Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
Abstract
Risk and vulnerability encompass many dimensions of the transition from adolescence to adulthood. Transition from pediatric, parent-supervised health care to more independent, patient-centered adult health care is no exception. The tenets and algorithm of the original 2011 clinical report, "Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home," are unchanged. This updated clinical report provides more practice-based quality improvement guidance on key elements of transition planning, transfer, and integration into adult care for all youth and young adults. It also includes new and updated sections on definition and guiding principles, the status of health care transition preparation among youth, barriers, outcome evidence, recommended health care transition processes and implementation strategies using quality improvement methods, special populations, education and training in pediatric onset conditions, and payment options. The clinical report also includes new recommendations pertaining to infrastructure, education and training, payment, and research.
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Structured transition in AYA with chronic health care needs is shown to be beneficial in a number of specific situations, though data are mixed.
“Structured transition in AYA with chronic health care needs is shown to be beneficial in a number of specific situations,532,533 though data are mixed.534-536”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [532]
Developmental age is likely more relevant than chronological age in individuals with TS given the increased neurocognitive and psychosocial differences.
“General guidelines recommend that transition begin between 12 and 14 years of age, yet developmental age is likely more relevant than chronological age in individuals with TS given the increased neurocognitive and psychosocial differences.424,532,533”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [532]
Transitioning care to an adult TS team may not be feasible in many centers and regions due to lack of access to specialists who have knowledge and training in TS care and/or inadequate funding to support streamlined transition processes and resources.
“Transitioning care to an adult TS team may not be feasible in many centers and regions due to lack of access to specialists who have knowledge and training in TS care and/or inadequate funding to support streamlined transition processes and resources.532,548,550,552”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [532]
General guidelines recommend that transition begin between 12 and 14 years of age.
“General guidelines recommend that transition begin between 12 and 14 years of age, yet developmental age is likely more relevant than chronological age in individuals with TS given the increased neurocognitive and psychosocial differences.424,532,533”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [532]
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- Authors
- White, P. H., Cooley, W. C., & TRANSITIONS CLINICAL REPORT AUTHORING GROUP, A. A. O. P.
- Affiliations
- George Washington University (US)
- Dartmouth College (US)
- ORCID
- White, Patience H.
- Venue
- Pediatrics
- Publisher
- American Academy of Pediatrics (AAP)
- Published
- 2018-11-01
- Volume
- 142
- Issue
- 5
- ISSN
- 0031-4005 (ISSN-L)
- 1098-4275
- OpenAlex
- W1962894711
- Cited by
- 1,417
- References
- 12
- Citations by year
- 2026: 115 · 2025: 129 · 2024: 151 · 2023: 128 · 2022: 137 · 2021: 152 · 2020: 125 · 2019: 94 · 2018: 70 · 2017: 70 · 2016: 56 · 2015: 71 · 2014: 42 · 2013: 45 · 2012: 22
- FWCI
- 193.58
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- PEDIATRICS (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Health Sciences › Medicine › Emergency Medicine › Hospital Admissions and Outcomes
- Keywords
- care transitions, adolescence to adulthood transition, patient-centered medical home, transition planning, youth and young adults, quality improvement, barriers to transition
- MeSH terms
- Adolescent, Adult, Child, Delivery of Health Care, Humans, United States, Practice Guidelines as Topic, Patient-Centered Care, Young Adult, Quality Improvement, Transition to Adult Care
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