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Cited by 131Family and Disability Support ResearchNursing care and researchFamily Support in Illness

Psychosocial factors related with caregiver burden among families of children with chronic conditions

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Toledano-Toledano, Filiberto, Domínguez-Guedea, Miriam Teresa·2019·BioPsychoSocial Medicine
DOI 10.1186/s13030-019-0147-2PMC PMC6407238
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Abstract

BACKGROUND: The impact of looking after children who live with complex chronic conditions is a growing public health issue. However, it is unclear whether sociodemographic and psychosocial variables can be used to predict the burden on the caregiver and how the profiles of families of children with chronic diseases are defined and structured. The objective of this study was to identify multivariate sociodemographic and psychosocial variables as well as sociocultural and familial factors to analyze the caregiver burden of family caregivers of children with chronic diseases. METHODS: A cross-sectional study was conducted involving 416 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to a questionnaire on sociodemographic variables and a battery of 7 instruments that examined caregiver burden, family support, parental stress, anxiety, support networks, family functioning, historic-psycho-socio-cultural premises and the World Health Organization Well-Being Index RESULTS: A multivariate analysis using hierarchical multiple regression models showed that the variables included in the psychosocial and sociodemographic profile as a whole explained 40% of the variance in caregiver burden, taking sociocultural historical premises, stressors and anxiety into account as positive individual predictors. Negative individual predictors for caregiver burden included upper secondary education, social support networks, family support, family functioning and well-being. The sociodemographic profiles of family caregivers were as follows: female (81.7%); mean age, 31.7 years (standard deviation [SD], 8 years); married (79.3%); nuclear family (60%); basic education (62.7%); unpaid work (66.3%); and a daily household income of approximately 4 USD (61.1%). CONCLUSIONS: The caregiver burden of family caregivers of children with chronic diseases is defined and structured based on personal, family, and sociocultural factors. These features provide evidence to conduct research and implement intervention strategies with regard to families facing adversity, risk and vulnerability during a child's disease.

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  • Caregivers of children with cancer experience stressful events, the most common of which are poor health, caregiver burden and burnout.

    “caregivers of such children experience a host of stressful events, the most common of which are poor health [11], caregiver burden and burnout [12,13]”

    From Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study (2021) · cites this paper as [12]

    The Background links caregiver burden with high levels of burnout, and the Discussion includes caregivers of children with cancer in the study population (page numbers not supplied). But the study also includes other chronic diseases, does not establish that burden and burnout are the most common stressful experiences, and reports low average burden in its sample. Poor health has a separate citation in the citing sentence and is not assessed here. (LLM, conf=0.86)

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Research works printed but not linked: 36

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Authors
Toledano-Toledano, F., & Domínguez-Guedea, M. T.
ORCID
Toledano-Toledano, Filiberto
Venue
BioPsychoSocial Medicine
Publisher
Springer Science and Business Media LLC
Published
2019-03-08
Volume
13
Issue
1
Pages
6-6
ISSN
1751-0759 (ISSN-L)
DOI
10.1186/s13030-019-0147-2
PMC
PMC6407238
OpenAlex
W2938133214
Cited by
131
References
50
Citations by year
2026: 13 · 2025: 20 · 2024: 27 · 2023: 18 · 2022: 24 · 2021: 12 · 2020: 13 · 2019: 4
FWCI
15.47
Type
journal article
Language
en
Open access
Licence
Locations
  • BioPsychoSocial Medicine (publishedVersion, cc-by)
  • Europe PMC (PubMed Central) (publishedVersion, other-oa)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders
Measurement and assessment of resilience in pediatric chronic disease (HIM/2013/019/SSA.1141)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
caregiver burden, family caregivers, children with chronic illness, psychosocial factors, sociodemographic factors, parental stress, anxiety, social support networks, family functioning, family support, sociocultural factors, well-being

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