The DOI matches its Crossref record; 80 of the 80 references it cites were found in a registry or an index.
Identifying and Addressing the Needs of Adolescents and Young Adults With Cancer: Summary of an Institute of Medicine Workshop
Open accessAbstract
Cancer is the leading disease-related cause of death in adolescents and young adults (AYAs). This population faces many short- and long-term health and psychosocial consequences of cancer diagnosis and treatment, but many programs for cancer treatment, survivorship care, and psychosocial support do not focus on the specific needs of AYA cancer patients. Recognizing this health care disparity, the National Cancer Policy Forum of the Institute of Medicine convened a public workshop to examine the needs of AYA patients with cancer. Workshop participants identified many gaps and challenges in the care of AYA cancer patients and discussed potential strategies to address these needs. Suggestions included ways to improve access to care for AYAs, to deliver cancer care that better meets the medical and psychosocial needs of AYAs, to develop educational programs for providers who care for AYA cancer survivors, and to enhance the evidence base for AYAs with cancer by facilitating participation in research.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“The National Cancer Policy Forum and National Cancer Institute have highlighted the critical need to assist patients with reducing symptom burden and promoting self-management of symptoms [12, 13].”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [12]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“For many YA cancer survivors, the impact of treatment is significant and long-lasting, including difficult physical symptoms (e.g., pain, fatigue) [4–6], psychological distress [6–10], and an increased risk of long-term health problems (e.g., second cancers, early-onset cardiovascular disease) [11–13].”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [12]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“YA cancer survivors are one of the least represented groups in clinical research [94, 95].”
From Improving symptom management for survivors of young adult cancer: rationale and study protocol for a pilot randomized controlled trial (2024) · cites this paper as [94]
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer
Temel, J. S., Greer, J. A., Muzikansky, A., Gallagher, E. R., Admane, S., Jackson, V. A., Dahlin, C. M., Blinderman, C. D., Jacobsen, J., Pirl, W. F., et al. (2010) · New England Journal of Medicine · doi:10.1056/nejmoa1000678 · Cited by 7,482
Food, nutrition, physical activity, and the prevention of cancer: a global perspective
Marmot, M. G., Atinmo, T., Byers, T., Chen, J., Hirohata, T., Jackson, A., James, W., Kolonel, L. N., Kumanyika, S., Leitzmann, C., et al. (2008) · Choice Reviews Online · doi:10.5860/choice.45-5024 · Cited by 5,368
Chronic Health Conditions in Adult Survivors of Childhood Cancer
Oeffinger, K. C., Mertens, A. C., Sklar, C. A., Kawashima, T. I., Hudson, M. M., Meadows, A. T., Friedman, D. L., Marina, N. M., Hobbie, W. L., Kadan‐Lottick, N. S., et al. (2006) · New England Journal of Medicine · doi:10.1056/nejmsa060185 · Cited by 3,597
Self-citationFrom Cancer Patient to Cancer Survivor: Lost in Transition
(2005) · PsycEXTRA Dataset · doi:10.1037/e720092007-001 · Cited by 2,364
American Society of Clinical Oncology Recommendations on Fertility Preservation in Cancer Patients
Lee, S. J., Schover, L. R., Partridge, A. H., Patrizio, P., Wallace, W. H., Hagerty, K. L., Beck, L. N., Brennan, L. V., & Oktay, K. (2006) · Journal of Clinical Oncology · doi:10.1200/jco.2006.06.5888 · Cited by 2,046
Physical activity and survival after breast cancer diagnosis
