Perceptions of Health and Healthcare of People With Intellectual and Developmental Disabilities in Medicaid Managed Care
Open accessAbstract
This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured interviews were conducted with 23 participants. Findings indicate that participants generally expressed being in good health and defined good health as (a) absence of pain, disease, and symptoms; (b) adherence to or not requiring treatment; (c) physical self-care; (d) mental or spiritual self-care; and (e) ability to perform the activities one wants to do. Participants conceptualized healthcare as (a) ensuring needs are met through access to services, (b) obtaining quality services, (c) navigating the healthcare system successfully, and (d) receiving humanizing healthcare. This study has implications for improving healthcare and communications between people with IDD and healthcare providers.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
A warm, friendly, and caring attitude from healthcare providers enables service users to access healthcare facilities and discuss sensitive health concerns.
“A warm, friendly, and caring attitude from healthcare providers enables service users to access healthcare facilities and discuss sensitive health concerns.22,34–37”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [37]
Cites
A General Inductive Approach for Analyzing Qualitative Evaluation Data
Thomas, D. R. (2006) · American Journal of Evaluation · doi:10.1177/1098214005283748 · Cited by 10,858 · see citing works
The disability paradox: high quality of life against all odds
Albrecht, G. L., & DEVLIEGER, P. J. (1999) · Social Science & Medicine · doi:10.1016/s0277-9536(98)00411-0 · Cited by 2,073 · see citing works
The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities
Office on Disability (2005) · Cited by 308 · see citing works
Anderson, L., Humphries, K., McDermott, S. W., Marks, B., Sisirak, J., & Larson, S. A. (2013) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-51.5.385 · Cited by 207 · see citing works
Social Model Theory: The story so far
Tregaskis, C. (2002) · Disability & Society · doi:10.1080/09687590220140377 · Cited by 186 · see citing works
Jurkowski, J. M. (2008) · Intellectual and developmental disabilities · doi:10.1352/0047-6765(2008)46[1:papart]2.0.co;2 · Cited by 164 · see citing works
Rimmer, J. H., & Braddock, D. L. (2002) · American Journal of Health Promotion · doi:10.4278/0890-1171-16.4.220 · Cited by 162 · see citing works
THE HEALTH STATUS AND NEEDS OF INDIVIDUALS WITH MENTAL RETARDATION
Horwitz, S. M., Kerker, B. D., & Owens, P. L. (2000) · Cited by 151 · see citing works
Dalton, A. J., & McVilly, K. (2004) · Journal of Policy and Practice in Intellectual Disabilities · doi:10.1111/j.1741-1130.2004.04010.x · Cited by 105 · see citing works
New voices : self-advocacy by people with disabilities
Dybwad, G., & Bersani, H. A. (1996) · Brookline Books · Cited by 102 · see citing works
Parish, S. L., & Saville, A. W. (2006) · Mental Retardation · doi:10.1352/0047-6765(2006)44[249:wwclli]2.0.co;2 · Cited by 89 · see citing works
Friedman, C., Arnold, C. K., Owen, A., & Sandman, L. (2014) · Sexuality and Disability · doi:10.1007/s11195-014-9377-1 · Cited by 70 · see citing works
Heller, T., Gibbons, H. M., & Fisher, D. (2015) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-53.5.329 · Cited by 66 · see citing works
Self-citationMarks, B., & Heller, T. (2003) · Nursing Clinics of North America · doi:10.1016/s0029-6465(02)00049-x · Cited by 54 · see citing works
Self-citationThe Uptake of Secondary Prevention by Adults with Intellectual and Developmental Disabilities
Ouellette-Kuntz, H. M. J., Cobigo, V., Balogh, R. S., Wilton, A. S., & Lunsky, Y. (2014) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.12133 · Cited by 48 · see citing works
Perspectives on Health Care of Adults With Developmental Disabilities
Parish, S. L., Moss, K. E., & Richman, E. L. (2008) · Intellectual and developmental disabilities · doi:10.1352/2008.46:411-426 · Cited by 46 · see citing works
Krahn, G. L., & Drum, C. E. (2007) · Mental Retardation and Developmental Disabilities Research Reviews · doi:10.1002/mrdd.20149 · Cited by 42 · see citing works
New Voices in Women's Health: Perceptions of Women With Intellectual and Developmental Disabilities
Brown, A. A., & Gill, C. (2009) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-47.5.337 · Cited by 36 · see citing works
The politics of self-advocacy and people with learning difficulties
Armstrong, D. (2002) · Policy & Politics · doi:10.1332/030557302760094702 · Cited by 26 · see citing works
Medicaid managed care: Issues for beneficiaries with disabilities
Hall, J. P., Kurth, N. K., Chapman, S. L. C., et al. (2014) · Disability and health journal · doi:10.1016/j.dhjo.2014.08.010 · Cited by 18 · see citing works
Abbeduto (2004) · doi:10.1352/0895-8017(2004)109
Flagged first, then by citations
Cited by
Sorted by citations
Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
- Authors
- Gibbons, H. M., Owen, R., & Heller, T.
- Affiliations
- University of Illinois Chicago (US)
- Corresponding author
- Gibbons, Hailee M.
- ORCID
- Owen, Randall
- Venue
- Intellectual and Developmental Disabilities
- Publisher
- Informa UK Limited
- Published
- 2016-04-01
- Volume
- 54
- Issue
- 2
- Pages
- 94-105
- ISSN
- 1934-9491 (ISSN-L)
- 1934-9556
- OpenAlex
- W2325854604
- Cited by
- 21
- References
- 21
- Citations by year
- 2025: 1 · 2024: 3 · 2023: 5 · 2021: 2 · 2020: 4 · 2019: 2 · 2018: 3 · 2017: 1
- FWCI
- 1.99
- Type
- journal article
- Language
- en
- Open access
- green
- figshare.com
- Licence
- cc-by
- Locations
- Intellectual and developmental disabilities (publishedVersion)
- PubMed (publishedVersion)
- Figshare (submittedVersion, cc-by)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- Medicaid managed care, health perception, health care access, quality of care, health system navigation, patient-provider communication, self-care
- MeSH terms
- Adult, Developmental Disabilities, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Health Knowledge, Attitudes, Practice, Male, Managed Care Programs, Medicaid, Intellectual Disability, Middle Aged, Perception, Surveys and Questionnaires, United States
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
