CoChat
Sign Up
Cited by 5Adolescent and Pediatric HealthcareGenetic and Clinical Aspects of Sex Determination and Chromosomal AbnormalitiesSexual Differentiation and Disorders

Evaluating transition in Turner syndrome in the west of Scotland

Zahra, Baryab, Lyall, Helen, Sastry, Aparna, Freel, E. Marie, Dominiczak, Anna F., Mason, Avril·2021·Journal of Pediatric Endocrinology and Metabolism
DOI 10.1515/jpem-2020-0242
Open this paper in CoChat — free account

Abstract

BACKGROUND: A Turner Syndrome (TS) Transition clinic, Royal Hospital for Children Glasgow (RHCG), with paediatric and adult endocrinology/gynaecology teams was established in 1998 with an aim of improving health outcomes in TS throughout the lifespan. OBJECTIVE: To evaluate the success of our TS transition service, focussing on evaluating established follow-up after transfer to adult services. METHODS: Girls attending the TS Transition clinic at Royal Hospital for Children Glasgow, 1998-2017, were identified. Attendance data were obtained from patient records and an electronic appointment system. We assessed good and late early attendance in our cohort of TS patients as well as established endocrine follow-up, defined as those still attending adult endocrine services 3 years after transfer. Success of TS transition was determined by the proportion of girls in established endocrine follow-up. RESULTS: Forty-six girls (median age 18.3 yrs) were identified. Thirty-six, 36/46 girls transferred prior to 2015 and 26 of those (72%) were in established follow-up at 3 years, 22/36 girls had met with an Adult specialist prior to transfer and 14/36 had not met with an adult specialist prior to transfer. Twenty-one (80.7%) were good early attenders (p = 0.10). In the early attenders' cohort, there was no significant difference between those that had and had not met an adult specialist prior to transfer. CONCLUSION: A significant proportion of girls with TS are currently lost to endocrine follow-up following transfer to adult clinics. Early attendance at an adult clinic appears to predict established long-term follow-up. Strategies to improve early attendance and long-term endocrine follow-up are needed to ensure lifelong health needs are addressed.

Integrity signals

Registry

Crossref · 10.1515/jpem-2020-0242

Cites

18 of 18 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

  • In one study, there was no impact on the consistency of follow up after meeting the specific adult provider with whom individuals with TS would eventually establish adult care.

    “In one study, there was no impact on the consistency of follow up after meeting the specific adult provider with whom individuals with TS would eventually establish adult care.551”

    From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [551]

Cites

Flagged first, then by citations

Cited by

Sorted by citations

Related

Authors
Zahra, B., Lyall, H., Sastry, A., Freel, E. M., Dominiczak, A. F., & Mason, A.
Affiliations
  • University of Glasgow (GB)
  • Glasgow Royal Infirmary (GB)
  • Queen Elizabeth University Hospital (GB)
  • Royal Hospital for Children (GB)
ORCID
Venue
Journal of Pediatric Endocrinology and Metabolism
Publisher
Walter de Gruyter GmbH
Published
2021-02-26
Volume
34
Issue
4
Pages
473-477
ISSN
  • 0334-018X (ISSN-L)
  • 2191-0251
DOI
10.1515/jpem-2020-0242
OpenAlex
W3135661173
Cited by
5
References
18
Citations by year
2025: 1 · 2024: 3 · 2023: 1
FWCI
1.24
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Pediatric Endocrinology and Metabolism (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Genetic and Clinical Aspects of Sex Determination and Chromosomal Abnormalities
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Molecular Biology › Sexual Differentiation and Disorders
Keywords
Turner syndrome, transition to adult care, endocrine follow-up, clinic attendance, loss to follow-up, long-term health effects, adolescent girls
MeSH terms
Endocrinologists, Adolescent, Delivery of Health Care, Female, Follow-Up Studies, Humans, Patient Compliance, Scotland, Turner Syndrome, Cohort Studies, Databases, Factual, Young Adult, Transition to Adult Care

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review