Risk factors for developing prolonged grief during bereavement in family carers of cancer patients in palliative care: a longitudinal study
Open accessAbstract
Context Family carers of palliative care patients report high levels of psychological distress throughout the caregiving phase and during bereavement. Palliative care providers are required to provide psychosocial support to family carers; however, determining which carers are more likely to develop prolonged grief (PG) is currently unclear.Objectives To ascertain whether family carers reporting high levels of PG symptoms and those who develop PG disorder (PGD) by six and 13 months postdeath can be predicted from predeath information.Methods A longitudinal study of 301 carers of patients receiving palliative care was conducted across three palliative care services. Data were collected on entry to palliative care (T1) on a variety of sociodemographic variables, carer-related factors, and psychological distress measures. The measures of psychological distress were then readministered at six (T2; n=167) and 13 months postdeath (T3; n=143).Results The PG symptoms at T1 were a strong predictor of both PG symptoms and PGD at T2 and T3. Greater bereavement dependency, a spousal relationship to the patient, greater impact of caring on schedule, poor family functioning, and low levels of optimism also were risk factors for PG symptoms.Conclusion Screening family carers on entry to palliative care seems to be the most effective way of identifying who has a higher risk of developing PG. We recommend screening carers six months after the death of their relative to identify most carers with PG.
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Cites
The Hospital Anxiety and Depression Scale
Zigmond, A. S., & Snaith, R. P. (1983) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.1983.tb09716.x · Cited by 47,139 · see citing works
The Multidimensional Scale of Perceived Social Support
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988) · Journal of Personality Assessment · doi:10.1207/s15327752jpa5201_2 · Cited by 13,339 · see citing works
Scheier, M. F., Carver, C. S., & Bridges, M. W. (1994) · Journal of Personality and Social Psychology · doi:10.1037//0022-3514.67.6.1063 · Cited by 7,456 · see citing works
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810 · see citing works
Psychometric properties of the PTSD checklist (PCL)
Blanchard, E. B., Jones-Alexander, J., Buckley, T. C., & Forneris, C. A. (1996) · Behaviour Research and Therapy · doi:10.1016/0005-7967(96)00033-2 · Cited by 3,997 · see citing works
Prolonged grief disorder: psychometric validation of criteria proposed for DSM-V and ICD-11
Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., Raphael, B., Marwit, S. J., Wortman, C., Neimeyer, R. A., et al. (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000121 · Cited by 1,863 · see citing works
Health outcomes of bereavement.
Stroebe, M., Schut, H., & Stroebe, W. (2007) · The Lancet · doi:10.1016/s0140-6736(07)61816-9 · Cited by 1,746 · see citing works
National Cancer Control Programmes, Policies and Managerial Guidelines
Ezzat, A. A. (1996) · Annals of Saudi Medicine · doi:10.5144/0256-4947.1996.358b · Cited by 1,271 · see citing works
Mutuality and preparedness as predictors of caregiver role strain.
Archbold, P., Stewart, B., Greenlick, M., & Harvath, T. (1990) · Research in Nursing and Health · doi:10.1002/nur.4770130605 · Cited by 900 · see citing works
Given, C. W., Given, B. A., Stommel, M., Collins, C. E., King, S., & Franklin, S. (1992) · Research in Nursing & Health · doi:10.1002/nur.4770150406 · Cited by 893 · see citing works
Resilience to loss and chronic grief: A prospective study from preloss to 18-months postloss
Bonanno, G. A., Wortman, C. B., Lehman, D. R., Tweed, R. G., Haring, M., Sonnega, J., Carr, D., & Nesse, R. M. (2002) · Journal of Personality and Social Psychology · doi:10.1037/0022-3514.83.5.1150 · Cited by 836 · see citing works
Resilience to loss and chronic grief: a prospective study from preloss to 18-months postloss.