Holmes, M. D. (2005) · JAMA · doi:10.1001/jama.293.20.2479 · Cited by 1,772
Smith, T. J., Temin, S., Alesi, E. R., Abernethy, A. P., Balboni, T. A., Basch, E., FERRELL, B. R., Loscalzo, M., Meier, D. E., Paice, J. A., et al. (2012) · Journal of Clinical Oncology · doi:10.1200/jco.2011.38.5161 · Cited by 1,313
McNutt, M. K. (2017) · Human Rights Documents online · doi:10.1163/2210-7975_hrd-9978-20190011 · Cited by 1,183
Mulrooney, D. A., Yeazel, M. W., Kawashima, T. I., Mertens, A. C., Mitby, P. A., Stovall, M., Donaldson, S. S., Green, D. M., Sklar, C. A., Robison, L. L., et al. (2009) · BMJ · doi:10.1136/bmj.b4606 · Cited by 1,171
Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis
Levit, L. A., Balogh, E. P., Nass, S. J., & Ganz, P. A. (2014) · Cited by 956
Self-citation
Research works printed but not linked: 13
- National Cancer Institute. A Snapshot of Adolescent and Young Adult Cancers. National Institutes of Health, 2013
- Adolescent and Young Adult Oncology Progress Review Group. Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer. National Institutes of Health, 2006
- Young Adult Alliance LIVESTRONG. Closing the Gap: A Strategic Plan: Addressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group. Lance Armstrong Foundation, 2007
- NCI. Adolescent and Young Adult Health Outcomes & Patient Experience Study, 2014
- Next Steps for Adolescent and Young Adult Oncology: A Scientific Update
- American Medical Association. AMA Adopts New Policies on First Day of Voting at Annual Meeting. June 17, 2013
- American Society of Clinical Oncology. Fertility Preservation, 2013
- Oeffinger, Long-Term and Late Effects Following AYA Cancer. Washington, D.C.: Presented at Institute of Medicine National Cancer Policy Forum/LIVESTRONG Workshop on Addressing the Needs of Adolescents and Young Adults with Cancer, 2013
- Childhood Cancer Survivorship, 2003, Improving Care and Quality of Life
- Block, 2013, AYA specific programs
- Department of Health and Human Services (ASPE Issue Brief) Number of Young Adults Gaining Insurance Due to the Affordable Care Act Now Tops 3 Million. June 2012
- Department of Health and Human Services (ASPE Issue Brief): Health Insurance Marketplace: Summary Enrollment Report for the Initial Annual Open Enrollment Period. May 1, 2012
- Harlan, AYA HOPE Study: A Population-based Cohort Study of Adolesents and Young Adults with Cancer. Presented at the Institute of Medicine National Cancer Policy Forum/LIVESTRONG Workshop on Addressing the Needs of Adolescents and Young Adults with Cancer, Washington, D.C., 2013
Cited by
Sorted by citations
Breast Cancer, Version 4.2017, NCCN Clinical Practice Guidelines in Oncology
Gradishar, W. J., Anderson, B. O., Balassanian, R., Blair, S. L., Burstein, H. J., Cyr, A. E., ELIAS, A. D., Farrar, W. B., Forero, A., Giordano, S. H., et al. (2018) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2018.0012 · Cited by 1,612
Social well‐being among adolescents and young adults with cancer: A systematic review
Warner, E. L., Kent, E. E., Trevino, K. M., Parsons, H. M., Zebrack, B., & Kirchhoff, A. C. (2016) · Cancer · doi:10.1002/cncr.29866 · Cited by 374
Barnett, M., McDonnell, G., DeRosa, A., Schuler, T., Philip, E., Peterson, L., Touza, K., Jhanwar, S., Atkinson, T. M., & Ford, J. S. (2016) · Journal of Cancer Survivorship · doi:10.1007/s11764-016-0527-6 · Cited by 308
Adolescent and Young Adult Oncology, Version 2.2018, NCCN Clinical Practice Guidelines in Oncology
Coccia, P. F., Pappo, A. S., Beaupin, L., Borges, V. F., Borinstein, S. C., Chugh, R., Dinner, S., Folbrecht, J., Frazier, A. L., Goldsby, R., et al. (2018) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2018.0001 · Cited by 295
