwal, M., Katz, A., Kokorelias, K. M., Wong, S. T., Aghajafari, F., Ivers, N. M., Martin‐Misener, R., Aubrey‐Bassler, K., Breton, M., Upshur, R. E. G., et al. (2023) · BMJ Open · doi:10.1136/bmjopen-2023-072238 · Cited by 5 · see citing works
Suutari, A., Nordin, A. M. M., Kjellström, S., Thor, J., & Josefsson, K. A. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-058469 · Cited by 5 · see citing works
Oguntunde, O., Nyenwa, J., Kilani-Ahmadu, S., Salihu, A., & Yusuf, I. (2019) · Research Square · doi:10.21203/rs.2.13294/v1 · Cited by 5 · see citing works
Caesarean section as an informed choice in the UK: a systematic review
Djatmika, C., Lusher, J. M., Meyrick, J., & Byron‐Daniel, J. (2021) · British Journal of Midwifery · doi:10.12968/bjom.2021.29.10.579 · Cited by 4 · see citing works
Use of storytelling and audio podcasts in qualitative research
Sutton, J. (2019) · Nursing Children and Young People · doi:10.7748/ncyp.2019.e1212 · Cited by 3 · see citing works
Jodzis, A., Walędziak, M. S., Czajkowski, K., & Różańska-Walędziak, A. M. (2021) · Medicina · doi:10.3390/medicina57060572 · Cited by 3 · see citing works
Does Obesity Influence Women’s Decision Making about the Mode of Delivery?
Walędziak, M. S., & Różańska-Walędziak, A. M. (2022) · Journal of Clinical Medicine · doi:10.3390/jcm11237234 · Cited by 3 · see citing works
Walędziak, M. S., Jodzis, A., & Różańska-Walędziak, A. M. (2022) · Medicina · doi:10.3390/medicina58121782 · Cited by 3 · see citing works
Translation and validation of the Birth Satisfaction Scale-Revised Indicator (BSS-RI) in Chinese
Wang, Y., Gu, J. H., Zhang, F., & Deng, J. (2025) · Scientific Reports · doi:10.1038/s41598-025-17614-w · Cited by 2 · see citing works
Cocreation and codesign in maternal health: processes, outcomes and implementation challenges
Rishard, M., Rajaratne, K., Jayasingha, K., Senanayake, H. M., & Wijesinghe, M. S. D. (2026) · BMJ Quality & Safety · doi:10.1136/bmjqs-2025-019030 · Cited by 2 · see citing works
Cruickshank, M., Robertson, C. M., Brazzelli, M. G., Ekong, A., Ade, M., Hull, P. M., Manson, P. D., Bick, D., Williams, D. O., Taylor, G., et al. (2025) · AJOG Global Reports · doi:10.1016/j.xagr.2025.100556 · Cited by 1 · see citing works
Enhanced recovery after Caesarean delivery. Part 1: preoperative and intraoperative considerations
Yau, N. W. L., Takenoshita, M., Sultan, P., & Desai, N. (2026) · BJA Education · doi:10.1016/j.bjae.2025.12.002 · Cited by 1 · see citing works
Tomlin, E. M. (2018) · White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York)
Fresh eyes: A human-centred design approach to diabetic retinopathy screening in primary care
Villalba, C. (2020) · Queensland University of Technology · doi:10.5204/thesis.eprints.201836
“For Space” in Healthcare Co-Design
Donetto, S. (2025) · Routledge eBooks · doi:10.4324/9781003480426-17
Shared decision making in midwifery
Daly, D., Smith, V. A., Nieuwenhuijze, M. J., & McEvoy, E. (2025) · doi:10.1093/med/9780198897804.003.0055
O’Halloran, S., Perlen, S., Chapman, A., Sominsky, L., Dawson, S. L., Cusworth, R., Alston, L. V., Vasilevski, V., Sweet, L. P., Vuillermin, P., et al. (2025) · Nursing and Health Sciences · doi:10.1111/nhs.70220
Lloyd, N., Kenny, A. J., & Hyett, N. (2021) · Figshare · doi:10.6084/m9.figshare.14457255
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578223
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578220
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578229
Lloyd, N., Kenny, A. J., & Hyett, N. (2021) · Figshare · doi:10.6084/m9.figshare.14457252
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578241
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578235
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578232
Suutari, A.-M., Thor, J., Nordin, A. M. M., & Josefsson, K. A. (2024) · Figshare · doi:10.6084/m9.figshare.26578418
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578238
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578226
Johansson, M., Alvan, J., Pettersson, A., & Hildingsson, I. (2024) · Figshare · doi:10.6084/m9.figshare.26578217
Lloyd, N., Kenny, A. J., & Hyett, N. (2021) · Figshare · doi:10.6084/m9.figshare.14457249
Robertson, C., Cruickshank, M., Brazzelli, M. G., Ekong, A., Ade, M., Hull, P. M., Manson, P. D., Bick, D., Devane, D., Williams, D., et al. (2026) · NIHR Open Research · doi:10.3310/nihropenres.14178.1
- Authors
- Kenyon, S. L., Johns, N., Duggal, S., Hewston, R., & Gale, N.
- Affiliations
- University of Birmingham (GB)
- Birmingham Women's Hospital (GB)
- Corresponding author
- Kenyon, Sara L.
- Venue
- BMC Pregnancy and Childbirth
- Published
- 2016-11-09
- Volume
- 16
- Issue
- 1
- Pages
- 348-348
- ISSN
- 1471-2393 (ISSN-L)
- PMC
- PMC5103505
- OpenAlex
- W2556051267
- Cited by
- 54
- References
- 21
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 13 · 2023: 5 · 2022: 5 · 2021: 7 · 2020: 6 · 2019: 7 · 2018: 2
- FWCI
- 3.88
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- BMC Pregnancy and Childbirth (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- University of Birmingham Research Portal (University of Birmingham) (publishedVersion, cc-by)
- Worcester Research and Publications (University of Worcester) (submittedVersion)
- Funders
- Collaboration for Leadership in Applied Health Research and Care
- Topics
- Health Sciences › Medicine › Obstetrics and Gynecology › Maternal and Perinatal Health Interventions
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Clinical practice guidelines implementation
- Keywords
- cesarean section, care pathway redesign, experience-based co-design, touchpoints, shared decision-making, patient information, obstetricians, midwives, service improvement
- MeSH terms
- Adult, Attitude of Health Personnel, Cesarean Section, Congresses as Topic, Female, Humans, Informed Consent, Interviews as Topic, Male, Middle Aged, Midwifery, Obstetrics, Patient Education as Topic, Pregnancy, Prenatal Care, Referral and Consultation, Critical Pathways, Patient Preference
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