The DOI matches its Crossref record; 39 of the 39 references it cites were found in a registry or an index.
Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program
Open accessAbstract
BACKGROUND: Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared patient-related outcomes and healthcare expenditures between those who received home-based paediatric palliative care and standard care. The quality of life and caregiver burden for patients receiving home-based paediatric palliative care were also tracked over the first year of enrolment to evaluate the service's longitudinal impact. METHOD: A structured impact and cost evaluation of Singapore-based HCA Hospice Care's Star PALS (Paediatric Advance Life Support) programme was conducted over a three-year period, employing both retrospective and prospective designs with two patient groups. RESULTS: Compared to the control group (n = 67), patients receiving home-based paediatric palliative care (n = 71) spent more time at home than in hospital in the last year of life by 52 days (OR = 52.30, 95% CI: 25.44-79.17) with at least two fewer hospital admissions (OR = 2.46, 95% CI: 0.43-4.48); and were five times more likely to have an advance care plan formulated (OR = 5.51, 95% CI: 1.55-19.67). Medical costs incurred by this group were also considerably lower (by up to 87%). Moreover, both patients' quality of life (in terms of pain and emotion), and caregiver burden showed improvement within the first year of enrolment into the programme. DISCUSSION: Our findings suggest that home-based paediatric palliative care brings improved resource utilization and cost-savings for both patients and healthcare providers. More importantly, the lives of patients and their caregivers have improved, with terminally ill children and their caregivers being able to spend more quality time at home at the final stretch of the disease. CONCLUSIONS: The benefits of a community paediatric palliative care programme have been validated. Study findings can become key drivers when engaging service commissioners or even policy makers in appropriate settings.
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“However, some recent studies found that family support interventions did not reduce psychological symptoms in family members. 66,67,75,79”
From European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions (2021) · cites this paper as [66]
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The Health Utilities Index (HUI): concepts, measurement properties and applications.
Horsman, J., Furlong, W. J., Feeny, D. F., & Torrance, G. W. (2003) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-1-54 · Cited by 1,391
Economic Evaluation in Clinical Trials
Glick, H. A., Doshi, J. A., Sonnad, S. S., & Polsky, D. (2014) · Oxford University Press eBooks · doi:10.1093/med/9780199685028.001.0001 · Cited by 910
Dying in America: improving quality and honoring individual preferences near the end of life
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Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations
SECTION ON HOSPICE AND PALLIATIVE MEDICINE AND COMMITTEE ON HOSPITAL CARE, Feudtner, C., Friebert, S., Jewell, J., Friebert, S., Carter, B., Feudtner, C., Hood, M., Imaizumi, S., & Komatz, K. (2013) · Pediatrics · doi:10.1542/peds.2013-2731 · Cited by 472
Pediatric Palliative Care Patients: A Prospective Multicenter Cohort Study
Feudtner, C., Kang, T. I., Hexem, K. R., Friedrichsdorf, S. J., Osenga, K., Siden, H., Friebert, S. E., Hays, R. M., Dussel, V., & Wolfe, J. (2011) · Pediatrics · doi:10.1542/peds.2010-3225 · Cited by 427
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Pediatric Palliative Care Patients: A Prospective Multicenter Cohort Study
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Pediatric palliative care provision around the world: A systematic review
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Cited by
European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions
Mentzelopoulos, S. D., Couper, K., Voorde, P. V. D., Druwé, P., Blom, M., Perkins, G. D., Lulic, I., Djakow, J., Raffay, V., Lilja, G., et al. (2021) · Resuscitation · doi:10.1016/j.resuscitation.2021.02.017 · Cited by 246
Metadata
- Authors
- Chong, P. H., De Castro Molina, J. A., Teo, K., & Tan, W. S.
- Affiliations
- National Healthcare Group (SG)
- Corresponding author
- Chong, P. H.
- ORCID
- Chong, P. H.
- Venue
- BMC Palliative Care
- Published
- 2018-01-03
- Volume
- 17
- Issue
- 1
- Pages
- 11-11
- ISSN
- 1472-684X (ISSN-L)
- PMC
- PMC5751774
- OpenAlex
- W2781701630
- Cited by
- 95
- References
- 39
- Citations by year
- 2026: 9 · 2025: 7 · 2024: 14 · 2023: 15 · 2022: 19 · 2021: 9 · 2020: 7 · 2019: 10 · 2018: 4
- FWCI
- 7.15
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- BMC Palliative Care (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- National University of Singapore (submittedVersion, cc-by)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- Tote board - Singapore (TB048)
- Ministry of Health -Singapore
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Ethics and Legal Issues in Pediatric Healthcare
- Keywords
- pediatric palliative care, home-based palliative care, advance care planning, health care costs, quality of life, caregiver burden, terminally ill children, hospitalization, community-based palliative care
- MeSH terms
- Adolescent, Child, Child, Preschool, Female, Home Care Services, Humans, Infant, Male, Palliative Care, Pediatrics, Prospective Studies, Quality of Life, Retrospective Studies, Singapore, Cohort Studies, Health Care Costs, Patient Outcome Assessment
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- Chong, P. H., De Castro Molina, J. A., Teo, K., & Tan, W. S. (2018). Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program. BMC Palliative Care. https://doi.org/10.1186/s12904-017-0267-z
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