Self-citationRosenberg, A. R., Bradford, M. C., McCauley, E., Curtis, J. R., Wolfe, J., Baker, K. S., & Yi‐Frazier, J. P. (2018) · Cancer · doi:10.1002/cncr.31666 · Cited by 215
Adolescent and Young Adult (AYA) Cancer Survivorship Practices: An Overview
Janssen, S. H. M., van der Graaf, W. T. A., van der Meer, D. J., Manten‐Horst, E., & Husson, O. (2021) · Cancers · doi:10.3390/cancers13194847 · Cited by 216
Bhatia, S., Pappo, A. S., Acquazzino, M. A., Allen‐Rhoades, W. A., Barnett, M. E., Borinstein, S. C., Casey, R. L., Choo, S., Chugh, R. K., Dinner, S. N., et al. (2023) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2023.0040 · Cited by 167
Self-citationThe Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors
Jones, J. M., Fitch, M. I., Bongard, J., Maganti, M. D., Gupta, A. A., D’Agostino, N. M., & Korenblum, C. (2020) · Journal of Clinical Medicine · doi:10.3390/jcm9051444 · Cited by 157
Snaman, J. M., Kaye, E. C., Lu, J., Sykes, A. D., & Baker, J. N. (2017) · Journal of Palliative Medicine · doi:10.1089/jpm.2016.0451 · Cited by 132
Kaul, S., Avila, J. C., Mutambudzi, M. S., Russell, H. V., Kirchhoff, A. C., & Schwartz, C. L. (2016) · Cancer · doi:10.1002/cncr.30417 · Cited by 127
Hope and benefit finding: Results from the PRISM randomized controlled trial
Rosenberg, A. R., Bradford, M. C., Barton, K. S., Etsekson, N., McCauley, E., Curtis, J. R., Wolfe, J., Baker, K. S., & Yi‐Frazier, J. P. (2018) · Pediatric Blood & Cancer · doi:10.1002/pbc.27485 · Cited by 110
Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words
Wong, A. W. K., Chang, T.-T., Christopher, K., Lau, S. C. L., Beaupin, L. K., Love, B., Lipsey, K. L., & Feuerstein, M. (2017) · Journal of Cancer Survivorship · doi:10.1007/s11764-017-0613-4 · Cited by 109
Self-citationDepression in adolescents and young adults with cancer
Park, E. M., & Rosenstein, D. L. (2015) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2015.17.2/epark · Cited by 108
Alpert, A., CichoskiKelly, E. M., & Fox, A. D. (2017) · Journal of Homosexuality · doi:10.1080/00918369.2017.1321376 · Cited by 121
Wiener, L. S., Weaver, M. S., Sansom‐Daly, U. M., & Bell, C. J. (2015) · Clinical Oncology in Adolescents and Young Adults · doi:10.2147/coaya.s49176 · Cited by 108
Digital interventions to support adolescents and young adults with cancer: systematic review
McCann, L., McMillan, K. A., & Pugh, G. (2019) · JMIR Cancer · doi:10.2196/12071 · Cited by 98
Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time?
Husson, O., Zebrack, B. J., Aguilar, C., Hayes‐Lattin, B., & Cole, S. (2017) · Cancer · doi:10.1002/cncr.30656 · Cited by 95
Self-citationSiembida, E. J., Loomans-Kropp, H. A., Trivedi, N. S., O’Mara, A. M., Sung, L., Tamí-Maury, I. M., Freyer, D. R., & Roth, M. E. (2019) · Cancer · doi:10.1002/cncr.32675 · Cited by 88
Recklitis, C. J., Blackmon, J. E., & Chang, G. (2017) · Psychological Assessment · doi:10.1037/pas0000427 · Cited by 86
Taylor, R. M., Feltbower, R. G., Aslam, N., Raine, R., Whelan, J. S., & Gibson, F. (2016) · BMJ Open · doi:10.1136/bmjopen-2016-011361 · Cited by 85
Reimagining care for adolescent and young adult cancer programs: Moving with the times
Gupta, A. A., Papadakos, J. K., Jones, J. M., Amin, L., Chang, E. K., Korenblum, C., Mina, D. S., McCabe, L., Mitchell, L., & Giuliani, M. E. (2016) · Cancer · doi:10.1002/cncr.29834 · Cited by 76
Cost‐related medication nonadherence among adolescent and young adult cancer survivors
Kaul, S., Avila, J. C., Mehta, H. B., Rodriguez, A. M., Kuo, Y., & Kirchhoff, A. C. (2017) · Cancer · doi:10.1002/cncr.30648 · Cited by 83
Long-term complications in adolescent and young adult leukemia survivors
Baker, K. S., & Syrjala, K. L. (2018) · Hematology · doi:10.1182/asheducation-2018.1.146 · Cited by 76