Bonanno, G. A., Wortman, C. B., Lehman, D. R., Tweed, R. G., Haring, M., Sonnega, J., Carr, D., & Nesse, R. M. (2002) · Journal of Personality and Social Psychology · doi:10.1037//0022-3514.83.5.1150 · Cited by 773 · see citing works
Demoralization Syndrome — a Relevant Psychiatric Diagnosis for Palliative Care
Kissane, D. W., Clarke, D. M., & Street, A. F. (2001) · Journal of Palliative Care · doi:10.1177/082585970101700103 · Cited by 624 · see citing works
Self-citationPredictors of complicated grief: a systematic review of empirical studies
Lobb, E. A., Kristjanson, L. J., Aoun, S. M., Monterosso, L., Halkett, G. K. B., & Davies, A. (2010) · Death Studies · doi:10.1080/07481187.2010.496686 · Cited by 611 · cited 1× · see citing works
“Prolonged grief (PG) disorder (PGD), previously called complicated grief, is the most recent term used to describe grief that continues in intensity beyond a time frame in which some form of adjustment is expected and to an extent that is significantly disruptive to a person’s life.(15,16) It has been shown that peopl…”
BackgroundEnd-of-Life Care and the Effects of Bereavement on Family Caregivers of Persons with Dementia
Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., Thompson, L., & Belle, S. H. (2003) · New England Journal of Medicine · doi:10.1056/nejmsa035373 · Cited by 543 · see citing works
Burden and Depression Among Caregivers of Patients With Cancer at the End of Life
Given, B. A., Wyatt, G. K., Given, C. W., Sherwood, P. R., Gift, A. G., DeVoss, D. N., & Rahbar, M. H. (2004) · Oncology nursing forum · doi:10.1188/04.onf.1105-1117 · Cited by 487 · see citing works
Prigerson, H. G., Bierhals, A. J., Kasl, S. V., Reynolds, C. F., Shear, M. K., Newsom, J. T., & Jacobs, S. (1996) · American Journal of Psychiatry · doi:10.1176/ajp.153.11.1484 · Cited by 350 · see citing works
Handbook of bereavement research and practice: Advances in theory and intervention.
(2008) · American Psychological Association eBooks · doi:10.1037/14498-000 · Cited by 347 · see citing works
Barry, L. C., Kasl, S. V., & Prigerson, H. G. (2002) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200207000-00011 · Cited by 343 · see citing works
Depression through the first year after the death of a spouse
Zisook, S., & Shuchter, S. R. (1991) · American Journal of Psychiatry · doi:10.1176/ajp.148.10.1346 · Cited by 307 · see citing works
Thomas, C., Morris, S., & Harman, J. (2002) · Social Science & Medicine · doi:10.1016/s0277-9536(01)00048-x · Cited by 301 · see citing works
A case for inclusion of prolonged grief disorder in DSM-V.
Prigerson, H. G., Vanderwerker, L. C., & Maciejewski, P. K. (2008) · Handbook of bereavement research and practice: Advances in theory and intervention. · doi:10.1037/14498-008 · Cited by 287 · see citing works
Psychiatric Disorders and Mental Health Service Use Among Caregivers of Advanced Cancer Patients
Vanderwerker, L. C., Laff, R. E., Kadan-Lottick, N. S., McColl, S., & Prigerson, H. G. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.01.370 · Cited by 270 · cited 1× · see citing works
“Despite demonstrated psychological burden among family carers, limited information exists on the prevalence of mental health problems.(10) A study of 153 family carers of patients with advanced cancer showed that more than 50% of the carers had depression scores at or near the cutoff for clinical depression.”
BackgroundFamily Focused Grief Therapy: A Randomized, Controlled Trial in Palliative Care and Bereavement
Kissane, D. W., McKenzie, M., Bloch, S., Moskowitz, C., McKenzie, D. P., & O’Neill, I. (2006) · American Journal of Psychiatry · doi:10.1176/appi.ajp.163.7.1208 · Cited by 270 · see citing works
Hebert, R. S., Dang, Q., & Schulz, R. (2006) · Journal of Palliative Medicine · doi:10.1089/jpm.2006.9.683 · Cited by 263 · see citing works
Identifying the concerns of informal carers in palliative care
Payne, S. A., Smith, P. W. F., & Dean, S. (1999) · Palliative Medicine · doi:10.1191/026921699673763725 · Cited by 250 · see citing works
When Caregiving Ends: The Course of Depressive Symptoms After Bereavement
Aneshensel, C. S., Botticello, A., & Yamamoto‐Mitani, N. (2004) · Journal of Health and Social Behavior · doi:10.1177/002214650404500405 · Cited by 215 · see citing works
REPORT ON BEREAVEMENT AND GRIEF RESEARCH
Genevro, J., Marshall, T., & Miller, T. (2004) · Death Studies · doi:10.1080/07481180490461188 · Cited by 189 · see citing works
Psychological and Social Profile of Family Caregivers on Commencement of Palliative Care
Hudson, P., Thomas, K., Trauer, T., Remedios, C., & Clarke, D. M. (2010) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2010.05.006 · Cited by 167 · see citing works
Self-citationHandbook of bereavement research and practice: advances in theory and intervention
