Cited by 105Family and Disability Support ResearchAdolescent and Pediatric HealthcareFamily Support in Illness

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A National Mental Health Profile of Parents of Children With Medical Complexity

Bayer, Nathaniel D., Wang, Hongyue, Yu, Justin A., Kuo, Dennis Z., Halterman, Jill S., Li, Yue·2021·PEDIATRICS

DOI 10.1542/peds.2020-023358

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Abstract

OBJECTIVES The mental health of parents of children with medical complexity (CMC) is poorly understood, yet it drives child and family health outcomes. For parents of CMC, compared with parents of noncomplex children with special health care needs (CSHCN) and children without special health care needs (non-CSHCN), we examined self-reported mental health, knowledge of community sources for help, and emotional support. METHODS Using parent-reported data from the combined 2016–2017 National Survey of Children’s Health, we divided the population into 3 groups: households with CMC, noncomplex CSHCN, and non-CSHCN. We compared these groups regarding the following: (1) parents’ risks for poor or fair mental health and knowledge of where to go for community help and (2) parent-reported sources of emotional support. RESULTS Of 63 955 588 parent-child dyads (weighted from a sample of 65 204), parents of CMC had greater adjusted odds of reporting poor or fair mental health compared with parents of noncomplex CSHCN (adjusted odds ratio [aOR] 2.0; 95% confidence interval [CI] 1.1–3.8) and non-CSHCN (aOR 4.6; 95% CI 2.5–8.6). Parents of CMC had greater odds of not knowing where to find community help compared with parents of noncomplex CSHCN (aOR 2.1; 95% CI 1.4–3.1) and non-CSHCN (aOR 2.9; 95% CI 2.0–4.3). However, parents of CMC were most likely to report receiving emotional support from health care providers and advocacy groups (P < .001). CONCLUSIONS Among all parents, those with CMC were at the highest risk to report suboptimal mental health. They more often reported that they do not know where to find community help, but they did say that they receive emotional support from health care providers and advocacy groups. Future researchers should identify ways to directly support the emotional wellness of parents of CMC.

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Authors: Bayer, N. D., Wang, H., Yu, J. A., Kuo, D. Z., Halterman, J. S., & Li, Y.
Affiliations: University of Rochester Medicine (US)
University of Pittsburgh (US)
University at Buffalo, State University of New York (US)
University of Rochester (US)
ORCID: Bayer, Nathaniel D.
Wang, Hongyue
Yu, Justin A.
Kuo, Dennis Z.
Li, Yue
Venue: PEDIATRICS
Publisher: American Academy of Pediatrics (AAP)
Published: 2021-08-01
Volume: 148
Issue: 2
ISSN: 0031-4005 (ISSN-L)
1098-4275
DOI: 10.1542/peds.2020-023358
OpenAlex: W3175497014
Cited by: 103
References: 43
Citations by year: 2026: 15 · 2025: 30 · 2024: 24 · 2023: 20 · 2022: 12 · 2021: 2
FWCI: 9.88
Type: journal article
Language: en
Open access: closed
Locations: PEDIATRICS (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
Keywords: parental mental health, children with special health care needs, emotional support, healthcare provider support, advocacy organizations, National Survey of Children's Health
MeSH terms: Adolescent, Child, Child, Preschool, Cross-Sectional Studies, Family Health, Female, Humans, Infant, Male, Mental Health, Parents, United States, Self Report

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A National Mental Health Profile of Parents of Children With Medical Complexity

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