Roth, M. E., O’Mara, A. M., Seibel, N. L., Dickens, D. S., Langevin, A., Pollock, B. H., & Freyer, D. R. (2016) · Journal of Oncology Practice · doi:10.1200/jop.2015.009084 · Cited by 77
Self-citationUnmet Needs for Psychosocial Care in Hematologic Malignancies and Hematopoietic Cell Transplant
Barata, A., Wood, W. A., Choi, S. W., & Jim, H. (2016) · Current Hematologic Malignancy Reports · doi:10.1007/s11899-016-0328-z · Cited by 78
Wu, Y. P., Yi, J., McClellan, J. R., Kim, J., Tian, T., Parsons, B. G., Kirchhoff, A. C., Holton, A. E., & Wright, J. A. (2015) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2015.0028 · Cited by 77
Quality of Life and Its Predictors Among Children and Adolescents With Cancer
Pan, H., Wu, L., & Wen, S. (2016) · Cancer Nursing · doi:10.1097/ncc.0000000000000433 · Cited by 64
Shay, L. A., Parsons, H. M., & Vernon, S. W. (2017) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2016.0053 · Cited by 63
Husson, O., Huijgens, P. C., & van der Graaf, W. T. A. (2018) · Blood · doi:10.1182/blood-2017-11-778555 · Cited by 62
van den Brink, G., Stapersma, L., Vlug, L. E., Rizopolous, D., Bodelier, A. G., van Wering, H., Hurkmans, P. C. W. M., Stuyt, R. J. L., Hendriks, D. M., van der Burg, J. A. T., et al. (2018) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.14832 · Cited by 61
Carretier, J., Boyle, H. J., Duval, S., Philip, T. O., Laurence, V., Stark, D., Berger, C., Marec‐Bérard, P., & Fervers, B. (2015) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2015.0035 · Cited by 60
Clark, J. K., & Fasciano, K. M. (2013) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909113510394 · Cited by 59
Self-citationKopp, L. M., Gastelum, Z., Guerrero, C. H., Howe, C. L., Hingorani, P., & Hingle, M. (2017) · Pediatric Blood & Cancer · doi:10.1002/pbc.26166 · Cited by 56
Hughes, L., Taylor, R. M., Beckett, A. E., Lindner, O. C., Martin, A., McCulloch, J., Morgan, S. J., Soanes, L., Uddin, R., & Stark, D. (2024) · Cancers · doi:10.3390/cancers16071332 · Cited by 76
Keegan, T. H. M., Kushi, L. H., Li, Q., Brunson, A. M., Chawla, X., Chew, H. K., Malogolowkin, M. H., & Wun, T. (2018) · Journal of Cancer Survivorship · doi:10.1007/s11764-018-0678-8 · Cited by 57
Social support in cancer: How do patients want us to help?
Korotkin, B. D., Hoerger, M. P., Voorhees, S. E., Allen, C. O., Robinson, W. R., & Duberstein, P. R. (2019) · Journal of Psychosocial Oncology · doi:10.1080/07347332.2019.1580331 · Cited by 59
Mack, J. W., Fisher, L., Kushi, L., Chao, C., Vega, B., Rodrigues, G., Josephs, I., Brock, K. E., Buchanan, S., Casperson, M., et al. (2021) · JAMA Network Open · doi:10.1001/jamanetworkopen.2021.21888 · Cited by 55
Self-citationLee, D. Y., Teng, A., Pedersen, R. C., Tavangari, F. R., Attaluri, V., McLemore, E. C., Stern, S. L., Bilchik, A. J., & Goldfarb, M. R. (2016) · Annals of Surgical Oncology · doi:10.1245/s10434-016-5626-0 · Cited by 54
Signorelli, C., Wakefield, C. E., Fardell, J. E., Foreman, T., Johnston, K. A., Emery, J. D., Thornton‐Benko, E., Girgis, A., Lie, H. C., Cohn, R. J., et al. (2018) · The Oncologist · doi:10.1634/theoncologist.2018-0103 · Cited by 54
Patterns of family management for adolescent and young adult brain tumor survivors.
Deatrick, J. A., Barakat, L. P., Knafl, G. J., Hobbie, W. L., Ogle, S. K., Ginsberg, J. P., Fisher, M. J., Hardie, T., Reilly, M., Broden, E. G., et al. (2018) · Journal of Family Psychology · doi:10.1037/fam0000352 · Cited by 53
Linder, L. A., Erickson, J. M., Stegenga, K. A., Macpherson, C. F., Wawrzynski, S. E., Wilson, C. M., & Ameringer, S. (2017) · Supportive Care in Cancer · doi:10.1007/s00520-017-3811-8 · Cited by 51
The Lifestyle Information and Intervention Preferences of Teenage and Young Adult Cancer Survivors