(2008) · Choice Reviews Online · doi:10.5860/choice.46-2374 · Cited by 164 · see citing works
Advanced cancer at home: caregiving and bereavement
Ferrario, S. R., Cardillo, V., Vicario, F., Balzarini, E., & Zotti, A. M. (2004) · Palliative Medicine · doi:10.1191/0269216304pm870oa · Cited by 152 · see citing works
A Review of the Measurement of Caregiver and Family Burden in Palliative Care
Kinsella, G., Cooper, B. K., Picton, C., & Murtagh, D. (1998) · Journal of Palliative Care · doi:10.1177/082585979801400206 · Cited by 127 · see citing works
Kissane, D. W., McKenzie, M., McKenzie, D. P., Forbes, A. B., O'Neill, I., & Bloch, S. (2003) · Palliative Medicine · doi:10.1191/0269216303pm808oa · Cited by 124 · see citing works
Kissane, D. W. (2003) · Bereavement Care · doi:10.1080/02682620308657563 · Cited by 123 · see citing works
Gough, K., & Hudson, P. (2008) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2008.04.012 · Cited by 113 · see citing works
Self-citationPalliative Care Nursing: Principles and Evidence for Practice
Bisset, M. (2005) · British Journal of Cancer · doi:10.1038/sj.bjc.6602371 · Cited by 100 · see citing works
Hudson, P., & Hayman-white, K. (2006) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2005.07.010 · Cited by 99 · see citing works
Self-citationA Description of a Psychoeducational Intervention for Family Caregivers of Cancer Patients
Barg, F. K., Pasacreta, J. V., Nuamah, I. F., Robinson, K. D., Angeletti, K. A., Yasko, J. M., & McCorkle, R. C. (1998) · Journal of Family Nursing · doi:10.1177/107484079800400406 · Cited by 95 · see citing works
Grande, G., Farquhar, M. C., Barclay, S. I. G., & Todd, C. J. (2004) · Journal of Palliative Care · doi:10.1177/082585970402000202 · Cited by 92 · see citing works
Bonanno, G. A., Boerner, K., & Wortman, C. B. (2008) · American Psychological Association eBooks · doi:10.1037/14498-014 · Cited by 81 · see citing works
Li, L. (2005) · The Journals of Gerontology Series B · doi:10.1093/geronb/60.4.p190 · Cited by 80 · see citing works
Bereavement of spouse caregivers of cancer patients.
Gilbar, O., & Ben‐Zur, H. (2002) · American Journal of Orthopsychiatry · doi:10.1037/0002-9432.72.3.422 · Cited by 62 · see citing works
Grief Among Family Members of Nursing Home Residents With Advanced Dementia
Givens, J. L., Prigerson, H. G., Kiely, D. K., Shaffer, M. L., & Mitchell, S. L. (2011) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31820dcbe0 · Cited by 62 · see citing works
A literature review on bereavement and bereavement care
Wimpenny, P., Unwin, R., Dempster, P., Grundy, M., Work, F., Brown, A. H., & Wilcock, S. E. (2007) · Bereavement Care · doi:10.1080/02682620708657678 · Cited by 48 · see citing works
Examining the role of trauma, personality, and meaning in young prolonged grievers
Tomarken, A., Roth, A. J. L., Holland, J. C., Ganz, O., Schachter, S. R., Kose, G., RAMIREZ, P. M., Allen, R., & Nelson, C. J. (2011) · Psycho-Oncology · doi:10.1002/pon.1983 · Cited by 40 · see citing works
Family carers in palliative care : a guide for health and social care professionals
Hudson, P., & Payne, S. A. (2009) · Lancaster EPrints (Lancaster University) · Cited by 35 · see citing works
Self-citationDevelopment and Validation of an Instrument for the Assessment of Dependency Among Bereaved Persons
Johnson, J. G., Vanderwerker, L. C., Bornstein, R. F., Zhang, B., & Prigerson, H. G. (2006) · Journal of Psychopathology and Behavioral Assessment · doi:10.1007/s10862-005-9016-3 · Cited by 32 · see citing works
Exploring current service provision for Prolonged Grief Disorder and suggestions for future advances
Smith, L., Kalus, C., Russell, P., & Skinner, T. C. (2009) · Mortality · doi:10.1080/13576270802591251 · Cited by 13 · see citing works
Flagged first, then by citations
3 of the 52 references couldn’t be matched to a known paper.
Research works printed but not linked: 6
- [20]20. Stroebe M, Schut H, Stroebe W. Health out- comes of bereavement. Lancet 2007;370: 1960e1973.
- [31]31. Kelly B, Edwards P, Synott R, et al. Predictors of bereavement outcome for family carers of cancer patients. Psychooncology 1999;8:237e249.
- [41]41. Moos RH, Moos BS. Family Environment Scale manual. Palo Alto, CA: Consulting Psychologists Press, 1981.
- [42]42. Moos RH, Moos BS. The family relationship in- dex. In: Kissane DW, Bloch S, eds. Family focused grief therapy. Buckingham, UK: Open University Press, 2002:202e203.
- [49]49. Kissane DW, Clarke DM, Street AF. Demoralisa- tion syndromeda relevant psychiatric diagnosis for palliative care. J Palliat Care 2001;17:12e21.
- [50]50. Weathers F, Litz B, Herman D, Huska J, Keane T. The PTSD Checklist (PCL): Reliability, validity, and diagnostic utility. Paper presented at the 9th Annual Conference of the ISTSS, San Antonio, TX, 1993.
