Cited by 311Childhood Cancer Survivors' Quality of LifeCancer survivorship and careAdolescent and Pediatric Healthcare

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Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop

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Nass, Sharyl J., Beaupin, Lynda K., Demark-Wahnefried, Wendy, Fasciano, Karen, Ganz, Patricia A., Hayes-Lattin, Brandon, Hudson, Melissa M., Nevidjon, Brenda, Oeffinger, Kevin C., Rechis, Ruth, Richardson, Lisa C., Seibel, Nita L., Smith, Ashley W.·2015·The Oncologist

DOI 10.1634/theoncologist.2014-0265PMC PMC4319626

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Abstract

Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short- and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research.

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Self-citation

Authors: Nass, S. J., Beaupin, L. K., Demark-Wahnefried, W., Fasciano, K., Ganz, P. A., Hayes-Lattin, B., Hudson, M. M., Nevidjon, B., Oeffinger, K. C., Rechis, R., Richardson, L. C., Seibel, N. L., & Smith, A. W.
Affiliations: National Academy of Medicine (US)
Roswell Park Comprehensive Cancer Center (US)
University of Alabama at Birmingham Comprehensive Cancer Center, Birmingham, Alabama, USA;
Harvard University (US)
University of California, Los Angeles (US)
Oregon Health & Science University Knight Cancer Institute, Portland, Oregon, USA;
St. Jude Children's Research Hospital (US)
Oncology Nursing Society (US)
Memorial Sloan Kettering Cancer Center (US)
Livestrong Foundation (US)
Centers for Disease Control and Prevention (US)
National Institutes of Health (US)
Corresponding author: Nass, Sharyl J.
ORCID: Nass, Sharyl J.
Beaupin, Lynda K.
Fasciano, Karen
Ganz, Patricia A.
Hudson, Melissa M.
Oeffinger, Kevin C.
Rechis, Ruth
Richardson, Lisa C.
Seibel, Nita L.
Smith, Ashley W.
Venue: The Oncologist
Publisher: Oxford University Press (OUP)
Published: 2015-01-07
Volume: 20
Issue: 2
Pages: 186-195
ISSN: 1083-7159 (ISSN-L)
1549-490X
DOI: 10.1634/theoncologist.2014-0265
PMC: PMC4319626
OpenAlex: W2106134680
Cited by: 311
References: 80
Citations by year: 2026: 14 · 2025: 26 · 2024: 21 · 2023: 28 · 2022: 25 · 2021: 27 · 2020: 40 · 2019: 27 · 2018: 34 · 2017: 33 · 2016: 28 · 2015: 6
FWCI: 5.10
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: academic.oup.com/journals/pages/open_access/funder_policies/chorus/standard_publication_model (vor)
Locations: The Oncologist (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
eScholarship (California Digital Library) (submittedVersion)
Funders: Centers for Disease Control and Prevention
National Cancer Institute
Association of American Cancer Institutes
American Association for Cancer Research
American Cancer Society
American Society of Clinical Oncology
American Society of Hematology
American Society for Radiation Oncology
AstraZeneca
Bristol-Myers Squibb
C-Change
Cancer Support Community
CEO Roundtable on Cancer
EMD Serono
Helsinn Group
LIVESTRONG Foundation
National Comprehensive Cancer Network
Novartis Oncology
Oncology Nursing Society
Sanofi Oncology
Topics: Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
Keywords: adolescent and young adult cancer, survivorship care, psychosocial needs, health care disparities, access to cancer care, provider education, research participation, long-term effects of cancer treatment
MeSH terms: Adolescent, Adult, Humans, Neoplasms, United States, National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division, Survivors, Young Adult

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Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop

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