Pugh, G., Hough, R. E., Gravestock, H. L., Haddrell, J. B., Beeken, R. J., & Fisher, A. (2017) · Cancer Nursing · doi:10.1097/ncc.0000000000000508 · Cited by 50
Janssen, S. H. M., Vlooswijk, C., Manten‐Horst, E., Sleeman, S. H. E., Bijlsma, R. M., Kaal, S. E. J., Kerst, J. M., Tromp, J. M., Bos, M. E. M. M., van der Hulle, T., et al. (2023) · Cancer Medicine · doi:10.1002/cam4.6001 · Cited by 51
Religious/spiritual coping and spiritual distress in people with cancer
Silva, G. C. N., dos Reis, D. C., Miranda, T. P. S., Melo, R. N. R., Coutinho, M. A. P., Paschoal, G. D. S., & Chaves, É. D. C. L. (2019) · Revista Brasileira de Enfermagem · doi:10.1590/0034-7167-2018-0585 · Cited by 56
Dewar, E. O., Ahn, C. W., Eraj, S., Mahal, B. A. V., & Sanford, N. N. (2021) · Journal of Cancer Survivorship · doi:10.1007/s11764-020-00969-6 · Cited by 48
Rosenberg, A., Zhou, C., Bradford, M., Salsman, J., Sexton, K., O'Daffer, A., & Yi-Frazier, J. P. (2021) · JAMA Network Open · doi:10.1001/jamanetworkopen.2021.36039 · Cited by 44
Keegan, T. H. M., Li, Q., Steele, A. E., Alvarez, E. M., Brunson, A. M., Flowers, C. R., Glaser, S. L., & Wun, T. (2018) · Cancer Causes & Control · doi:10.1007/s10552-018-1025-0 · Cited by 47
Engagement of young adult cancer survivors within a Facebook-based physical activity intervention
Valle, C. G., & Tate, D. F. (2017) · Translational Behavioral Medicine · doi:10.1007/s13142-017-0483-3 · Cited by 45
Renal cell carcinoma incidence rates and trends in young adults aged 20-39 years
Palumbo, C., Pecoraro, A., Rosiello, G., Luzzago, S., Deuker, M., Stolzenbach, L. F., Tian, Z., Shariat, S. F., Simeone, C., Briganti, A., et al. (2020) · Cancer Epidemiology · doi:10.1016/j.canep.2020.101762 · Cited by 47
The Health Behavior Information Needs and Preferences of Teenage and Young Adult Cancer Survivors
Pugh, G., Hough, R. E., Gravestock, H. L., Jackson, S. E., & Fisher, A. (2017) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2016.0089 · Cited by 43
Food insecurity among adult cancer survivors in the United States
Trego, M. L., Baba, Z., DiSantis, K. I., & Longacre, M. L. (2019) · Journal of Cancer Survivorship · doi:10.1007/s11764-019-00783-9 · Cited by 42
NCCN Guidelines® Insights: Survivorship, Version 2.2024
Sanft, T. B., Day, A. T., Goldman, M. E., Ansbaugh, S. M., Armenian, S. H., Baker, K. S., Ballinger, T. J., Demark‐Wahnefried, W., Fairman, N. P., Feliciano, J. L., et al. (2024) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2024.0062 · Cited by 41
Self-citationCognition in Adolescent and Young Adults Diagnosed With Cancer: An Understudied Problem
Jim, H., Jennewein, S., Quinn, G. P., Reed, D. R., & Small, B. J. (2018) · Journal of Clinical Oncology · doi:10.1200/jco.2018.78.0627 · Cited by 41
Donovan, E., Martin, S. R., Seidman, L. C., Zeltzer, L. K., Cousineau, T. M., Payne, L. A., Trant, M., Weiman, M., Knoll, M., & Federman, N. C. (2019) · JMIR mhealth and uhealth · doi:10.2196/10921 · Cited by 40
End‐of‐life care among adolescent and young adult patients with cancer living in poverty
Roeland, E. J., Lindley, L. C., Gilbertson‐White, S., Saeidzadeh, S., Currie, E. R., Friedman, S., Bakitas, M. A., & Mack, J. W. (2019) · Cancer · doi:10.1002/cncr.32609 · Cited by 38
Rural cancer survivors’ health information needs post-treatment
Palmer, N. R., Avis, N. E., Fino, N. F., Tooze, J. A., & Weaver, K. E. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2020.02.034 · Cited by 38
Chan, A., Cheng, I., Wang, C., Tan, C. J., Toh, Y. L., Ng, D. Q., Koh, Y. Q., Zhou, H., Foo, K. M., Chan, R. J., et al. (2022) · Cancer Medicine · doi:10.1002/cam4.5295 · Cited by 37
Hølge‐Hazelton, B., Timm, H. U., Graugaard, C. L., Boisen, K. A., & Sperling, C. D. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3322-z · Cited by 35