Cited by
Sorted by citations
Bereavement Support on the Frontline of COVID-19: Recommendations for Hospital Clinicians
Selman, L. E., Chao, D., Sowden, R., Marshall, S., Chamberlain, C., & Koffman, J. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.04.024 · Cited by 261 · see citing works
Palliative care for family caregivers
Alam, S., Hannon, B., & Zimmermann, C. (2020) · Journal of Clinical Oncology · doi:10.1200/jco.19.00018 · Cited by 292 · see citing works
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F., & Guldin, M. (2016) · Clinical Psychology Review · doi:10.1016/j.cpr.2016.01.002 · Cited by 248 · see citing works
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Vedsted, P., Bro, F., & Guldin, M. (2016) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.09.013 · Cited by 225 · see citing works
Tang, S., & Xiang, Z. (2021) · Globalization and Health · doi:10.1186/s12992-021-00669-5 · Cited by 156 · see citing works
Looking beyond the mean in grief trajectories: A prospective, population-based cohort study
Nielsen, M. K., Carlsen, A. H., Neergaard, M. A., Bidstrup, P. E., & Guldin, M.-B. (2019) · Social Science & Medicine · doi:10.1016/j.socscimed.2018.10.007 · Cited by 138 · see citing works
Tsai, W.-I., Prigerson, H. G., Li, C., Chou, W., Kuo, S., & Tang, S. T. (2015) · Palliative Medicine · doi:10.1177/0269216315603261 · Cited by 107 · see citing works
Bereavement support standards and bereavement care pathway for quality palliative care
Hudson, P., Hall, C., Boughey, A., & Roulston, A. (2017) · Palliative & Supportive Care · doi:10.1017/s1478951517000451 · Cited by 108 · see citing works
Self-citationTreml, J., Schmidt, V., Nagl, M., & Kersting, A. (2021) · Social Science & Medicine · doi:10.1016/j.socscimed.2021.114240 · Cited by 100 · see citing works
Maccallum, F., Galatzer‐Levy, I. R., & Bonanno, G. A. (2015) · Journal of Psychiatric Research · doi:10.1016/j.jpsychires.2015.07.017 · Cited by 100 · see citing works
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Vedsted, P., Bro, F., & Guldin, M. (2017) · Psycho-Oncology · doi:10.1002/pon.4416 · Cited by 95 · see citing works
Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F., & Guldin, M. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3120-7 · Cited by 90 · see citing works
Anticipatory grief of spousal and adult children caregivers of people with dementia
Cheung, D. S. K., Ho, K. H. M., Cheung, T. F., Lam, S. C., & Tse, M. M. Y. (2018) · BMC Palliative Care · doi:10.1186/s12904-018-0376-3 · Cited by 75 · see citing works
Yardley, I. E., Yardley, S. J., Williams, H., Carson‐Stevens, A., & Donaldson, L. (2018) · Palliative Medicine · doi:10.1177/0269216318776846 · Cited by 68 · see citing works
Große, J., Treml, J., & Kersting, A. (2017) · Psycho-Oncology · doi:10.1002/pon.4529 · Cited by 68 · see citing works
Breen, L. J., Aoun, S. M., O’Connor, M., Johnson, A. R., & Howting, D. A. (2019) · Palliative Medicine · doi:10.1177/0269216319880766 · Cited by 60 · see citing works
Circunstâncias e consequências do cuidar: caracterização do cuidador familiar em cuidados paliativos
Delalibera, M., Barbosa, A., & Leal, I. M. P. (2018) · Ciência & Saúde Coletiva · doi:10.1590/1413-81232018234.12902016 · Cited by 53 · see citing works
Group singing in bereavement: effects on mental health, self-efficacy, self-esteem and well-being
Fancourt, D. E., Finn, S., Warran, K., & Wiseman, T. (2019) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2018-001642 · Cited by 52 · see citing works
Hasdenteufel, M., & Quintard, B. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-01096-y · Cited by 52 · see citing works
The impact of bereavement support on wellbeing: a comparative study between Australia and Ireland
Aoun, S. M., Keegan, O., Roberts, A., & Breen, L. J. (2020) · Palliative Care and Social Practice · doi:10.1177/2632352420935132 · Cited by 53 · see citing works
Ișıklı, S., Keser, E., Prigerson, H. G., & Maciejewski, P. K. (2020) · Death Studies · doi:10.1080/07481187.2020.1745955 · Cited by 51 · see citing works
Davis, E. L., Deane, F. P., Lyons, G. C., Barclay, G. D., Bourne, J., & Connolly, V. (2020) · Journal of Health Psychology · doi:10.1177/1359105317715091 · Cited by 45 · see citing works
Zordan, R., Bell, M. L., Price, M. A., Remedios, C., Lobb, E. A., Hall, C., & Hudson, P. (2019) · Palliative & Supportive Care · doi:10.1017/s1478951518001013 · Cited by 48 · see citing works
Self-citationCaserta, M. S., Utz, R., Lund, D. A., Supiano, K. P., & Donaldson, G. W. (2017) · OMEGA - Journal of Death and Dying · doi:10.1177/0030222817729610 · Cited by 43 · see citing works
Roberts, K. E., Holland, J. C., Prigerson, H. G., Sweeney, C., Corner, G. W., BREITBART, W. S., & Lichtenthal, W. G. (2016) · Palliative & Supportive Care · doi:10.1017/s1478951516000626 · Cited by 44 · see citing works
Holm, M., Alvariza, A., Fürst, C.-J., Öhlén, J., & Årestedt, K. (2019) · Health and Quality of Life Outcomes · doi:10.1186/s12955-019-1110-4 · Cited by 43 · see citing works
Is Higher Acceptance Associated With Less Anticipatory Grief Among Patients in Palliative Care?
