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Participatory epidemiology: the contribution of participatory research to epidemiology

Bach, Mario, Jordan, Susanne, Hartung, Susanne, Santos-Hövener, Claudia, Wright, Michael T.·2017·Emerging Themes in Epidemiology
DOI 10.1186/s12982-017-0056-4PMC PMC5301332
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Abstract

Background: Epidemiology has contributed in many ways to identifying various risk factors for disease and to promoting population health. However, there is a continuing debate about the ability of epidemiology not only to describe, but also to provide results which can be better translated into public health practice. It has been proposed that participatory research approaches be applied to epidemiology as a way to bridge this gap between description and action. A systematic account of what constitutes participatory epidemiology practice has, however, been lacking. Methods: A scoping review was carried out focused on the question of what constitutes participatory approaches to epidemiology for the purpose of demonstrating their potential for advancing epidemiologic research. Relevant databases were searched, including both the published and non-published (grey) literature. The 102 identified sources were analyzed in terms of comparing common epidemiologic approaches to participatory counterparts regarding central aspects of the research process. Exemplary studies applying participatory approaches were examined more closely. Results: A highly diverse, interdisciplinary body of literature was synthesized, resulting in a framework comprised of seven aspects of the research process: research goal, research question, population, context, data synthesis, research management, and dissemination of findings. The framework specifies how participatory approaches not only differ from, but also how they can enhance common approaches in epidemiology. Finally, recommendations for the further development of participatory approaches are given. These include: enhancing data collection, data analysis, and data validation; advancing capacity building for research at the local level; and developing data synthesis. Conclusion: The proposed framework provides a basis for systematically developing the emergent science of participatory epidemiology.

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Metadata

Authors
Bach, M., Jordan, S., Hartung, S., Santos-Hövener, C., & Wright, M. T.
ORCID
Bach, Mario
Venue
Emerging Themes in Epidemiology
Publisher
Springer Science and Business Media LLC
Published
2017-02-10
Volume
14
Issue
1
ISSN
1742-7622
DOI
10.1186/s12982-017-0056-4
PMC
PMC5301332
Cited by
61
References
6
Language
en
Licence
Funders
German Federal Ministry of Education and Research (BMBF 01EL1423F)

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Bach, M., Jordan, S., Hartung, S., Santos-Hövener, C., & Wright, M. T. (2017). Participatory epidemiology: the contribution of participatory research to epidemiology. Emerging Themes in Epidemiology. https://doi.org/10.1186/s12982-017-0056-4