The Medical Home and Health Care Transition for Youth With Autism
Abstract
BACKGROUND: Our objective in this study was to describe the association between the receipt of health care transition services (HCTS) and having a medical home in youth with autism spectrum disorder (ASD). Youth with ASD receive HCTS less often than other youth with special health care needs but are in particular need of continuous, comprehensive health care. METHODS: We used the National Survey of Children with Special Health Care Needs to describe the receipt of HCTS in youth with ASD and its association with presence of a medical home. Descriptive statistics are presented, and logistic regression is used to assess the association between medical home and HCTS. RESULTS: Twenty-one percent of youth with ASD met the criteria for receiving HCTS. Youth with ASD and a medical home were almost 3 times as likely to receive HCTS as youth without a medical home, and youth who received family-centered care and have adequate care coordination within the medical home were more than twice as likely to receive HCTS as those who did not. CONCLUSIONS: Youth with ASD are not receiving HCTS at the same rate as their peers. Increasing provider awareness of autism, the components of a medical home, and of the importance of HCTS could greatly help increase the percentage of youth who receive effective HCTS.
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Healthcare transition services have been difficult to scale; one study found that only one-fifth of autistic youth received healthcare transition services.
“However, HCT services have been dif fi cult to scale -one study found that only one- fi fth of autistic youth received HCT services -and many youths with ASD face challenges accessing healthcare.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [74]
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- Authors
- Rast, J. E., Shattuck, P. T., Roux, A. M., Anderson, K. A., & Kuo, A.
- Affiliations
- Drexel University (US)
- University of California, Los Angeles (US)
- Corresponding author
- Rast, Jessica E.
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 2018-04-01
- Volume
- 141
- Issue
- Supplement_4
- Pages
- S328-S334
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W2796049128
- Cited by
- 35
- References
- 28
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 4 · 2023: 5 · 2022: 4 · 2021: 3 · 2020: 8 · 2019: 5 · 2018: 3
- FWCI
- 8.38
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- PEDIATRICS (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Keywords
- autism spectrum disorder, patient-centered medical home, care transitions, transition services, youth with special health care needs, family-centered care, care coordination
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Child, Female, Humans, Male, Patient Transfer, Patient-Centered Care, Health Care Surveys, Transition to Adult Care
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