Davis, E. L., Deane, F. P., Lyons, G. C. B., & Barclay, G. D. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2017.03.012 · Cited by 41 · see citing works
Litzelman, K., Kent, E. E., & Rowland, J. H. (2015) · Cancer · doi:10.1002/cncr.29741 · Cited by 39 · see citing works
Psychological impairments burden and spirituality in caregivers of terminally ill cancer patients
Lai, C., Luciani, M., Mario, C. D., Galli, F., Morelli, E., Ginobbi, P., Aceto, P., & Lombardo, L. (2017) · European Journal of Cancer Care · doi:10.1111/ecc.12674 · Cited by 37 · see citing works
Kaiser, J., Nagl, M., Hoffmann, R., Linde, K., & Kersting, A. (2022) · JMIR Mental Health · doi:10.2196/27642 · Cited by 39 · see citing works
Nanni, M. G., Biancosino, B., & Grassi, L. G. (2014) · Journal of Affective Disorders · doi:10.1016/j.jad.2013.12.023 · Cited by 35 · see citing works
Lundorff, M., Johannsen, M., & O'Connor, M. (2021) · Journal of Affective Disorders · doi:10.1016/j.jad.2020.09.116 · Cited by 35 · see citing works
Please Scream Inside Your Heart: Compounded Loss and Coping during the COVID-19 Pandemic
Scheinfeld, E., Gangi, K., Nelson, E. C., & Sinardi, C. C. (2021) · Health Communication · doi:10.1080/10410236.2021.1886413 · Cited by 35 · see citing works
Xu, W., Fu, Z., He, L., Schoebi, D., & Wang, J. (2015) · Psychiatry Research · doi:10.1016/j.psychres.2015.08.035 · Cited by 34 · see citing works
Danışman, I. G., Yalçınay-İnan, M., & Yiğit, İ. (2017) · Journal of Psychosocial Oncology · doi:10.1080/07347332.2017.1340389 · Cited by 32 · see citing works
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis
Kustanti, C. Y., Chu, H., Kang, X. L., Huang, T., Jen, H., Liu, D., Hsiao, S. S., & Chou, K. (2021) · Palliative Medicine · doi:10.1177/02692163211066747 · Cited by 33 · see citing works
Burke, L. A., Neimeyer, R. A., Bottomley, J. S., & Smigelsky, M. A. (2019) · Illness, Crisis & Loss · doi:10.1177/1054137317699580 · Cited by 29 · see citing works
Providing care for a person with late-stage dementia at home: What are carers’ experiences?