Palliative care considerations and practices for adolescents and young adults with cancer
Upshaw, N. C., Roche, A., Gleditsch, K., Connelly, E., Wasilewski‐Masker, K., & Brock, K. E. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.28781 · Cited by 35
Psychosocial Distress Due to Interference of Normal Developmental Milestones in AYAs with Cancer
Itzep, N. P., & Roth, M. E. (2022) · Children · doi:10.3390/children9030309 · Cited by 34
Kirchhoff, A. C., Fowler, B., Warner, E. L., Pannier, S. T., Fair, D. B., Spraker‐Perlman, H. L., Yancey, J., Bott, B., Reynolds, C. C., & Randall, R. L. (2017) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2017.0011 · Cited by 34
Psychosocial Interventions for Adolescents and Young Adults With Cancer: An Integrative Review
Thornton, C. P., Ruble, K., & Kozachik, S. (2020) · Journal of Pediatric Oncology Nursing · doi:10.1177/1043454220919713 · Cited by 34
Disparities in Adolescents and Young Adults with Cancer
Isenalumhe, L. L., Fridgen, O., Beaupin, L. K., Quinn, G. P., & Reed, D. R. (2016) · Cancer Control · doi:10.1177/107327481602300414 · Cited by 33
Self-citationPhillips, C. R., Haase, J. E., Broome, M. E., Carpenter, J. S., & Frankel, R. M. (2017) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.1080/17482631.2017.1325699 · Cited by 33
Schwartz, L. A., Daniel, L. C., Henry‐Moss, D., Bonafide, C. P., Li, Y., Psihogios, A. M., Butler, E. S., Szalda, D. E., Hoeve, E. S. V., Hobbie, W. L., et al. (2019) · Psycho-Oncology · doi:10.1002/pon.5287 · Cited by 33
The Adolescent and Young Adult (AYA) Horizon Study: An AYA Cancer Survivorship Cohort
Nichols, H. B., Baggett, C. D., Engel, S. M., Getahun, D. T., Anderson, C., Cannizzaro, N. T., Green, L., Gupta, P., Laurent, C. A., Lin, P. C., et al. (2021) · Cancer Epidemiology Biomarkers & Prevention · doi:10.1158/1055-9965.epi-20-1315 · Cited by 33
Gibson, F., Hibbins, S. J., Grew, T., Morgan, S. J., Pearce, S., Stark, D., & Fern, L. A. (2016) · Psycho-Oncology · doi:10.1002/pon.4061 · Cited by 32
Gorman, J. R., Standridge, D., Lyons, K. S., Elliot, D. L., Winters‐Stone, K. M., Julian, A. K., Weprin, J., Storksdieck, M., & Hayes‐Lattin, B. (2017) · Patient Education and Counseling · doi:10.1016/j.pec.2017.08.020 · Cited by 32
Self-citationPhillips, C. R., & Haase, J. E. (2017) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2017.0056 · Cited by 31
Mittal, N., Saha, A., Avutu, V., Monga, V., Freyer, D. R., & Roth, M. E. (2022) · Scientific Reports · doi:10.1038/s41598-022-07703-5 · Cited by 31
Future health of AYA survivors
Burkart, M., Sanford, S. D., Dinner, S. N., Sharp, L. K., & Kinahan, K. E. (2018) · Pediatric Blood & Cancer · doi:10.1002/pbc.27516 · Cited by 31
Lathren, C., Bluth, K., Campo, R., Tan, W., & Futch, W. (2018) · Self and Identity · doi:10.1080/15298868.2018.1451363 · Cited by 30
Hauken, M. A., Grue, M., & Dyregrov, A. (2019) · Scandinavian Journal of Psychology · doi:10.1111/sjop.12572 · Cited by 30
Cancer in adolescents and young adults: National incidence and characteristics in Japan
Inoue, I., Nakamura, F., Matsumoto, K., Takimoto, T., & Higashi, T. (2017) · Cancer Epidemiology · doi:10.1016/j.canep.2017.10.010 · Cited by 29
Fitch, M. I., Nicoll, I., Lockwood, G., Chan, R. J., & Grundy, P. E. (2020) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2020.0097 · Cited by 29
Survivors’ Dilemma: Young Adult Cancer Survivors’ Perspectives of Work-Related Goals
Ghazal, L. V., Merriman, J. D., Santacroce, S. J., & Dickson, V. V. (2021) · Workplace Health & Safety · doi:10.1177/21650799211012675 · Cited by 31
Lau, N., Bradford, M. C., Steineck, A., Scott, S., Bona, K. O., Yi‐Frazier, J. P., McCauley, E., & Rosenberg, A. R. (2019) · Palliative Medicine · doi:10.1177/0269216319886215 · Cited by 28
