The DOI matches its Crossref record; 24 of the 25 references it cites were found in a registry or an index.
Attitudes of Emergency Department Patients and Visitors Regarding Emergency Exception from Informed Consent in Resuscitation Research, Community Consultation, and Public Notification
Abstract
OBJECTIVE: To assess public views on emergency exception to informed consent in resuscitation research, public awareness of such studies, and effective methods of community consultation and public notification. METHODS: A face-to-face survey was conducted in two academic Level I trauma center emergency departments (EDs) in Oregon and Minnesota from June through August 2001. RESULTS: Five hundred thirty people completed the survey, with an 82% response rate. The mean age of the respondents was 41 years (range 18-95) with a standard deviation of 14.5; 46% were female and 64% white. Most (88%) believed that research subjects should be informed prior to being enrolled, while 49% believed enrolling patients without prior consent in an emergency situation would be acceptable and 70% (369) would not object to be entered into such a study without providing prospective informed consent. Informing and consulting the community as a substitute for patient consent in emergency research was thought to be reasonable by 45% of the respondents. Most respondents would prefer to be informed about a study using emergency exception from informed consent by radio and television media (42%). Two hundred fifty-eight respondents (49%) stated they would attend a community meeting; the less educated were more likely to attend than those with college degrees (OR = 0.53; 95% CI = 0.33 to 0.85, p = 0.008). However, only 5% knew of ongoing studies in their community using emergency exception from informed…
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“Registry data can be analysed to (1) study regional variation, temporal trends, and predictors of patient outcomes; (2) compare propensity score matched patient subgroups receiving different treatments; and (3) gain insights into the implementation of published evidence and guidelines in routine clinical practice. 316,356,358 361”
From European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions (2021) · cites this paper as [358]
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European Resuscitation Council Guidelines 2021: Ethics of resuscitation and end of life decisions
Mentzelopoulos, S. D., Couper, K., Voorde, P. V. D., Druwé, P., Blom, M., Perkins, G. D., Lulic, I., Djakow, J., Raffay, V., Lilja, G., et al. (2021) · Resuscitation · doi:10.1016/j.resuscitation.2021.02.017 · Cited by 246
Biros, M. H. (2003) · Annals of Emergency Medicine · doi:10.1067/s0196-0644(03)00490-6 · Cited by 91
Mosesso, V. N., Brown, L. H., Greene, H. L., Schmidt, T. A., Aufderheide, T. P., Sayre, M. R., Stephens, S. W., Travers, A. H., Craven, R. A., & Weisfeldt, M. L. (2004) · Resuscitation · doi:10.1016/j.resuscitation.2003.11.016 · Cited by 81
Deferred proxy consent in emergency critical care research: Ethically valid and practically feasible
Jansen, T. C., Kompanje, E. J. O., & Bakker, J. (2008) · Critical Care Medicine · doi:10.1097/ccm.0b013e3181920851 · Cited by 74
Woolfall, K., Young, B., Frith, L., Appleton, R. E., Iyer, A., Messahel, S., Hickey, H., & Gamble, C. L. (2014) · BMJ Open · doi:10.1136/bmjopen-2014-005045 · Cited by 70
Metadata
- Authors
- McClure, K. B.
- Affiliations
- Oregon Health & Science University (US)
- Corresponding author
- McClure, K. B.
- Venue
- Academic Emergency Medicine
- Publisher
- Wiley
- Published
- 2003-04-01
- Volume
- 10
- Issue
- 4
- Pages
- 352-359
- ISSN
- 1069-6563 (ISSN-L)
- OpenAlex
- W1968875862
- Cited by
- 110
- References
- 25
- Citations by year
- 2026: 3 · 2024: 3 · 2022: 2 · 2021: 5 · 2020: 4 · 2019: 1 · 2018: 3 · 2017: 3 · 2015: 6 · 2014: 6 · 2013: 9 · 2012: 3
- FWCI
- 7.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Academic Emergency Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Health Sciences › Nursing › Issues, ethics and legal aspects › Biomedical Ethics and Regulation
- Keywords
- resuscitation research, public attitudes, community consultation, public notification, informed consent, community meetings, media as information source
- MeSH terms
- Adolescent, Adult, Aged, Aged, 80 and over, Attitude to Health, Emergency Service, Hospital, Female, Humans, Informed Consent, Male, Middle Aged, Minnesota, Oregon, Patients, Visitors to Patients, Cardiopulmonary Resuscitation, Biomedical Research
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