Dempsey, L., Dowling, M., Larkin, P. J., & Murphy, K. (2018) · Dementia · doi:10.1177/1471301218774937 · Cited by 29 · see citing works
Holtslander, L. F., Duggleby, W., Teucher, U., Cooper, D. M., Bally, J. M. G., Solar, J., & Steeves, M. (2016) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2016.01.003 · Cited by 29 · see citing works
Lenger, M. K., Neergaard, M. A., Guldin, M., & Nielsen, M. K. (2020) · Palliative Medicine · doi:10.1177/0269216320948007 · Cited by 29 · see citing works
Coelho, A., Silva, C., & Barbosa, A. (2017) · Palliative and Supportive Care · doi:10.1017/s1478951516001000 · Cited by 27 · see citing works
Dionne-Odom, J. N., Lyons, K. D., Akyar, I., & Bakitas, M. A. (2016) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2016.1156607 · Cited by 27 · see citing works
Falzarano, F. B., Prigerson, H. G., & Maciejewski, P. K. (2021) · Cancers · doi:10.3390/cancers13081977 · Cited by 27 · see citing works
Weaver, M. S., Lichtenthal, W. G., Larson, K., & Wiener, L. S. (2018) · Pediatric Blood & Cancer · doi:10.1002/pbc.27489 · Cited by 26 · see citing works
Bereavement support guidelines for caregivers in palliative care: a scoping review
Coelho, A., Albuquerque, S., & Neto, D. D. (2025) · Frontiers in Psychology · doi:10.3389/fpsyg.2025.1541783 · Cited by 26 · see citing works
Mori, M., Yoshida, S., Shiozaki, M., Morita, T., Baba, M., Aoyama, M., Kizawa, Y., Tsuneto, S., Shima, Y., & Miyashita, M. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2017.0267 · Cited by 25 · see citing works
Smith, K. V., Rankin, H., & Ehlers, A. (2020) · European Journal of Psychotraumatology · doi:10.1080/20008198.2020.1789325 · Cited by 27 · see citing works
Shen, H.-S., Chen, S.-Y., Cheung, D. S. T., Wang, S., Lee, J. J., & Lin, C.-C. (2018) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2018.02.007 · Cited by 22 · see citing works
Ghesquiere, A., Bagaajav, A., Metzendorf, M., Bookbinder, M., & Gardner, D. S. (2018) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909118812025 · Cited by 23 · see citing works
Tang, S., & Chow, A. Y. M. (2017) · Psychiatry Research · doi:10.1016/j.psychres.2017.06.001 · Cited by 21 · see citing works
Associations between Predeath and Postdeath Grief in Family Caregivers in Palliative Home Care
Holm, M., Årestedt, K., & Alvariza, A. (2019) · Journal of Palliative Medicine · doi:10.1089/jpm.2019.0026 · Cited by 23 · see citing works
Miller, L. M., Utz, R., Supiano, K. P., Lund, D. A., & Caserta, M. S. (2020) · Social Science & Medicine · doi:10.1016/j.socscimed.2020.113455 · Cited by 22 · see citing works
Jones, K., Methley, A. M., Boyle, G., García, R., & Všetečková, J. (2021) · Illness Crisis & Loss · doi:10.1177/10541373211000175 · Cited by 22 · see citing works
Family caregiver grief and post-loss adjustment: A longitudinal cohort study
Coelho, A., Roberto, M., Barros, L., & Barbosa, A. (2022) · Palliative and Supportive Care · doi:10.1017/s147895152100095x · Cited by 20 · see citing works
Pre-Loss Grief in Caregivers of Older Adults with Dementia with Lewy Bodies
Park, J., & Galvin, J. E. (2021) · Journal of Alzheimer s Disease · doi:10.3233/jad-210616 · Cited by 20 · see citing works
Burns, E., Prigerson, H., Quinn, S., Abernethy, A., & Currow, D. (2018) · Palliative Medicine · doi:10.1177/0269216317717370 · Cited by 16 · see citing works
Heckel, M., Sturm, A., Herbst, F. A., Ostgathe, C., & Stiel, S. (2016) · Journal of Palliative Medicine · doi:10.1089/jpm.2016.0301 · Cited by 19 · see citing works
Utilization of Hospice Bereavement Support by At-Risk Family Members
Ghesquiere, A., Thomas, J., & BRUCE, M. L. (2014) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909114555155 · Cited by 16 · see citing works
Predictors of Complicated Grief in Caregivers of Palliative Care Patients
Pérez, Y. L., Cruzado, J. A., Reverte, M. A. L., & Lallana-Frías, E. (2022) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221133437 · Cited by 15 · see citing works
The Potential Role of Psychosocial Rehabilitation in Palliative Care
Almada, A., Casquinha, P., Cotovio, V., Heitor, M. J., & Caixeiro, A. (2018) · The Journal of the Royal College of Physicians of Edinburgh · doi:10.4997/jrcpe.2018.405 · Cited by 15 · see citing works
Hospice Services for Complicated Grief and Depression: Results from a National Survey
Ghesquiere, A., Aldridge, M. D., Johnson‐Hürzeler, R., Kaplan, D. B., BRUCE, M. L., & Bradley, E. H. (2015) · Journal of the American Geriatrics Society · doi:10.1111/jgs.13656 · Cited by 14 · see citing works
