A costs analysis of dental treatment for ectodermal dysplasia
Abstract
Overview Dental treatment modalities for ectodermal dysplasia (ED) vary markedly depending on the clinical manifestations, but to date there have been no studies exploring the potential economic impact of ED. On the basis of anecdotal and clinical reports, the authors postulate that costs of dental treatment for this condition can have a substantial financial impact on patients and their families. Objective The purpose of the authors' pilot study was to develop an economic model for various treatment modalities for ED with severe hypodontia. Methods The authors first used a comprehensive review of the literature and expert consensus to establish a treatment modalities model for ED. Next, they completed chart reviews to validate the model with sample treatment and costs information. Using these data, they then constructed a model of treatment options and associated costs. Results The sample included 24 patients with ED who had severe hypodontia. Forty-two percent were female; patients' ages ranged from 4 years, 11 months to 31 years, 1 month. Forty-two percent had dental insurance coverage, while more than one-half paid for services out of pocket. An estimated 84 percent had undergone prosthodontic treatment, 37 percent orthodontic treatment and 19 percent implant surgery. Depending on the age of the patient and types of dental treatment, there was a broad variation in costs. This ranged from $2,038 to $3,298 for those who had received prosthodontic treatment only; it ranged f…
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The economic aspects of the dental management of GDDs and the expected costs for those affected have been addressed in only a few studies.
“Moreover, the economic aspects of the dental management of GDDs and the expected costs for those affected have been addressed in only a few studies (Murdock et al. 2005; Incici et al. 2009; Pousette Lundgren et al. 2021).”
From Dental Management of Genetic Dental Disorders: A Critical Review (2025) · cites this paper as Murdock et al. 2005
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(2010) · The Journal of Prosthetic Dentistry · doi:10.1016/s0022-3913(10)60099-6 · Cited by 75 · see citing works
Molecular Pathway-Based Classification of Ectodermal Dysplasias: First Five-Yearly Update
Peschel, N., Wright, J. T., Koster, M. I., Clarke, A. J., Tadini, G., Fete, M., Hadj-Rabia, S., Sybert, V. P., Norderyd, J., Maier-Wohlfart, S., et al. (2022) · Genes · doi:10.3390/genes13122327 · Cited by 60 · see citing works
“In some countries, a correct diagnosis can also mitigate the enormous socio-economic burden associated with an ED through, for example, adequate dental insurance [10].”
BackgroundSelf-citationImplant Treatment in Grafted and Native Bone in Patients Affected by Ectodermal Dysplasia
Grecchi, F., Pagliani, L., Mancini, G. E., Zollino, I., & Carinci, F. (2010) · Journal of Craniofacial Surgery · doi:10.1097/scs.0b013e3181f40378 · Cited by 18 · see citing works
Implant-supported Oral Rehabilitation in Child with Ectodermal Dysplasia — 4-year Follow-up
Cezária Triches, T., Ximenes, M., Oliveira de Souza, J. G., Rodrigues Lopes Pereira Neto, A., Cardoso, A. C., & Bolan, M. (2017) · The Bulletin of Tokyo Dental College · doi:10.2209/tdcpublication.2016-0012 · Cited by 15 · see citing works
Dental Management of Genetic Dental Disorders: A Critical Review
Dujic, H., Bücher, K., Schüler, I. M., Schmidt, P., Hertel, S., Timpel, J., Jablonski-Momeni, A., Schilke, R., Kapferer-Seebacher, I., Zschocke, J., et al. (2025) · Journal of Dental Research · doi:10.1177/00220345241305330 · Cited by 8 · see citing works
“Moreover, the economic aspects of the dental management of GDDs and the expected costs for those affected have been addressed in only a few studies (Murdock et al. 2005; Incici et al. 2009; Pousette Lundgren et al. 2021).”
Schmid, J. Q., Stamm, T., Middelberg, C., Oelerich, O., Hanisch, M., & Hohoff, A. (2023) · Informationen aus Orthodontie & Kieferorthopädie · doi:10.1055/a-2088-9896 · Cited by 1 · see citing works
- Authors
- MURDOCK, S., LEE, J. Y., GUCKES, A., & WRIGHT, J. T.
- Affiliations
- University of North Carolina at Chapel Hill (US)
- Corresponding author
- LEE, JESSICA Y.
- ORCID
- WRIGHT, J. TIMOTHY
- Venue
- The Journal of the American Dental Association
- Publisher
- Elsevier BV
- Published
- 2005-09
- Volume
- 136
- Issue
- 9
- Pages
- 1273-1276
- ISSN
- 0002-8177 (ISSN-L)
- OpenAlex
- W2017706567
- Cited by
- 57
- References
- 0
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 2 · 2023: 2 · 2022: 4 · 2021: 3 · 2020: 1 · 2019: 3 · 2018: 2 · 2017: 3 · 2016: 3 · 2015: 2 · 2014: 5 · 2013: 1 · 2012: 5
- FWCI
- 0.75
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Journal of the American Dental Association (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute of Dental and Craniofacial Research (1 K22 DE 14743-01)
- Topics
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Molecular Biology › dental development and anomalies
- Health Sciences › Dentistry › Periodontics › Dental Health and Care Utilization
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Keywords
- ectodermal dysplasia, dental care costs, tooth agenesis, prosthodontic treatment, orthodontic treatment, dental implants, economic burden, dental insurance coverage, out-of-pocket costs
- MeSH terms
- Adolescent, Adult, Anodontia, Child, Child, Preschool, Cost-Benefit Analysis, Costs and Cost Analysis, Dental Care, Ectodermal Dysplasia, Female, Financing, Personal, Humans, Insurance, Dental, Male, Orthodontics, Corrective, Patient Care Planning, Pilot Projects, Dental Implants, Dental Prosthesis, Models, Economic
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