The Lived Experience of Young Adult Cancer Survivors after Treatment: A Qualitative Study
Crowder, S. L., Sauls, R., Gudenkauf, L. M., James, C., Skinner, A. M., Reed, D. R., & Stern, M. (2023) · Nutrients · doi:10.3390/nu15143145 · Cited by 27
ESMO/ASCO Recommendations for a Global Curriculum in Medical Oncology Edition 2023
Čufer, T., & Kosty, M. P. (2023) · ESMO Open · doi:10.1016/j.esmoop.2023.101631 · Cited by 28
Eng, L., Bender, J., Hueniken, K., Kassirian, S., Mitchell, L., Aggarwal, R., Paulo, C. B., Smith, E. C., Geist, I., Balaratnam, K., et al. (2020) · Journal of Geriatric Oncology · doi:10.1016/j.jgo.2020.02.011 · Cited by 28
Donovan, E., Martin, S. R., Seidman, L. C., Zeltzer, L. K., Cousineau, T. M., Payne, L. A., Knoll, M., Weiman, M., & Federman, N. C. (2021) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2020.0200 · Cited by 27
Lau, N., Bradford, M. C., Steineck, A., Junkins, C. C., Yi‐Frazier, J. P., McCauley, E., & Rosenberg, A. R. (2019) · Psycho-Oncology · doi:10.1002/pon.5098 · Cited by 26
Understanding Causes of Inferior Outcomes in Adolescents and Young Adults With Cancer
Wolfson, J. A., Kenzik, K. M., Foxworthy, B., Salsman, J. M., Donahue, K., Nelson, M. V., Littrell, M. B., Williams, G. R., & Levine, J. M. (2023) · Journal of the National Comprehensive Cancer Network · doi:10.6004/jnccn.2023.7056 · Cited by 26
Survivorship Issues in Adolescent and Young Adult Oncology
Overholser, L., Kilbourn, K. M., & Liu, A. J. (2017) · Medical Clinics of North America · doi:10.1016/j.mcna.2017.06.002 · Cited by 26
Roth, M. E., Unger, J. M., O’Mara, A. M., Lewis, M. A., Budd, T., Johnson, R. H., Pollock, B. H., Blanke, C. D., & Freyer, D. R. (2020) · Cancer Medicine · doi:10.1002/cam4.2891 · Cited by 25
Abrahão, R., Huynh, J. C., Benjamin, D. J., Li, Q. W., Winestone, L. E., Muffly, L. S., & Keegan, T. H. M. (2020) · International Journal of Epidemiology · doi:10.1093/ije/dyaa184 · Cited by 25
ESMO/ASCO Recommendations for a Global Curriculum in Medical Oncology Edition 2023
Čufer, T., Kosty, M. P., & on behalf of the Curriculum Development Subgroup—ESMO/ASCO Global Curriculum Working Group (2023) · JCO Global Oncology · doi:10.1200/go.23.00277 · Cited by 26
Tan, C. J., Mah, J. J. J., Goh, W. L., Poon, E. Y. L., Rashid, M. F. B. H., & Chan, A. (2020) · Psycho-Oncology · doi:10.1002/pon.5456 · Cited by 25
Disparities and Barriers to Pediatric Cancer Survivorship Care
Mobley, E. M., Moke, D. J., Milam, J. E., Ochoa, C. Y., Stal, J., Osazuwa, N., Bolshakova, M., Kemp, J., Dinalo, J. E., Motala, A., et al. (2021) · doi:10.23970/ahrqepctb39 · Cited by 26
Victorson, D. E., Garcia, S. F., Sanford, S. D., Snyder, M. A., Lampert-Okin, S. L., & Salsman, J. M. (2019) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2019.0028 · Cited by 23
Smith, A., Fogarasi, M. C., Lustberg, M. B., & Nekhlyudov, L. (2021) · Journal of Cancer Survivorship · doi:10.1007/s11764-021-01098-4 · Cited by 23
Self-citationEducational Needs of Health Professionals Caring for Adolescents and Young Adults with Cancer
Bradford, N., Greenslade, R., Edwards, R., Orford, R., Roach, J., & Henney, R. (2018) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2017.0082 · Cited by 22
Roth, M. E., Mittal, N., Saha, A., & Freyer, D. R. (2020) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2019.0139 · Cited by 23
Allogeneic stem cell transplantation in adolescents and young adults with primary immunodeficiencies
Albert, M. H., Hauck, F. H., Wiebking, V., Aydin, S., Notheis, G., Koletzko, S., Führer, M., Tischer, J., Klein, C., & Schmid, I. (2017) · The Journal of Allergy and Clinical Immunology In Practice · doi:10.1016/j.jaip.2017.07.045 · Cited by 22