Association between depressive symptoms and changes in sleep condition in the grieving process
Tanimukai, H., Adachi, H., Hirai, K., Matsui, T., Shimizu, M., Miyashita, M., Tsuneto, S., & Shima, Y. (2014) · Supportive Care in Cancer · doi:10.1007/s00520-014-2548-x · Cited by 14 · see citing works
Bo, Y. A. N., Lo, R. S. K., & Chow, A. Y. M. (2020) · Journal of Affective Disorders · doi:10.1016/j.jad.2020.11.096 · Cited by 14 · see citing works
Palliative Care Caregivers’ Grief Mediators
Coelho, A., Delalibera, M., & Barbosa, A. (2015) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909114565660 · Cited by 14 · see citing works
Adaptação e validação brasileira do instrumento de avaliação do luto prolongado – PG-13
Delalibera, M., Delalibera, T. A., Franco, M. H. P., Barbosa, A., & Leal, I. M. P. (2017) · Psicologia - Teoria e Prática · doi:10.5935/1980-6906/psicologia.v19n1p94-106 · Cited by 14 · see citing works
Singer, J., McLean, E., Kahler, J., & Papa, A. (2021) · Aging & Mental Health · doi:10.1080/13607863.2021.1998359 · Cited by 14 · see citing works
Davis, E. L., Deane, F. P., & Lyons, G. C. (2019) · Journal of Health Psychology · doi:10.1177/1359105316679724 · Cited by 12 · see citing works
Evaluation of the performance of instruments to diagnose grief disorders: A diagnostic meta-analysis
Kustanti, C. Y., Chu, H., Kang, X. L., Liu, D., Pien, L., Jen, H., Shen, S.-T. H., Chen, J.-H., & Chou, K. (2021) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2021.103972 · Cited by 13 · see citing works
Garrouste-Orgeas, M., Marché, V., Pujol, N., Michel, D., Evin, A., Fossey-Diaz, V., Perruchio, S., Vanbésien, A., Verlaine, C., Copel, L., et al. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523000111 · Cited by 11 · see citing works
Meer, S., Buckle, P., Miller, R., Murray, L. J., Ziegler, L. E., Piil, K., & Boele, F. W. (2025) · Palliative Medicine · doi:10.1177/02692163251344164 · Cited by 12 · see citing works
“I want to go home”: How location at death influences caregiver well-being in bereavement
Waldrop, D. P., & McGinley, J. M. (2020) · Palliative & Supportive Care · doi:10.1017/s1478951520000176 · Cited by 11 · see citing works
Wu, E. X., Collins, A., Briggs, S., Stajduhar, K., Kalsi, A., & Hilliard, N. (2021) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/10499091211030442 · Cited by 12 · see citing works
Ghesquiere, A., & Bagaajav, A. (2018) · OMEGA - Journal of Death and Dying · doi:10.1177/0030222818754668 · Cited by 11 · see citing works
Garrouste-Orgeas, M., Flahault, C., Poulain, E., Evin, A., Guirimand, F., Fossey-Diaz, V., Perruchio, S., Verlaine, C., Vanbésien, A., Kaczmarek, W., et al. (2019) · BMC Palliative Care · doi:10.1186/s12904-019-0496-4 · Cited by 11 · see citing works
Hwang, Y., Lee, D. H., & Prigerson, H. G. (2022) · Death Studies · doi:10.1080/07481187.2022.2081884 · Cited by 11 · see citing works
Maguire, A., Moriarty, J., O’Reilly, D., & McCann, M. (2016) · Quality of Life Research · doi:10.1007/s11136-016-1440-1 · Cited by 11 · see citing works
Naef, R., Ward, R., Imhof, R. M., & Grande, G. (2016) · Journal of Advanced Nursing · doi:10.1111/jan.13107 · Cited by 9 · see citing works
Grief symptoms and primary care use: a prospective study of family caregivers
Nielsen, M. K., Christensen, K. S., Neergaard, M. A., Bidstrup, P. E., & Guldin, M. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101063 · Cited by 8 · see citing works
Prigerson, H. G., & Maciejewski, P. K. (2013) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2013.10.002 · Cited by 8 · see citing works
Borelli, E., Bigi, S., Potenza, L., Gilioli, F., Efficace, F., Porro, C. A., Luppi, M., & Bandieri, E. (2023) · Frontiers in Oncology · doi:10.3389/fonc.2023.1213906 · Cited by 7 · see citing works
Spicer, L. (2024) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2024.1357390 · Cited by 7 · see citing works
Fourie, I. (2020) · ISIC: The Information Behaviour Conference (ISIC) · doi:10.47989/irisic2003 · Cited by 7 · see citing works
Lundberg, T., Årestedt, K., Forinder, U., Olsson, M., Fürst, C. J., & Alvariza, A. (2021) · Journal of Palliative Care · doi:10.1177/08258597211044585 · Cited by 7 · see citing works
Uchida, T., Satake, N., Takayama, C., Uno, A., Nakaho, T., Inoue, A., & Saito, H. (2022) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2022.2093315 · Cited by 7 · see citing works
Hanauer, C., Telaar, B., Al-Dawaf, N., Rosner, R., & Doering, B. K. (2023) · European Journal of Psychotraumatology · doi:10.1080/20008066.2023.2183006 · Cited by 7 · see citing works
