The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.
Identifying the concerns of informal carers in palliative care
Abstract
The purpose of this preliminary study was to identify the perceived support needs of informal carers (families and friends) of cancer patients receiving palliative care in the community. Changes in policy mean that increasing numbers of palliative care patients receive the majority of their care at home. This potentially places heavy demands on families and friends. Thirty-nine informal carers were recruited from two areas in southern England. Data were obtained on psychological morbidity (General Health Questionnaire), and caregiving burden (Carer Strain Index), and a semistructured interview was used to elicit data on perceptions of caring. Results indicate that 33 (84%) reported above normal levels of psychological distress and 16 (41%) experienced high levels of strain related to caregiving. Younger age and being female were found to be correlated with psychological morbidity and strain. Participants also reported life restrictions, emotional distress and limited support.
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Validation of a Caregiver Strain Index
Robinson, B. C. (1983) · Journal of Gerontology · doi:10.1093/geronj/38.3.344 · Cited by 1,426
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Review of the literature on the effects of caring for a patient with cancer
Stenberg, U., Ruland, C. M., & Miaskowski, C. (2010) · Psycho-Oncology · doi:10.1002/pon.1670 · Cited by 786
Hidden morbidity in cancer: spouse caregivers
Braun, M., Mikulincer, M., Rydall, A., Walsh, A., & Rodin, G. (2007) · Journal of Clinical Oncology · doi:10.1200/jco.2006.10.0909 · Cited by 526
Physical, Psychosocial, Relationship, and Economic Burden of Caring for People With Cancer: A Review
Girgis, A., Lambert, S., Johnson, C., Waller, A., & Currow, D. (2013) · Journal of Oncology Practice · doi:10.1200/jop.2012.000690 · Cited by 462
Do Hospital-Based Palliative Teams Improve Care for Patients or Families at the End of Life?
Higginson, I. J., Finlay, I., Goodwin, D. M., Cook, A. M., Hood, K., Edwards, A. G. K., Douglas, H.-R., & Norman, C. E. (2002) · Journal of Pain and Symptom Management · doi:10.1016/s0885-3924(01)00406-7 · Cited by 344
Thomas, K., Hudson, P., Trauer, T., Remedios, C., & Clarke, D. (2014) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2013.05.022 · Cited by 147
Metadata
- Authors
- Payne, S., Smith, P., & Dean, S.
- Venue
- Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 1999-01-01
- Volume
- 13
- Issue
- 1
- Pages
- 37-44
- ISSN
- 0269-2163 (ISSN-L)
- 1477-030X
- OpenAlex
- W2088074155
- Cited by
- 292
- References
- 1
- FWCI
- 10.83
- Type
- journal article
- Language
- en
- Open access
- closed
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