Abrahão, R., Li, Q. W., Malogolowkin, M. H., Alvarez, E. M., Ribeiro, R. C., Wun, T., & Keegan, T. H. M. (2020) · British Journal of Haematology · doi:10.1111/bjh.16539 · Cited by 21
Late Effects in Survivors of Adolescent and Young Adult Acute Lymphoblastic Leukemia
Muffly, L. S., Maguire, F. B., Li, Q., Kennedy, V. E., & Keegan, T. H. M. (2020) · JNCI Cancer Spectrum · doi:10.1093/jncics/pkaa025 · Cited by 21
Valle, C. G., Camp, L. N., Diamond, M., Nezami, B. T., LaRose, J. G., Pinto, B. M., & Tate, D. F. (2022) · Trials · doi:10.1186/s13063-022-06148-5 · Cited by 20
Keadle, S. K., Meuter, L., Phelan, S., & Phillips, S. M. (2021) · Journal of Behavioral Medicine · doi:10.1007/s10865-021-00218-w · Cited by 21
Emotional Distress and Financial Toxicity in Younger Adult Patients Undergoing Oncologic Surgery
Tran, T. B., Malhotra, G. K., Razavi, M., Clark, K. L., Loscalzo, M. J., Kruper, L. L., Raoof, M., Woo, Y., Trisal, V., Fong, Y., et al. (2022) · Annals of Surgery · doi:10.1097/sla.0000000000005593 · Cited by 20
Valle, C. G., Pinto, B. M., LaRose, J. G., Diamond, M. A., Horrell, L. N., Nezami, B. T., Hatley, K. E., Coffman, E. M., Polzien, K. M., Hales, D. P., et al. (2021) · Contemporary Clinical Trials · doi:10.1016/j.cct.2021.106293 · Cited by 21
Metadata
- Authors
- Nass, S. J., Beaupin, L. K., Demark-Wahnefried, W., Fasciano, K., Ganz, P. A., Hayes-Lattin, B., Hudson, M. M., Nevidjon, B., Oeffinger, K. C., Rechis, R., Richardson, L. C., Seibel, N. L., & Smith, A. W.
- Affiliations
- National Academy of Medicine (US)
- Roswell Park Comprehensive Cancer Center (US)
- University of Alabama at Birmingham Comprehensive Cancer Center, Birmingham, Alabama, USA;
- Harvard University (US)
- University of California, Los Angeles (US)
- Oregon Health & Science University Knight Cancer Institute, Portland, Oregon, USA;
- St. Jude Children's Research Hospital (US)
- Oncology Nursing Society (US)
- Memorial Sloan Kettering Cancer Center (US)
- Livestrong Foundation (US)
- Centers for Disease Control and Prevention (US)
- National Institutes of Health (US)
- Corresponding author
- Nass, Sharyl J.
- ORCID
- Venue
- The Oncologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2015-01-07
- Volume
- 20
- Issue
- 2
- Pages
- 186-195
- ISSN
- 1083-7159 (ISSN-L)
- 1549-490X
- PMC
- PMC4319626
- OpenAlex
- W2106134680
- Cited by
- 311
- References
- 80
- Citations by year
- 2026: 14 · 2025: 26 · 2024: 21 · 2023: 28 · 2022: 25 · 2021: 27 · 2020: 40 · 2019: 27 · 2018: 34 · 2017: 33 · 2016: 28 · 2015: 6
- FWCI
- 5.10
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- academic.oup.com/journals/pages/open_access/funder_policies/chorus/standard_publication_model (vor)
- Locations
- The Oncologist (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- Centers for Disease Control and Prevention
- National Cancer Institute
- Association of American Cancer Institutes
- American Association for Cancer Research
- American Cancer Society
- American Society of Clinical Oncology
- American Society of Hematology
- American Society for Radiation Oncology
- AstraZeneca
- Bristol-Myers Squibb
- C-Change
- Cancer Support Community
- CEO Roundtable on Cancer
- EMD Serono
- Helsinn Group
- LIVESTRONG Foundation
- National Comprehensive Cancer Network
- Novartis Oncology
- Oncology Nursing Society
- Sanofi Oncology
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Keywords
- adolescent and young adult cancer, survivorship care, psychosocial needs, health care disparities, access to cancer care, provider education, research participation, long-term effects of cancer treatment
- MeSH terms
- Adolescent, Adult, Humans, Neoplasms, United States, National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division, Survivors, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