Imaz, J. A. G., & Reyes, C. M. R. (2017) · Revista Colombiana de Psiquiatría · doi:10.1016/j.rcp.2017.05.008 · Cited by 7 · see citing works
Psychosocial Issues and Bereavement
Strada, E. A. (2019) · Primary Care Clinics in Office Practice · doi:10.1016/j.pop.2019.05.004 · Cited by 7 · see citing works
Langner, L. A., & Furstenberg, F. F. (2019) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbz117 · Cited by 7 · see citing works
Hiratsuka, R., Aoyama, M., Masukawa, K., Shimizu, Y., Hamano, J., Sakaguchi, Y., Watanabe, M., Morita, T., Kizawa, Y., Tsuneto, S., et al. (2021) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2021.06.006 · Cited by 7 · see citing works
Nielsen, M. K., Christensen, K. S., Neergaard, M. A., Bidstrup, P. E., & Guldin, M. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1619730 · Cited by 7 · see citing works
Imaz, J. A. G., & Reyes, C. M. R. (2019) · Revista Colombiana de Psiquiatría (English ed ) · doi:10.1016/j.rcpeng.2017.05.017 · Cited by 6 · see citing works
Circunstâncias e consequências do cuidar: estudo prospetivo em cuidados paliativos
Delalibera, M., Coelho, A., Presa, J., Barbosa, A., & Leal, I. M. P. (2018) · Ciência & Saúde Coletiva · doi:10.1590/1413-81232018237.09512016 · Cited by 6 · see citing works
Research into services and needs for people experiencing complicated grief: Final report
Thompson, C., Williams, K., Masso, M. R., Morris, D., Kobel, C., Duncan, C., & Samsa, P. (2017) · Research Online (University of Wollongong) · Cited by 6 · see citing works
Experiencing Missing Contact With Professionals and Long Term Bereavement Outcome
Ramstad, E. S., Thegen, L. S., Guldin, M., Neergaard, M. A., & Nielsen, M. K. (2022) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2022.09.006 · Cited by 5 · see citing works
Bereavement Support Services in a National Sample of Hospices: A Content Analysis
Becker, T., & Cagle, J. G. (2021) · OMEGA - Journal of Death and Dying · doi:10.1177/0030222821997602 · Cited by 5 · see citing works
Dinther, K. V., & Javanparast, S. (2024) · Palliative Care and Social Practice · doi:10.1177/26323524241255386 · Cited by 5 · see citing works
Psychosocial Interventions for End‐of‐Life Care: An Invited Commentary
Ftanou, M., Pascoe, M. C., & Ellen, S. (2017) · Australian Psychologist · doi:10.1111/ap.12305 · Cited by 5 · see citing works
Lundberg, T., Forinder, U., Olsson, M., Fürst, C. J., Årestedt, K., & Alvariza, A. (2020) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2020.1826386 · Cited by 5 · see citing works
Langenberg, S. M. C. H., Peters, M. E. W. J., van der Graaf, W. T. A., Wymenga, A. N. M., Prins, J. B., & van Herpen, C. M. L. (2015) · Palliative & Supportive Care · doi:10.1017/s1478951515000887 · Cited by 5 · see citing works
Validity and Reliability Study of the Prolonged Grief Disorder- Caregiver Turkish Form
Önal, G., Keser, E., & Tüzün, Z. (2023) · Turkish Journal of Psychiatry · doi:10.5080/u27035 · Cited by 4 · see citing works
- Authors
- Thomas, K., Hudson, P., Trauer, T., Remedios, C., & Clarke, D.
- Affiliations
- The University of Melbourne (AU)
- Queen's University Belfast (GB)
- Monash University (AU)
- Venue
- Journal of Pain and Symptom Management
- Publisher
- Elsevier BV
- Published
- 2014-03
- Volume
- 47
- Issue
- 3
- Pages
- 531-541
- ISSN
- 0885-3924 (ISSN-L)
- OpenAlex
- W2086868640
- Semantic Scholar
- 24cbf4cef040c213a5cd92796ef59866cc82dd53
- Cited by
- 147
- References
- 52
- Citations by year
- 2026: 7 · 2025: 13 · 2024: 5 · 2023: 8 · 2022: 14 · 2021: 18 · 2020: 15 · 2019: 13 · 2018: 12 · 2017: 19 · 2016: 11 · 2015: 7 · 2014: 4 · 2013: 1
- FWCI
- 8.52
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Pain and Symptom Management (publishedVersion)
- PubMed (publishedVersion)
- Research Portal (Queen's University Belfast) (submittedVersion)
- Funders
- Beyondblue: The Depression Initiative
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- prolonged grief disorder, bereavement, family caregivers, palliative care, cancer patients, risk factors, psychological distress, marital relationships, family functioning, optimism, screening, psychosocial support
- MeSH terms
- Bereavement, Family, Female, Grief, Humans, Longitudinal Studies, Male, Neoplasms, Palliative Care, Personality, Psychiatric Status Rating Scales, Risk Factors, Socioeconomic Factors, Time Factors, Caregivers, Spouses
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