Old age and people on the autism spectrum: a focus group perspective
Abstract
Until recently, the focus of many within the ‘autism service industry’ has been on children and young adults who are on the autism spectrum where ‘service transition’ usually refers specifically to the transition from children to adult service provision. This article explores ‘service transition’ from the opposite end of the age scale, that of old age, and incorporates the views of older adults who are on the autism spectrum. In order to design and provide a service that is ‘fit for purpose’, training of health professionals and consulting with people on the autism spectrum is crucial.
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Some healthcare providers may lack understanding, knowledge, and awareness about how to support people with autism and intellectual disabilities, including how to make appropriate reasonable adjustments.
“Some healthcare providers may lack understanding, knowledge, and awareness about to how to support people with autism and intellectual disabilities,28–30 including how to make appropriate reasonable adjustments.29”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [30]
Cites
Wing, L., & Gould, J. (1979) · Journal of Autism and Developmental Disorders · doi:10.1007/bf01531288 · Cited by 2,587 · cited 3× · see citing works
“While the key ‘triad of autistic impairments’ (Wing and Gould 1979) may have remained relatively stable and unchanged over the decades, the diagnostic criteria used by the various diagnostic tools may have changed.”
BackgroundInfluentialAutism Spectrum Disorders in Older Adults: Toward Defining a Research Agenda
Piven, J., Rabins, P. V., & on behalf of the Autism‐in‐Older Adults Working Group (2011) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2011.03632.x · Cited by 163 · see citing works
Into the Unknown: Aging with Autism Spectrum Disorders
Perkins, E. A., & Berkman, K. A. (2012) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-117.6.478 · Cited by 100 · see citing works
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Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
Nylander, L., Axmon, A., Björne, P., Ahlström, G., & Gillberg, C. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3567-0 · Cited by 43 · see citing works
“Thus, very little is known about ASD in people older than around 50 years (Happé and Charlton 2011; Perkins and Berkman 2012; Barber 2015; Lai and Baron-Cohen 2015; Bennett 2016) and only recently has work been commenced in this area.”
Aging in Autism Spectrum Disorder
Wise, E. A. (2019) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2019.12.001 · Cited by 43 · see citing works
Transtorno do espectro autista e envelhecimento: uma revisão narrativa
Lin, J., Gaiato, M. H. B., Zotesso, M. C., Silveira, R. D. R., & Ferreira, L. (2023) · Revista Remecs - Revista Multidisciplinar de Estudos Científicos em Saúde · doi:10.24281/rremecs2023.8.14.3-11 · Cited by 5 · see citing works
Pessoas idosas com Transtorno do Espectro Autista: um saber-fazer necessário
Oliveira, W. L., Cupertino, E., & da Silva, T. B. L. (2023) · Revista Kairós Gerontologia · doi:10.61583/kairs.v26i33.22 · Cited by 1 · see citing works
Ferrie, J., & Hafetz, J. S. (2026) · Review Journal of Autism and Developmental Disorders · doi:10.1007/s40489-026-00548-y
Nicholas, D. B., Nelson, H., Shafai, F., Edelson, S. M., Bal, V. H., Lawson, W. B., Bauman, M. L., Hendren, R. L., & Trollor, J. N. (2026) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-026-07343-y
- Authors
- Barber, C.
- Affiliations
- Birmingham City University (GB)
- Corresponding author
- Barber, Chris
- Venue
- British Journal of Nursing
- Publisher
- Mark Allen Group
- Published
- 2015-11-26
- Volume
- 24
- Issue
- 21
- Pages
- 1054-1057
- ISSN
- 0966-0461 (ISSN-L)
- 2052-2819
- OpenAlex
- W2188460674
- Cited by
- 7
- References
- 3
- Citations by year
- 2026: 2 · 2023: 2 · 2020: 1 · 2019: 1 · 2018: 1
- FWCI
- 0.20
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- British Journal of Nursing (publishedVersion)
- PubMed (publishedVersion)
- BCU Open Access Repository (Birmingham City University) (submittedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Keywords
- autism spectrum disorder, older adults, aging, service transition, service design, health professions education, lived experience
- MeSH terms
- Autism Spectrum Disorder, Aged, United Kingdom, Health Services for the Aged, Humans, Focus Groups, Needs Assessment
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